Page 13 of 18 [ 281 posts ]  Go to page Previous  1 ... 10, 11, 12, 13, 14, 15, 16 ... 18  Next

HDLMatchette
Deinonychus
Deinonychus

User avatar

Joined: 15 Dec 2012
Age: 29
Gender: Male
Posts: 338
Location: Fuquay-Varina, North Carolina

07 Jan 2014, 8:38 am

goldfish21 wrote:
HDLMatchette wrote:
cure and prevent is all they are.


and some of us like that. so what?


so you haven't been educated about autism being a gift.



Asperger96
Veteran
Veteran

User avatar

Joined: 14 Jul 2013
Age: 28
Gender: Male
Posts: 703
Location: Central Maryland

07 Jan 2014, 10:18 am

aghogday wrote:
jenisautistic wrote:
aghogday wrote:
jenisautistic wrote:
If we were to do this we got to be very careful and we shouldn't try to belitterate autism speaks however we should try to educate them. We should encourage autism speaks to use actual autistic people in their organization. The problem with the people on the autism self advocacy networks protest is I believe they were too aggressive and vocally violent in a sense it will only get them to continue to believe in stereotypes and add that to the list. We should not antagonize them.

Imagine you were in NT parent when autism was just been discovered and you heard that your son or daughter had it how would you feel? I know that how they're thinking and feeling isn't right and it's cruel and inhumane to say such horrible things about people like this. Especially that scene where that mother was talking about murdering her daughter right in front of her. But we need to be a positive example and show maturity because otherwise we won't get very far. We need to somehow show them the facts and people like carly fleischmann and make them see for themselves. We cannot make or force them to change only they can change on the own but we also need to make sure they're not just covering up for what they did in the past and we possibly need to make them publicly apologize for that.


A VERY reasoned approach my friend..And actually the organization did actually offer a public apology that is documented still on this site..but MOST everyone basically just kicked 'em in the teeth after that still..with MOSTLY immature remarks and all of that...


I can't seem to find this apology on my own. Can you post the link? I would love to see it.


No problem.. a copy of the interview where the apology is quoted is at this link..

http://www.wrongplanet.net/postt175264.html


Since when does just saying sorry erase the past?



jcq126
Pileated woodpecker
Pileated woodpecker

User avatar

Joined: 20 Apr 2011
Age: 36
Gender: Male
Posts: 184

07 Jan 2014, 12:29 pm

Autism Speaks is the equivalent of "Politicians for the people", it's all a crock of s**t.

If you want the real opinions, feelings and struggles of an autistic person, you need a full group of actual autistics in your organization to pull information and experiences from. I'm a white adult male from the suburbs and it's like me speaking on behalf of the starving black kids in Africa.



littlebee
Veteran
Veteran

User avatar

Joined: 8 Mar 2013
Gender: Female
Posts: 1,338

07 Jan 2014, 12:53 pm

I found this in the interview. It should be noted that thiese very impressive comments were given by a public relations expert. However this person who was hired by that organization and is now president of public affairs was speaking for that organization.

Quote:
A: Our organization has four main objectives – to raise awareness of autism, fund research into the causes, better diagnosis and more effective treatments of autism, to advocate for families (for instance – insurance coverage for validated treatments) and to providing resources for families such as the transition toolkit for adolescents who are becoming adults, community grants to expand community services, create housing and much more, as well as information on where to get assistance around the country.

As our mission relates to “cure”, our goal is to reduce suffering associated with autism, in all its forms. Some would call that a cure. Others would call it remediation of disability. For others, it means acceptance and empowerment.

One of the things that is so challenging about autism is the fact that there’s so much variation in the way autism is expressed in people. Some individuals can have a productive and creative life, and they aren’t looking for a cure. They’re interested in being accepted and getting access to services to help them adapt to the world with their special skills. At the other end, there are individuals severely affected who have significant medical conditions, like GI distress and have never spoken. For those individuals, the prospect of a cure for autism is really important because to that person “cure” means being able to communicate and free of pain. That results in a lot of different perspectives of where our priorities should be
.
Anyway how 'bad' is this? Sounds really GOOD to me.

Asperger96 wrote:
aghogday wrote:
jenisautistic wrote:
aghogday wrote:
jenisautistic wrote:
If we were to do this we got to be very careful and we shouldn't try to belitterate autism speaks however we should try to educate them. We should encourage autism speaks to use actual autistic people in their organization. The problem with the people on the autism self advocacy networks protest is I believe they were too aggressive and vocally violent in a sense it will only get them to continue to believe in stereotypes and add that to the list. We should not antagonize them.

