bee33 wrote:
If you tell people, what do you tell them?
I just say I have Aspergers. Though I've recently heard people claim that's an outdated term it's using a scale or something now. I think I was dx in the 90s as asd but as a child I was dx hyperactive and seasonal affective(depression winter and more hyper summer/mood swings at season shifts. Which no longer happens).
As an adult I've got quite a few dx.
As a teen they dx sciatica, allergies, and eczema. At about 7 I suffered a severe beating by my baseball coach who was on something and doing things he shouldn't be to my friends of that time. It paralyzed me for awhile and I went blind so I had surgery to fix my eyes. I walked again but have scoliosis.
As an adult my newest dx is sleep psychosis. I was suffering from severe insomnia and went a bit crazy not able to tell vivid dreams from memories. I'm fine again as I was put on something that helped my sleep. I've been on it for over a year and slowly coming off it. I think trying to go to college started it as I'd only get 3 to 4 hrs sleep due to commute to school, homework, and regular life stuff. Then I mov3d and had neighbour issues then mice problems in my apartment building.
In late 1990s just after my child was dx with terminal brain cancer I was dx with spinal muscular atrophy. Before that I was dx with fibromyalgia, Gerd, ibs, polymyosistis, polyarthropathy, pelvic inflammatory disease, and bursitis.
My daughter died in 2002. In 2009 my son moved in with his father. When he turned 19 he cut all contact with me. He likely has sma and doesn't know it. He's dx adhd, expressive receptive language disorder, articulation disorder, hypotonia, poor fine motor, and 69 to 80iq(tests by the school originally said 69 but his dad had him retested).
My children's father is ADHD and also sociopathic. Police told me some concerning things one time. Yet judge wouldn't talk to me in custody court when my son turned 15. He simply asked my son where he wanted to live. Not why i had concerns. I had been the only one dealing with his issues since he was a baby. When my ex went for custody he said our daughter died and he didn't want to pay child support but wanted the tax credit.
I don't say too much about my health. But have on the bus said I have muscle disease and arthritis. I often don't mention my asd. A guy I've been hanging out a lot with is 17 years older. He's a bit eccentric. I've told him some of my stuff. He jokes I've got more boxes ticked than him. His grandson is autistic nonverbal. He's still close to his ex. But I don't think he's told her I'm on the spectrum. I told him he should tell her about autism pride day. Not sure if he did. He said he wasn't as involved with raising his grandson so didn't want to upset her by appearing preachy.
Oh and as for spinal muscular atrophy. Two of my uncles had it. Ones son did too. The others daughters had different conditions. My mom had depression but stuff ran in her family. Cancer ran in my dad's family. He died of it, his sister, my brother, and my cousin. My sister survived. My mom only had one with cancer. Her sister was dx terminal breast cancer at 74. Later though my mom had an inoperable giloma. Her brothers, aunts, and uncles didn't have cancers. But probably a few sma linked things.
Sometimes I do worry about telling people things as they might stereotype me. One psychiatrist I saw for sleep problems talked to me like I was slow or something. It was very frustrating. Nearly pointed out my iq from testing for college. Then decided against it. He accused me of having someone else's brain mri pictures. Then I told him which hospital the report was at and that he could look at it directly. Then he claimed he couldn't read mris or xrays. Psychiatrist here are supposed to be regular doctors with extra training. They all learn scans at school. I left it alone but he was being a jerk. I had an old stroke damage clearly on one side of my brain in the scan.
29 Jun 2024, 2:45 pm
