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rdos
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28 Jul 2013, 12:18 pm

slave wrote:
I am very glad that your life is good in this way. May it always be.


It's a pity that not more people can live like that.

slave wrote:
May I ask the name of your OS?


Same as my nick. It's called RDOS. That's why I named my site rdos.net, and use it as a nick on forums.



rdos
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28 Jul 2013, 12:26 pm

Update on the remaining ones:

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- Talking to yourself. Results from 2006 indicated thinking or excited. Thinking has some relevance. "When hyperfocused" is worse. More suggestions wanted


"When rehearsing" failed miserably, but thinking is one the border so could be used if nobody can come up with anything better.

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- Cracking joints. Results from 2006 indicated bored or for pleasure. Bored has some relevance, but there should be better alternatives.


For pleasure works (as it does for walking on toe as well), so this one is solved

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- Pulling hair. Results from 2006 indicated bored or "other reason". Bored doesn't give satisfying results. The question is what "other reasons" might be.


Still no solution for this one. For pleasure also fails miserably. If one should go by old cartoons (which seem to have a lot of relevance) it might be frustration

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- Sticking tongue out. Results from 2006 indicated thinking or for fun. Happy and concentrated had some relevance. Thinking also has some relevance. Better alternatives wanted


When hyperfocused works, but there might possibly be better alternatives still

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- Biting yourself. When upset isn't satisfactory. Maybe overstimulated would work here too?


When anxious works pretty well.



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28 Jul 2013, 1:40 pm

I am not sure why I stim, but I think it has something to do with having a lot of energy while sitting still.

As for cracking joints, how about something practical? My muscles are tight and bother me. My joints bother me in an analogous way. So I stretch and crack joints a lot.

PS any comments on Cheap oil, globalization, etc & the Neanderthal Theory http://www.wrongplanet.net/postp5430712.html???


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rdos
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28 Jul 2013, 2:15 pm

DemocraticSocialistHun wrote:
As for cracking joints, how about something practical? My muscles are tight and bother me. My joints bother me in an analogous way. So I stretch and crack joints a lot.


For pleasure for all practical purposes is identical to "not for emotional reasons", and so these stims become uninteresting.

DemocraticSocialistHun wrote:
PS any comments on Cheap oil, globalization, etc & the Neanderthal Theory http://www.wrongplanet.net/postp5430712.html???


Just did. I don't regularly read that section.



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28 Jul 2013, 3:05 pm

rdos wrote:
Jonov wrote:
btbnnyr wrote:
rdos wrote:
btbnnyr wrote:
Each autistic person is different, and different persons stim for different reasons.


Not so. I have consistent relations for a majority of the stims I research now, and have ideas to improve on those that are not acceptable.


So you think that all autistic people do the same stim for the same reason?


Something like that would be insanely hard to research, and to be honest and the basic principle for stimming could essentially have the same origin in everyone, but you have to go down about a million layers to get to the core of the behavior.

one person could consciously pull/twist hair and say "I mainly do this when I am afraid", while another person does the exact same thing but says it is because they feel compelled to do it.

You would then have to determine if the compulsion is a direct result of anxiety.

And then there is the question if compulsive behavior can become part of someone's daily routine in such a way the person does not notice the anxiety triggers the behavior, and if someone could create a mental dependency to stimming very much like addictive behavior, and maybe then being bored triggers the same behavioral patterns as being stressed after a while (this is just a wild idea though but my brain just creates ideas like that :) ).

There is also the principle of being aware of stressful factors in your life, and how long they subconsciously influence your behavior during a cooling down period, you may not realize that you are stimming because you are stressed, because the event that caused the stress is too far away for you to grasp, and to be consciously worried about it, yet your behavior still is a result of that stress, but at the moment you stim it only translates to you as being bored.

So what I mean to say is that I agree that you cannot simply draw conclusions without truly having researched every single aspect of the behavior and its origins, these results can be different for any person.


Why make it so complex? The only thing that is needed is that people agree on a single explanation for a lot of stims to a high degree (say at least 2/3 agree while 1/3 disagree). Give this to a large sample of people (a few 1,000s), and you are done. The chance for such good agreement by chance in a large sample is minimal.

The hard thing is to come up with the correct explanation.


Because it is that complex.

I may have misunderstood your intentions, and what I get from reading back your posts it that you search for possible reasons for stimming, which you can then use an inquiry to see what most people answer.

What I meant by my other post is that a quiz is not going to give accurate results as to why people stim, it will however give insight into why people THINK they stim, those two are very different and should not be confused.

