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ASPartOfMe
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02 Nov 2024, 5:38 pm

I’ve lived with ADHD and autism all my life – this is what it’s like to have both

Quote:
Imagine having a brain that is at constant war with itself. Desperate to fit in, yet determined to escape social situations. Obsessively creating complex structures for stability, but just as predictably smashing them all up. Chronically overwhelmed, yet unable to say no.

That’s the reality of living with both ADHD and autism. The two conditions might seem at odds with each other but can, as experts are increasingly realising, coexist and lead to non-stop internal conflict.

Until 2013, autism and ADHD couldn’t be diagnosed in the same person. Today, researchers have found that there is a 50 to 70 per cent crossover between these neurodevelopmental conditions, which is increasingly being referred to as AuDHD.

I was diagnosed with ADHD at the age of 25 after spending a year ruminating daily over the best way to end my life, moving to a different country every month and quitting any job that I started. The diagnosis helped me make sense of my life, but it didn’t seem to fully fit with my experience.

Now, six years later, I finally have the missing piece of the puzzle: an autism diagnosis.

It might sound like a diagnosis too far for most people, but I was relieved. It explained an awful lot about my life to date and why I’ve always struggled with social situations.

Relationships have always confused me
As a child, I questioned why we had to visit family at Christmas just because we share DNA. The answer of “because they’ll always be there for you” felt transactional and has shaped how I have approached every relationship since.

I’ve spent my life figuring out how to be useful to people in a relentlessly exhausting trade for companionship. I constantly regulate everything – from forcing myself to make the “right” amount of eye contact, to saying the “right” things – but I never stick to my own pre-planned script. ADHD impulsivity sees me veering off course, often saying the wrong thing and then beating myself up over it for hours afterwards.

I’ve lost count of how many people have stopped talking to me for reasons I’ll never know. Group settings are even worse, as competing demands overwhelm me to the point where I often hide in the bathroom, my brain ready to explode.

Turning off the ADHD ‘noise’ with alcohol
After moving abroad at the age of 13, I discovered a way to turn off the constant AuDHD radio of thoughts blasting in my head. Getting paralytically drunk seemed to turn my brain off, at least temporarily. This coping strategy lasted until I was diagnosed with ADHD; I would kick social interactions off with a tequila shot wherever possible.

The lack of inhibition associated with ADHD saw my teenage self drinking cocktails abandoned by strangers and picked up off the tables in bars. The loud, crowded clubs left me chronically overstimulated because of my autism. The sensory overload was so intense that I’d often fall asleep right in the middle of the noise – a shutdown response when my brain simply couldn’t cope. It wasn’t unusual for my friends to find me curled up next to a thumping speaker.

However, this didn’t just happen in clubs. One time my friends spent an entire night looking for me in a pub before eventually finding me passed out under a pile of coats. It doesn’t matter whether it’s noise, lights or simply the intensity of being around people; any of this can lead to overstimulation – then shutdown. I often fell asleep in class, in the cinema and even whilst out for dinner.

I hated modelling, but I was unable to quit. My autism thrived on the predictability of receiving a daily email at 6pm that outlined my schedule for the next day. The routine provided both the structure that my mind craved and kept my ADHD brain engaged with dopamine, novelty and adrenaline.

Outsourcing my personal agency could be relaxing because it meant that someone else was in control of my life and, therefore, the “small” decisions that caused me so much stress because of my ADHD, such as what to eat for lunch. On jobs, I usually just had to do or mimic whatever the people around me said, and I wasn’t expected to talk.

However, it was also extremely stressful because my ADHD struggled with the monotony of being a human coat hanger. I had to hide the hyperactivity of my internal experience and force my face to stay calm as my mind felt like it was on fire, exploding with racing thoughts.

It was only when I was diagnosed with ADHD that everything changed. It felt like I finally had the guide to life that everybody else seemed to have. The diagnosis enabled me to access medication, which, in turn, enabled me to stop self-medicating with alcohol. After completing a law degree, I eventually got a job in law; I was determined to “hack” my ADHD by getting ahead of it.

Struggling with office life
Getting to the office was a hurdle in itself, and so I rented a flat that was over the road from it so that I didn’t have to travel every day. Although I didn’t know I was autistic at the time, I did know that I couldn’t cope with public transport during rush hour; I regularly had panic attacks if I thought I was going to be late. AuDHD impacts executive functioning skills, such as time management, which meant that I was often late, and so a flat opposite the office felt like the most sensible option, even if the rent was extortionate.

