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AprilR
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06 Jun 2020, 8:52 am

This topic resonates a lot with me. I feel like i am a faker attention whore sometimes especially since i learned to mask and people i meet don't immediately hate me. I feel guilty because i feel like i am downplaying people's issues like low functioning autistics.
I also don't have much sensory sensitivities, although when i was a child i was unable to eat a lot of things idk if this is because of sensory issues. But from what i understand, every autistic person is different, also a normal person wouldn't just come to the conclusion that there may be a neurological difference in their brain.
For example when i was a child i used to hate my dad because of how similar i was to him, and when the child of someone we know got diagnosed autistic i automatically felt a kinship to him. And there was a moment i still remember after making countless attempts of gaining friends, i told someone "i don't understand what people are thinking"
I still remember that moment very well, it's just something i "feel" that i am somehow different from people around me. It may not be autism as you see on tv, but there is a difference in the way your brain works that makes you think and consider the fact that you might have it. So i am trying not to feel guilty because of this. Keep in mind that there is still a lot of things we don't know regarding autism and neurology in general.



Kitenna
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06 Jun 2020, 10:54 am

AprilR wrote:
This topic resonates a lot with me. I feel like i am a faker attention whore sometimes especially since i learned to mask and people i meet don't immediately hate me. I feel guilty because i feel like i am downplaying people's issues like low functioning autistics.
I also don't have much sensory sensitivities, although when i was a child i was unable to eat a lot of things idk if this is because of sensory issues. But from what i understand, every autistic person is different, also a normal person wouldn't just come to the conclusion that there may be a neurological difference in their brain.
For example when i was a child i used to hate my dad because of how similar i was to him, and when the child of someone we know got diagnosed autistic i automatically felt a kinship to him. And there was a moment i still remember after making countless attempts of gaining friends, i told someone "i don't understand what people are thinking"
I still remember that moment very well, it's just something i "feel" that i am somehow different from people around me. It may not be autism as you see on tv, but there is a difference in the way your brain works that makes you think and consider the fact that you might have it. So i am trying not to feel guilty because of this. Keep in mind that there is still a lot of things we don't know regarding autism and neurology in general.


Thank you for sharing your experience. Autism is massively underestimated, especially in girls.



QFT
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06 Jun 2020, 2:34 pm

Kitenna wrote:
QFT wrote:
Kitenna wrote:
QFT wrote:
Kitenna wrote:
It's mainly when I find out about coping mechanisms/stims used by other autistics, and then start using them myself that I feel less autistic, because I wasn't using it before I found out so it feels like I'm faking.


Don't do that, that is a horrible idea! Why would you want to purposely make yourself more autistic?! Its really self defeating. You are LUCKY that you don't do them, so continue not to!! !

Lets put it this way. They use the word "spectrum" for a reason. Most autistic people don't have all the symptoms, only some. And then again normal people have some symptoms too, just less. So the line between autistic and normal is arbitrary. A couple of decades ago it would have been drawn differently. So forcing yourself to be more autistic simply because you fell on that side of the line is a stupid idea.

Some autistics can't speak. So are you going to purposely learn not to speak?!


I'm not "making myself more autistic." Autism involves masking from a young age so by unmasking I find coping mechanisms that help me in different situations. This happens naturally anyway. You start acting "more autistic" after a diagnosis because you're unlocking natural behaviours.

No I don't want to go nonverbal. But since my diagnosis I find I am stimming more which is good as it helps me to calm down and focus and releases negative energy. Yesterday stimming and engaging in special interests helped to relieve some of my frustration. Sometimes I try out stims that other autistics use (e.g. echolalia), and I find it helps.

Unmasking is good. But it sometimes makes me feel like I'm faking, that's the problem. I guess I'm just too hard on myself.


Masking = putting an effort into being something you are not
Unmasking = doing what you would be naturally doing if you didn't put that effort

But you are not doing what you would have been natrually doing. You wouldn't have been stimming if you didn't read that autistics stim. So its not unmasking.