Just because you think that you stim because you are bored, does not mean that you stim because you are bored.

If your goal is to research why people think they stim, then this will be possible with your theory, but if you want to research the origins of stimming behavior itself, you will need at least neurological research, psycho-analysis ( video for instance) and psychological examinations done face to face by a professional, in order to back up your theories.

The only thing a quiz on what people think will give, is a general idea of how people experience their autism from their personal perspective.

Quiz results can differ depending on how a person feels at that exact moment, and that is also why for instance a self-diagnosis using internet tests is never 100% accurate.

I hope you find the results you are looking for, but I hope you do not use your conclusions for gross generalizations that lack scientific proof, good luck nevertheless.



rdos
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28 Jul 2013, 3:41 pm

Jonov wrote:
What I meant by my other post is that a quiz is not going to give accurate results as to why people stim, it will however give insight into why people THINK they stim, those two are very different and should not be confused.


That's correct. Many people have no idea why they stim, so might deliver random reasons or check "not for emotional reason". That will be noise in the data. However, when you take large samples (1000s of subjects), the noise will average out since people that just guess will choose random answers. The hardest thing is to select out the noise of thinking that every stim is unrelated to emotion.

Jonov wrote:
If your goal is to research why people think they stim, then this will be possible with your theory, but if you want to research the origins of stimming behavior itself, you will need at least neurological research, psycho-analysis ( video for instance) and psychological examinations done face to face by a professional, in order to back up your theories.


Naturally, the best way would be to observe many people in a natural setting (I have a small dataset on this that I let guide some of my choices), but that is impossible to do online. What I want to do is to provide data that will motivate this research in a natural setting, as nobody will do that when they think stims are just random movements.

Jonov wrote:
Quiz results can differ depending on how a person feels at that exact moment, and that is also why for instance a self-diagnosis using internet tests is never 100% accurate.


I will not work with diagnoses. I will work with my own neurodiversity-definition that will soon be published (probably next week).



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28 Jul 2013, 3:58 pm

rdos wrote:
Jonov wrote:
What I meant by my other post is that a quiz is not going to give accurate results as to why people stim, it will however give insight into why people THINK they stim, those two are very different and should not be confused.


That's correct. Many people have no idea why they stim, so might deliver random reasons or check "not for emotional reason". That will be noise in the data. However, when you take large samples (1000s of subjects), the noise will average out since people that just guess will choose random answers. The hardest thing is to select out the noise of thinking that every stim is unrelated to emotion.

Jonov wrote:
If your goal is to research why people think they stim, then this will be possible with your theory, but if you want to research the origins of stimming behavior itself, you will need at least neurological research, psycho-analysis ( video for instance) and psychological examinations done face to face by a professional, in order to back up your theories.


Naturally, the best way would be to observe many people in a natural setting (I have a small dataset on this that I let guide some of my choices), but that is impossible to do online. What I want to do is to provide data that will motivate this research in a natural setting, as nobody will do that when they think stims are just random movements.

Jonov wrote:
Quiz results can differ depending on how a person feels at that exact moment, and that is also why for instance a self-diagnosis using internet tests is never 100% accurate.


I will not work with diagnoses. I will work with my own neurodiversity-definition that will soon be published (probably next week).


Using this inquiry to make sure there will be better information available trough research, is very much needed to cause further understanding of the autistic mind amongst therapists, autistic people themselves and parents of people with autism, and that is something I can only applaud, I hope the current researchers on this topic will see that as well.

Keep up the good work :)



the_grand_autismo
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28 Jul 2013, 8:05 pm

rdos wrote:
Jonov wrote:
What I meant by my other post is that a quiz is not going to give accurate results as to why people stim, it will however give insight into why people THINK they stim, those two are very different and should not be confused.


That's correct. Many people have no idea why they stim, so might deliver random reasons or check "not for emotional reason". That will be noise in the data. However, when you take large samples (1000s of subjects), the noise will average out since people that just guess will choose random answers. The hardest thing is to select out the noise of thinking that every stim is unrelated to emotion.


The noise may or may not average out-- you're assuming that wrong guesses about why people actually stim would be random. People are generally not randomly guessing about their own behavior; there are agreed-upon ways of understanding behaviors and answers about one's own psychology are likely to be biased in a certain direction.

