Page 1 of 5 [ 80 posts ]  Go to page 1, 2, 3, 4, 5  Next

livingwithautism
Veteran
Veteran

User avatar

Joined: 9 Sep 2015
Age: 35
Gender: Female
Posts: 1,337
Location: USA

06 Jan 2018, 1:02 am

I hate this phrase. Why? Because it has the risk of watering down the serious impairments of autism into quirkiness and uniqueness. I'm not saying it does that for sure, but when I get described as "on the spectrum," I feel like the person is saying I'm high functioning, which I'm not and I feel like they are saying my impairments are mild, which they are not. Because if it's a "spectrum," anyone can be on it.



EzraS
Veteran
Veteran

User avatar

Joined: 24 Sep 2013
Gender: Male
Posts: 27,828
Location: Twin Peaks

06 Jan 2018, 1:18 am

Yeah I know what you mean. I've written the same concern about the seriousness of autism being watered down a few times. I've seen many saying they wouldn't want any kind of a cure because of how special being an aspie is. I would just like to not be disabled as fcuk because of fcuking autism. I'm not on any spectrum far as I'm concerned, I'm full blown autistic.



bunnyb
Veteran
Veteran

User avatar

Joined: 3 Mar 2016
Gender: Female
Posts: 589
Location: Australia

06 Jan 2018, 1:36 am

That is interesting. It sounds like you take it as a personal slight. I don't think that way. I don't mind being referred to as on the spectrum and I do not see it as devaluing me and my difficulties in any way. My deficits are fairly obvious to anyone who spends time with me and I don't have the energy to waste on worrying what other people think. I do think some people use the term spectrum because they don't like saying the word autism. I also think you would find many NT people are rather confused about Aspergers, HFA and classical Autism so it's just easier for them to say spectrum and people tend to like easy options. I don't think it's done to suggest autism isn't serious but I may be wrong. I don't spend much time thinking about it to be honest.


_________________
I have a piece of paper that says ASD Level 2 so it must be true.


MidnightMoon
Veteran
Veteran

User avatar

Joined: 2 Dec 2017
Age: 46
Gender: Female
Posts: 501
Location: Megadeth Land

06 Jan 2018, 1:46 am

I couldn't care less about being described as being "on the spectrum". It doesn't affect my personality any. I'm me...I just happen to be an Aspie.


_________________
"And when we walk down the street, the wind sings our name in rebel songs
But it's much too late when the fear is gone..."


Why yes, I am a conservative.


KeepOn
Blue Jay
Blue Jay

User avatar

Joined: 5 Dec 2017
Gender: Male
Posts: 81
Location: London, England

06 Jan 2018, 3:35 am

I usually describe myself as being "somewhere on the Autistic spectrum" I think it helps people to understand that not all autistic people are like Rainman (or any other stereotype they have) and that we are a varied bunch with unique strengths and weaknesses.

To each their own, but for me I feel like describing myself as just "Autistic" puts too much of a label on me. Being on a spectrum implies it's not that simple. I'd like to be known for my character first, not just to be put in a box.



Skvurb
Butterfly
Butterfly

Joined: 12 Dec 2017
Gender: Male
Posts: 15
Location: Norway

06 Jan 2018, 4:11 am

I would wear a hat with autist on it if people would leave me alone.


_________________
Your neurodiverse (Aspie) score: 186 of 200
Your neurotypical (non-autistic) score: 35 of 200
INFP-T


SabbraCadabra
Veteran
Veteran

User avatar

Joined: 21 Apr 2008
Age: 40
Gender: Male
Posts: 7,765
Location: Michigan

06 Jan 2018, 5:25 am

I usually use the term "spectrum" or "ASD" because it includes many different disorders, whereas "Aspie" is much more specific and doesn't describe everyone.

I sometimes refer to myself as having ASD because I don't know exactly where on the spectrum I fall.

I also sometimes prefer ASD because, on the rare occasion that I actually disclose that personal information to someone new, I feel like it doesn't carry the same negative stereotypes that "Autism" does.


_________________
I'll brave the storm to come, for it surely looks like rain...


EzraS
Veteran
Veteran

User avatar

Joined: 24 Sep 2013
Gender: Male
Posts: 27,828
Location: Twin Peaks

06 Jan 2018, 5:33 am

bunnyb wrote:
That is interesting. It sounds like you take it as a personal slight. I don't think that way. I don't mind being referred to as on the spectrum and I do not see it as devaluing me and my difficulties in any way. My deficits are fairly obvious to anyone who spends time with me and I don't have the energy to waste on worrying what other people think. I do think some people use the term spectrum because they don't like saying the word autism. I also think you would find many NT people are rather confused about Aspergers, HFA and classical Autism so it's just easier for them to say spectrum and people tend to like easy options. I don't think it's done to suggest autism isn't serious but I may be wrong. I don't spend much time thinking about it to be honest.


