How long ago did you get a diagnosis?

Page 1 of 3 [ 37 posts ]  Go to page 1, 2, 3  Next

Droopy
Deinonychus
Deinonychus

User avatar

Joined: 28 Dec 2006
Age: 60
Gender: Female
Posts: 323
Location: Ohio

23 Jul 2008, 11:29 pm

I'm wondering when the diagnoses of Asperger's and High Functioning Autism started. I'm 43 and just got a diagnosed with Asperger's 2 years ago but what I would like to know is when did the diagnosis really begin for Aspies. I know Hans Asperger first discovered it and someone else was involved but the term Asperger's Syndrome didn't really take place until years later so is it another name for High Functioning Autism or is Asperger's a totally different thing.

I hope I'm making sense on what I'm trying to ask. Like, if you're 30 or 40 years old, how long ago were you diagnosed? Was it a diagnosis of Asperger's or High Funcioning Autism? Also, are there people 35 or older who was diagnosed with High Functioning Autism as a child and was later changed to Asperger's? I wonder how long the diagnosis of High Functioning Autism has been around.

If you were diagnosed with High Functioning Autism as a child and you're in your 30's or 40's, is it safe to assume you can hold a job and communicate well enough that people might know you're different but would never guess autism?



velodog
Gold Supporter
Gold Supporter

User avatar

Joined: 15 Mar 2008
Age: 65
Gender: Male
Posts: 1,374

23 Jul 2008, 11:40 pm

3 months and 14 days ago Droopy and the DX is "definitely on the spectrum, but too high functioning to be Aspergers".



23 Jul 2008, 11:49 pm

10 and a half years ago. I was diagnosed as having autism in the late 1980's. Then when I was four or five, it was changed to 'autistic behavior' because I had hearing loss.


Of course I had to be re tested and all in 6th grade because my psychologist thought I may have AS because it was the only condition left on the list of the possibilities of what I might have. I was real hard to diagnose because of my hearing loss. The psychiatrist said Aspergers was the closest match he can come to for me for a diagnoses. I don't know why he didn't use PDD-NOS. :? I can think of two reasons for it; PDD-NOS would have given my school the power to put me in a class with violent kids, he doesn't do diagnoses for PDD-NOS.



Tim_Tex
Veteran
Veteran

User avatar

Joined: 2 Jul 2004
Age: 45
Gender: Male
Posts: 46,125
Location: Houston, Texas

24 Jul 2008, 12:07 am

12 years ago.


_________________
Who’s better at math than a robot? They’re made of math!


Malsane
Sea Gull
Sea Gull

User avatar

Joined: 29 Jun 2008
Age: 36
Gender: Female
Posts: 216
Location: Iowa, USA

24 Jul 2008, 12:08 am

2 years ago. I was 18.



SIXLUCY
Veteran
Veteran

User avatar

Joined: 13 Jul 2008
Age: 47
Gender: Female
Posts: 575

24 Jul 2008, 12:10 am

This week, last week, maybe the one before that.. dont know but now I am one of you's.

rechecked 28 I am.. so 28.



Josie
Veteran
Veteran

User avatar

Joined: 25 Apr 2008
Age: 42
Gender: Female
Posts: 607

24 Jul 2008, 12:33 am

I haven't yet... I got diagnosed with a LD like when I was 5 or 6.
I think I got the wrong diagnoses. My Mom just told me they thought I did have Autism though
I also have hearing lost :-(



CGstucknthe80s
Blue Jay
Blue Jay

User avatar

Joined: 16 Mar 2008
Age: 38
Gender: Male
Posts: 81
Location: Wyoming, MI

24 Jul 2008, 1:09 am

I was diagnosed 20 years ago, circa 1988. I was 2 years old at the time. My mom noticed the signs immediately and took me to some specialist about it, she had told me.



Venger
Veteran
Veteran

Joined: 15 Apr 2008
Gender: Male
Posts: 3,519

24 Jul 2008, 2:01 am

Tim_Tex wrote:
12 years ago.


I was also diagnosed in 1996.



Danielismyname
Veteran
Veteran

User avatar

Joined: 2 Apr 2007
Age: 43
Gender: Male
Posts: 8,565

24 Jul 2008, 3:46 am

A little over a year ago. "Classic Autism", albeit "high-functioning".

My IQ got me by during the school years, no matter how Autistic I was. Since I didn't want to socialize, and I'm a passive and well behaved person [who managed fine as long as I had structure and order], I never would have been picked up (it wasn't a problem for me). I had the usual hearing tests as I didn't answer the teachers many times (which came back normal), the IQ tests [that always came back high], and other assorted "pointers".



