I get this all the time. It's quite horrible, especially when you live with a lot of other people who don't understand an get upset when you can't communicate. I know you may not always be able to, but maybe you could put on some earphones and lay in the dark. Or maybe pace, or rock. Those help. If you don't like the dark, maybe get a dimming lamp, that way you have some light, but it's not hurting your eyes.
Sometimes, my voice gets cut off. Where you cannot speak, no matter how badly you wish to. Maybe carry around cards to let people around you aware of what's going on if you must be around them. I'm sorry for your difficulties. Apologies.
Good luck.