However, I wasn’t prepared for how stressful I’d find working in an office. The lights, the noise and the open-plan environment made me constantly on edge. On top of that, I was constantly worrying about making a mistake. I would beg my bewildered manager not to fire me and provide her with 15-page reports detailing everything I’d done that week for our catch ups.

I struggled to say the right thing and had difficulty regulating my behaviour. For example, one colleague used to speak very loudly in the kitchen next to my desk, which I found very distracting. One day, I snapped and impulsively emailed them to ask them to stop talking so loudly because no one cared about their weekend, only realising that this was a mistake once I’d pressed send. The mortification when they responded, cc’ing in both of our managers and the Culture Code, was like nothing I have ever experienced. It’s no excuse, but it’s an example of how undiagnosed AuDHD can contribute to these situations. Eventually, two and a half years later, I quit to become an ADHD coach and write a book.

Women are far less likely to be diagnosed with autism or ADHD
When I told my therapist that I thought I was autistic, she dismissed it because I was nothing like the autistic children that she worked with. I accepted this at face value, just as I accepted doctors telling me that I was fine (before I was diagnosed with ADHD) because I had a law degree – a symptom of autism is literal thinking.

Autism makes all relationships harder to navigate and also makes you more vulnerable to abuse. Like nine out of 10 autistic women, I have been a victim of sexual violence, including being groomed at the age of 15 by a man 10 years older than me.

When I contacted the police after being harassed by an ex-partner, they asked me a list of mandatory questions that they ask about relationships that could involve coercive and controlling behaviour. I answered “yes” to every single one. I’d been in a relationship where I’d been told what to wear, do and see, whether I could take medication, and even whether I could drink coffee, and yet I hadn’t realised that this was wrong.

Thanks to societal conditioning, women are far less likely to be diagnosed with autism or ADHD than men. Women tend to mask symptoms so that our struggles are less noticeable to others.

This is the truth of living with AuDHD, especially for women like me, who’ve spent their entire lives hiding their symptoms as a way to survive. I felt like I had to monitor every part of who I was, terrified of unintentionally doing something wrong because I could never understand the rules that everybody else seemed to know.

Our society is increasingly stigmatising neurodivergence, associating it with people seeking disability benefits and using it as a justification for poor behaviour. However, the reality is that these labels enable people to take responsibility for themselves, reclaim agency over their lives and contribute meaningfully to our society.

It is easy to view AuDHD as a convenient excuse for personal failings. However, if I’d had this diagnosis earlier when I was growing up, I would have been far less vulnerable to the harm inflicted by others. Instead of shaming the individuals seeking help, we should focus on the broken systems that allow so many people to go undiagnosed for so long. AuDHD isn’t an excuse, but it can be a life-changing lens to explain our experiences.

Ultimately, these labels enable people to “name it to tame it” – far from marking themselves as victims, they’re survivors of a world that wasn’t designed for them.


A very enlightening article. While I knew it is common that people have both conditions I have never seen and article about what it is like to be neurodivergent in this way and I did not know it had a name.


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DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

It is Autism Acceptance Month.

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


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03 Nov 2024, 5:16 am

ASPartOfMe wrote:
I’ve lived with ADHD and autism all my life – this is what it’s like to have both
Quote:
Imagine having a brain that is at constant war with itself. Desperate to fit in, yet determined to escape social situations. Obsessively creating complex structures for stability, but just as predictably smashing them all up. Chronically overwhelmed, yet unable to say no.

That’s the reality of living with both ADHD and autism. The two conditions might seem at odds with each other but can, as experts are increasingly realising, coexist and lead to non-stop internal conflict.

Until 2013, autism and ADHD couldn’t be diagnosed in the same person. Today, researchers have found that there is a 50 to 70 per cent crossover between these neurodevelopmental conditions, which is increasingly being referred to as AuDHD.

I was diagnosed with ADHD at the age of 25 after spending a year ruminating daily over the best way to end my life, moving to a different country every month and quitting any job that I started. The diagnosis helped me make sense of my life, but it didn’t seem to fully fit with my experience.

Now, six years later, I finally have the missing piece of the puzzle: an autism diagnosis.

It might sound like a diagnosis too far for most people, but I was relieved. It explained an awful lot about my life to date and why I’ve always struggled with social situations.

Relationships have always confused me
As a child, I questioned why we had to visit family at Christmas just because we share DNA. The answer of “because they’ll always be there for you” felt transactional and has shaped how I have approached every relationship since.

I’ve spent my life figuring out how to be useful to people in a relentlessly exhausting trade for companionship. I constantly regulate everything – from forcing myself to make the “right” amount of eye contact, to saying the “right” things – but I never stick to my own pre-planned script. ADHD impulsivity sees me veering off course, often saying the wrong thing and then beating myself up over it for hours afterwards.