In fact you even admit this yourself. You said that when you try to stim it doesn't seem to work and thats why you question your diagnosis. Well, then maybe you shouldn't be trying to stim on the first place.

Trying to learn to do autistic traits (such as stimming) is just as bad as trying to learn to be NT (masking). I think you shouldn't do either.


You clearly are misunderstood and have a huge stigma about autism. I hope that in time you can educate yourself and come to accept autism.

Have a nice rest of the day.


I don't have stigma against autism because I have Asperger myself. I just don't like the idea of "trying" to show autism symptoms that you wouldn't have had otherwise.



Joe90
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06 Jun 2020, 2:52 pm

As soon as I was diagnosed with Asperger's I tried to show LESS symptoms (unless I was unaware of a symptom being a symptom). But that was because I hated having a label and felt embarrassed about it.


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06 Jun 2020, 4:12 pm

It happens if one focuses too much or prioritises on the representation of the labels instead of something else beyond that.

It requires processing to get pass that.



When I was first diagnosed, I got the first same ideas and had been much of a denier.
But nothing similar to imposter syndrome because:

In my case, I don't shame myself to need less than those who 'struggle more', who 'deserved more', who 'mostly can't'.

This is where most of the 'high functioning' female representations goes.
And there's a network here and there exists for those who feels the same.


Instead, I pride myself to need less than others and prefer that way.
It also means I had known to have the right to decline support and accommodations as much as I could.

Which is an entirely different direction to process.
While I know there are members who are the same, I'd likely assume that we just don't need the same levels and ways of reassurances to prove ourselves much, the priorities lies elsewhere, mostly through competence -- but that's just me projecting.


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Kitenna
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06 Jun 2020, 4:14 pm

Edna3362 wrote:
It happens if one focuses too much or prioritises on the representation of the labels instead of something else beyond that.

It requires processing to get pass that.



When I was first diagnosed, I got the first same ideas and had been much of a denier.
But nothing similar to imposter syndrome because:

In my case, I don't shame myself to need less than those who 'struggle more', who 'deserved more', who 'mostly can't'.

This is where most of the 'high functioning' female representations goes.
And there's a network here and there exists for those who feels the same.


Instead, I pride myself to need less than others and prefer that way.
It also means I had known to have the right to decline support and accommodations as much as I could.

Which is an entirely different direction to process.
While I know there are members who are the same, I'd likely assume that we just don't need the same levels and ways of reassurances to prove ourselves much, the priorities lies elsewhere, mostly through competence -- but that's just me projecting.


You have a fair point. The only problem is that stressing so much over this makes me feel worse then I require more support (e.g. stricter routines).



Kitenna
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06 Jun 2020, 4:22 pm

QFT wrote:
Kitenna wrote:
QFT wrote:
Kitenna wrote:
QFT wrote:
Kitenna wrote:
It's mainly when I find out about coping mechanisms/stims used by other autistics, and then start using them myself that I feel less autistic, because I wasn't using it before I found out so it feels like I'm faking.


Don't do that, that is a horrible idea! Why would you want to purposely make yourself more autistic?! Its really self defeating. You are LUCKY that you don't do them, so continue not to!! !

Lets put it this way. They use the word "spectrum" for a reason. Most autistic people don't have all the symptoms, only some. And then again normal people have some symptoms too, just less. So the line between autistic and normal is arbitrary. A couple of decades ago it would have been drawn differently. So forcing yourself to be more autistic simply because you fell on that side of the line is a stupid idea.

Some autistics can't speak. So are you going to purposely learn not to speak?!


I'm not "making myself more autistic." Autism involves masking from a young age so by unmasking I find coping mechanisms that help me in different situations. This happens naturally anyway. You start acting "more autistic" after a diagnosis because you're unlocking natural behaviours.