Imagine you were in NT parent when autism was just been discovered and you heard that your son or daughter had it how would you feel? I know that how they're thinking and feeling isn't right and it's cruel and inhumane to say such horrible things about people like this. Especially that scene where that mother was talking about murdering her daughter right in front of her. But we need to be a positive example and show maturity because otherwise we won't get very far. We need to somehow show them the facts and people like carly fleischmann and make them see for themselves. We cannot make or force them to change only they can change on the own but we also need to make sure they're not just covering up for what they did in the past and we possibly need to make them publicly apologize for that.


A VERY reasoned approach my friend..And actually the organization did actually offer a public apology that is documented still on this site..but MOST everyone basically just kicked 'em in the teeth after that still..with MOSTLY immature remarks and all of that...


I can't seem to find this apology on my own. Can you post the link? I would love to see it.


No problem.. a copy of the interview where the apology is quoted is at this link..

http://www.wrongplanet.net/postt175264.html


Since when does just saying sorry erase the past?

The past exists as a memory in the mind of whoever is thinking about it. Actually in one of the religions I studied, Buddhism, it is considered what is called a root downfall (hindrance to the development of the mind of compassion) to not accept a sincere apology. I suppose it must again be noted that this apology is from a highly skilled public relations expert, but this is how it should and must be in such an organization. I do not have time and it would be a sidetrack to go into the dynamics of this right now.

Actually if no one is thinking about what happened it the past, then in a sense it does not exist. There is this saying that anything that ever existed is here now, which means that the result of whatever happened in the past exists (and can only be remedied) in the present. But there is learning. If you are thinking about it and remembering it and focusing on it, then it does exist FOR YOU. There is this allegorical passage in the Bible, Genesis 19:26, when Lot's wife looked back and turned into a pillar of salt. (Lot is a very interesting name, by the way. It could easily be taken to be a symbol for encapsulation.) This is not like saying the holocaust never happened. The memory that such an event did happen SHOULD be kept alive in people's minds. However, the instance of the holocaust is not the same as looking back and nitpicking about the lack of understanding of certain people in Autism Speaks .Imo it is more a psychological disorder on the part of the people who are doing that. Grudge holding will make people sick and will not help anybody. For the thinking of a human being to revolve around such obvious pettiness, especially when there is so much evidence to the contrary, is akin to putting ones own mind in a box in such a way that there is a strong tendency to always be stuck there, so life loses its salt, its savor, and ones pattern of thinking becomes crystallized into a fixed position. It may feel so righteous, but one is actually stuck, feeling all these feelings of indignation but basically going nowhere. That is too bad..



Last edited by littlebee on 07 Jan 2014, 4:34 pm, edited 2 times in total.

aghogday
Veteran
Veteran

User avatar

Joined: 25 Nov 2010
Age: 64
Gender: Male
Posts: 11,845

07 Jan 2014, 1:33 pm

Amen sister...

Your words reek of TRUTH.


_________________
KATiE MiA FredericK!iI

Gravatar is one of the coolest things ever!! !

http://en.gravatar.com/katiemiafrederick


Callista
Veteran
Veteran

User avatar

Joined: 3 Feb 2006
Age: 41
Gender: Female
Posts: 10,775
Location: Ohio, USA

07 Jan 2014, 6:15 pm

jcq126 wrote:
Autism Speaks is the equivalent of "Politicians for the people", it's all a crock of sh**.

If you want the real opinions, feelings and struggles of an autistic person, you need a full group of actual autistics in your organization to pull information and experiences from. I'm a white adult male from the suburbs and it's like me speaking on behalf of the starving black kids in Africa.
Exactly.


_________________
Reports from a Resident Alien:
http://chaoticidealism.livejournal.com

Autism Memorial:
http://autism-memorial.livejournal.com


CockneyRebel
Veteran
Veteran

User avatar

Joined: 17 Jul 2004
Age: 50
Gender: Male
Posts: 116,868
Location: In my little Olympic World of peace and love

07 Jan 2014, 7:30 pm

Callista wrote:
jcq126 wrote:
Autism Speaks is the equivalent of "Politicians for the people", it's all a crock of sh**.

If you want the real opinions, feelings and struggles of an autistic person, you need a full group of actual autistics in your organization to pull information and experiences from. I'm a white adult male from the suburbs and it's like me speaking on behalf of the starving black kids in Africa.
Exactly.