I’ve lost count of how many people have stopped talking to me for reasons I’ll never know. Group settings are even worse, as competing demands overwhelm me to the point where I often hide in the bathroom, my brain ready to explode.

Turning off the ADHD ‘noise’ with alcohol
After moving abroad at the age of 13, I discovered a way to turn off the constant AuDHD radio of thoughts blasting in my head. Getting paralytically drunk seemed to turn my brain off, at least temporarily. This coping strategy lasted until I was diagnosed with ADHD; I would kick social interactions off with a tequila shot wherever possible.

The lack of inhibition associated with ADHD saw my teenage self drinking cocktails abandoned by strangers and picked up off the tables in bars. The loud, crowded clubs left me chronically overstimulated because of my autism. The sensory overload was so intense that I’d often fall asleep right in the middle of the noise – a shutdown response when my brain simply couldn’t cope. It wasn’t unusual for my friends to find me curled up next to a thumping speaker.

However, this didn’t just happen in clubs. One time my friends spent an entire night looking for me in a pub before eventually finding me passed out under a pile of coats. It doesn’t matter whether it’s noise, lights or simply the intensity of being around people; any of this can lead to overstimulation – then shutdown. I often fell asleep in class, in the cinema and even whilst out for dinner.

I hated modelling, but I was unable to quit. My autism thrived on the predictability of receiving a daily email at 6pm that outlined my schedule for the next day. The routine provided both the structure that my mind craved and kept my ADHD brain engaged with dopamine, novelty and adrenaline.

Outsourcing my personal agency could be relaxing because it meant that someone else was in control of my life and, therefore, the “small” decisions that caused me so much stress because of my ADHD, such as what to eat for lunch. On jobs, I usually just had to do or mimic whatever the people around me said, and I wasn’t expected to talk.

However, it was also extremely stressful because my ADHD struggled with the monotony of being a human coat hanger. I had to hide the hyperactivity of my internal experience and force my face to stay calm as my mind felt like it was on fire, exploding with racing thoughts.

It was only when I was diagnosed with ADHD that everything changed. It felt like I finally had the guide to life that everybody else seemed to have. The diagnosis enabled me to access medication, which, in turn, enabled me to stop self-medicating with alcohol. After completing a law degree, I eventually got a job in law; I was determined to “hack” my ADHD by getting ahead of it.

Struggling with office life
Getting to the office was a hurdle in itself, and so I rented a flat that was over the road from it so that I didn’t have to travel every day. Although I didn’t know I was autistic at the time, I did know that I couldn’t cope with public transport during rush hour; I regularly had panic attacks if I thought I was going to be late. AuDHD impacts executive functioning skills, such as time management, which meant that I was often late, and so a flat opposite the office felt like the most sensible option, even if the rent was extortionate.

However, I wasn’t prepared for how stressful I’d find working in an office. The lights, the noise and the open-plan environment made me constantly on edge. On top of that, I was constantly worrying about making a mistake. I would beg my bewildered manager not to fire me and provide her with 15-page reports detailing everything I’d done that week for our catch ups.

I struggled to say the right thing and had difficulty regulating my behaviour. For example, one colleague used to speak very loudly in the kitchen next to my desk, which I found very distracting. One day, I snapped and impulsively emailed them to ask them to stop talking so loudly because no one cared about their weekend, only realising that this was a mistake once I’d pressed send. The mortification when they responded, cc’ing in both of our managers and the Culture Code, was like nothing I have ever experienced. It’s no excuse, but it’s an example of how undiagnosed AuDHD can contribute to these situations. Eventually, two and a half years later, I quit to become an ADHD coach and write a book.

Women are far less likely to be diagnosed with autism or ADHD
When I told my therapist that I thought I was autistic, she dismissed it because I was nothing like the autistic children that she worked with. I accepted this at face value, just as I accepted doctors telling me that I was fine (before I was diagnosed with ADHD) because I had a law degree – a symptom of autism is literal thinking.

Autism makes all relationships harder to navigate and also makes you more vulnerable to abuse. Like nine out of 10 autistic women, I have been a victim of sexual violence, including being groomed at the age of 15 by a man 10 years older than me.

When I contacted the police after being harassed by an ex-partner, they asked me a list of mandatory questions that they ask about relationships that could involve coercive and controlling behaviour. I answered “yes” to every single one. I’d been in a relationship where I’d been told what to wear, do and see, whether I could take medication, and even whether I could drink coffee, and yet I hadn’t realised that this was wrong.

Thanks to societal conditioning, women are far less likely to be diagnosed with autism or ADHD than men. Women tend to mask symptoms so that our struggles are less noticeable to others.

