how do you explain to others what is to you?

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PaulW
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21 Mar 2007, 4:38 pm

Ribbons wrote:
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It's difficult for me to explain to others because I'm rather outgoing and have a professional job. Still, it can take me three tries to leave my apartment to go to work because I am so lost in my thoughts that I forget everything I need to take to work with me. I have a very short attention span. I do not make cognitive shifts well. I get confused very easily--sometimes I have to think very diligently about getting somewhere that I've been to many times. I get lost in obsessive thoughts. Sometimes I'm amazed that I can hold a job. It's hard to explain these things to people who think that I'm competent at work. They don't know how hard it is for me. Also, since I've been diagnosed with Asperger's, I know these difficulties will always be with me.

Still, I love my life and wouldn’t trade it for anything!! !! !!

lol i started to cry when i read your comment because it defines exactly what i struggle with day in day out
im in a very professional job and yet thngs like getting out of my room and obssesive thoughts ruin everything
how can i normal person understand when all they see is me being badly behaved
x


I think most people without Asperger's don't realize it is a daily struggle to live with it. Autism never takes a day off. Just when I think I'm doing well I'm not. There are many times it seems like one step forward and two steps back. Before my diagnosis I often wondered why i couldn't manage to do things that others seemed to do easily. Others were confused as well and were thinking, "He is so bright--why can't he be more consistent? He forgets the easiest things." Well, now I know why. I'm still trying to get used to it. At some point I thought it would all go away. Now I know it will not.



SteveK
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21 Mar 2007, 5:29 pm

PaulW wrote:
Ribbons wrote:
PaulW wrote:
It's difficult for me to explain to others because I'm rather outgoing and have a professional job. Still, it can take me three tries to leave my apartment to go to work because I am so lost in my thoughts that I forget everything I need to take to work with me. I have a very short attention span. I do not make cognitive shifts well. I get confused very easily--sometimes I have to think very diligently about getting somewhere that I've been to many times. I get lost in obsessive thoughts. Sometimes I'm amazed that I can hold a job. It's hard to explain these things to people who think that I'm competent at work. They don't know how hard it is for me. Also, since I've been diagnosed with Asperger's, I know these difficulties will always be with me.

Still, I love my life and wouldn’t trade it for anything!! !! !!

lol i started to cry when i read your comment because it defines exactly what i struggle with day in day out
im in a very professional job and yet thngs like getting out of my room and obssesive thoughts ruin everything
how can i normal person understand when all they see is me being badly behaved
x


I think most people without Asperger's don't realize it is a daily struggle to live with it. Autism never takes a day off. Just when I think I'm doing well I'm not. There are many times it seems like one step forward and two steps back. Before my diagnosis I often wondered why i couldn't manage to do things that others seemed to do easily. Others were confused as well and were thinking, "He is so bright--why can't he be more consistent? He forgets the easiest things." Well, now I know why. I'm still trying to get used to it. At some point I thought it would all go away. Now I know it will not.


Well, BE CAREFUL when assessing your problems! SOMETIMES things happen like they did at one class I had. I raised my hand, and asked a question. The teacher could NOT answer it, but asked if anyone else had a problem. They said NO, and LAUGHED! I looked like an IDIOT! A class of like 20, and I was the only one that didn't get it!?!?!? Well, I figured it out MYSELF! At the end, he asked if there were any questions. MANY raised their hands, but I was NOT one of them! I had to laugh!! !! !! WHY?????? Because EVERY question related to MY question! Whether they knew it or not, they did NOT understand what I didn't because, if they did, they would NOT have had the questions they did. Yet **I** figured it out! I wasn't the dumbest after all! I was the SMARTEST! So you don't learn the same way! So some things come harder! SOME come EASIER!! !! I'm in a job where I know more than nearly everyone else, yet they studied LONG AND HARD for what came naturally to me! :lol: :lol: :lol: :lol: :lol: :lol:

Steve



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22 Mar 2007, 1:22 am

I need a good way to explain too since my friend refuses to read anything. A video would be perfect but all I've found are ones containing anxiety and lack of eye contact. Both of which don't affect me more than a NT. They may get the wrong idea and think I'm making the whole thing up or something...


Time to youtube it again.



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22 Mar 2007, 8:51 am

I started a new job recently and was having problems because it is a small place with a lot of people, a new language etc. I can normally try not be too odd but it was obvious things were going really badly so for the first time I admitted I had AS to my boss and offered to leave. He has been okay about it and wants me to stay but I think he has read a few things - like AS people being super intelligent - and now thinks I am like that so there is MORE pressure to work harder and produce results (I already do approx 14 hours, 7 days). Also I think he has told the other people here I am AS and they have read other things and most won't look at me anymore as they are embarassed (I may start playing with string...). Time to look for yet another new job?