Agreed


_________________
The Family Enigma


vickygleitz
Veteran
Veteran

User avatar

Joined: 29 Jul 2013
Age: 69
Gender: Female
Posts: 1,757
Location: pueblo colorado

07 Jan 2014, 9:42 pm

I have many issues with Autism Speaks. The number one reason I have a problem with them is that I hold Autism Speaks mainly responsible for the huge chasm between the parents of so many autistic children and adult HFAs', when instead we should be all working together, helping each other. I suspect that this huge divide was INTENTIONALLY created by the Wrights [they do have the most powerful and effective masters of manipulation on their payroll] and that by demonizing vocal, "evil,"[ almost as evil as autism itself!] HFAs', they have done an excellent job of causing an enormous amount of pain and suffering amongst our community as a whole.



Gamer
Blue Jay
Blue Jay

User avatar

Joined: 4 Jan 2012
Gender: Male
Posts: 83

07 Jan 2014, 11:56 pm

From what I gather, autism is not as homogenous, symptomatically or even genetically, as say depression or anxiety, to where we are having a very clear understanding of what genes cause them. (and how they may have been advantageous at some point in time) It seems that autism is a heterogeneous disorder cause by a variety of ailments or personality predispositions, including:

- Autoimmune disorders
- Allergies
- One high IQ Silicon Valley super-geek marrying another super-geek, creating an uber-geek
- Common genes that reduce the size of the corpus callasum (which may cause some to have learning disabilities but others to have savantism)
- face blindness
- intellectual disability
- de novo deletions (rare genes most likely caused by prenatal issues)
- and the list goes on...

All of these things can cause major communication difficulties, and executive function problems, but all have different origins and probably have a handful of different symptoms if people just bother digging deep enough. Even by reading this forum alone, it is evident that not all autistics are geeks, not all have autoimmunities, not all have food allergies (some get better with diet changes, most dont), etc. We don't all present the same symptoms either, a lot of us are not only different than NTs but different from each other.

I was reading a recent study and was shocked at the amount of people diagnosed with autism, even Asperger's, that have a family history of allergies or autoimmune disorders, which I will copy and paste below. Psychiatrists need to be more diligent of screening out between who actually has a physical issue to who is just a smart dude with social difficulties or face blindness. It is completely irresponsible that some are going through life being treated with Paxil or Seroquel when they really need to be treated for immune dysfunction. We need a better understanding of what causes autism to begin with, and perhaps some people who want to get treated can do so. (if your social difficulties were caused by autoimmunity from your mother while she was pregnant, would you think twice about it being a gift?)

That all being said, I guess there is one thing we can all relate to, and that is the difficulties we have talking to others, and the loneliness that results. If we could unite into a cohesive group that can relate to one another on some level, then I guess that is a place to start.

http://www.sciencedirect.com/science/ar ... 1813001781



Last edited by Gamer on 08 Jan 2014, 12:15 am, edited 1 time in total.

aghogday
Veteran
Veteran

User avatar

Joined: 25 Nov 2010
Age: 64
Gender: Male
Posts: 11,845

08 Jan 2014, 12:14 am

Gamer wrote:
From what I gather, autism is not as homogenous, symptomatically or even genetically, as say depression or anxiety, to where we are having a very clear understanding of what genes cause them. (and how they may have been advantageous at some point in time) It seems that autism is a heterogeneous disorder cause by a variety of ailments or personality predispositions, including:

- Autoimmune disorders
- Allergies
- One high IQ Silicon Valley super-geek marrying another super-geek, creating an uber-geek
- Common genes that reduce the size of the corpus callasum (which may cause some to have learning disabilities but others to have savantism)
- face blindness
- intellectual disability
- de novo deletions (rare genes most likely caused by prenatal issues)
- and the list goes on...

All of these things can cause major communication difficulties, and executive function problems, but all have different origins and probably have a handful of different symptoms if people just bother digging deep enough. Even by reading this forum alone, it is evident that not all autistics are geeks, not all have autoimmunities, not all have food allergies (some get better with diet changes, most dont), etc. We don't all present the same symptoms either, a lot of us are not only different than NTs but different from each other.

I was reading a recent study and was shocked at the amount of people diagnosed with autism, even Asperger's, that have a family history of allergies or autoimmune disorders, which I will copy and paste below. Psychiatrists need to be more diligent of screening out between who actually has a physical issue to who is just a smart dude with social difficulties or face blindness. This way we can get a better understanding of what causes autism to begin with, and perhaps some people who want to get treated can do so. (if your social difficulties were caused by autoimmunity from your mother while she was pregnant, would you think twice about it being a gift?)

That all being said, I guess there is one thing we can all relate to, and that is the difficulties we have talking to others, and the loneliness that results. If we could unite into a cohesive group that can relate to one another on some level, then I guess that is a place to start.

http://www.sciencedirect.com/science/ar ... 1813001781


Speaking of the list and difficulties with diagnosis..and all of that..here is some more continuing information on the full spectrum of Autism..and moreover..the broader autism phenotype...

http://katiemiaaghogday.blogspot.com/20 ... ho-is.html

I compiled this after studying it for about 2 years....