This is the truth of living with AuDHD, especially for women like me, who’ve spent their entire lives hiding their symptoms as a way to survive. I felt like I had to monitor every part of who I was, terrified of unintentionally doing something wrong because I could never understand the rules that everybody else seemed to know.

Our society is increasingly stigmatising neurodivergence, associating it with people seeking disability benefits and using it as a justification for poor behaviour. However, the reality is that these labels enable people to take responsibility for themselves, reclaim agency over their lives and contribute meaningfully to our society.

It is easy to view AuDHD as a convenient excuse for personal failings. However, if I’d had this diagnosis earlier when I was growing up, I would have been far less vulnerable to the harm inflicted by others. Instead of shaming the individuals seeking help, we should focus on the broken systems that allow so many people to go undiagnosed for so long. AuDHD isn’t an excuse, but it can be a life-changing lens to explain our experiences.

Ultimately, these labels enable people to “name it to tame it” – far from marking themselves as victims, they’re survivors of a world that wasn’t designed for them.


A very enlightening article. While I knew it is common that people have both conditions I have never seen and article about what it is like to be neurodivergent in this way and I did not know it had a name.


Does sound like a fountain of suffering.


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03 Nov 2024, 10:56 am

I never liked alcohol when I was young. But other than that, this article hits home. I had an inattentive ADHD diagnosis circa 2000. My scoring was something like 99.97 out of 100 on whatever scale they used.

I've just recently come to understand that autism/Asperger's could be a large part of my continued lifelong struggle to connect with other people.



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03 Mar 2025, 2:06 pm

The emergence of AuDHD: how autism and ADHD commonly combine and cause missed or misdiagnosis

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For many individuals, the journey to understanding their neurodivergent identity takes unnecessarily long, winding through misdiagnoses and confusion. Or worse still, it doesn’t happen at all, leaving them feeling different, misunderstood, incompetent, or like they’re failing at life.

AuDHD—the co-occurrence of autism and attention deficit hyperactivity disorder—represents a unique neurological intersection that frequently eludes detection by medical professionals. While once treated as entirely separate neurological differences, research increasingly reveals these neurotypes naturally overlap for many people, creating complex presentations that defy traditional diagnostic criteria and often remain hidden beneath layers of learned masking behaviors and societal expectations, particularly in women and girls.

When two neurotypes coexist.
When I was 41, a close family member was diagnosed autistic. After learning about the genetic links of autism, and doing a very deep dive into the literature, I realised I shared a lot of the same traits, such as decades spent struggling with social anxiety, difficulty with change, getting fixated on things, and sensory overwhelm. Yet I’d also experienced lifelong persistent impulsivity and distractibility, that didn’t quite fit the autism profile and was more indicative of ADHD, which I also have a family history of. I felt like with my traits combined, I didn’t fit the strict criteria for autism or ADHD, yet I knew deep down that I wasn’t quite neurotypical either.

Research suggests that this experience isn’t unusual. Current studies indicate that 50-70% of individuals who have a diagnosis of autism will also present with ADHD. And that’s those who actually manage to get a diagnosis. These staggering statistics reveal not a coincidence but a neurobiological relationship that scientists are only beginning to understand.

The co-occurrence happens for concrete neurological reasons. Both autism and ADHD involve differences in executive functioning, sensory processing, and social communication—though these manifest differently depending on whether the autistic or ADHD traits are most predominant and the individual’s unique neurological makeup. Genetic studies have identified overlapping hereditary factors, with certain gene variations appearing in both populations, suggesting shared neurobiological underpinnings that explain why these two neurological differences so frequently appear together.

What makes AuDHD particularly significant isn’t merely the presence of both neurological differences but how they interact within the same person, creating experiences that are more than just the sum of each part.

The masking effect: how AuDHD traits conceal each other.
Deep within diagnostic shadows lurk countless unidentified AuDHD individuals, their dual neurotypes effectively canceling each other’s most obvious presentations.

Hyperactivity from ADHD might obscure the repetitive movements or stereotypical behaviors associated with autism, appearing more as general restlessness than autism-specific stimming. Conversely, autistic tendencies toward routine and order might partially compensate for ADHD disorganization, creating a person who struggles enormously with executive function yet manages to maintain enough structure to fly under the diagnostic radar.

Social difficulties present particularly complex manifestations in AuDHD individuals. The impulsivity and chattiness often seen in ADHD can mask the social challenges associated with autism. Someone might talk excessively but struggle with reading neurotypical social cues—appearing engaged in conversation while missing its subtext. Meanwhile, autistic social caution might temper ADHD impulsivity in certain contexts, creating inconsistent social behaviors that confuse both the individual and outside observers.