No I don't want to go nonverbal. But since my diagnosis I find I am stimming more which is good as it helps me to calm down and focus and releases negative energy. Yesterday stimming and engaging in special interests helped to relieve some of my frustration. Sometimes I try out stims that other autistics use (e.g. echolalia), and I find it helps.

Unmasking is good. But it sometimes makes me feel like I'm faking, that's the problem. I guess I'm just too hard on myself.


Masking = putting an effort into being something you are not
Unmasking = doing what you would be naturally doing if you didn't put that effort

But you are not doing what you would have been natrually doing. You wouldn't have been stimming if you didn't read that autistics stim. So its not unmasking.

In fact you even admit this yourself. You said that when you try to stim it doesn't seem to work and thats why you question your diagnosis. Well, then maybe you shouldn't be trying to stim on the first place.

Trying to learn to do autistic traits (such as stimming) is just as bad as trying to learn to be NT (masking). I think you shouldn't do either.


You clearly are misunderstood and have a huge stigma about autism. I hope that in time you can educate yourself and come to accept autism.

Have a nice rest of the day.


I don't have stigma against autism because I have Asperger myself. I just don't like the idea of "trying" to show autism symptoms that you wouldn't have had otherwise.


Autistic or not I am allowed to use coping mechanisms that autistics use.



Edna3362
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06 Jun 2020, 5:02 pm

Kitenna wrote:
Edna3362 wrote:
It happens if one focuses too much or prioritises on the representation of the labels instead of something else beyond that.

It requires processing to get pass that.



When I was first diagnosed, I got the first same ideas and had been much of a denier.
But nothing similar to imposter syndrome because:

In my case, I don't shame myself to need less than those who 'struggle more', who 'deserved more', who 'mostly can't'.

This is where most of the 'high functioning' female representations goes.
And there's a network here and there exists for those who feels the same.


Instead, I pride myself to need less than others and prefer that way.
It also means I had known to have the right to decline support and accommodations as much as I could.

Which is an entirely different direction to process.
While I know there are members who are the same, I'd likely assume that we just don't need the same levels and ways of reassurances to prove ourselves much, the priorities lies elsewhere, mostly through competence -- but that's just me projecting.


You have a fair point. The only problem is that stressing so much over this makes me feel worse then I require more support (e.g. stricter routines).

Stressing over needing support... Stressing over labels...
It takes time to process things emotionally, though how long depends how and who's dealing with it.


Which also reminds me that being diagnosed is also a form of change.
Autistics usually takes more time and effort to deal with changes in general.

But being diagnosed, actually autistic or not, concerning the concept of the idea of yourself is another and yet an even bigger change.

It does get overwhelming, whether or not the labels made sense -- because it revolves personally.



As for using support...
In fact, several autistic support tools suits more than autistics themselves, it's far from exclusive and it accommodates practically anyone who needs it.

It's most people who either didn't knew it exists or didn't simply explore the possibility that can benefit their lives. :wink:
So do explore -- yes, even various behaviours is another form to explore. Only you judge yourself if the outcome suits you.


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kjeezy0127
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06 Jun 2020, 7:20 pm

I was diagnosed at 4. As a kid growing up, I definitely had my fair share of sensory issues and emotional meltdowns. This continued in a diminished form thoroughout middle and high school. By the time, I reached college though I didn't have many meltdowns and my sensory issues were pretty much gone. I will say my main traits of my autism now are a diminished ability to read social cues and body language, trouble picking up on whether someone is joking or not, and having a strong focus on one task. Remember that autism is a very vast spectrum so you could have a milder case of autism. I believe I fall into that category and you could too. :)



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06 Jun 2020, 10:05 pm

Kitenna wrote:
It's mainly when I find out about coping mechanisms/stims used by other autistics, and then start using them myself that I feel less autistic, because I wasn't using it before I found out so it feels like I'm faking.