For example, there is a certain "meme" going around the autistic community that the purpose of or underlying motivation behind stims is for relieving stress and anxiety. Willard articulated this position very well earlier in this thread. So you might expect that people without insight into the source of their stimming behavior would more often guess that they do it because of anxiety, because they had heard this explanation before, and it lines up with standard NT explanations of similar repetitive behavior such as fidgeting. So in this scenario (which may or may not be a true one, I am just coming up with a plausible way your results could be messed up), the answers you would get from autistic people self-reporting their motivations behind stimming would be biased in favor of anxiety explanations and not actually random. So again, you would not have any more insight into why people actually stim, just why they think they do.

You're also not distinguishing between stims, "fidgets", tics, neurological issues like dyskinesia, and obsessive-compulsive ritual behaviors. As an example, someone could tap their fingers because they

1. find it provides self-stimulation or sensory regulation (autistic stims)
2. are merely bored while waiting for something (possibly stims, but more often considered "normal" fidgeting)
3. experience regular irresistible urges to do it (tics)
4. involuntarily twitch their fingers (neurological damage or disorder)
5. feel like they must do it in sets of 5 or else something bad will happen (OCD)

So you could be aiming to study stims but instead are grouping a bunch of behaviors under one umbrella that should not be.

Autistic people often have comorbid tic disorders, neurological issues, and OCD, so you should be especially careful that you are excluding those kinds of behaviors and reports of such behaviors from your analysis if you are trying to get at autism-specific stimming (and not OCD or Tourette's or Tardive Dyskinesia repetitive behaviors, for example). Distinguishing between fidgeting and stimming is much harder-- you should probably have a position on whether they are the same thing (but just seen more often and more stigmatized in ASDs) or different things. If you think they are different, then you also need to exclude fidgeting behaviors and people's reports of fidgeting from your analysis.

I don't intend to be mean or tear you down or anything-- just spotting issues with your project. I wish your project the best and that is why I am giving you critiques.

To answer your original question, I don't actually have much insight into my reasons for stimming, but here is what I would say if you asked me:
I walk on my toes because it feels right to do it.
I tap my fingers because I enjoy creating rhythms and counting off patterns.
I bite my mouth area out of anxiety or boredom.
I twirl my hair out of boredom.
I don't usually do the other things on your list.



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28 Jul 2013, 8:07 pm

Quote:
1. Walking on toe


I'm tired.

Quote:
2. Tapping fingers


I'm awake and conscious.

Quote:
3. Biting lip, cheek or tongue


I'm thinking/concentrating.

Quote:
4. Twirling hair


I don't.

Quote:
5. Cracking joints


My joints are stiff.

Quote:
6. Rubbing hands together


My hands are cold.

Quote:
7. Biting yourself


Depends how hard it is. If it's hard; this is a meltdown. If it's just gently chewing on the side of my fingers, it's either "I'm awake and conscious" or "I'm thinking".


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28 Jul 2013, 8:12 pm

Quote:
For pleasure for all practical purposes is identical to "not for emotional reasons", and so these stims become uninteresting.


So what you're saying is that you're just going to dismiss data that you find uninteresting?


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rdos
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29 Jul 2013, 1:24 am

Who_Am_I wrote:
Quote:
For pleasure for all practical purposes is identical to "not for emotional reasons", and so these stims become uninteresting.


So what you're saying is that you're just going to dismiss data that you find uninteresting?


Of course not, but stims related to non-emotional reasons, or that doesn't occur more frequently in neurodiverse people, are uninsteresting in relation to neurodiverse communication, which is the object of the study. So, no, I won't dismiss any data, just identify these stims as not interesting.



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29 Jul 2013, 1:39 am

the_grand_autismo wrote:
For example, there is a certain "meme" going around the autistic community that the purpose of or underlying motivation behind stims is for relieving stress and anxiety. Willard articulated this position very well earlier in this thread. So you might expect that people without insight into the source of their stimming behavior would more often guess that they do it because of anxiety, because they had heard this explanation before, and it lines up with standard NT explanations of similar repetitive behavior such as fidgeting.


The people from the autistic community that answers are a small minority. But I agree that popular ideas among people in general could have an effect, but then we still talk about something that is observed by somebody and turned into a belief.

the_grand_autismo wrote:
So in this scenario (which may or may not be a true one, I am just coming up with a plausible way your results could be messed up), the answers you would get from autistic people self-reporting their motivations behind stimming would be biased in favor of anxiety explanations and not actually random. So again, you would not have any more insight into why people actually stim, just why they think they do.