The Autistic Girls Network, a charity dedicated to supporting autistic women and girls in a neuroaffirming way describes it as follows:

”This can feel like a tug of war in an AuDHD-er’s mind, and it can feel impossible trying to balance two completely opposing needs. Because of this, AuDHD can appear like a different presentation altogether. An individual may feel they don’t relate wholly to autism or to ADHD. The two can mask each other, either compensating for each other’s difficulties or making those challenges even harder. For example, the organisation and focus from the autistic brain may compensate for the disorganisation and chaos of the ADHD brain. Or, the mess and chaos from the ADHD may leave the person in a constant state of overwhelm, feeling unable to function because there is no order.

Beyond stereotypes: non-traditional AuDHD presentations.
The situation is even more complicated when we look at non-stereotypical presentations of autism and ADHD.

Internalized traits create silent struggles that evade detection for years. Many AuDHD individuals, particularly those socialized as female, experience their neurodivergence primarily as internal chaos rather than the external behaviors and struggles we are used to seeing portrayed in mainstream media and popular culture.

Rather than visible hyperactivity, a person might experience relentless mental restlessness alongside intense sensory sensitivity. Without obvious external behaviors triggering evaluation, these individuals often receive diagnoses only after seeking help for anxiety or depression—conditions that developed from years of unrecognized neurodevelopmental differences.

The quiet ADHD presentation combines with masked autism to create particularly elusive profiles. Someone might appear thoughtful and reserved rather than hyperactive, struggling privately with both sensory processing issues and executive function challenges while presenting as merely “shy” or “dreamy” to the outside world. This presentation often results in comments like, “You don’t seem autistic” or “Everyone gets distracted sometimes” when they eventually seek evaluation.

Social expectations radically alter how AuDHD manifests across genders. Those socialized as girls often develop elaborate compensation strategies—studying social interactions like academic subjects, developing scripts for conversations, or creating extensive organizational systems that partially offset executive function challenges while generating enormous hidden stress.

Women who are AuDHD often become masters of appearing neurotypical. They’ve spent years observing and mimicking socially “acceptable” behaviors, creating a façade that can fool even experienced clinicians who rely on outdated diagnostic criteria based primarily on male presentation patterns.

It’s now clear from research, that the cost of this masking is significant. It manifests as chronic exhaustion, anxiety, and identity confusion. Many AuDHD-ers report feeling like perpetual impostors, constantly performing a neurotypical role while lacking intuitive understanding of why they struggle with tasks others find simple.

Cultural intersections and diagnostic disparities complicate things further.
Dominant cultural narratives about neurodivergence dramatically influence who receives accurate identification and support. When autism research primarily focuses on white male children, the resulting diagnostic criteria inevitably fail to capture diverse presentations.

Cultural differences in communication styles, emotional expression, and behavioral expectations create additional layers of complexity. In communities where direct eye contact signals disrespect, reduced eye contact—often considered an autism indicator—might represent cultural adherence rather than neurodivergence. Conversely, cultural norms emphasizing respect for authority might suppress the hyperactive or impulsive behaviors that typically trigger ADHD evaluation.

Socioeconomic factors further complicate access to appropriate diagnosis. Comprehensive neurodevelopmental assessments often require substantial financial resources, time off work, transportation, and advocating within complex healthcare systems—barriers that disproportionately affect marginalized communities.

Refugee and immigrant experiences introduce further complexities. Trauma responses can resemble certain aspects of both autism and ADHD, leading to misdiagnosis or missed diagnosis. Meanwhile, cultural differences in understanding neurodivergence may determine whether families seek evaluation at all.

Research confirms these disparities.

Serious issues with the diagnostic process.
Multiple assessment hurdles create winding paths to accurate identification. Clinical fragmentation represents a primary obstacle—psychiatrists may evaluate for ADHD while remaining unfamiliar with subtle autism presentations, while autism specialists might miss co-occurring ADHD traits

Diagnostic criteria continue evolving but lag behind current research understanding. The DSM-5 still maintains autism and ADHD as separate, despite mounting evidence of their neurobiological overlap. Clinicians working strictly within these frameworks may hesitate to diagnose both autism and ADHD simultaneously.

Financial barriers compound these difficulties. In the US, insurance coverage often limits assessment scope or requires sequential rather than comprehensive evaluation. In the UK, assessments for autism and ADHD are rarely combined and NHS waiting lists are around 4+ years in some areas. Private assessments are costly. Assessing for one at a time fragments the diagnostic picture, making it harder to recognize how traits interact.

