Petition Alex Plank to discuss Treatments and Research!!

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atdevel
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06 Jul 2013, 10:48 am

Please read the my first two posts before replying to this thread. There is a debate thread for those opposed to the idea.

100 signatures needed!

I believe that a special "Research and Treatments" subforum is needed on this forum.

For the past 15 years, neurodiversity activists have been fighting hard for their acceptance into mainstream society. Activists like John Robison and Temple Grandin have successfully spread this message across America.

However, these same activists now demand treatment for autistics. John Robison has been treated with Transcranial Magnetic Stimulation, and says that it hasn't changed him, but simply improved his social skills. Temple Grandin now demands research into sensory integration therapy.

While there are many successful autistics, there are many that struggle to succeed. In 2012, there was a study in Pediatrics that was published that said that a third of "young adults with autism have no paid job experience, college or technical school nearly seven years after high school graduation". According to the Autism Society, only 56% of Autistics finish high school.

Many successful geniuses with other mental issues like schizophrenia, bipolar disorder, ect. have owed their success to their different minds. However, take treatments for these problems, as schizophrenia, for instance, is associated with significantly higher rates of drug abuse and suicide. Banning these treatments would be considered inhumane.

A successful autistic that doesn't feel the need to change wouldn't need this research and treatments subforum. However, for the autistics that struggle, this forum would exist to inform them about potential treatments and research findings. Hopefully, they can be treated in a way that simply resolves their deficits without changing their identities. Additionally, there are a small but growing number of autistics that would like to be cured altogether. The existing subforums about autism politics and autism news are too broad in the topics that they cover.



Last edited by atdevel on 06 Jul 2013, 11:02 am, edited 1 time in total.

atdevel
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06 Jul 2013, 10:48 am

How to sign:

Go to

http://www.change.org/petitions/wrong-p ... discussion

Sign this petition with your username and why you support it.

Make any post on this thread. When 100 signatures on the petition match up with the thread posts, the petition will be complete.

Do NOT post anything on this thread that questions the need for this subforum. I have created a separate "Debate Thread" for this.



neilson_wheels
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06 Jul 2013, 10:54 am

I think you need to make it more clear that you want a new sub-forum to be created.



Fnord
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06 Jul 2013, 10:58 am

There are plenty of forums already. This on, for instance - "General Autism Discussion" - is perfect for discussing research and treatment of Autism Spectrum Disorders. Just start a new thread, and those who are interested will contribute.



animalcrackers
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06 Jul 2013, 11:03 am

If you want a new subforum I recommend that you post your request/ideas for it on the "WrongPlanet.net discussion" subforum.


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atdevel
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06 Jul 2013, 11:04 am

neilson_wheels wrote:
I think you need to make it more clear that you want a new sub-forum to be created.


Thanks, I wanted to put it into the title but it wouldn't let me

Fnord wrote:
There are plenty of forums already. This on, for instance - "General Autism Discussion" - is perfect for discussing research and treatment of Autism Spectrum Disorders. Just start a new thread, and those who are interested will contribute.


True, but it's too broad in size for this purpose. Remember, put this stuff into the debate thread.

Quote:
If you want a new subforum I recommend that you post your request/ideas for it on the "WrongPlanet.net discussion" subforum.


I tried, but nobody responded, so I'm creating a petition.

Thelibrarian wrote:
atdevel, there is merit in what you say, as any knowledge of AS can only help us be the best we can be. Having said this, this forum belongs to Alex, and I think we must respect his right to run it any way he pleases. In any case, we have no right to be making any further claims on his time or efforts than what he chooses to give us.


We should at least try to convince him. It's pretty crucial, as Alex Plank lives a mostly normal life, and might not know what it's like to have a lower functioning form.



Last edited by atdevel on 06 Jul 2013, 11:14 am, edited 2 times in total.

Thelibrarian
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06 Jul 2013, 11:11 am

atdevel, there is merit in what you say, as any knowledge of AS can only help us be the best we can be. Having said this, this forum belongs to Alex, and I think we must respect his right to run it any way he pleases. In any case, we have no right to be making any further claims on his time or efforts than what he chooses to give us.



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06 Jul 2013, 12:01 pm

This thread was created more than an hour ago, where is the "debate thread" referenced in the OP?

Could someone please edit the OP to include a link to the "debate thread"? I was unable to locate it by checking the author's profile.


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neilson_wheels
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06 Jul 2013, 12:05 pm

AgentPalpatine wrote:
This thread was created more than an hour ago, where is the "debate thread" referenced in the OP?

Could someone please edit the OP to include a link to the "debate thread"? I was unable to locate it by checking the author's profile.


Probably have been compressed together by the Mods?



TallyMan
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06 Jul 2013, 12:12 pm

neilson_wheels wrote:
AgentPalpatine wrote:
This thread was created more than an hour ago, where is the "debate thread" referenced in the OP?

Could someone please edit the OP to include a link to the "debate thread"? I was unable to locate it by checking the author's profile.


Probably have been compressed together by the Mods?


Guilty as charged. :lol: The second thread was floundering with zero posts and everyone was posting to this thread. It is overkill and messy trying to corral the users to use two different threads for the same topic.


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06 Jul 2013, 12:19 pm

atdevel wrote:
The existing subforums about autism politics and autism news are too broad in the topics that they cover.


Since the debate thread has been moved to this thread, I will respond here.

