huytongirl wrote:
There seems to be confusion here between having well-developed muscles and having problems with the muscles themselves.
That's what I am observing as well. There is a difference between strength and coordination.
I'm terribly clumsy, bumping into things all the time and I can't throw or catch properly.
(The clumsiness only disappears when I'm dancing, something to do with the rhythm of music,
or a more conscious feeling of the movements.)
But since early childhood I've been unusually strong for a skinny girl.
My mother said I was sitting on her hip like a monkey, she didn't need to hold me.
And I was climbing poles, ropes and trees all the time. Although I hated team sports, because
of my clumsiness, I loved physical work, always testing how much I could lift or how fast I could dig.
Only ten years ago I was still doing honey harvests, lifting 60-70 boxes of 25-30 kg each, all day long, (I'm 50kg/1.70m).
But I can't do any of this any more, because I developed some form of rheumatism called fibromyalgia.
Now my muscles are sore all the time and they don't build up anymore, even if I try to ignore the pain and do
some exercise (running and chin-ups/push-ups). It's very frustrating.
And like my dad, I look much younger than my age. That is definitely genetic.
Didn't know it was connected to AS though.
I suspect he was also on the spectrum, but he never got diagnosed,
and I can't ask him anymore, but I remember that he had many of the typical AS traits,
and my paternal grandmother as well. She was also skinny and strong.