At this point in time..Autism is just an abstract concept of behavioral impairments in a diagnostic manual..by the DSM5 workgroup..that put these criteria together...

There currently is an indeterminate..amount of issues associated with the development..and ..or ..remediation of symptoms of autism..otherwise fitting the modern medical definition..of cure.....


_________________
KATiE MiA FredericK!iI

Gravatar is one of the coolest things ever!! !

http://en.gravatar.com/katiemiafrederick


ASPartOfMe
Veteran
Veteran

User avatar

Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 35,909
Location: Long Island, New York

08 Jan 2014, 5:49 am

I would agree with the notion that everybody is obsessing over the past if it were just about the ads from 4 years ago. That was one of the reasons despite joining this site in August I did not comment on Autism Speaks until recently. I did want to give the organization a thorough look because I did see the positive advocacy webpages. The link Jen posted is from November 2013 and basically is a repeat of the earlier ads. It can't be explained away as some marketers over zealousness as it was written Mrs. Wright. My objections, opinion of motives of Autism Speaks and their marketing tactics were dealt with on pages 7-11 of this thread.

The Simons Foundation https://sfari.org/ has been mentioned. Aghogday is correct that they do merit attention that they are not getting. I do know they fund GRASP. They seem to be able to get a lot of money without the "shock" or really any style of advertising. In my view this could be really very good or very bad. A positive view that they do not want the limelight because all they are interested is letting pure science led them to wherever the facts lead them. A malevolent view is that if they really are in part of some Eugenics or other conspiracy being as quiet as possible about themselves is the smart approach.

You can't explain away the all the points Autism Speaks critics are making by implying they are invalid because the people making them have autistic traits and internet group think. It can work in several ways. Some may have come to the conclusions due to their traits and group think, others because autism gives them a unique way of thinking they are finding truths that 99% of the population including other autistic s are missing, or maybe the objections have nothing to do with Autism and group think. Or they are a result of combination of the topics just mentioned.


_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


aghogday
Veteran
Veteran

User avatar

Joined: 25 Nov 2010
Age: 64
Gender: Male
Posts: 11,845

08 Jan 2014, 8:16 am

ASPartOfMe wrote:
I would agree with the notion that everybody is obsessing over the past if it were just about the ads from 4 years ago. That was one of the reasons despite joining this site in August I did not comment on Autism Speaks until recently. I did want to give the organization a thorough look because I did see the positive advocacy webpages. The link Jen posted is from November 2013 and basically is a repeat of the earlier ads. It can't be explained away as some marketers over zealousness as it was written Mrs. Wright. My objections, opinion of motives of Autism Speaks and their marketing tactics were dealt with on pages 7-11 of this thread.

The Simons Foundation https://sfari.org/ has been mentioned. Aghogday is correct that they do merit attention that they are not getting. I do know they fund GRASP. They seem to be able to get a lot of money without the "shock" or really any style of advertising. In my view this could be really very good or very bad. A positive view that they do not want the limelight because all they are interested is letting pure science led them to wherever the facts lead them. A malevolent view is that if they really are in part of some Eugenics or other conspiracy being as quiet as possible about themselves is the smart approach.

You can't explain away the all the points Autism Speaks critics are making by implying they are invalid because the people making them have autistic traits and internet group think. It can work in several ways. Some may have come to the conclusions due to their traits and group think, others because autism gives them a unique way of thinking they are finding truths that 99% of the population including other autistic s are missing, or maybe the objections have nothing to do with Autism and group think. Or they are a result of combination of the topics just mentioned.


Well..the thing about Mrs. Wright..is she is the CEO's wife..otherwise known as the Queen Bee..in the real world...

She is passionate about helping folks with children similar to her grandson..with the very challenging..and sometimes..dangerous associated symptoms of regressive autism...

Technically speaking.. her words were not professional..as they did not present the full range of the spectrum..in her continued concern over children like her grandson...

Of course..in other words..she left out the folks similar to the folks on the spectrum..on this website...

But..here's the thing..with money..and prestige comes privilege and power..and this IS WHAT Mrs. Wright has..as her husband was the President of the multimedia giant NBC for about 2 decades...

It IS just the way the way things..are..the way the culture works..folks in this position..get to do basically what they want..as if this was another employee that did not have the marital ties..to the big CEO dude..that is now a philanthropist..there would be consequences..for her actions in not paying attention to detail...

But the wife as they say gets her way...