Kitenna, at near 50, I started using ASD coping mechanisms and am so much more comfortable in life!! ! Why couldn't someone have told me 40 or more years ago that earplugs and polarized glasses and fidget toys or openly rocking (rather than repressing it) would improve my life!! !! That making an effort to explain what is going on rather than falling mute or otherwise fleeing could work in some situations. I was taught early in life to internalize and mask and became a most amazing actress (on stage and in real life). Now that I am finding comfort in ASD coping mechanisms, I also wonder that someone will claim I am "pathologizing" myself. My response: "ah, you are uncomfortable and would prefer I internalize it. I did that for over four decades and it was beyond uncomfortable for me - your turn!!" :wink:



Kitenna
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07 Jun 2020, 1:36 am

Edna3362 wrote:
Kitenna wrote:
Edna3362 wrote:
It happens if one focuses too much or prioritises on the representation of the labels instead of something else beyond that.

It requires processing to get pass that.



When I was first diagnosed, I got the first same ideas and had been much of a denier.
But nothing similar to imposter syndrome because:

In my case, I don't shame myself to need less than those who 'struggle more', who 'deserved more', who 'mostly can't'.

This is where most of the 'high functioning' female representations goes.
And there's a network here and there exists for those who feels the same.


Instead, I pride myself to need less than others and prefer that way.
It also means I had known to have the right to decline support and accommodations as much as I could.

Which is an entirely different direction to process.
While I know there are members who are the same, I'd likely assume that we just don't need the same levels and ways of reassurances to prove ourselves much, the priorities lies elsewhere, mostly through competence -- but that's just me projecting.


You have a fair point. The only problem is that stressing so much over this makes me feel worse then I require more support (e.g. stricter routines).

Stressing over needing support... Stressing over labels...
It takes time to process things emotionally, though how long depends how and who's dealing with it.


Which also reminds me that being diagnosed is also a form of change.
Autistics usually takes more time and effort to deal with changes in general.

But being diagnosed, actually autistic or not, concerning the concept of the idea of yourself is another and yet an even bigger change.

It does get overwhelming, whether or not the labels made sense -- because it revolves personally.



As for using support...
In fact, several autistic support tools suits more than autistics themselves, it's far from exclusive and it accommodates practically anyone who needs it.

It's most people who either didn't knew it exists or didn't simply explore the possibility that can benefit their lives. :wink:
So do explore -- yes, even various behaviours is another form to explore. Only you judge yourself if the outcome suits you.


Thank you so much for this. I never thought about being diagnosed as being a big firm of change. I'd liken it to the pandemic, where we were all joking and making memes at the beginning, but eventually we slowly kept realising that things were so much more serious than we thought.



Kitenna
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07 Jun 2020, 1:43 am

SharonB wrote:
Kitenna wrote:
It's mainly when I find out about coping mechanisms/stims used by other autistics, and then start using them myself that I feel less autistic, because I wasn't using it before I found out so it feels like I'm faking.

Kitenna, at near 50, I started using ASD coping mechanisms and am so much more comfortable in life!! ! Why couldn't someone have told me 40 or more years ago that earplugs and polarized glasses and fidget toys or openly rocking (rather than repressing it) would improve my life!! ! ! That making an effort to explain what is going on rather than falling mute or otherwise fleeing could work in some situations. I was taught early in life to internalize and mask and became a most amazing actress (on stage and in real life). Now that I am finding comfort in ASD coping mechanisms, I also wonder that someone will claim I am "pathologizing" myself. My response: "ah, you are uncomfortable and would prefer I internalize it. I did that for over four decades and it was beyond uncomfortable for me - your turn!!" :wink:


I think it's similar to yoga. When we were very young as children we preferred to asian squat instead of sit on chairs. We had good posture and could naturally balance ourselves when standing or sitting. A good yoga teacher aims to teach us how to do these things again more naturally. It doesn't mean that we never did those things or that we will never be able to do those things again.