Gender biases persist throughout diagnostic processes. Research demonstrates that clinicians interpret identical behaviors differently, based on perceived gender.

Personal stories I hear every day from the neurodivergent community reveal common experiences despite these varied barriers. Most late diagnosed AuDHD adults report multiple misdiagnoses before accurate identification—typically anxiety, depression, or personality disorders—addressing symptoms rather than underlying neurological differences.

Moving forward: support and understanding for AuDHD individuals.
Self-understanding ultimately provides the foundation for effective support. Many AuDHD adults report that simply learning about their neurological differences offers immense relief and context for lifelong struggles previously attributed to personal failing.

Support communities specifically for dual-diagnosed individuals continue growing, offering spaces where people can discuss unique experiences that might not resonate in spaces focused on either autism or ADHD alone.

Professional understanding continues evolving as well, but not fast enough, in my opinion. But some forward-thinking clinicians increasingly recognize the need for comprehensive assessment approaches that capture the full neurodevelopmental picture rather than focusing narrowly on single diagnostic categories.

To navigate life as an AuDHD-er, accurate identification represents not an end point but the beginning of authentic self-understanding—a foundation for developing personalized strategies aligned with your unique neurological makeup rather than exhausting yourself trying to be something you’re not: neurotypical.


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It is Autism Acceptance Month.

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


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03 Mar 2025, 3:54 pm

ASPartOfMe wrote:



Wowwwwww. That was needfully validating. My experiences have a lot in common with what the author shared. The alcohol, the mental shutdowns, the difficulty with "small" decisions, the controlling partners, the dismissive doctors, all of it. Thanks for sharing!

I'm gonna read the next one later.


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03 Mar 2025, 5:54 pm

Participant626 wrote:
ASPartOfMe wrote:



Wowwwwww. That was needfully validating. My experiences have a lot in common with what the author shared. The alcohol, the mental shutdowns, the difficulty with "small" decisions, the controlling partners, the dismissive doctors, all of it. Thanks for sharing!

I'm gonna read the next one later.

You are welcome.


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It is Autism Acceptance Month.

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


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14 Mar 2025, 7:56 pm

ASPartOfMe wrote:


Yeah, that was a bit validating too, tho I get frustrated with articles that paint misdiagnosis as accidental. I specifically reported ADHD and even told them my medical doctor asked me to bring it up. I also realized later on that they definitely knew I was autistic, but for some unknown reason, did not want to officially validate it or me to know. I wish there were articles for us that cover people (including mental health providers) hiding it and using it to harm us.


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14 Mar 2025, 11:09 pm

Very relatable. Was diagnosed ADHD at 25. Was diagnosed autistic at 29/almost 30.


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14 Mar 2025, 11:38 pm

It just confirms more that I relate even way less towards Autistics who also have ADHD than just autism alone.

Still, allistic ADHD is just as if not even more unrelatable in my own case.


Not even when trying to match up executive dysfunction issues and seemingly 'ADHD' traits I have, not specially knowing underlying reasons are different.


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15 Mar 2025, 10:12 pm

I was diagnosed with ADHD in early 2004. Autism wasn't even mentioned. Then after burnout in late 2004, I was referred to an autism psychologist then psychiatrist who told me that I was without a doubt autistic.

In the years following, I saw a doctor who treated my ADHD but refused to believe I am autistic but I kept going to him because ADHD psychiatrists are hard to come by.

I get funding to see a psychologist by the NDIA (National Disability Insurance Agency) for my autism difficulties but I wouldn't get it if I'm ADHD.

Doctors and government agencies can really mess up diagnoses. I find it difficult enough dealing with two often opposing conditions without going into burnout again.



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16 Mar 2025, 3:26 pm

Edna3362 wrote:
It just confirms more that I relate even way less towards Autistics who also have ADHD than just autism alone.

Still, allistic ADHD is just as if not even more unrelatable in my own case.


Not even when trying to match up executive dysfunction issues and seemingly 'ADHD' traits I have, not specially knowing underlying reasons are different.


I can relate to that. I know that I can irritate non-ADHD autistic people if I don't control myself well. I can easily turn int a ball of hyperactivity and start being a bit overwhelming. With non-autistic ADHD people, my social differences seem to cause some disconnect sometimes, too. I am currently thinking that AuDHD might be its own separate thing in a the next DSM or so.


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16 Mar 2025, 8:18 pm

Participant626 wrote:
Edna3362 wrote:
It just confirms more that I relate even way less towards Autistics who also have ADHD than just autism alone.

Still, allistic ADHD is just as if not even more unrelatable in my own case.


Not even when trying to match up executive dysfunction issues and seemingly 'ADHD' traits I have, not specially knowing underlying reasons are different.