Aspie_for_the_Lord
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22 Mar 2007, 9:06 am

alexbeetle wrote:
I started a new job recently and was having problems because it is a small place with a lot of people, a new language etc. I can normally try not be too odd but it was obvious things were going really badly so for the first time I admitted I had AS to my boss and offered to leave. He has been okay about it and wants me to stay but I think he has read a few things - like AS people being super intelligent - and now thinks I am like that so there is MORE pressure to work harder and produce results (I already do approx 14 hours, 7 days). Also I think he has told the other people here I am AS and they have read other things and most won't look at me anymore as they are embarassed (I may start playing with string...). Time to look for yet another new job?


I'd ride it out for a few weeks... if people begin to demand superhuman feats or are patronising to you, then leave..

my experience is once the novalty wears off, they will forget about it... :)


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cobweb
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23 Mar 2007, 4:22 pm

Noetic wrote:
That's why I don't usually mention it, because it means people are more likely to put me in a position where I am confronted with unpredictable conversations. I can rabbit on about autism online for ages, but when I am put on the spot and have to explain things in relation to *me*, I'm lost for words.


I have the same problem. But lately I almost feel dissociated from myself and my behavior. When people ask how I'm feeling, why I did something, or what I'm thinking about, I get stuck...



Ribbons
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23 Mar 2007, 4:23 pm

cobweb wrote:
Noetic wrote:
That's why I don't usually mention it, because it means people are more likely to put me in a position where I am confronted with unpredictable conversations. I can rabbit on about autism online for ages, but when I am put on the spot and have to explain things in relation to *me*, I'm lost for words.


I have the same problem. But lately I almost feel dissociated from myself and my behavior. When people ask how I'm feeling, why I did something, or what I'm thinking about, I get stuck...

me too
i hate that feeling


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SteveK
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23 Mar 2007, 4:44 pm

Ribbons wrote:
cobweb wrote:
Noetic wrote:
That's why I don't usually mention it, because it means people are more likely to put me in a position where I am confronted with unpredictable conversations. I can rabbit on about autism online for ages, but when I am put on the spot and have to explain things in relation to *me*, I'm lost for words.


I have the same problem. But lately I almost feel dissociated from myself and my behavior. When people ask how I'm feeling, why I did something, or what I'm thinking about, I get stuck...

me too
i hate that feeling


SAME HERE! I have made lists, etc.... But if someone asks me up front, I might have trouble. HECK, the SAME was true when trying to explain to someone recently why I wanted a package rerouted appropriately. So it isn't even specific to AS with me.

Steve



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24 Mar 2007, 10:57 am

cobweb wrote:
I have the same problem. But lately I almost feel dissociated from myself and my behavior. When people ask how I'm feeling, why I did something, or what I'm thinking about, I get stuck...

I guess that is a potential danger there - for me, writing it down, even just for myself (if I don't post it anywhere), seems to help a bit with learning to understand myself.



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24 Mar 2007, 11:00 am

SteveK wrote:
SAME HERE! I have made lists, etc.... But if someone asks me up front, I might have trouble. HECK, the SAME was true when trying to explain to someone recently why I wanted a package rerouted appropriately. So it isn't even specific to AS with me.

I guess it's just "explaining yourself" etc. in general, for me it's definitely not just for emotional and very personal stuff. When I have to explain something like you mentioned above, I usually end up with a long, laborious tome going back to when I first decided to order/buy whatever I am asked about.



MasterKron
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24 Mar 2007, 11:05 am

SteveK wrote:
Ribbons wrote:
cobweb wrote:
Noetic wrote:
That's why I don't usually mention it, because it means people are more likely to put me in a position where I am confronted with unpredictable conversations. I can rabbit on about autism online for ages, but when I am put on the spot and have to explain things in relation to *me*, I'm lost for words.


I have the same problem. But lately I almost feel dissociated from myself and my behavior. When people ask how I'm feeling, why I did something, or what I'm thinking about, I get stuck...

me too
i hate that feeling


SAME HERE! I have made lists, etc.... But if someone asks me up front, I might have trouble. HECK, the SAME was true when trying to explain to someone recently why I wanted a package rerouted appropriately. So it isn't even specific to AS with me.

Steve


I find the exact same thing happening to me. I'm just terrible at explaining things in general, I either make it too incoherant or too complex. Or sometimes I just have massive mental blanks. At my old job I once needed to ask my boss if she wanted me to sort some nametags into certain envelopes...and the word 'envelope' completely slipped my mind 8O I was trying to grasp for the word and sounded like a complete idiot.

