I just realized that I have alexithymia!

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Participant626
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16 Mar 2025, 4:17 pm

I'm so excited!! After a lifetime of difficulties, multiple (mis)diagnoses, and years of social media and personal journaling, I just realized that I have no idea what I am feeling and why ALL THE TIME!! This is sooooo awesome to recognize! So many things are starting to make sense. Wowwwwwww. :o

Anyone else been through this?


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Bestiola
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16 Mar 2025, 4:29 pm

Congrats! I'm also alexithymic, I have no idea what I'm feeling most of the time :drunken: Facts are my friends, emotions are scary.


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Last edited by Bestiola on 16 Mar 2025, 5:13 pm, edited 1 time in total.

blitzkrieg
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16 Mar 2025, 4:33 pm

Congratulations on your step in the journey of self discovery.



Participant626
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16 Mar 2025, 5:20 pm

Thanks guys! I figured it out thanks to this website. I was doing my usual essay writing as a response to a simple question that I would then try to summarize when it clicked in my head that I have no idea how I am feeling. So thank you to the site for the setup and opportunity to find out on my own which is compatible with PDA :oops: Super accommodating :heart:

Image

I'll be back later with a manuscript :D


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Participant626
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16 Mar 2025, 5:53 pm

Bestiola wrote:
emotions are scary.


They can be debilitating, right‽ How are you supposed to help someone if you're crying because you can tell the person talking to you is so sad that they're hiding their pain, which means they're scared to even admit it too? That's two bad emotions already. Then your emotions kick: concern, fear, and paranoia...all while trying to pretend that they're hiding it and responding properly...and your natural drive is to admit the truth so we can fix it and they don't have to feel bad anymore. That's 5 emotions at the least, plus the original matter that caused this tragedy, and what if there isn't an easy solution? Throw guilt and despair on top of that. I'm stressed out! That's 7 emotions so far. Now, they're going to get worried about my meltdown, so whatever emotions they bring...and the potential grief when they realize you're too sensitive so they stop sharing with you or cut you out entirely. This is out of control! Then, all of the emotions get processed one at a time. There goes my weekend. :(


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Bestiola
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16 Mar 2025, 6:01 pm

Participant626 wrote:
Bestiola wrote:
emotions are scary.


They can be debilitating, right‽ How are you supposed to help someone if you're crying because you can tell the person talking to you is so sad that they're hiding their pain, which means they're scared to even admit it too? That's two bad emotions already. Then your emotions kick: concern, fear, and paranoia...all while trying to pretend that they're hiding it and responding properly...and your natural drive is to admit the truth so we can fix it and they don't have to feel bad anymore. That's 5 emotions at the least, plus the original matter that caused this tragedy, and what if there isn't an easy solution? Throw guilt and despair on top of that. I'm stressed out! That's 7 emotions so far, and all of them get processed one at a time. There goes my weekend. :(


Yes, one of the hardest things in life is to console or advise someone in distress "properly". Whatever you do or say, it'll be wrong. And the harder you try, the worse the outcome.


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Elwyn
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17 Mar 2025, 1:01 am

I didn't realize I had it until last year when I started seeing a therapist. She would ask me "how do you feel?" or "how does that make you feel? I kept feeling like a failure or that i was letting her down by not being able to answer the question with nothing but " I don't know" or "I'm not sure." Sometimes I am able to say how it kind of makes me feel, but it's really a jumbled mess.



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17 Mar 2025, 1:49 am

I'm dealing with the complete opposite.

To a point that I wish I have alexithymia instead.
There are barely any guides for autistics with interoceptive hypersensitivities, and next to nothing beyond grounding techniques.

Like, I do not need more "awareness" (more like I'm forced to feel everything in my body, every subtle thought, every feeling), I need less or at least more filter from it.

And I'm sick of keep talking and thinking about it.


When I look for sensory interoception guides for autism, it's almost always about alexithymia and interoceptive hyposensitivity.


Oh, sure, lack of alexithymia usually means "emotional matters" are no brainer.
But it doesn't reflect the same with "social matters".

Nor do awareness implies regulation -- that never happened to me unless I have twice the memory cores I have in my processing. :roll:


I'm "very expressive" and "reactive" -- but I don't want to. I'd rather have a blank poker face.


Had experienced something similar to alexithymia.
And it was everything I imagined it to be.
Though, it's temporary.

I think I can afford to have one in later life, seeing that I already knew too much of my internal patterns.


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ASPartOfMe
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17 Mar 2025, 2:56 pm

I probably have to a degree. I view it as part of my autism.

I figured it out right after I received my Autism diagnosis because while I was learning a lot of things about Autism and that popped up on most Autism traits lists.


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17 Mar 2025, 3:53 pm

diagnosis gave every event of my past new perspectives, it shook up everything I thought, everything I believed , everything I thought I knew and understood. Earthquake and whirlwind of emotions for about 3 years, but when the dust settled so much finally made sense, I had the answer to almost every single painful "why" of my life. Being OLD(age 68) when I got diagnosis, I had a lifetime of stuff to sort. Now 5 years later and things are smoothing out, I am finding peace and healing and comfort after a lifetime of shame, blame and self hatred. It was such a relief to learn everything was not after all "all my fault" but my neurology at work behind the scenes. Nobody knew.


