What I saw at an ABA clinic
Ah, I'm sorry to hear that. I was home-bound for two years because of SPD, but things did improve as I worked to stretch my boundaries. I went from having sensory overload just sitting in a dining room with my family to being able to run short errands with my mom after a few years of putting in a lot of effort. CBT has helped me make progress more than anything else, so I hope you have success with it, too.
_________________
I have not the kind affections of a pigeon. - Ralph Waldo Emerson
Although I never recieved an official ASD diagnoses, I do recall experiencing several interventions that seem to be ABA based. Expressing myself was treated as defiance and punished. I learned to mask and was placed in a new group home where the house parents let me be me as long as nobody was hurt by it. I was allowed to have my routine. My chore was fixed. I was allowed, even encouraged to wander as long as I was home by dinner. I flourished in this environment. It seems to me that ABA teaches people to mask to satisfy a NT world. This often results in major problems later in life as many here can attest to.
_________________
RAADS-R Score 199
Aspie-Quiz Neurodiverse score: 141/200
Aspie-Quiz Neurotypical score: 70/200
AQ 42
I am with ASPoM on this, but I understand what the OP is saying and I’m grateful this was brought up. I agree, the problem is rewarding children to please others.
I am NT. My mom has always been mentally ill. My earliest memories are doing little things for her to make her happy, so she would treat me better. Lying, covering for her, being cute, etc.
You never want to train a person’s natural feelings out of them. Either softly with the smiles and rewards or by dog shock collars. What’s supposed to happen when the now grown adult is walking through a parking lot and is approached by a person requesting help? Is this a trick? Or does the person really need help? Your natural feelings should tell you. And I’m sorry, autistic feelings will tell you as well. They just work differently. You might notice the person’s shoes or the direction they came in instead of their face. Whatever works naturally is what you should be developing. Not your weaknesses.
Obviously, this is just my opinion, and it’s been made quite clear to me that no one professionally wants to hear my opinions, but *I* think things like social skills should be honed as an adult, and children should be left alone as much as possible. Let them be happy and form a strong sense of self and a strong set of interests, autistic or not. Don’t screw around with their young minds when there may not even be a problem.
ASPartOfMe
Veteran
Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 35,903
Location: Long Island, New York
When to screen for autism? New study suggests as young as 14 months
Current recommendations are for children to be screened specifically for autism spectrum disorder during regular doctor visits at 18 and 24 months old.
Yet new data suggest that autism detection and diagnosis can start as young as 14 months old with high accuracy, which could lead to children with autism having the option to start therapies early, according to the study published in the medical journal JAMA Pediatrics on Monday.
"This opens up really unprecedented opportunity to get them into early treatment -- potentially early intensive treatment -- and then check to see what kind of impact this is having by the time they reach school age," said Karen Pierce, a professor of neuroscience and co-director of the Autism Center of Excellence at the University of California, San Diego, who was first author of the new study.
"The brain is very plastic during early development and can be impacted by input from the environment," she said. "The frontal cortex in particular -- the part of the brain essential for the development of social skills -- is making large numbers of connections between brain cells across the first two years of life."
Historically, children with autism normally don't even start their treatment until age 3 or 4, after a lot of that wiring has already happened, she said.
The toddlers received their first diagnostic evaluation between the ages of 12 and 36 months old, and were followed up with through at least one subsequent evaluation.
The study included more than 3,000 evaluation visits among the toddlers.
The researchers took a close look at how accurate and stable the diagnoses were among the toddlers over time. For instance, toddlers who were not diagnosed with autism at their first visit but were at their last were designated as having "late-identified" autism.
Among the toddlers, an initial autism diagnosis, especially when screening started around 14 months old, was more stable than any other diagnosis, including typical development, the researchers wrote.
Overall, the data showed that 84% of toddlers in the study who were initially diagnosed with autism at their first doctor visit retained this diagnosis by the time they turned 3 or 4.
