I am FED UP of the way autism is diagnosed

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Butterfly
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16 Feb 2021, 8:26 am

It might just be the people diagnosing me, but I feel like they're exaggurating everything I say as if they're TRYING their best to connect the dots to be autism when it might not be - it just feels like they're trying so hard they're distorting the results.

For example, a symptom would be hating change of routine. I don't fricking care if that happens, it doesn't matter to me whether I miss my bus or take a different route or change schools or whatever. But my parents dig through my entire life to find the very few instances I did do that, present them to the doctors, and make it seem like I've got that symptom strongly. They do it with NEARLY EVERY SYMPTOM and it drives me up the wall!! !

Then, when they notice that I'm doing well in life and aren't really showing that many symptoms, they start talking about masking, saying that I might be hiding my autism. WELL I CAN TELL YOU I'M NOT. I don't get tired or anxious or anything like that when talking to people like someone without autism would do, I don't plan out social interactions, I don't second guess my every move like people with masking say they do. But apparently they don't believe me!

The way they're going about this is SO harsh, that I'm even starting to question myself if I'm autistic and just pretending to be a neurotypical even though i know damn well that I'm not autistic! I get they don't want to accidentally miss someone's autism while diagnosing, but I just feel picked apart. They can't see me face to face and see that I behave and handle stuff like an NT because of lockdown, and any online interaction won't work because our wifi is too bad to do video or audio at all! I'm fed up!



Fnord
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16 Feb 2021, 9:37 am

Did it ever occur to you that maybe you do NOT have autism?


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NorthWind
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16 Feb 2021, 11:01 am

If you don't think you have autism and you do well in life, why are you even being assessed for autism? A diagnosis without ever talking to the diagnostician face to face seems rather odd. There are so many things the diagnostician should assess that they can't possibly judge without talking to you face to face.



HeroOfHyrule
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16 Feb 2021, 3:25 pm

If they are trying to diagnose you without even verbally talking to you and actually observing you via video chat that's super weird and not okay. The people diagnosing you might be total quacks.

Regarding how autism is commonly diagnosed, I had the opposite experience where the assessor (and my parents, but that's not the assessors fault) downplayed everything in an effort to make me seem not as affected as I am. I know everyone's experience is different, but that seems more par the course for people diagnosed after childhood from reading threads on these forums.

You have a special kind of quackery going on that I don't think is necessarily how a lot of adult/adolescent assessments pan out, which is honestly even weirder to me. I don't get why they are scrambling for signs of autism as they don't usually do that and do the opposite.



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17 Feb 2021, 2:12 am

Your experience sounds very different to mine. I don't think I ever got a sign of what they thought of what I was saying, they would just listen and take notes as I talked and did activities. I find it weird that it sounds like they're trying to shove you in that box.



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17 Feb 2021, 2:27 am

Welcome to Wrong Planet



Last edited by quaker on 17 Feb 2021, 2:32 am, edited 1 time in total.

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17 Feb 2021, 2:27 am

People who are different
Often want to be 'normal'
People who are "normal'
Often want to be different

Funny world we live in



Steve B
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17 Feb 2021, 7:18 am

Can I ask, who's idea was it to even get an autism evaluation?

It doesn't sound like it was your idea at all. Is that correct?



amykitten
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17 Feb 2021, 7:45 am

It might just be the people diagnosing me, but I feel like they're exaggurating everything I say as if they're TRYING their best to connect the dots to be autism when it might not be - it just feels like they're trying so hard they're distorting the results.

For example, a symptom would be hating change of routine. I don't fricking care if that happens, it doesn't matter to me whether I miss my bus or take a different route or change schools or whatever. But my parents dig through my entire life to find the very few instances I did do that, present them to the doctors, and make it seem like I've got that symptom strongly. They do it with NEARLY EVERY SYMPTOM and it drives me up the wall!! !

Then, when they notice that I'm doing well in life and aren't really showing that many symptoms, they start talking about masking, saying that I might be hiding my autism. WELL I CAN TELL YOU I'M NOT. I don't get tired or anxious or anything like that when talking to people like someone without autism would do, I don't plan out social interactions, I don't second guess my every move like people with masking say they do. But apparently they don't believe me!

The way they're going about this is SO harsh, that I'm even starting to question myself if I'm autistic and just pretending to be a neurotypical even though i know damn well that I'm not autistic! I get they don't want to accidentally miss someone's autism while diagnosing, but I just feel picked apart. They can't see me face to face and see that I behave and handle stuff like an NT because of lockdown, and any online interaction won't work because our wifi is too bad to do video or audio at all! I'm fed up!


Take the assessment and find out if you are or not. Its no skin off your nose if you are or aren't. It won't magically change who you are, the only difference it might change how your parents view you.

I'm more or less like you. Minus after uni I tend to have a nap as I'm exhausted be it from social interaction or actually learning things I'm not 100% sure. Change I can cope with and I love to travel. I dislike people in general but that is mainly more of an intelligence thing I've concluded and people being two faced. I wouldn't fit a sterotypical autistic person nor if you met me, thought there was anything wrong with me, as lets face it, nothing is. However, I got my label and that is fine. It doesn't make me any more or less me, I'm still me. Autism is just a tiny part of me, such as all the other labels such as a gamer, dyslexic, daughter, etc.

As someone else mention they notice everything you do. Your eye contact and if it's normal or not. How you read social ques etc which a fair amount of girls on the spectrum will pick up over time.



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17 Feb 2021, 7:52 am

Just be natural even if you are or are not autistic.

but take into consideration others feelings when you do socialise

People are odd, actually they are f*****g mental.

Such is life

If you need a chat let me know



Earthbound_Alien
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17 Feb 2021, 7:58 am

Earthbound_Alien wrote:
Just be natural even if you are or are not autistic.

but take into consideration others feelings when you do socialise

People are odd, actually they are f*****g mental.

Such is life

If you need a chat let me know



Totally Agree

A potential friend you are! I like you/you response



Barbibul
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18 Feb 2021, 10:05 am

The current procedure for diagnosing autism is outdated. It will change.



Fnord
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18 Feb 2021, 10:14 am

The last time the OP logged on was 63 minutes before my first post in this thread.  The OP has not logged on since.


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League_Girl
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18 Feb 2021, 12:30 pm

You're twenty so I am curious how they are they are getting you diagnosed. You're an adult, you can choose rather you want to be tested for it or not and be diagnosed. What purpose would your parents get out of this diagnoses?


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DIVAIR
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18 Feb 2021, 1:59 pm

It sounds as if you're terrified of the diagnosis: why? Is it going to change who you are? Or, is it going to change how you view yourself and how you think people perceive you? This is NOT a personal attack, just questions you might want to ask yourself...

DIVAIR



cat303
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18 Feb 2021, 3:27 pm

Barbibul wrote:
The current procedure for diagnosing autism is outdated. It will change.


Exactly! I'm actively investigating age of diagnosis (see my survey in another thread!) and my NT supervisor wants me to interview parents for my next project. I'd much rather interview autistic adults, including the self diagnosed who can't get a diagnosis because they either don't have parents or aren't comfortable with them being involved for whatever reason (including those mentioned by the OP).

I don't think my parents knew me enough as a kid to comment past the age of 5 or 6, although in my experience it was the conversation the psychiatrist had with my parents that made up her mind because I'm pretty good at masking even when I don't realise.