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Participant626
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17 Mar 2025, 8:15 pm

Elwyn wrote:
I didn't realize I had it until last year when I started seeing a therapist. She would ask me "how do you feel?" or "how does that make you feel? I kept feeling like a failure or that i was letting her down by not being able to answer the question with nothing but " I don't know" or "I'm not sure." Sometimes I am able to say how it kind of makes me feel, but it's really a jumbled mess.


Therapist: How do you feel?

Me internally: Oh s**t. I have to feel something or they will get upset. Quick, what's the logical way to feel right now?

Me out loud: I feel normal.

Me internally: Nailed it!

Therapist: It's normal to be nervous.

Me internally: I'm not nervous.

Me externally: :|

Edna3362 wrote:

To a point that I wish I have alexithymia instead.


Pro-gamer move: Watch traumatizing material for an extensive period. You'll be set on those emotions for some time. :wink:

ASPartOfMe wrote:

I figured it out right after I received my Autism diagnosis because while I was learning a lot of things about Autism and that popped up on most Autism traits lists.



I read about it and figured that it was why I was slightly confused on my emotions sometimes. It didn't hit me just how much I didn't know what I was feeling. I was so alexithymic that I didn't realize how I was alexithymic. I really have noooooo idea. It's a guessing game until I find out several days later.

autisticelders wrote:

diagnosis gave every event of my past new perspectives, it shook up everything I thought, everything I believed , everything I thought I knew and understood. Earthquake and whirlwind of emotions for about 3 years, but when the dust settled so much finally made sense, I had the answer to almost every single painful "why" of my life. Being OLD(age 68) when I got diagnosis, I had a lifetime of stuff to sort. Now 5 years later and things are smoothing out, I am finding peace and healing and comfort after a lifetime of shame, blame and self hatred. It was such a relief to learn everything was not after all "all my fault" but my neurology at work behind the scenes. Nobody knew.



I'm still having a similar experience in my 40s, but everyone knew lol. What was the most surprising, revealing, or overall impactful realization you had?? What was the last one you had?


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17 Mar 2025, 8:25 pm

Participant626 wrote:
I'm so excited!! After a lifetime of difficulties, multiple (mis)diagnoses, and years of social media and personal journaling, I just realized that I have no idea what I am feeling and why ALL THE TIME!! This is sooooo awesome to recognize! So many things are starting to make sense. Wowwwwwww. :o

Anyone else been through this?


Congrats! Knowledge is the greatest wealth. :)

I’m an empath, which is someone who can pickup the emotions of other people. Most of the time I’m experiencing someone else’s emotions. I can’t mingle in crowds too long as a result. It’s exhausting.

Anyway, I’m happy for you and your newly discovered self-awareness!



Edna3362
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17 Mar 2025, 8:55 pm

Quote:
Edna3362 wrote:

To a point that I wish I have alexithymia instead.


Pro-gamer move: Watch traumatizing material for an extensive period. You'll be set on those emotions for some time. :wink:

For some weird reason, alexithymia just doesn't happen to me.

Out of traumatic resposes, the dissociation of choice my brain chose was to daydream :roll: than blunt emotions.


And that method won't work with me.
I have a very screwed sense of fear to a point I cannot relate to autistics who struggle with fear and anxiety.


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Last edited by Edna3362 on 17 Mar 2025, 9:24 pm, edited 1 time in total.

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17 Mar 2025, 9:09 pm

I have that sometimes as well. There are situations where I should have a strong emotional response but no, nothing.



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19 Mar 2025, 5:00 pm

I have wondered if my son who is 19 and on the spectrum has this. He doesn't cry when someone passes away, he never complains about being too warm or too cold or hungry or sad or nervous. He is rather silly alot of the time though. I have had a suspicion about alexithymia but never knew for sure. What are some methods that are useful to deal with it, or is it just something to accept......



Participant626
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19 Mar 2025, 11:34 pm

Stircrazy wrote:
I have wondered if my son who is 19 and on the spectrum has this. He doesn't cry when someone passes away, he never complains about being too warm or too cold or hungry or sad or nervous. He is rather silly alot of the time though. I have had a suspicion about alexithymia but never knew for sure. What are some methods that are useful to deal with it, or is it just something to accept......


There are lots of problems that could result from alexithymia. For example, let's say your son's friend has a parent that passes. Your friend tells your son, and your son has no visible emotional reaction. Your friend might think that he doesn't care about him or something similar, limiting or even damaging that relationship.

What I'm doing is keeping track of how I'm doing throughout the day and seeing if there are any patterns. Sometimes I'm having trouble focusing or don't feel like doing anything, and after eating, I get some drive, so I guess that means I'm hungry. Sometimes, I have bloating and GI issues, and that seems associated to anxiety or overwhelm. A headache, inability to think, or irritation is probably sensory overload. I wouldn't have noticed if it wasn't for that little journal/log though. If someone would have told me I was alexithymic, I would have responded, "I feel suspicious." Nope. That's not a feeling. That's a logical response. My feelings are unconscious to me a lot.

My *suspicion* is that I can really only feel one or two feelings at a time, so the rest get put in the back of the conscious priority list. The top 2 salient emotions are going to get the attention, while the rest are not felt. I'm not aware of them, but they still impact my perceptions and behaviors. That's my running model right now.


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