Additionally, the researchers found that 23.8% of the toddlers who were diagnosed with autism in an evaluation at 3 to 4 years old initially had their autism diagnosis missed in their first evaluation visit.
The study had some limitations, including that the practitioners performing the evaluations were not blinded to whether the toddlers had previous diagnoses.
Looking ahead, the researches plan to conduct a follow-up study to see what the outcomes are among the children who were diagnosed early in the current study.
"We have a new grant out that's under review right now to see if we can call all these kids back from the JAMA Pediatrics paper when they get to school age, and test them all over again to see what their outcomes are, because it's really vital -- that's the whole point of doing all this," Pierce said.
He said that among practitioners it has long been realized that you can and should diagnose autism spectrum disorder at younger ages.
"The biggest benefit to diagnosing young is really two-fold. One would be preventing challenging behaviors," he said.
Some of those behaviors might be when a child bangs his or her head against a table to get the attention of others, or isolates themselves from other people. Those types of behaviors typically develop over time.
"It's because they've learned over time if I'm not communicating and I start banging my head, that gets a reaction," Morrier said.
So by diagnosing early, "we're going to probably prevent a lot of those types of behaviors from starting," he said. Secondly, for families, "we can give them the skills and give the child the skills needed so that they can feel supported in going out into the community and having real social experiences that all young kids should have."
Thomas Frazier, chief science officer for the autism advocacy group Autism Speaks, called the new study "very strong" and the study's interpretation that autism can be detected at younger ages as "appropriate."
"There is compelling data from many studies that early intensive behavioral intervention is effective. Many children who receive early intensive behavioral intervention show substantial improvements in cognitive function, language and daily living skills as well as reductions in autism symptoms," he said. "There is also some data that suggests that starting treatment earlier improves outcomes."
Bolding and underlining mine.
While "ABA" is not literally mentioned "intensive therapies" and behavioral therapies are mentioned. You can draw your own conclusions, mine is they are talking about ABA
_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
Thing is, parenting a child on the spectrum can be really difficult. The parenting instincts you are born with often don't fit how a child on the spectrum learns. I'll give an example...
When my son doesn't get his way, he drops to the floor and screams. Now, the protective parent in you wants to get on the ground with him and console him and tell him everything will be all right. However, with ABA, they teach you that this just reinforces the behavior, and the child learns that whenever he wants attention, he can just lay on the floor and scream, and you'll come running. So, instead, you're taught to ignore the child. Once he learns the attention isn't coming, he will stop the dropping and tantrums. And it works. But is it the right way to parent? That, in my opinion, is the debate.
My 6-year old son was in an ABA center daily from age 2-5. Putting the ABA conversation aside for a moment, I can verify in our case that the technicians could not have been more positive. It was a wonderful place. Smart, motivated young adults really working hard to help the children learn age-appropriate skills and try to extinguish troublesome behaviors. There was never punishment. There was never an attempt to stop children from stimming or take away their personalities. Everything was extremely individualized. Kids were taught there were times they should try to be quiet and follow directions, and were taught to really advocate for themselves if they needed movement breaks and such.
I get the controversy. Kids are given tasks to which there is one acceptable way to accomplish, and have to perform the task over and over again until they "master" it. I kind of see how this could have potential long-term negative effects. But I personally don't see any "residue" from this in my son. He's a mostly happy dude with personality for days.
They potty-trained my son, helped a ton with his aggression, and helped him a lot with learning concepts that NT kids learn naturally. I'm not sure I could have taught him these things myself.
ASPartOfMe
Veteran
Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 35,903
Location: Long Island, New York
I am in no position to judge your son or his motivations but I do want to discuss tantrums.
ABA did not invent ignoring tantrums, “let him cry himself to sleep” was normal parenting back in the 50s and 60s. It was advocated by Dr. Benjamin Spock whose child care book was ubiquitous in that era.