Seriously this IS how it works in the 'BIG' world too..everyone here can cry and gnash their teeth..but theIR black and white thinking simply is not going to change the GRAY way the REAL WORLD WORKS...

UNDERSTANDING THIS COMES WITH DECADES OF EXPERIENCE IN THAT BIG REAL WORLD..

AND I HAVE THAT..not at all hard for me to have the cognitive empathy NOW to understand these finer subtle unspoken rules of culture...BUT YES..IT DID TAKE ME ABOUT 5 DECADES..TO ADAPT..TO LEARN..TO GET THERE..FRIEND..

NOW..of course i do not think that the social cohesion theory is the only reason people have to criticize autism speaks..just this thing about difficulty with cognitive empathy..and not understandING the subtle unspoken rules of culture..is certainly another reason why as i detail here..and yeah..life IS GRAY ..THERE ARE LIKELY ..WHO KNOWS..TEN THOUSAND OTHERS..PEOPLE ARE DIFFERENT..PEOPLE THINK DIFFERENT...THERE ARE ALMOST AN INFINITE NUMBER OF MOTIVATIONS AND OR PERSONAL REASONS...AND POTENTIAL COGNITIVE/EMOTIONAL DEFICITS..THAT TAKE A PERSON TO OVERALL BITTERNESS ..HATE..VENGEANCE..OR WHATEVER...

BUT I DO NOT GO THERE..

AS I SIMPLY DO NOT CARE TO...

I SEE THAT MISSION IN LIFE..OF BITTERNESS ..HATE..VENGEANCE..OR WHATEVER...

AS A TOTAL WASTE OF MY TIME AND LIFE..

BUT AS THEY SAY..THAT'S JUST MY OPINON...FRIEND..

DO AS THOU WILT AND ALL OF THAT..IN HOPES OF NO ONE HARMING OTHERS..

IS MY PHILOSOPHY..ANY WAY.

ON THAT..

Now to address the Simon's Foundation..Simon is a philanthropist..a billionaire philanthropist..

He HAS VERY VERY DEEP POCKETS..

AND HE FUNDS HIS OWN ORGANIZATION..FUNDING 53 MILLION DOLLARS OF RESEARCH INTO CURING AUTISM..IN THE LAST INTER-AGENCY COMMITTEE FOR AUTISM REPORT...

THAT WAS ALMOST THREE TIMES AS MUCH AS AUTISM SPEAKS FUNDED FOR AUTISM SPECIFIC RESEARCH IN 2010..AT ABOUT 18 MILLION DOLLARS..

BUT AGAIN..THAT'S MR. SIMON'S POCKETS..AND AS THEY SAY HE CAN DO WHATEVER THE f**k HE WANTS TO DO WITH HIS MONEY..AND CURE WHATEVER HE WANTS..IN THIS ENTIRE WORLD..IF THE DOLLARS OF HIS OWN..MAKE THAT HAPPEN..IN TRUE REALITY...

But seriously the research he has funded on autism specific research..is breaking territory..to help ALL PEOPLE ON THE SPECTRUM...

JUST AS AUTISM SPEAKS FUNDED RESEARCH..

BUT FOLKS.. YA HAVE TO EXPLORE EACH AND EVERY RESEARCH GRANT..TO COME TO THIS UNDERSTANDING...

I READ 10 TO 15 TIMES FASTER THAN THE AVERAGE HUMAN BEING..AND TYPE ABOUT 130 WORDS A MINUTE..ERGO ALL THESE WORDS...NOW...

NOT A PROBLEM FOR ME TO GO THROUGH 600 RESEARCH GRANTS...IN LESS THAN AN HOUR..

I KNOW THE FACTS AND THE FACTS ARE..AUTISM SPEAKS OVERALL IS DOING GREAT THINGS FOR PEOPLE ALL ACROSS THE SPECTRUM...

MRS. WRIGHT..IS JUST A WIFE..OF THE CEO..THAT GETS HER WAY WHEN IT COMES TO FULLY EXPRESSING HER PERSONAL EMOTIONAL OVER ZEALOUS OPINIONS.. YES...

AND THE DAM LADY..THAT WAS A FORMER VIP EMPLOYEE OF THE ORGANIZATION..THAT TALKED ABOUT HER IRRATIONAL THOUGHTS ABOUT KILLING HER CHILD WHEN SHE WAS UNDER MENTAL STRESS AND DURESS..WAS SIMPLY EXPRESSING COGNITIVE EMPATHY FOR PEOPLE LIKE HER IN SIMILAR LIFE SITUATIONS..

