Should I try to talk with my doctor about past diagnosis?

Post Reply New Topic

Sorry if this post come across as being too panic driven, it's just I have a ongoing melancholy inside me thinking deeply about my life and disability.


When I was around 3/4 my mother noticed slow growth in my overall appearance. This of course led to a examination that had me co-diagnosed as PDD-NOS/Developmentally Delayed. With the dual diagnosis came with me being placed in a Life Skills special education classroom that was for the lower functioning students. My peers had severe developmental disabilities that hinder their ability to function in society, which seemed apparent to my mother growing up that I was "slow" and lacking in the steps of a average child. The class curriculum tend to repeated the same routines through elementary and middle school. I never felt like I was given a chance to succeed in a more challenging environment just being placed in this kind of classroom standards, where some students would be non-verbal, or some had the social ability of a five year old. By high school a psychologist tested me for IEP reevaluation and my ability were in the average range, which they then put me in "special ed" classes that teach the general academic curriculum. When the reevaluation came for my senior year my test scores significant improved, with Thinking ability scoring a 95 and Verbal still in the 92 range. It's just my cognitive efficiency was off, which isn't troublesome because that's common in autistic people or people with disorders such as ADD. Eventually I graduated high school and that mission was completed, leading into a community college where I studied for three and half years graduating with a Associates in Political Science. I'm currently working on my Bachelor's Degree, hoping to compete in two years ahead of time. My impending worry through all this gibberish is that diagnose of developmental delayed is still on my record, even with the way I'm succeeding in school this shouldn't still be in my medical records. What should I do to confirm a change in erasing this diagnoses?

Apologies if this post was too rambling to get my point across. I'm noticing a lack of replies, which indicates many on here couldn't make it through my entire post.

You should tell your doctor any relevant information, such as the PDD-NOS/developmentally delayed, for example.

Well, the physical isn't until March 12, which by then I'll try to talk about him on my past assigned diagnosis. The only drawback is would those test reevaluation from high school be provable enough to get me annexed the developmentally delayed disability tag? They assigned the diagnosis early in my life and I'm afraid it's too late now in my mid-twenties.

I am confused. People get rediagnosed all the time. Someone in my support group was diagnosed just last month and is going for a second opinion. I was misdiagnosed ten years ago and just got a corrected diagnosis. What am I missing?

Just to try getting one of my diagnosis off my medical record. Something that I'm considering if that's possible with my pediatric, without going through examinations as I have records from school that support my case.

Similarly to what you want, my general dr has "resolved" two past conditions based on indications of recovery; I didn't have to go specialists. However, my guess is that these were marked inactive rather than removed. Not sure. Saying something is inactive and past is one thing, saying it was incorrect (what was it?) or otherwise removing it is another.

Ironically... Your challenges were identified, but not your abilities. My abilities were identified, but not my challenges. Ironically, nearing age 50, I just got my diagnosis (e.g. superior intelligence and learning disability -which I overcame with great effort). For me ASD also (appropriately), I got private testing so I need to decide whether to put it on my record -medical, employment...

What is your concern for yours? Future employment? Having to repeatedly confirm that it's past (or a partial picture)?

I'm sorry your early education was restrictive. Congratulations on being on track to complete your studies early!!

Usually people get reevaluated every several years anyway. If anything, your reevaluation from high school will help your situation to establish a history. Most of the evaluation would involve your current presentation anyway.