I tend to go back and forth with my feelings on this all the time. I agree with what you are saying.



ASPartOfMe
Veteran
Veteran

User avatar

Joined: 25 Aug 2013
Age: 67
Gender: Male
Posts: 35,922
Location: Long Island, New York

06 Jan 2018, 6:30 am

I use “autistic” most often “aspie” second and “on the spectrum” third. People stereotype “Autism” and “Aspie” deny you are “Autistic” or “Aspie” or say since you are an “aspie”or “high functioning” you do not have “real autism” . For some reason “somewhere on the spectrum” seems not to offend so many people.


_________________
Professionally Identified and joined WP August 26, 2013
DSM 5: Autism Spectrum Disorder, DSM IV: Aspergers Moderate Severity

“My autism is not a superpower. It also isn’t some kind of god-forsaken, endless fountain of suffering inflicted on my family. It’s just part of who I am as a person”. - Sara Luterman


Last edited by ASPartOfMe on 06 Jan 2018, 11:09 am, edited 1 time in total.

AspieUtah
Veteran
Veteran

User avatar

Joined: 20 Jun 2014
Age: 62
Gender: Male
Posts: 6,118
Location: Brigham City, Utah

06 Jan 2018, 7:12 am

Most NTs have a limited understanding of autism altogether. If and when they learn contemporized buzz phrases, they know little else but to accept it and use it as if it is newfound knowledge. I visualize the phrase "on the spectrum" as all of us being hung up in a huge section of outer space (think Neo escaping his Matrix pod). I like the clinical description of the autism spectrum, just not its jingoistic uses.


_________________
Diagnosed in 2015 with ASD Level 1 by the University of Utah Health Care Autism Spectrum Disorder Clinic using the ADOS-2 Module 4 assessment instrument [11/30] -- Screened in 2014 with ASD by using the University of Cambridge Autism Research Centre AQ (Adult) [43/50]; EQ-60 for adults [11/80]; FQ [43/135]; SQ (Adult) [130/150] self-reported screening inventories -- Assessed since 1978 with an estimated IQ [≈145] by several clinicians -- Contact on WrongPlanet.net by private message (PM)


KeepOn
Blue Jay
Blue Jay

User avatar

Joined: 5 Dec 2017
Gender: Male
Posts: 81
Location: London, England

06 Jan 2018, 7:25 am

ASPartOfMe wrote:
or say since you are an “aspie”or “high functioning” you do not have “real autism”


Yeah, those phrases kind of puts expectations on you to be able to cope with everything well when that's not always the case. Some people even think stereotype all Aspergers people as being geniuses or have an amazing talent like maths or doing detailed drawings.



KeepOn
Blue Jay
Blue Jay

User avatar

Joined: 5 Dec 2017
Gender: Male
Posts: 81
Location: London, England

06 Jan 2018, 7:27 am

"High functioning autism" is often really just "high passing." People who've learned good social camouflage that can lead to extreme meltdown if taken too far and if the autistic side isn't well nourished.



Skilpadde
Veteran
Veteran

User avatar

Joined: 7 Dec 2008
Age: 47
Gender: Female
Posts: 27,019

06 Jan 2018, 7:59 am

I've always liked "on the spectrum". To me, there is nothing negative about it, nor does it say anything about a person's level, just that they are somewhere on the spectrum (although I can see why it could be assumed that it is HFA, as it's more similar to the language often used about HFA compared to LFA or MFA).


_________________
BOLTZ 17/3 2012 - 12/11 2020
Beautiful, sweet, gentle, playful, loyal
simply the best and one of a kind
love you and miss you, dear boy

Stop the wolf kills! https://www.thepetitionsite.com/takeact ... 3091429765


livingwithautism
Veteran
Veteran

User avatar

Joined: 9 Sep 2015
Age: 35
Gender: Female
Posts: 1,337
Location: USA

06 Jan 2018, 8:48 am

I guess to me it sounds a little vague. It's not that I care what people think about me but rather the consequences of that. It's like a way of dancing around the subject. I'm full blown autistic and it's immediately obvious.



League_Girl
Veteran
Veteran

User avatar

Joined: 4 Feb 2010
Gender: Female
Posts: 27,265
Location: Pacific Northwest

06 Jan 2018, 12:13 pm

I say I am on the spectrum because I don't want to refer to myself as autistic or say I have AS. To me it just means being somewhere on it.


_________________
Son: Diagnosed w/anxiety and ADHD. Also academic delayed and ASD lv 1.

Daughter: NT, no diagnoses. Possibly OCD. Is very private about herself.


kraftiekortie
Veteran
Veteran

Joined: 4 Feb 2014
Gender: Male
Posts: 87,510
Location: Queens, NYC

06 Jan 2018, 12:43 pm

The “spectrum” aspect reflects the diversity of autism.