HER UNDERSTANDING PER HER PERCEPTION IS THAT HER DAUGHTER COULD NOT UNDERSTAND ANYTHING SHE WAS SAYING AT THAT MOMENT AS A CHILD WITH REGRESSIVE AUTISM...SUE HER IF YA LIKE..BUT THAT WAS HER PERCEPTION AS A MOTHER..MAYBE SHE WAS INCORRECT..BUT IT WAS HER PERCEPTION..AND LIKE IT OR NOT..LIKE EVERYONE ELSE ON THIS SITE..SHE IS MOST DEFINITELY ENTITLED TO IT..AS A MOTHER....IN THAT CIRCUMSTANCE....

BUT THE KEY IN REAL LIFE..IN HOW REAL COGNITIVE EMPATHY WORKS..IN THE LARGER HERD EVERY DAY..IS THAT HER MESSAGE WAS SHE f*****g DIDN'T DO IT...

AND THERE IS HOPE IN LIFE...

THIS IS WHAT 'MOST' HUMAN BEINGS DO ..THEY SHARE THEIR HOPE AND THEIR DIFFICULTIES IN LIFE..

AND IF THE PEOPLE IN THIS THREAD CANNOT UNDERSTAND THAT..IT IS JUST PROOF...

OF JUST HOW f*****g HARD COGNITIVE EMPATHY IS FOR PEOPLE ON THE SPECTRUM...

EVERYONE IN THE REAL WORLD WHO HAS FULLY INTACT COGNITIVE EMPATHY UNDERSTANDS THIS AS CLEAR AS DAY..IT'S WHAT THEY CALL COMMON SENSE IN THE BIG WORLD..

OK IS ANYONE LISTENING YET..I'M PROBABLY APPROACHING 1000 WORDS NOW..WITH MY TYPING SPEED OF 130 WORDS A MINUTE..AND MY LASER FOCUSED MIND..AND ALL OF THAT OTHER GIFTED SUPERPOWER AUTISTIC STUFF...

PROBABLY NOT..but this is what autistic people do..the really gifted..fortunate ..lucky ones..that are somewhere well under 9 percent of the CDC total statistics of tHE TOTAL AUTISM SPECTRUM...

THEY GET INTERESTED IN SOMETHING AND PURSUE EVERY FRIGGIN DETAIL...

WELL.. I DON'T GIVE A CRAP ABOUT WHAT AUTISM SPEAKS DOES OR DOES NOT DO PER MY PERSONAL LIFE..THEY ARE A NON-ISSUE TO MY REAL LIFE..NOW...

BUT I EXPLORE FACTS AND FIGURES..OF WHATEVER STRIKES MY FANCY...

AND AT THIS SPECIFIC MOMENT..IT IS THIS EXTREMELY INTERESTING..PHENOMENON OF THE AUTISM SPEAKS CONTROVERSY..PER MY INTEREST IN SOCIOLOGY AND HUMAN BEHAVIOR...

SO HERE YA GO..1000 WORDS OR SO FROM ME ON MY SPECIAL INTEREST...

BUT PEOPLE HERE DO MOST DEFINITELY ABUSE ME OR ATTEMPT TO ABUSE ME..FOR SIMPLY EXPRESSING MY AUTISTIC NATURE..FREELY..WITH THE 1000 WORDS OR SO...IN MANY OTHER SCENARIOS..CIRCUMSTANCES ON THIS SITE...

THIS SITE IS THE LORD OF THE FLIES FOR THAT...

AUTISM SPEAKS AIN'T GOT NOTHING..'BAD' ON ACTUALLY EXPRESSING A PERSON'S AUTISTIC NATURE..COMPARED TO MANY OF THE SO CALLED AUTISTIC PEOPLE ON THIS SITE..

THAT
S A DOCUMENTED FACT..I CAN PROVIDE HUNDREDS OF QUOTES FROM SCORES OF FOLKS THAT DO THAT TO OTHER AUTISTIC PEOPLE ON THIS SITE..AND SCORES OF OTHER SITES...

IN FACT THAT'S A HOBBY OF MINE...

COLLECTING QUOTES...

AND MY OTHER AUTISTIC SUPERPOWER..IS AN ALMOST PHOTOGRAPHIC MEMORY...

SO (POINTING TO MY HEAD) IT'S ALL IN HERE..:)

HAVE A GREAT DAY FRIEND..AND THANKS FOR ALLOWING ME TO SHARE MY SPECIAL INTEREST..WITH YA...

