how do you feel about the term "asperger's sufferer

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alana
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03 Apr 2010, 8:42 pm

I saw this in an article about someone the other day and I blanched. I don't like it, but do other people find it useful and accurate? It sounds pitying to me. I can't remember the name of the person but they were accused of a (non-violent) crime and it seemed to be being offered up as a reason or contributing factor.



Callista
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03 Apr 2010, 8:46 pm

It's a leftover from back when people assumed that if you had a disability, you had to be suffering. Awkward, totally incorrect, and hopefully fading.


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Danielismyname
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03 Apr 2010, 8:49 pm

It depends.

I suffer when my senses are overwhelmed. But when they aren't, I'm not. They aren't the majority of the time (I smartly avoid the causative agent), so as far as the ASD goes, I don't suffer for the majority of the time.

It all depends on the symptoms and how and when they manifest.



CockneyRebel
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03 Apr 2010, 8:49 pm

I hate the term. I don't suffer from AS. I suffer from the attitudes of mainstream society, Autism Speaks, and even my own family members, who think that "Every illness should be cured, so that people can live their lives in peace." Autism is not an illness, or a disease, and I do not suffer from it.


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Callista
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03 Apr 2010, 8:50 pm

Using "sufferer" as a synonym for "person who has [condition]" is really not at all correct, because it presumes suffering that may not be there.


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Willard
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03 Apr 2010, 8:56 pm

I most certainly do suffer and have for my entire life. But it stems from the way I have been treated because of my Autism, not from the ASD itself. So it comes back to the same argument - it's about society's attitudes more than the handicap itself.

Still, suffering is suffering, even when it's suicidal depression from being treated like an outcast and a loser for years, and not from chronic back pain. :(


And honestly, I'm not sure how much of that depression is caused by external conditions and how much is an organic result of the brain configuration itself - it seems virtually impossible to separate the two, like the old 'chicken and egg' conundrum. Which comes first, the depression and unhappiness that keeps one socially maladjusted, or the social ostracizing that leads to even more depression and unhappiness?



Last edited by Willard on 03 Apr 2010, 9:06 pm, edited 2 times in total.

pat2rome
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03 Apr 2010, 9:04 pm

Doesn't bother me; one of the definitions of suffer is "to undergo or experience (any action, process, or condition)", which is totally correct.


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Callista
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03 Apr 2010, 9:06 pm

Yeah, but you have to admit that's an archaic definition. It hasn't been used that way for... oh, fifty years, at least. Maybe more.

It also means "Allow". So, you get the connotation of passivity there, too, which isn't exactly something I like very much.


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pensieve
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03 Apr 2010, 9:12 pm

It's fine with me. In a way I do suffer from some of my symptoms. I still call it a disorder. I'm not going to sugar coast it by calling it a difference or gift. That's not to say that I'm not happy with having it. I'm neutral. You don't get diagnosed with Asperger's because you're different, you get diagnosed with it if you're having problems in your life, which really does make 'sufferer' and 'disorder' fit.
That's just my opinion.


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CockneyRebel
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03 Apr 2010, 9:17 pm

AS is not a wound.

Is that spelled right?


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slikk03
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03 Apr 2010, 10:11 pm

i dont know what do they mean by suffer? AS alone realy does not cause you to suffer but i have anxiety so i cant work and i get very irratable due to that and the fact ssi will keep deniing me for AS and anxiety plus possible borderline personality thats not yet diagnosed. the AS and anxiety are my dx not borderline but im shure i have it and i suffer from it from time to time



League_Girl
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03 Apr 2010, 10:13 pm

Nothing. It's true for some aspies. I used to suffer but not anymore.



slikk03
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03 Apr 2010, 10:15 pm

i dont know what do they mean by suffer? AS alone realy does not cause you to suffer but i have anxiety so i cant work and i get very irratable due to that and the fact ssi will keep deniing me for AS and anxiety plus possible borderline personality thats not yet diagnosed. the AS and anxiety are my dx not borderline but im shure i have it and i suffer from it from time to time



captainnero
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03 Apr 2010, 10:26 pm

I know a lot of people are offended when someone says autis msufferer, but I am okay with it.



anbuend
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03 Apr 2010, 10:45 pm

It's outdated when referring to any condition including ones that cause far more suffering than autism does. The fact that some people view autism as causing them suffering doesn't mean it's okay. I have trigeminal neuralgia which is thought by some to be one of the most painful medical conditions and "suffers from" and "sufferer" still sound totally wrong to me. It's not about that.


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03 Apr 2010, 10:57 pm

pensieve wrote:
It's fine with me. In a way I do suffer from some of my symptoms. I still call it a disorder. I'm not going to sugar coast it by calling it a difference or gift. That's not to say that I'm not happy with having it. I'm neutral. You don't get diagnosed with Asperger's because you're different, you get diagnosed with it if you're having problems in your life, which really does make 'sufferer' and 'disorder' fit.
That's just my opinion.


Got to agree with pensieve here. On a bad day, that is exactly how I consider it.

On a good day, I can view it differently.

My relationship with my ASD is not a static and unchanging one. It shifts and alters around a lot. Always has over 47 years. Always will.
And quite frankly, my sensory issues suck........