they keep telling I have undifferentiated Schizophrenia.WTF!
btbnnyr
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Joined: 18 May 2011
Gender: Female
Posts: 7,359
Location: Lost Angleles Carmen Santiago
Maybe you do have schizophrenia.
Or bipolar.
Your record seems complicated, and it would be more difficult to diagnose autism in a complicated record with many symptoms of other disorders and medication effects.
_________________
Drain and plane and grain and blain your brain, and then again,
Propane and butane out of the gas main, your blain shall sustain!
I was once diagnosed as bipolar and medicated for it. I never felt like it fit. I got stuck in the same type loop as you.
Here's how I got out:
-Took myself off the medication
-Went to a completely new doctor and acted like I hadn't been seen before so I got a fresh take.
(In the end, I think I was misdiagnosed then, too. ...and I've held a LOT of different ones over the years. I seem to only believe the ones I tend to agree with. That may not be great, but neither is the huge amount of things I've been diagnosed with! It's not a very exact science...)
_________________
So you know who just said that:
I am female, I am married
I have two children (one AS and one NT)
I have been diagnosed with Aspergers and MERLD
I have significant chronic medical conditions as well
Many books I have read describe schizophrenia to be related to autism (Term: Childhood schizophrenia by Asperger). Commonly the only thing that can separate the two are negative symptoms that only occur in schizophrenia such as disorganized speech, disorganized thoughts, delusions and hallucinations. People with schizophrenia have a very odd way of thinking during an episode. It varies largely from the way people with autism think.
This is very relevant:
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2928288/
Asperger man misdiagnosed with schizophrenia because the context and history of his presenting symptoms were ignored by the person who diagnosed him initially, once the whole picture was taken into account his real diagnosis emerged. He was lucky; most people don't get to the same happy ending.
What screen_name says seems to be the best course of action. Get off the meds ASAP if you truly do not need them. After you are confident that you are no longer under their effects, go for a new assessment and do not mention or bring in any records pertaining to previous diagnoses. This is the only way I can think of to get an unbiased evaluation.
Tony Attwood on the misdiagnosis of schizophrenia applied to people on the spectrum:
http://www.tonyattwood.com.au/index.php ... -as-schizo
Could be wrong, but maybe there's a bit of physician/psychologist self-preservation involved:
If he "undiagnoses" the SZ and you come off the meds and then something awful happens because you actually are SZ, he could get into trouble.
OTOH, if he keeps you as presently diagnosed and inappropriately medicated forever he'll never get into any trouble for it.
Given the high-profile cases like the guy who shot up the movie theater in a batman outfit, I wouldn't be surprised if such thoughts occur.
NEWS FLASH! NEWS FLASH! NEWS FLASH! NEWS FLASH!
My regular PD told me "he would rather see me pulling it off" meaning stopping the Antipsychotics and doing the AS specific tests which would normally not work with me on Antipsychotics. My pdoc is kind of a crazyperson. He kind of implants ideas in your head by briefly mentioning ideas and doesn't insist or force them (e.g. he didn't insist on it or tell me if or how I should go off my Antipsychotics. I think he is waiting for me to come up with the idea myself and ask him directly on my next app. that I'm determined to do so. He is very "democratic". Or he want's it to be my wish in the case that the s**t hits the fan.)
Anyways. I wrote an Email to the AS-doc and asked her whether she would still do the tests in a few months when and if i'm neuroleptic-free.
I also asked him to put me on a high dose of Topamax which I have been on before for racing thoughts and agitation which has helped me greatly in the past (to help me with going off the Antipsychotics) and he agreed. 2 years ago when I was on 400mg Topamax I easily stopped my Zyprexa briefly and it worked like a charm (I have no idea why I'm on it again though, maybe it didn't). Maybe I do it again.
_________________
Male
Aspie score: 131 of 200
NT score: 34 of 200
Possibly Aspie (diagnosed by an autism expert, doc moves abroad, forced to change docs and all say it's schizophrenia NOS or schizo-affective disorde or personality disorders. initial doc was a colleague of uncle Simon btw. you do the math.). (edit: by Uncle Simon I mean Simon Baron Cohen. Just to clear things up.)
Oh now I now. I stopped the Topamax too because at that time, I wanted to get myself TOTALLY med free. Big mistake.
Topamax is good stuff! (for me)
_________________
Male
Aspie score: 131 of 200
NT score: 34 of 200
Possibly Aspie (diagnosed by an autism expert, doc moves abroad, forced to change docs and all say it's schizophrenia NOS or schizo-affective disorde or personality disorders. initial doc was a colleague of uncle Simon btw. you do the math.). (edit: by Uncle Simon I mean Simon Baron Cohen. Just to clear things up.)
In 30 years or so, we will have SPEC and PET machines in our 3. world country (Germany) for the regular people.
_________________
Male
Aspie score: 131 of 200
NT score: 34 of 200
Possibly Aspie (diagnosed by an autism expert, doc moves abroad, forced to change docs and all say it's schizophrenia NOS or schizo-affective disorde or personality disorders. initial doc was a colleague of uncle Simon btw. you do the math.). (edit: by Uncle Simon I mean Simon Baron Cohen. Just to clear things up.)
