Autistic Burnout Question.

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28 Sep 2019, 11:19 am

That is awesome news, I'm glad your new doctors are better.

It's a bit of a paradox that what made it possible was you figuring out what was wrong, and how to communicate it, before doctors would take you seriously. That's why it's good to foster awareness of this issue, so others don't have to suffer for so long in silent confusion, the way that so many of us have.

I know my opinion is unpopular here, but I think this issue gets dismissed all too often. A story we keep hearing over and over, is that people who struggle to recognize their own feelings, or communicate them effectively, are expected to do so - essentially self-diagnosing, and educating medical professionals on how to do their job - which ironically requires advanced social skills, in order to convey these points delicately, in a way that won't offend doctors.

But I'm glad you managed to do this, and that you're getting competent help.

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28 Sep 2019, 11:27 am

domineekee wrote:

The specialists who diagnosed me here in the UK were very gentle and supportive. You've been referred by your GP haven't you MG?

Yes.
Here is the thing. I didn't see my usual doctor. The doctor I saw is well known for being straight to the point. I expected her to give mw a yes or no answer but it became apparent that she did not have a large amount of knowledge about autism. (She may know more then I do and certainly more then I did at the time, but something she said made me later realize that she didn't know much about shutdowns).
She was honest. I didn't give her much information to go on as I clammed up a bit. But she said that she doubted they would take my case on, but she would forward me to ask for referral.
I am very, very greatful to her for forwarding me because a few doctors I have had years ago may have not done so. The autism people did pick up on what my doctor had said and decided to put me on their list to be assessed.

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28 Sep 2019, 11:44 am

Ashariel wrote:

Competent help... Well. At the moment the help I do need (And I am not desperate at the moment but I will be if no help comes soon) is that I could do with a little income financially. I am not looking to claim everything possible etc. I just want some financial buffering while I am waiting to be assessed. This I believe is being arranged. The way I feel now is that I can't do another temporary job when it comes up Christmas time. The stress of it is just too much for me. I did it last year and it almost killed me! Outwardly I may appear calm but inwardly I was screaming!

The fear is that I was only just earning enough to keep a car on the road. Now this time I can no longer do it. The summer temporary job I did is much easier stresswize and I was in such a state that I was in an internal emotional mess.

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29 Sep 2019, 10:11 am

Ashariel wrote:

A story we keep hearing over and over, is that people who struggle to recognize their own feelings, or communicate them effectively, are expected to do so - essentially self-diagnosing, and educating medical professionals on how to do their job - which ironically requires advanced social skills, in order to convey these points delicately, in a way that won't offend doctors.

For other people, this may be the case, but a doctor has special privileges. They're one of the people who can certify documents. Why? Because they have a great responsibility to shoulder. So if visit after visit they're not doing the hard yards to educate themselves on a health mystery of a patient, that is not the time to be delicate. You are doing a disservice to your own health, to the health of that doctor's other patients and to the doctor's career, if you don't speak up.

I used to be a perfect patient for doctors. They let me down. Now I just say what I think. Let them educate themselves. It may be their feelings that are hurt, but it's our health they're hurting. Medicine is no place for ignoramuses, emotional sissies, arrogant pri**s or lazy a$$es who'd rather go out spending money than catching up on reading medical literature.

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20 Mar 2021, 4:41 am

I feel I am dealing with this right now. I'm burned out at work and to a lesser degree, people in general. With work, after so many years of the same BS and things still being held over my head, that happened years ago, I'm tired. Everyone always just blows me off says to "deal with it" "this happens to everybody" " it's in your head". The hell it is!

I'm 41 now and I know it's going to get to the point, where I won't able to work anymore. No way I'm going to make it till 65 at this rate.

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20 Mar 2021, 5:07 am

I know how you feel, King Kat. I thought I could deal with it indefinitely but it's spread to my physical health now. I hope you find relief from your stressors soon.

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