"Do you want me to put the name tags in alphabetical order in the...uh...um...you know, the letter things..."

I've had some pretty funny mental blanks, but I found that one just stupid.



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24 Mar 2007, 11:22 am

MasterKron wrote:
SteveK wrote:
Ribbons wrote:
cobweb wrote:
Noetic wrote:
That's why I don't usually mention it, because it means people are more likely to put me in a position where I am confronted with unpredictable conversations. I can rabbit on about autism online for ages, but when I am put on the spot and have to explain things in relation to *me*, I'm lost for words.


I have the same problem. But lately I almost feel dissociated from myself and my behavior. When people ask how I'm feeling, why I did something, or what I'm thinking about, I get stuck...

me too
i hate that feeling


SAME HERE! I have made lists, etc.... But if someone asks me up front, I might have trouble. HECK, the SAME was true when trying to explain to someone recently why I wanted a package rerouted appropriately. So it isn't even specific to AS with me.

Steve


I find the exact same thing happening to me. I'm just terrible at explaining things in general, I either make it too incoherant or too complex. Or sometimes I just have massive mental blanks. At my old job I once needed to ask my boss if she wanted me to sort some nametags into certain envelopes...and the word 'envelope' completely slipped my mind 8O I was trying to grasp for the word and sounded like a complete idiot.

"Do you want me to put the name tags in alphabetical order in the...uh...um...you know, the letter things..."

I've had some pretty funny mental blanks, but I found that one just stupid.


I had THAT too, though thankfully not much or lately, but that isn't quite what I meant.

I had a packaged SHIPPED to MA, but billed to IN, and the email said the delivery zip was IN! I fought ALL LAST WEEK to get them to ship it to MA. SUPPOSEDLY, it is FINALLY there!! !! !! It arrived about 3 ours AFTER I left. Anyway, they tried to get me to accept it in IN, "AFTER ALL, [I AM] going there on friday". Well, Friday was YESTERDAY! I am STILL in MI!(In between MA and IN!) Anyway, I spoke of how it would waste my week, I might not make it, etc.... It totally slipped my mind that I wanted it in MA, and it would be a hardship to reallocate space and make sacrifices to do what ****THEY**** were being paid to do. It turns out I was VERY right! I'll be lucky to get there by 3, so I may have had less than 2 hours anyway.

As for AS? I might mention lack of social skills, early talking, etc.... And FORGET about interests, obsessive actions regarding that, stims, etc...

Steve



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24 Mar 2007, 11:45 am

Ribbons wrote:
i am constantly being asked what aspergers syndrome is by all sorts of ppl
becoz i look normal and am fairly intelligent ppl dont seem to get how i find every day life extremely difficult
has anyone got any ideas on how to explain to non aspie ppl what as is?
ps i mean lectures, nurses, doctors, friends etc
x



i don't, because i seem to "pass" for NT until people have known me for a long time. then they just file me away as "eccentric". so, i've no need to tell them.



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24 Mar 2007, 11:50 am

Ribbons wrote:
cobweb wrote:
Noetic wrote:
That's why I don't usually mention it, because it means people are more likely to put me in a position where I am confronted with unpredictable conversations. I can rabbit on about autism online for ages, but when I am put on the spot and have to explain things in relation to *me*, I'm lost for words.


I have the same problem. But lately I almost feel dissociated from myself and my behavior. When people ask how I'm feeling, why I did something, or what I'm thinking about, I get stuck...

me too
i hate that feeling


When people would ask, "What are you thinking?" or "A penny for your thoughts," I would get stuck because I was usually thinking about my "special interests," much too complicated to explain in less than 15 minutes. Trying to explain made a mess and I found myself digging a deeper hole the more I talked.

A way out of this quandry is to reply: "Oh, just wool-gathering." Then smile and ask, "What are you up to?" This will get you off the hook without fail.


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25 Mar 2007, 1:02 pm

SeriousGirl wrote:
A way out of this quandry is to reply: "Oh, just wool-gathering." Then smile and ask, "What are you up to?" This will get you off the hook without fail.

I like that, I'll have to remember that - nice way of deflecting the question onto the other person!

I hate it though, with stuff like "How are you?" I *know* what I am MEANT to say but I am always so puzzled as to why someone - usually someone who doesn't know me well - wants to know, I usually end up blinking at them for a while and then say "Fine" or "A little tired" etc.

I never know if you're meant so say "Fine, and you?" or not, because they never respond when I do.



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27 Mar 2007, 4:05 pm

I've given up trying. As ribbons said, it's like trying to explain the color red to a blind person. It takes too much out of me and they never get it, so I don't bother anymore. And to those that I've tried to explain, and they don't get it, I've given up on them as well.