I can relate to that. I know that I can irritate non-ADHD autistic people if I don't control myself well. I can easily turn int a ball of hyperactivity and start being a bit overwhelming. With non-autistic ADHD people, my social differences seem to cause some disconnect sometimes, too. I am currently thinking that AuDHD might be its own separate thing in a the next DSM or so.

That would require an autism diagnosis with traits of executive dysfunction, yet that also rules out ADHD or ADD.

That is, if there are already guides of ruling out ADHD over any other executive dysfunction traits of any other condition.


Hell, even a guide to know underlying executive dysfunction issues; if it's actually neurological (just need to work around), coming from mental illness (in need of therapy), root cause by a biological cause (in need of medication), or just a series of crappy habits (training to unlearn and relearn).


Which I personally had to deal in layers.

At first I thought I might have ADHD.
Turns out it's a hormonal issue, a mental health issue, a side effect of a chronic condition, and years and series of crappy habits coping with all untreated crap.

All I did not have in childhood and manifests gradually in late teenage years with no warranted life changing event that supposed to make everyday expectations different or difficult.
No, college, highschool, and elementary wasn't any different to me. So is work, but I'm gradually getting worse for no reason and I'm not even masking.

Turns out the change and the stressors is all coming from my body, not from the reaction of whatever external event going on in my life.
Everyone else just blames all the untreated crap for autism. Or aging. :roll:


There are already conclusions other thinks that autism is ADHD plus something.
But in reality, it's more like executive dysfunction (non-specific) plus autism traits, made the common mistake that executive dysfunction itself is all ADHD.


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17 Mar 2025, 8:55 am

Leanne Maskell, who has appeared in Vogue, is the author of AuDHD: Blooming Differently and founder and director of ADHD coaching company ADHD Works.
BRAIN ON FIRE' I tried to take my own life aged 7 and spent years wishing I would die – then a diagnosis in my 20s changed everything

Quote:
”I BECAME extremely suicidal, but I have ADHD - so I’m not very good at following through.”

I said this at a corporate training event to a room of bankers, who all stared at me, their mouths wide open in shock.

Maskell
“Nobody ever laughs at that joke, but maybe it’s because I only did half a stand-up comedy course,” I say.

The room erupts into laughter, which is exactly what’s needed to talk about the uncomfortable reality of autism and ADHD, where the suicide risks are five to seven times higher than the general population.

No, it is not a laughing matter. But when I look back on my life, where I’ve spent so much of it wishing I would die, there’s not much else I can do.

I quit comedy when the teacher said I should make people laugh with me, not at me. Unfortunately, my brain doesn’t come with that setting.

I’d only joined because I kept getting requests for public speaking, despite being terrified of it, and thought nothing could be worse than stand-up comedy.

That’s an example of how my brain works with AuDHD.

Instead of straightforward solutions, it likes to create incredibly complicated, squiggly tangles of lines to get to its destination.

For example, at the age of seven, I tried to take my own life for the first time in the hope it would switch my brain off.

It didn’t, and I woke up to the usual barrage of 50 simultaneous channels of thoughts screaming at me - all invisible to the outside world.

As a teenager, I discovered what I thought was the solution: alcohol.

Nearly every weekend, I could be found passed out in clubs or on pavements, overstimulated from booze, lights, noise, and crowds.

I hated clubbing with a passion, but I loved the ability to become somebody else, and the highs I’d get from sneaking out.

One night, a man who was a decade older than me picked me up off the floor of a club.

When he found me on social media later and asked for a coffee the next day, I happily went along in the hope of friendship.

A year later, I was smashing my head against the wall repeatedly in an attempt to kill myself.

I couldn’t understand how this person had so easily taken over every aspect of my life. It felt like my soul had been kidnapped, and it was all my fault.

I was left with a giant green bruise on my forehead, and a determination to get out, which I eventually did - but I was lucky.

Nine out of 10 autistic women have experienced sexual violence, and on average, it takes seven attempts to leave an abusive relationship.

GOODBYE LETTERS
I graduated with straight As and a law degree, leaving my teachers questioning the class on whether I’d cheated.

I hadn’t, but the ability to pass exams isn’t a particularly useful skill for the ‘real world’ - especially when you’re not sure how you did it.

After losing the structure of full-time education, my life descended into what can only be described as season seven of a terrible television show.

Each morning, I’d wake up terrified of what stupid decision I’d make that day - from moving house to moving country or starting new relationships or ending existing ones.

I was desperate for stability, but every slither of it I managed to get, I’d destroy a few days later, subconsciously self-sabotaging my attempts.