I read ABA practitioners talk about “tantruming”. This is concerning. As you mentioned a tantrum is a deliberate manipulative behavior designed to get something. Autistic meltdowns often look the same as tantrums but they are involuntary often caused by being overwhelmed/sensory overload. If you are autistic false accusations of being a drama queen are often par for the course.
_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
I am in no position to judge your son or his motivations but I do want to discuss tantrums.
ABA did not invent ignoring tantrums, “let him cry himself to sleep” was normal parenting back in the 50s and 60s. It was advocated by Dr. Benjamin Spock whose child care book was ubiquitous in that era.
I read ABA practitioners talk about “tantruming”. This is concerning. As you mentioned a tantrum is a deliberate manipulative behavior designed to get something. Autistic meltdowns often look the same as tantrums but they are involuntary often caused by being overwhelmed/sensory overload. If you are autistic false accusations of being a drama queen are often par for the course.
Agreed, the idea of meltdowns being tantrums are not at all knew, and meltdowns are terrifying, painful, things. Not some dark plot for attention.
_________________
Diagnosed autistic level 2, ODD, anxiety, dyspraxic, essential tremors, depression (Doubted), CAPD, hyper mobility syndrome
Suspected; PTSD (Treated, as my counselor did notice), possible PCOS, PMDD, Learning disabilities (Sure of it, unknown what they are), possibly something wrong with immune system (Sick about as much as I'm not) Possible EDS- hyper mobility type (Will be getting tested, suggested by doctor) dysautonomia
ASPartOfMe
Veteran
Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 35,903
Location: Long Island, New York
The bigger point is that kids in ABA have to work really hard and often must perform tasks they don't want to do, instead of playing, stimming, or relaxing. Doesn't seem fair. Can that cause problems in a child?
Most certainly yes. Like most things in life it is a matter of degree. We all have to do things we do not want to do. That teaches 1. Discipline 2. Sometimes one needs to sacrifice now to be rewarded later.
It gets bad when you have to constantly subjugate who you are. This can lead to not understanding who you are, understanding who you are and hating yourself for it. This is a prescription for all sorts of mental illness. It is not only with ABA but having kids micromanaged and their whole day scheduled for them. Rates of mental illness among young people are going up significantly. I do think the correlation equals at least partial causation in this case.
_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
The bigger point is that kids in ABA have to work really hard and often must perform tasks they don't want to do, instead of playing, stimming, or relaxing. Doesn't seem fair. Can that cause problems in a child?
Definitely, sometimes everyone needs (Key word sometimes) to but in ABA, especially when you hear of the intensive 40 hour a week clinics, it isn't sometimes it's often and it's authority that you are supposed to trust that is telling you you have to preform tasks you have no desire to do. Especially seeing as a lot of kids in ABA are very young and need that time to play, relax, and be kids.
_________________
Diagnosed autistic level 2, ODD, anxiety, dyspraxic, essential tremors, depression (Doubted), CAPD, hyper mobility syndrome
Suspected; PTSD (Treated, as my counselor did notice), possible PCOS, PMDD, Learning disabilities (Sure of it, unknown what they are), possibly something wrong with immune system (Sick about as much as I'm not) Possible EDS- hyper mobility type (Will be getting tested, suggested by doctor) dysautonomia
ASPartOfMe
Veteran
Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 35,903
Location: Long Island, New York
Knowing how to manipulate people is a skill set autistic people are known to be naturally weak at. When autistics do lie it often is awkward or obvious.
_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
ASPartOfMe
Veteran
Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 35,903
Location: Long Island, New York
This new book by a Board Certified Behavior Analyst demonstrates the problems with the "new ABA" I discussed at different points in this thread
Turn Autism Around: An Action Guide for Parents of Young Children with Early Signs of Autism Hardcover
Is it autism or is it just a speech delay? - Promo video
1. Get the kid into training as soon as possible(unsaid goal of stopping the brain from "wiring" itself autistic before it starts as the youngest ages is when the brain "wires" itself quickest)
2. YET AGAIN mistaking meltdowns with tantrums a view which is central to ABA therapies approach to autism.
3. She mentions in the video that she was in denial when her child was young. I think in some ways she still is. All the positive language in the world does not change the nonacceptance of who the child is, otherwise, why would you want to turn the child around? The "positivity" of the new ABA is not nearly as bad and yes not nearly as bad as the original ABA. Not as bad does not conflate with good.