If you have any SENSORY hallucinations with paranoia and dellusions you have schizophrenia. If you have feelings have paranoia or dellusions without sensory hallucinations, then its either a personality disorder or asperger's syndrome. My husband is a licensed psychotherapist for over 30years and has supervised other therapists for 20 years besides being the director 10 years of all human services in two cities and internationally approving public and private social services. So... that's what he told me.
buttomline:
- I'm supposed to have "undifferentiated Schizophrenia" (because my record says so)
- I do not have Asperger's, based on the doc's impression of my talking and behavior and whatever.
- Asperger's specific tests can't be done because I'm on antipsychotics, These could affect the results of cognitive and whatever tests and render test results useless.
- The Antipsychotics can't be withdrawn to do the testes because I have undifferentieted Schizophrenia.
Ok. I totally don't know what to do anymore. I read books on Schizophrenia in the past. Biographies. Hard to read medical books. anything. They don't make any sense in my case. But whenever I watch interviews about AS I want to cry because they are telling my life story. I totally can't read any book on AS because it's all my problems and life story and affect me very negatively because I relate to them too much.
Maybe I'm schizophrenic and my god damn delusion is THAT I BELIEVE I HAVE ASPERGER'S? that's the ONLY scenario that would make sense! Or I have Asperger's and these docs are full of s**t.
The thing is, everyone is saying that I have UNDIFFERENTIATED Schizophrenia. and frankly I'm wondering whether undiff. Schiz. has ANYTHING to do with real Schiz. because I have never had a delusion or hallucination or thinking disorder unless I was on an almost overdose of antidepressants (just thinking disorder in this case).
So WTF is this undiff. Schiz.?
Cheerz
Omid
Interesting because for years I was told I have anxiety/depression and doctor only said so because that's what my records say! I was put on medication after medication which only seemed to make my symptoms worse. I finally began seeing a therapist and psychiatrist in the same clinic where all the doctors work closely together and finally after years of living in the dark and misdiagnosed or being told I was "normal" they are actually considered me as actually having ADHD/Aspergers! I stopped my antidepressants which made my cognitive function worse. I would say it actually gave me a thought disorder too. I was given a prescription for adderall which has made my anxiety and brain fog go away for the first time ever!! !! !
Here is what I would do. Listen to your gut feelings. Do your research and find a way to stop your meds. Don't even listen to the horse**** people say about asking your doctor how to stop because the doctor will try to either A) talk you out of it or B) you will still suffer terrible withdraw symptoms if any. (Personal experience) Hell if you are on medication that you shouldn't be on they will make you present with clinical symptoms of many disorders. Anti depressant actually made me depressed and gave me increased anxiety, so doctor kept me on them because of these symptoms. Also anti-psychotics can make you appear as if you have schizophrenia because they cause many symptoms that appear like the disorder itself. (I was on a few of these too)
Try finding a therapist if you can and don't tell them what you have been diagnosed with and instead just tell them what you have been struggling with. Give them a history of your symptoms and any information you think may be important. I did this and my therapist, along with my psychiatrist in the same clinic are helping me determine if I do have ADHD/Aspergers.
It has been my struggle that doctors tend to look at your history and stay with the diagnosis, despite treatments not working. This is always a red flag that the diagnosis may be wrong!! !! Starting fresh is usually the only way to find answers.
I hope you find the help you need,
-Niko
My regular PD told me "he would rather see me pulling it off" meaning stopping the Antipsychotics and doing the AS specific tests which would normally not work with me on Antipsychotics. My pdoc is kind of a crazyperson. He kind of implants ideas in your head by briefly mentioning ideas and doesn't insist or force them (e.g. he didn't insist on it or tell me if or how I should go off my Antipsychotics. I think he is waiting for me to come up with the idea myself and ask him directly on my next app. that I'm determined to do so. He is very "democratic". Or he want's it to be my wish in the case that the s**t hits the fan.)
Anyways. I wrote an Email to the AS-doc and asked her whether she would still do the tests in a few months when and if i'm neuroleptic-free.
I also asked him to put me on a high dose of Topamax which I have been on before for racing thoughts and agitation which has helped me greatly in the past (to help me with going off the Antipsychotics) and he agreed. 2 years ago when I was on 400mg Topamax I easily stopped my Zyprexa briefly and it worked like a charm (I have no idea why I'm on it again though, maybe it didn't). Maybe I do it again.
Im not 100% but I believe stopping anti-psychotics can lower your seizure threshold. Topamax is an anti-epileptic and those types of drugs seem to help people with agitation/ racing thoughts resulting from autism/Asperger's and the like. I could be wrong! You definitely should go verify before jumping to conclusions.
Actually, being on antipsychotics lowers seizure threshold:
All antipsychotics can lower the seizure threshold. They should be used with caution in patients who have a history of seizures and in those with organic brain disorders. Generally, the more sedating the antipsychotic, the more it lowers the seizure threshold. Seizures are most common with low-potency FGAs and clozapine, especially at higher dosages.30 Depot antipsychotics should not be used in patients with epilepsy because they cannot be quickly withdrawn.
http://www.aafp.org/afp/2010/0301/p617.html
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