I disagree with the quoted OP that the "activism" and "news" are too broad. There are occasionally days where there are only 3 posts on at all in those sub-forums. If the author of OP has a course of action that he believes would draw support in a new sub-forum, then why not put it in a sub-forum that already discusses these topics?

I also strongly disagree with the OP's use of an external petition site to lobby Wrong Planet, which is a private organization. Neither Wrong Planet or any of it's officers are under any duty to answer a petition. The WrongPlanet discussion sub-forum exists for this very reason.


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06 Jul 2013, 12:22 pm

AgentPalpatine wrote:
atdevel wrote:
The existing subforums about autism politics and autism news are too broad in the topics that they cover.


Since the debate thread has been moved to this thread, I will respond here.

I disagree with the quoted OP that the "activism" and "news" are too broad. There are occasionally days where there are only 3 posts on at all in those sub-forums. If the author of OP has a course of action that he believes would draw support in a new sub-forum, then why not put it in a sub-forum that already discusses these topics?

I also strongly disagree with the OP's use of an external petition site to lobby Wrong Planet, which is a private organization. Neither Wrong Planet or any of it's officers are under any duty to answer a petition. The WrongPlanet discussion sub-forum exists for this very reason.


Seconded.

I also feel that starting a petition due to lack of interest in a related thread goes against the spirit of Wrong Planet.



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06 Jul 2013, 12:24 pm

AgentPalpatine wrote:
... Neither Wrong Planet or any of it's officers are under any duty to answer a petition. The WrongPlanet discussion sub-forum exists for this very reason.

^This, for the win.

While the intent is noble, the relative merit of a forum dedicated solely to "Research & Treatment" is ... not so great.

As has been said before, there are already enough forums that fit this purpose. Just launch an appropriate thread and see who hops aboard.



atdevel
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06 Jul 2013, 1:03 pm

AgentPalpatine wrote:
atdevel wrote:
The existing subforums about autism politics and autism news are too broad in the topics that they cover.


Since the debate thread has been moved to this thread, I will respond here.

I disagree with the quoted OP that the "activism" and "news" are too broad. There are occasionally days where there are only 3 posts on at all in those sub-forums. If the author of OP has a course of action that he believes would draw support in a new sub-forum, then why not put it in a sub-forum that already discusses these topics?

I also strongly disagree with the OP's use of an external petition site to lobby Wrong Planet, which is a private organization. Neither Wrong Planet or any of it's officers are under any duty to answer a petition. The WrongPlanet discussion sub-forum exists for this very reason.


I still feel that if somebody was to visit these forums for the first time, they might not see everything relating to treatments at once. Additionally, if somebody was interested in treatment threads that they saw in the past, I would want a convenient place for everything to be located side by side, not buried a few pages back.

The main point would be to show that wrongplanet is looking for solutions for less-than successful autistics.

If somebody was to just make a sticky, it would be too narrow in my opinion, as people wouldn't be able to discuss theories and personal experiences in-depth.

I'll put this campaign on hold -- for now. Since everybody's favorite proven aspies, John Robison and Temple Grandin, are now interested in treatments, I feel that things will change soon anyways.



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06 Jul 2013, 1:33 pm

atdevel wrote:
Please read the my first two posts before replying to this thread. There is a debate thread for those opposed to the idea.

100 signatures needed!

I believe that a special "Research and Treatments" subforum is needed on this forum.

For the past 15 years, neurodiversity activists have been fighting hard for their acceptance into mainstream society. Activists like John Robison and Temple Grandin have successfully spread this message across America.

However, these same activists now demand treatment for autistics. John Robison has been treated with Transcranial Magnetic Stimulation, and says that it hasn't changed him, but simply improved his social skills. Temple Grandin now demands research into sensory integration therapy.

While there are many successful autistics, there are many that struggle to succeed. In 2012, there was a study in Pediatrics that was published that said that a third of "young adults with autism have no paid job experience, college or technical school nearly seven years after high school graduation". According to the Autism Society, only 56% of Autistics finish high school.

Many successful geniuses with other mental issues like schizophrenia, bipolar disorder, ect. have owed their success to their different minds. However, take treatments for these problems, as schizophrenia, for instance, is associated with significantly higher rates of drug abuse and suicide. Banning these treatments would be considered inhumane.

A successful autistic that doesn't feel the need to change wouldn't need this research and treatments subforum. However, for the autistics that struggle, this forum would exist to inform them about potential treatments and research findings. Hopefully, they can be treated in a way that simply resolves their deficits without changing their identities. Additionally, there are a small but growing number of autistics that would like to be cured altogether. The existing subforums about autism politics and autism news are too broad in the topics that they cover.


I signed it.

I agree. Treatment =/ "cure." Sensory issues and anxiety destroy a lot of lives, and there have to be treatments for these things somewhere. In fact, clinical studies have shown success for some of these things (probiotics and beta blockers being simple examples, with stem cell treatment on the way).

The reason why it needs it's own separate sub-forum is (1) to make it easy to find these resources and (2) because posts about this on the main board--many of them started by me--are usually attacked as "curbie" posts.

I would like to fix the fact that the relational, emotional, and spatial parts of my brain have huge pieces missing.



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06 Jul 2013, 1:41 pm

I would want it to be called "Therapies & Research". That way, the ambiguous nature of the word "treatment" doesn't enter into it. Therapy sounds more like the sort of thing that helps you learn how to do useful things, as opposed to treating an illness.


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