Page 1 of 5 [ 65 posts ]  Go to page 1, 2, 3, 4, 5  Next

StarTrekker
Veteran
Veteran

User avatar

Joined: 22 Apr 2012
Age: 31
Gender: Female
Posts: 3,088
Location: Starship Voyager, somewhere in the Delta quadrant

28 Feb 2016, 2:19 am

I made a new deaf friend recently, and subsequently have been spending more time learing about "Deaf culture". It got me wondering about whether autistics have a "culture" which is separate from NT life. I know there's the "autistic community", but to me, culture and community are two different things. The former has rules, instinctive expectations of behaviour from group members, and unique rituals or ways of being and thinking which set the group apart from those who aren't affiliated with the culture. A community is little more than a group of people who live close to each other, or, in this case, live on the same spectrum, it doesn't have the same cohesiveness and inclusiveness as a culture. So what do you think, do we have a culture, or just a community? Do you think we need a culture if we're to push the slow-moving autism rights campaign along further, or do you think it makes little difference?


_________________
"Survival is insufficient" - Seven of Nine
Diagnosed with ASD level 1 on the 10th of April, 2014
Rediagnosed with ASD level 2 on the 4th of May, 2019
Thanks to Olympiadis for my fantastic avatar!


zchong
Yellow-bellied Woodpecker
Yellow-bellied Woodpecker

Joined: 9 Aug 2015
Age: 27
Posts: 51

28 Feb 2016, 12:21 pm

No, we don't have a culture, but we must create our own.


_________________
I have Autism but people usually just don't notice, so my slight Autism is here to SHINE! :)
Some will, some won't, so what, whatever!
Avid blogger.
[url]https://tvbookfilmreviewers.wordpress.com/
[/url]
https://writersrandomideas.wordpress.com/
https://justanotherstupidblogsite.wordpress.com/


btbnnyr
Veteran
Veteran

User avatar

Joined: 18 May 2011
Gender: Female
Posts: 7,359
Location: Lost Angleles Carmen Santiago

28 Feb 2016, 12:25 pm

I don't think there is an autistic culture, and I don't think there needs to be.


_________________
Drain and plane and grain and blain your brain, and then again,
Propane and butane out of the gas main, your blain shall sustain!


greenylynx
Snowy Owl
Snowy Owl

Joined: 25 Feb 2016
Age: 31
Gender: Male
Posts: 149

28 Feb 2016, 1:17 pm

btbnnyr wrote:
I don't think there is an autistic culture, and I don't think there needs to be.

I agree with this sentiment. As I posted in the thread about whether or not it's fine to be autistic but not agree with Autistic culture, I think the best way forward is self advocacy, but in the here and now I don't think that's realistic unfortunately. Now even then I think forums like Wrong Planet are a great starting point; if more informal groups like WP can become formed then large organizations like Autism Speaks wouldn't have as much of a chokehold on public thought like it does now. Instead, people's individual voices would help to form public thought more.



Trogluddite
Veteran
Veteran

User avatar

Joined: 2 Feb 2016
Age: 53
Gender: Male
Posts: 3,075
Location: Yorkshire, UK

28 Feb 2016, 2:07 pm

Exactly. As I said in your other thread - I don't see that it's helpful to represent ourselves as a single demographic "block". It encourages people to think that there will be "one size fits all" solutions to making our place in society more comfortable. The generic way that mental health care provision is arranged is a good example of this - the services need customising to suit the combination of traits that an autistic patient might have. As soon as I was working with people who understood that, I could suddenly see the point of therapy - before, it was like banging my head against a brick-wall. It wasn't the label, or an in-depth knowledge of autism that helped, so much as identifying my innate traits as an individual.


_________________
When you are fighting an invisible monster, first throw a bucket of paint over it.


ConceptuallyCurious
Velociraptor
Velociraptor

User avatar

Joined: 19 Aug 2014
Age: 29
Gender: Female
Posts: 494

28 Feb 2016, 2:14 pm

Not really. Not in the same sense as Deaf culture, in any case.

We don't have a social collective in the same way, nor do we have our own language. Less of a "history" too, I'd argue.

(Not that we don't have a history, but it's less defined and doesn't bring us together in the same way as Deaf culture does.)

I say this as a person who was part of Deaf culture as a child.

Perhaps different from the perspective of someone in a special school, though?


_________________
Diagnosed with:
Moderate Hearing Loss in 2002.
Autism Spectrum Disorder in August 2015.
ADHD diagnosed in July 2016

Also "probable" dyspraxia/DCD and dyslexia.