I GET PASSIONATE ABOUT MY SPECIAL INTEREST..NOTHING I AM SAYING HERE IS DIRECTED AT ANY ONE PARTICULAR INDIVIDUAL IN A NEGATIVE WAY..AS YA SEE MY STRONGEST AUTISTIC SUPERPOWER PER MY FORM OF AUTISM IS EXTREME EXTREME EXTREME EMOTIONAL EMPATHY..I WOULD RATHER HURT MYSELF THAN HURT SOMEONE ELSE..AS I CAN FEEL THE PAIN OF THE ENTIRE..WORLD..ON SOMEDAYS..WHEN I'M TUNED IN ..AND

ALL OF THAT...

AGAIN..HAVE A GREAT DAY..

AND HECK..HAPPY 2014..:)

YNOT BE KIND..AND BE NICE AROUND HERE TO EVERYONE..

IT COULDN'T HURT...

SERIOUSLY..EYE ROLL AND ALL OF THAT...:);)

By the way.. THIS IS precisely 1187 words..:)

I like numbers..2..;)

And all of that..3

Out of the box stuff..th@IS


_________________
KATiE MiA FredericK!iI

Gravatar is one of the coolest things ever!! !

http://en.gravatar.com/katiemiafrederick


omegatyrant
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

User avatar

Joined: 26 Oct 2012
Age: 43
Gender: Male
Posts: 50

08 Jan 2014, 9:58 am

I had neither the time nor the will to sift through 14 full pages, so I apologize if this has been shared already.

This man is a science officer at Autism Speaks. I fully agree with what he says. I know Autism Speaks was bad years ago, but if this man's attitude is an example of what the organization is heading towards, then perhaps I don't have a problem with Autism Speaks.

http://www.psychologytoday.com/blog/my- ... odiversity



aghogday
Veteran
Veteran

User avatar

Joined: 25 Nov 2010
Age: 64
Gender: Male
Posts: 11,845

08 Jan 2014, 10:35 am

omegatyrant wrote:
I had neither the time nor the will to sift through 14 full pages, so I apologize if this has been shared already.

This man is a science officer at Autism Speaks. I fully agree with what he says. I know Autism Speaks was bad years ago, but if this man's attitude is an example of what the organization is heading towards, then perhaps I don't have a problem with Autism Speaks.

http://www.psychologytoday.com/blog/my- ... odiversity


Well..actually that is John Elder Robison..an autistic individual that served as an advising member on the science advisory committee board...

Mrs. Wright's comments recently..were too much for him to reconcile per his insistence..which is correct and true..that the broader autism spectrum be amplified as well as those who suffer with more of the potential negative impacts...per co-morbid conditions..and all of that...

Technically speaking above and beyond the passionate ..emotional..and yes overly zealous approach of the CEO Wife/board member Suzanne Wright...

The organization does most definitely identify the positive aspects of neurodiversity in their description of what the Autism Spectrum is on their website...

Rather than directing you elsewhere i will provide you that link and quote here..as i previously did earlier in this thread..and oh my god..probably 22 times..now on this website..

Don't think anyone really is paying attention to me..but paying most of the attention to a person's own monologue..and not 'that' much attention to what other people say..simply..technically..and factually go with the territory.. here.. YES the Autism Spectrum Territory...

http://www.autismspeaks.org/what-autism

What Does It Mean to Be “On the Spectrum”?

Quote:
Each individual with autism is unique. Many of those on the autism spectrum have exceptional abilities in visual skills, music and academic skills. About 40 percent have average to above average intellectual abilities. Indeed, many persons on the spectrum take deserved pride in their distinctive abilities and “atypical” ways of viewing the world. Others with autism have significant disability and are unable to live independently. About 25 percent of individuals with ASD are nonverbal but can learn to communicate using other means. Autism Speaks’ mission is to improve the lives of all those on the autism spectrum. For some, this means the development and delivery of more effective treatments that can address significant challenges in communication and physical health. For others, it means increasing acceptance, respect and support.


It's almost sugar coated...

And that's a marketing fact.

Per the research that does exist..approximately 80 percent of even so called 'higher functioning' autistic folks never gain steady and long lasting employment...

That is SUBSISTENCE..THIS AIN'T NO CAKE WALK..

AUTISM TH@IS


_________________
KATiE MiA FredericK!iI

Gravatar is one of the coolest things ever!! !

http://en.gravatar.com/katiemiafrederick


ASPartOfMe
Veteran
Veteran

User avatar

Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 35,909
Location: Long Island, New York

08 Jan 2014, 11:13 am

The wife of a CEO can have great input in policy and who is hired and fired. As Bill Clinton said back when he was President when you voted for me you got two of us. This is quite common. I might be accused of sexism here but this is especially true when it comes to policy about children. For the marriages I know about while the husband may or may not have input the wife makes the final decision when it comes to the kids.