Bradleigh
Veteran
Veteran

User avatar

Joined: 25 May 2008
Age: 34
Gender: Non-binary
Posts: 6,669
Location: Brisbane, Australia

24 Jul 2008, 3:51 am

I think it was 6-7 years ago, I think I was 11, though my me and my mum always knew that there was something different with me.


_________________
Through dream I travel, at lantern's call
To consume the flames of a kingdom's fall


MrMark
Veteran
Veteran

User avatar

Joined: 3 Jul 2006
Age: 66
Gender: Male
Posts: 8,918
Location: Tallahassee, FL

24 Jul 2008, 5:18 am

I was identified a couple of years ago. No official diagnosis. Based on what you've said, I'd say I'm more HFA than AS. I thought the two were synonymous. I think of myself as AS, but extremely well adapted.


_________________
"The cordial quality of pear or plum
Rises as gladly in the single tree
As in the whole orchards resonant with bees."
- Emerson


2ukenkerl
Veteran
Veteran

User avatar

Joined: 19 Jul 2007
Age: 64
Gender: Male
Posts: 6,248

24 Jul 2008, 5:51 am

velodog wrote:
3 months and 14 days ago Droopy and the DX is "definitely on the spectrum, but too high functioning to be Aspergers".


WOW, did you go to someone that knows what they are talking about yet? TOO high functioning..... 8O :lol:



anbuend
Veteran
Veteran

User avatar

Joined: 5 Jul 2004
Age: 44
Gender: Female
Posts: 5,039

24 Jul 2008, 6:50 am

I was diagnosed in 1995 when I was almost 15.

What I was diagnosed with is a little more complicated. What they told my mother was that I was autistic with idiot-savant features. What they wrote on paper could be PDD-NOS, CNS disorder NOS, atypical autism, developmental disorder NOS, etc. (This was apparently because back then "autism" on its own meant "hopeless", and they didn't want to say "hopeless" or I wouldn't get the proper kind of funding or 'treatment'.) I also found a paper from around then that described me over time on a graph as low- to mid-functioning, but it was not a paper that was ever distributed to insurance companies, it was in the private notes of my psychiatrist and appeared to be a diagram he had drawn to explain something to my mother.

After some later misdiagnoses (some "instead of" autism, some "along with" autism) I was rediagnosed with PDD-NOS in late 1998 or early 1999 at the age of 18. Later in 1999, at the age of 19, my diagnosis was officially changed to autism, which is what it's stayed since. I was also diagnosed by an independent evaluator in 2002. No functioning level has been given, unless you count a score of 47 on an adaptive skills assessment done by having a staff person who'd known me several years fill out a questionnaire about me (lowest possible is 40, highest is 130, 100 is average -- like an IQ test but measuring something different). That was in May 2005 when I was 24.

I hope any of this is what you're looking for. I'll be 28 next month.


_________________
"In my world it's a place of patterns and feel. In my world it's a haven for what is real. It's my world, nobody can steal it, but people like me, we live in the shadows." -Donna Williams


Cheerlessleader
Veteran
Veteran

User avatar

Joined: 6 Mar 2007
Age: 34
Gender: Female
Posts: 1,429
Location: Adelaide

24 Jul 2008, 8:09 am

11 years ago.


_________________
Autism Speaks: We can haz ur moneyz, Y/Y?


KingdomOfRats
Veteran
Veteran

User avatar

Joined: 31 Oct 2005
Age: 40
Gender: Female
Posts: 4,833
Location: f'ton,manchester UK

24 Jul 2008, 8:54 am

am was first tested for autism at two,at hope hospital,but they said am could not have autism because the scans were not showing brain damage,they believed autism=brain damage only.
they gave mum and dad a load of severe behavioral terms instead to deal with which made am look like an evil little b*****d and be treated like one.
despite being on the severe end,having speech therapy and being special schooled,they both believed the doctor is always right and never bothered to get am reassessed,they found it easier to try and get rid of am into childrens homes since toddler age.
am was misdiagnosed again at late teenage age-but that at least got am on the spectrum,am was diagnosed at adult age as having classic autism with high complex needs,and another specialist who assessed am through sister gave the sub label 'explosive autism' as well,though dont class that as official.

as for HFAs,not all who would be classed as HFA are able to communicate well or live on own/without support,the same goes for aspies as well as there are both HF auties and aspies who really arent HF as the label says.
some HFAuties and aspies need residential or group or in own home-support,and recieve disability benefits because they cant work,at the complete opposite end-others might have their own company.


_________________
>severely autistic.
>>the residential autist; http://theresidentialautist.blogspot.co.uk
blogging from the view of an ex institutionalised autism/ID activist now in community care.
>>>help to keep bullying off our community,report it!