Plus a smattering of mental health problems that have now been mostly resolved.


Yigeren
Veteran
Veteran

User avatar

Joined: 20 Dec 2015
Gender: Female
Posts: 2,606
Location: United States

28 Feb 2016, 2:43 pm

Not that I'm aware of. I don't really want one, either.



Grammar Geek
Veteran
Veteran

User avatar

Joined: 22 Oct 2015
Age: 28
Posts: 888
Location: Missouri

28 Feb 2016, 3:52 pm

No, but I wish there was an autistic culture. It would make me feel like part of a group I could belong to instead of being an outcast all the time.



Trogluddite
Veteran
Veteran

User avatar

Joined: 2 Feb 2016
Age: 53
Gender: Male
Posts: 3,075
Location: Yorkshire, UK

28 Feb 2016, 3:59 pm

But how would you feel if there was an autistic culture - but you still didn't fit into it?


_________________
When you are fighting an invisible monster, first throw a bucket of paint over it.


MaxE
Veteran
Veteran

User avatar

Joined: 2 Sep 2013
Gender: Male
Posts: 5,808
Location: Mid-Atlantic US

28 Feb 2016, 4:04 pm

Trogluddite wrote:
But how would you feel if there was an autistic culture - but you still didn't fit into it?
If there was an autistic culture, no one would fit in because they'd all be autistic.


_________________
My WP story


Fnord
Veteran
Veteran

User avatar

Joined: 6 May 2008
Age: 67
Gender: Male
Posts: 60,804
Location: Stendec

28 Feb 2016, 4:05 pm

The only culture we might benefit from would be found in a cup of yoghurt.


_________________
 
I have no love for Hamas, Hezbollah, Iranian Leadership, Islamic Jihad, other Islamic terrorist groups, OR their supporters and sympathizers.


MaxE
Veteran
Veteran

User avatar

Joined: 2 Sep 2013
Gender: Male
Posts: 5,808
Location: Mid-Atlantic US

28 Feb 2016, 4:09 pm

Deaf culture is a special case. It exists because deaf people speak their own language, separate from the surrounding community. In the US there is even a deaf university (Gallaudet) which is in fact the center of the deaf culture. In that language, they produce their own literature, theater, etc. All cultural stuff.

In contrast, it's debatable whether other "disability" communities can claim to have a culture. Paraplegics get together to play wheelchair basketball, for example, but that doesn't really constitute a culture. I guess you can think of disability communities as special interest groups, but not cultures.


_________________
My WP story


untilwereturn
Deinonychus
Deinonychus

User avatar

Joined: 1 Aug 2014
Age: 53
Gender: Male
Posts: 386
Location: Tennessee

29 Feb 2016, 8:35 am

MaxE wrote:
Trogluddite wrote:
But how would you feel if there was an autistic culture - but you still didn't fit into it?
If there was an autistic culture, no one would fit in because they'd all be autistic.


That's pretty much what I was thinking when I saw this thread. The very nature of autism seems to militate against the idea of establishing a culture based upon it. A bunch of people with poor social skills getting together to obsess about their disparate special interests doesn't sound like a recipe for promoting group solidarity. ;-)

That's not to say I wouldn't be interested in getting together with other people on the spectrum now and then (if I knew of any other diagnosed adults in my area).



AspieUtah
Veteran
Veteran

User avatar

Joined: 20 Jun 2014
Age: 62
Gender: Male
Posts: 6,118
Location: Brigham City, Utah

29 Feb 2016, 9:25 am

We own Star Wars and all the various comic, fantasy, sci-fi cons.

Seriously, though, our culture includes Daniel Tammet, Susan Boyle, Craig Nicholls, the Robisons, Daryl Hannah, Alan Turing, Thomas Jefferson and our adopted cousin Steven Silberman, among many others like our interplanetary captain, Alex Plank. I think we rock!

We systemize, analyze and focus on the world everybody else takes for granted.


_________________
Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)


ASPartOfMe
Veteran
Veteran

User avatar

Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 35,910
Location: Long Island, New York

29 Feb 2016, 9:46 am

Alan Turing and Thomas Jefferson migh be our cousins or might be our adopted cousins. Based on todays knowledge we do not know.


_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


GarTog
Snowy Owl
Snowy Owl

User avatar

Joined: 19 Oct 2011
Age: 64
Gender: Male
Posts: 148
Location: UK

29 Feb 2016, 9:57 am

Do we want one? If so why?