I noticed that Temple Grandin forwarded this book. I find this concerning. I hope I am wrong and she did it to surreptitiously undercut ABA. I don't think so.
_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
Things evolve, like anything, sure ABA isnt perfect but unfortunatly there isnt much else out there for severely autistic kids.
Im sure the old ABA was horrific, so were the old mental hospitals & care home / orphanages, but things change, im sure many advocates are still looking at the past or resent the concept of intervention because from their perspective autism is natural alternative human & thus intervention is not needed.
But what is the price of no intervention for some of these kids? Greater disability & an early death maybe?
Seems like many advocates would rather sacrifice these kids for their misguided view of natural difference & as Silberman insensitively & absurdly said disability being a natural part of life.
_________________
"The reasonable man adapts himself to the world; the unreasonable one persists in trying to adapt the world to himself. Therefore all progress depends upon the unreasonable man."
- George Bernie Shaw
There are other possible approaches to caring for young autistic children, besides ABA, such as DIR Floortime.
Many autistic advocates have recommended Floortime in place of ABA.
Some variants of ABA, such as Pivotal Response Training, incorporoate aspects of Floortime as well.
_________________
- Autistic in NYC - Resources and new ideas for the autistic adult community in the New York City metro area.
- Autistic peer-led groups (via text-based chat, currently) led or facilitated by members of the Autistic Peer Leadership Group.
- My Twitter / "X" (new as of 2021)
ASPartOfMe
Veteran
Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 35,903
Location: Long Island, New York
Im sure the old ABA was horrific, so were the old mental hospitals & care home / orphanages, but things change, im sure many advocates are still looking at the past or resent the concept of intervention because from their perspective autism is natural alternative human & thus intervention is not needed.
But what is the price of no intervention for some of these kids? Greater disability & an early death maybe?
Seems like many advocates would rather sacrifice these kids for their misguided view of natural difference & as Silberman insensitively & absurdly said disability being a natural part of life.
I agree that is unfortunate that there is not more out there than ABA especially in America where ABA is a monopoly. Parents who do not want ABA are often left to choose to homeschool which they do not have the skills to do or uprooting their family to find some unproven treatment that insurance will not pay for. This is why ND advocates who call parents that enroll their kids in ABA Nazis in twitterland are counterproductive. Thankfully this type of thing is a lot less common than it was five or so years ago.
With the exception of a few Autistic supremacists, I have not read of too many ND advocates arguing for NO TREATMENTS. I think a treatment that requires constant reinforcement is a bad workaround at best. That is why ABA is a cash cow.
ND advocates do not have the money to fund research, so they are easily dismissed by the ABA industry by saying we have hundreds of peer-reviewed studies, you got unproven quackery.
In order to assess something, it is a must to look at its roots.
With exception of situations such as somebody being paralyzed after being run over by a car disability and sickness are natural parts of life.
_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity
“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman
Last edited by ASPartOfMe on 14 Apr 2021, 2:17 pm, edited 5 times in total.
Many autistic advocates have recommended Floortime in place of ABA.
Some variants of ABA, such as Pivotal Response Training, incorporoate aspects of Floortime as well.
I belive Floortime is more geared to stimulating speech, pretend play & enagement which is great.
However for specific life skills like getting dressed, toileting for example you need something more focused, which is where ABA comes in.
Im not a great fan of it as i never had it so have limited experience, but as i say in the absence of much else for those on the severe end it probably has its place in modern autism treatment.
_________________
"The reasonable man adapts himself to the world; the unreasonable one persists in trying to adapt the world to himself. Therefore all progress depends upon the unreasonable man."
- George Bernie Shaw