As a person who opposes aspects of Autism Speaks the wealth and power of Bob Wright is frightening and discouraging. While people with wealth and power usually get what they want, every once in awhile a surprise happens. Here in New York The West Side Stadium Mayor Bloomberg wanted is not there because of opposition by so called small people. All the money Bloomberg has spent trying to pass gun control laws has not worked so far. Like Bob Wright, Mike Bloomberg's wealth comes from media control.


_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


aghogday
Veteran
Veteran

User avatar

Joined: 25 Nov 2010
Age: 64
Gender: Male
Posts: 11,845

08 Jan 2014, 1:09 pm

ASPartOfMe wrote:
The wife of a CEO can have great input in policy and who is hired and fired. As Bill Clinton said back when he was President when you voted for me you got two of us. This is quite common. I might be accused of sexism here but this is especially true when it comes to policy about children. For the marriages I know about while the husband may or may not have input the wife makes the final decision when it comes to the kids.

As a person who opposes aspects of Autism Speaks the wealth and power of Bob Wright is frightening and discouraging. While people with wealth and power usually get what they want, every once in awhile a surprise happens. Here in New York The West Side Stadium Mayor Bloomberg wanted is not there because of opposition by so called small people. All the money Bloomberg has spent trying to pass gun control laws has not worked so far. Like Bob Wright, Mike Bloomberg's wealth comes from media control.


Well yes of course it can be..

But and a big but is life ain't perfect..

Ya seriously can't throw the baby out when there is just a little bit of dirty water..

Seriously per any objective charitable organization standard..in the US..

All the complaints here are YES relevant..and YES an issue...

But in factual effect per all the documented great things the Autism Speaks Organization has done..and YES continues to do..

IT IS SERIOUSLY JUST A SPECK IN THE TUB MY FRIEND...

THE OBJECTIVE EVIDENCE..IS FAR FAR FAR AWAY GREATER..THAN A OVER ZEALOUS COMMENT BY AN EMOTIONAL WIFE OF A CEO ..THAT HAPPENS TO HAVE THE CULTURAL CLOUT TO BE A BOARD MEMBER OF THAT ORGANIZATION..

OR A MIDDLE AGED WOMEN WITH A CHILD WITH REGRESSIVE AUTISM..THAT IS LIKELY ON THE FRIGGIN BROADER AUTISM PHENOTYPE..JUST AS MR. WRIGHT LIKELY IS..

PER THEIR ISSUES WITH COGNITIVE EMPATHY AND ALL OF THAT...

IT'S A HUGE WORLD WITH MANY TYPES OF DIVERGENT MINDS...

TOO BIG TO THROW ANYTHING OUT CAUSE THERE'S A SPECK IN THE BATHWATER...

IF YA GET MY DRIFT...

IF NOT..IT CANNOT BE UNEXPECTED..

AGAIN AND AGAIN AND AGAIN AND AGAIN...

99% OF THE PROBLEM IS LIKELY COGNITIVE EMPATHY..PER THIS WHOLE DAM ISSUE..

IT IS WHAT IT IS..AND WE LIVE WITH AND DO THE BEST WE CAN...

IF WE ARE TRULY INTELLIGENT...

TH@IS

IF NOT..

WHAT WILL BE WILL BE..

IF IT IS TO BE IT IS UP TO ME..

I HAVE ABSOLUTELY NO CONTROL OVER ANY OF THIS OR ANY ONE PERSON IN THIS DISCUSSION.

(kinda freeing to truly understand that ya see)

BUT I DO KNOW THE TRUTH FOR ME...

AND I AM ONE HUNDRED PERCENT ON THAT..

my friend..:)

The facts are out..and overall Autism Speaks is an outstanding charitable organization..

And for whatever specks of dirt are in the entire tub..

The dam thING wouldn't even exist..if it were not for truly philanthropic folks like MR. WRIGHT AND MR. SIMON..

WHO RETIRE RICH..AND GIVE A f**k ABOUT MORE THAN JUST THEM SELF AND OR THEIR FAMILY...

IT
S CALLED TRUE ALTRUISM...

AND YES..PER MINOR IMPERFECTIONS..THAT IS MOST DEFINITELY THE ONLY WAY TO DESCRIBE THE NATURE OF MR. WRIGHT..AND MR. SIMON...

WE NEED MORE FOLKS LIKE THAT..TO HELP THE BIGGEST TRIBE OF ALL..

THE FRIGGIN..WORLD...SMILES AND HAVE a GREAT DAY AGAIN...

my friend..:)


_________________
KATiE MiA FredericK!iI

Gravatar is one of the coolest things ever!! !

http://en.gravatar.com/katiemiafrederick