They are not. They are biased against bored. That's why I consider bored to be the default answer which often could be wrong.

the_grand_autismo wrote:
You're also not distinguishing between stims, "fidgets", tics, neurological issues like dyskinesia, and obsessive-compulsive ritual behaviors. As an example, someone could tap their fingers because they

1. find it provides self-stimulation or sensory regulation (autistic stims)
2. are merely bored while waiting for something (possibly stims, but more often considered "normal" fidgeting)
3. experience regular irresistible urges to do it (tics)
4. involuntarily twitch their fingers (neurological damage or disorder)
5. feel like they must do it in sets of 5 or else something bad will happen (OCD)

So you could be aiming to study stims but instead are grouping a bunch of behaviors under one umbrella that should not be.


The hypothesis is that this is a false model of stims and tics. In fact, the hypothesis is that tics are the same thing as stims, and that some stims/tics have physiological reasons (note, physiological and not neurological). In addition to that, a set of stims are related to Aspie hunting, and thus have no communicative role (walking on toe, spinning). The physiological and hunting-related stims are anticipated to give best results when reasons like "for pleasure" are given.

the_grand_autismo wrote:
Autistic people often have comorbid tic disorders, neurological issues, and OCD, so you should be especially careful that you are excluding those kinds of behaviors and reports of such behaviors from your analysis if you are trying to get at autism-specific stimming (and not OCD or Tourette's or Tardive Dyskinesia repetitive behaviors, for example). Distinguishing between fidgeting and stimming is much harder-- you should probably have a position on whether they are the same thing (but just seen more often and more stigmatized in ASDs) or different things. If you think they are different, then you also need to exclude fidgeting behaviors and people's reports of fidgeting from your analysis.


Since the hypothesis is that there is only one function for these things (and not a multitude like stims, tics, OCD or anything else), it is very important to include these as well when they look like stims.

Besides, the proof in regards to tics comes from the evaluation of a Tourette syndrome test run in Aspie Quiz a few years back. It turned out that each and every issue in that test correlated strongly to stims, meaning that it was impossible to distinguish them. To ask participants themselves if they think they stim or have tics thus is an unusable method that is certain to create biases based on beliefs.



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30 Jul 2013, 4:17 pm

OK, so now I have 22 stims that either have a large difference in prevalence between populations and/or significantly worse results when NTs judge the reason. All of them have reasonable rates of "wrong emotion" in the Aspie population. I'm collecting a larger sample with these now so I can reach better statistical significance. A few 1,000 answers would be reasonable.

The emotions covered are nervous, anxious, stressed, frustrated, anticipating, excited, angry, happy and upset. In addition to that I have for pleasure, hyperfocused, thinking and closed state of mind.

I think that is enough to show that it is possible that the natural way for neurodiverse people to express emotions is through body movements rather than with facial expressions.

All the emotions with bored as reason failed, and doesn't seem to be related to neurodiversity.



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04 Aug 2013, 4:29 pm

Willard wrote:
btbnnyr wrote:
Stimming doesn't necessarily have to relieve stress or reduce anxiety.

I have rocked and swayed and stimmed in various ways since I sat up as a baby, and my stimming was not to relieve stress or reduce anxiety, but just something that I did by default while feeling like my normal self from childhood to adulthood.


If you think it doesn't relieve stress, try going an entire day without doing it at all. :wink:

Just because the rocking and swaying is "normal" for you (it is for me, too) doesn't mean its not acting as a relief valve for stress. IMHO Autism is a condition of constant stress. When you live your life constantly unsure of yourself - how you're supposed to behave or react in any given social interaction, whether with one person or twenty; when you are constantly being told that whatever it is you're doing, you're doing it wrong; when you are in constant danger of misunderstanding or misinterpreting or even being totally oblivious to some remark or unspoken signal and ending up looking like a fool - if that is your everyday life 24/7, you're going to live in a state of anxiety that is far higher than that of a normal human being, even if you don't realize it - because you've gotten so used to feeling that way, that you're not even aware that others live in a much more relaxed state than you do.

Someone was asking in another thread the other day how we appear to 'normal' people, since we can't ever really see ourselves the way others see us. Janissy, who lives around several Aspies, but is not one herself gave a very good answer, but the key to it all was summed up in one word: "stressed." :shaking:

That was kind of an epiphany for me, although I was already aware that I live in a state of tension much higher than that of any NT person. I suddenly realized why I hate the way I look in almost any photograph that's ever been taken of me. Its because I always look preoccupied, unhappy and slightly angry, even if my mood was completely neutral at the time the photo was snapped. Its the look of STRESS. The face of a human being waiting for something bad to happen at any moment, without ever quite knowing what its going to be. :oops:


Agree.