So, I created myself a routine, the only sense of control I could find in an uncontrollable world.

Every single day, I’d obsessively research suicide methods and outcomes. Ironically, it was actually autism that saved me, because I had to be 100 per cent sure that it would work.

As it turns out, it’s actually really hard to kill yourself with this level of certainty.

I’d write goodbye letters and tear them into tiny pieces a few hours later, worried that my housemate would find them.

I must have written hundreds over the 32 years that my heart has continued to beat against my will.

I didn’t know how to explain it to anyone, as I just felt like a selfish, attention-seeking drama queen - so I didn’t. Until one day, I jumped out of a plane.

When the parachute opened and I landed safely, I burst into tears, because I was still alive.

This was quite a shock to my then-boyfriend, and the instructor I’d been strapped to!

I could no longer hide it. Soon after, I found myself in a psychiatrist’s office, finally prepared to be sectioned.

Instead, they told me I had ADHD. I burst out laughing and said I had a real problem - not one made up for naughty kids.

After a three-week holiday turned into a year abroad in a physically abusive relationship with a stranger whose house I’d impulsively moved into, I realised that maybe there was something to it.

I returned to finish the assessment aged 25, extremely embarrassed. From that point on, my life transformed.

I didn’t know anything about ADHD other than the medication stopped me from wanting to kill myself, so whatever it was doing, it seemed to work.

For the first time, I was able to get and stay in a ‘real’ job - for two and a half years.

The external confirmation that I was likely to quit meant that I took out a fixed rental contract on a flat I couldn’t afford over the road from the office, feeling like I’d successfully ‘hacked’ my ADHD.

However, handcuffing yourself to a job isn’t sustainable, and pills don’t give skills.

I researched everything I could about ADHD, trying to find a ‘fix’.

Believe it or not, six years ago, there was hardly any information on the internet that didn’t apply to young schoolboys.

Then, two things happened.

Firstly, I discovered an ADHD coach, who helped me to realise that I could create a life that worked for me, instead of trying to be ‘normal’.

Secondly, my new GP told me their waiting list for assessments was seven years long, which I couldn’t believe.

If I hadn’t been at the point of taking my own life, I wouldn’t have paid thousands of pounds for the assessment - but people shouldn’t have to reach this point of desperation.

So, I decided to publish what had become the book, ADHD: an A to Z, my mortification being quickly replaced with overwhelm at how many people messaged to say it helped them.

I handed in my dignity and quit my job, training as an ADHD Coach myself, presenting to directors of the World Health Organization, and training companies such as Disney.

Doing work I loved meant that I became addicted to it. My medication enabled me to stop entering harmful situations, but also made me a ‘human doing’, rarely seeing anybody outside of work.

When I did attempt to leave the house, I had panic attacks, crying hysterically in public for reasons I couldn’t understand.

Feeling empty, I went to a Workaholics Anonymous meeting, only to find that half of the people there also had ADHD.

When a colleague handed in their notice, I became more determined to end my life than ever before, unable to cope with the change in routine.

From coaching multiple people who were autistic and ADHD, I suspected that I was autistic.

I didn’t see the point in a formal diagnosis, but after a meltdown in an airport where I was seconds away from smashing the fire alarm, and genuinely believed I was about to be arrested, I realised that things couldn’t get any worse - I needed help.

My therapist of several years had told me there was no way I could be autistic because I was nothing like the autistic children she worked with.

As it turns out, I am very autistic. The 80 pages I received confirming my diagnosis aged 31 explained everything.

The discovery of being both ADHD and autistic was eye-opening. I finally understood why my brain has always felt like it’s on fire, because it’s fighting against itself.

One part of my brain craves structure. The other craves escape.

One part scripts conversations in advance. The other ignores the script and orders tequila shots.

One part is terrified of change. The other seeks constant novelty.

I realised how my entire life was made up of these battles, that nobody else could see - even me. How working so hard to appear ‘normal’ isn’t actually normal.

Understanding AuDHD meant I finally had answers about why it’s always felt that everybody else has the ‘guidebook to life’ that I missed out on - so I wrote my own, AuDHD: Blooming Differently.

ADHD and autism have only been able to be diagnosed in the same person since 2013, meaning that thousands of people are still fighting battles that they don’t have the words for.

A diagnosis isn’t an excuse - it’s an explanation, a tool to take personal responsibility and ‘name it to tame it’.

If there’s one thing I’ve learned, it’s that people who think differently don’t need to be ‘fixed’ - they need to be understood.

In a world that makes you feel like you don’t belong, self-understanding isn’t just survival - it’s the key to finally living.


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DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

It is Autism Acceptance Month.

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman