IT'S OFFICIAL: No More Aspergers
Coming from the other direction, Chris Murray might be a person who (erroneously) could be considered low functioning, but who's actually squarely middle functioning. The subject of a documentary by his brother, Chris has two jobs and lives independently in an apartment, and he has his artwork. Chris's mother is supportive and pretty alright. (his father, now deceased, sounds like he was really pretty awful) And his family has some money. And that helps, for my guess would be that the two jobs do not support Chris's apartment.
http://inheavenmovie.com/
And without a modest amount of help, Chris is the kind of person who could end up in really awful institution, and that doesn't need to happen.
I watched that clip and looks sad. I don't know exactly why it looks sad to me, but it does. Maybe because the dad dies and the man is concerned about the mom dying? I dunno. I worry about my parents dying a lot, too. I know this is off topic. Just wondering if others worry about that, too.
I response to the topic... Callista has a great post on page 8 that I really liked. I was most interested to know that most people on the spectrum are currently diagnosed as ASD-NOS. I can understand how that would get you left out of the services loop.
If it helps people get more services that they need, then I'm all for the change. If it doesn't reflect the entirety of those of us who are currently diagnosed as Asperger's, then not so much. As far as I can figure out from reading this thread, these two "ifs" are the theme running through most responses.
Must meet criteria A, B, C, and D:
A. Persistent deficits in social communication and social interaction across contexts, not accounted for by general developmental delays, and manifest by all 3 of the following:
1. Deficits in social-emotional reciprocity; ranging from abnormal social approach and failure of normal back and forth conversation through reduced sharing of interests, emotions, and affect and response to total lack of initiation of social interaction,
2. Deficits in nonverbal communicative behaviors used for social interaction; ranging from poorly integrated- verbal and nonverbal communication, through abnormalities in eye contact and body-language, or deficits in understanding and use of nonverbal communication, to total lack of facial expression or gestures.
3. Deficits in developing and maintaining relationships, appropriate to developmental level (beyond those with caregivers); ranging from difficulties adjusting behavior to suit different social contexts through difficulties in sharing imaginative play and in making friends to an apparent absence of interest in people
B. Restricted, repetitive patterns of behavior, interests, or activities as manifested by at least two of the following:
1. Stereotyped or repetitive speech, motor movements, or use of objects; (such as simple motor stereotypies, echolalia, repetitive use of objects, or idiosyncratic phrases).
2. Excessive adherence to routines, ritualized patterns of verbal or nonverbal behavior, or excessive resistance to change; (such as motoric rituals, insistence on same route or food, repetitive questioning or extreme distress at small changes).
3. Highly restricted, fixated interests that are abnormal in intensity or focus; (such as strong attachment to or preoccupation with unusual objects, excessively circumscribed or perseverative interests).
4. Hyper-or hypo-reactivity to sensory input or unusual interest in sensory aspects of environment; (such as apparent indifference to pain/heat/cold, adverse response to specific sounds or textures, excessive smelling or touching of objects, fascination with lights or spinning objects).
C. Symptoms must be present in early childhood (but may not become fully manifest until social demands exceed limited capacities)
D. Symptoms together limit and impair everyday functioning.
........................................
I still fit ALL of this criteria. I am not losing my diagnoses.
I fit all of them too. They officially recognized sensory issues! Yay! I didn't fit all of the Asperger's criteria. The new criteria is worded in a way that fits me. I guess I am "more autistic" now.
I never had a problem with the change EXCEPT the reasoning behind it. It was made to keep people from being diagnosed and therefore eligible to receive money or services that cost money. That makes me sick, but society is sick. I never thought there was a big enough difference between AS and Classic Autism to merit separate names. There are many people who are (Ahem, were) considered HFA that are much higher functioning than I am and will ever be.
I always considered myself Autistic, and have described myself as such. (People who have never heard of or don't understand Asperger's can usually grasp a description of "a very mild form of autism that is isn't always noticeable.") I will still say "Aspie" out of habit and a love of the sounds. Since Aspie is slang, no one can say *it* doesn't exist. I will also be adopting the term "The diagnosis formerly known as Asperger's"
Funny story, I was talking to my mom about my Asperger's issues but not using the word (it is a trigger when said out loud) and she goes, "Yeah, that is from your Asperger's." I go "I know" She says, "I am not sure if I should talk about this cuz it might make you upset, but there is no Asperger's anymore" and went on to explain. She had seen a news segment on tv. I laughed and told her, "I know, I have known about it for a really long time."
She didn't think I knew what the DSM is, but I am pretty sure that she was the one had no idea what it was before the news story. XD
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Verdandi
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I don't remember what the diagnosis was called in the 70s and 80s, but it was called minimal brain dysfunction in the 60s and early 70s. My sister was diagnosed with it in 1976 or 1977, and I should have been diagnosed with it, but that didn't happen. My parents also were foster parents, and one foster kid who stayed with us was also diagnosed as hyperactive, although the treatment he received was "black coffee," not very helpful. I grew up in the 70s and 80s, but my perspective on ADHD is informed by modern research.
My teachers said I had ADD and my brother ADHD, They ordered a complete physco-evaluation through the school in 1979.
They labeled us with a form of Autism. Of which the state of NY deemed we were gifted not disabled. So we did not receive an education.
ADHD is not a concomitant disorder. It is a disorder that can exist on its own and with a common pattern of comorbidities. Not everyone who is diagnosed with AS meets the criteria for ADHD, although quite a few do.
It sounds like someone was being incompetent if they decided that being autistic is the same as gifted. I was also labeled as gifted (due to my results on an IQ test) which made education significantly more difficult as I was expected to just know how to do things that I did not just know how to do. My parents rarely helped me with homework, instead telling me I was smart enough to figure it out, and that not doing so meant I was lazy. This was aside from also calling me stupid.
so obviously we are. I am not misinformed, but instead sick of insurance companies and government institutions changing things to wiggle out of teaching these kids. It's the children that benefit from these labels, They deserve an education. They deserve to understand themselves.
Your statements about ADHD appear to be consistently incorrect, which would indicate a lack of information on ADHD.
Do you have any kind of recourse with your school district? They should evaluate your son.
School is just a great place for him to add to his ever growing pencil collection (you've heard of loving lampposts he's loving pencils)
The system failed far too many of us. Educating teachers in what to look for is a good thing, but teachers can't diagnose, only point things out. I had one teacher point out that she thought I had a learning disability. My mother had my IQ tested to prove I had no learning disability. Rather than try to look into getting me academic help, she decided I didn't need any because I was hyperlexic and intelligent. There are many problems here, but the existence of ADHD as a diagnosis isn't one of them.
Verdandi
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I haven't seen any one of those patterns we've found that
a) is only for people diagnosed with Asperger's
and
b) fits everyone diagnosed with Asperger's
Neither have I.
Wait, there is one related to NVLD - a lot of people diagnosed with AS also have NVLD, but relatively few people given other PDD diagnoses have it. I think this is partly due to the stereotypical symptom expression for AS actually being indicative of NVLD as well. Most of the stuff people talk about here happens with people who have been diagnosed with autism and PDD-NOS as well as AS.
We should pay attention to those patterns, but saying "look this is what Aspies are like" when its either ignoring the people with other diagnoses or forcing people with the Asperger's diagnosis into being something they aren't because that's "What Aspies Are Like" (which happened to me by professionals on multiple occasions) is a problem.
I agree with this. I would much rather have a diagnosis that accurately describes my needs than a diagnosis that implies a certain set of behaviors and impairments that do not fit me, as is the case right now.
Many people with Aspergers/Autism do NOT meet the definition of ADHD/ADD. I went through extensive testing for ADHD and I simply do not have ADHD, but I clearly have Aspergers.
I have been tested on attention, which I score will in normal ranges. I have also been tested on executive function, again I score normal range. These problems are NOT part of any requirement for Aspegers/Autism and many people with Aspergers/Autism do not have problems in these areas.
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Studies have found percentages ranging from 30% to 75% of the autistic people in their study meeting the criteria for ADHD, which means there's no conclusive number, but it is understood to be a very common comorbidity.
I'm not sure what your point is. Many autistic people do have executive function difficulties and may not meet the criteria for ADHD. Many others do have executive function difficulties and do meet the criteria for ADHD.
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Studies have found percentages ranging from 30% to 75% of the autistic people in their study meeting the criteria for ADHD, which means there's no conclusive number, but it is understood to be a very common comorbidity.
I'm not sure what your point is. Many autistic people do have executive function difficulties and may not meet the criteria for ADHD. Many others do have executive function difficulties and do meet the criteria for ADHD.
I just felt that some people seem to think ALL people with ASD have to have these problems, and just wanted to point out that there are many people with ASD who do not.
Studies have found percentages ranging from 30% to 75% of the autistic people in their study meeting the criteria for ADHD, which means there's no conclusive number, but it is understood to be a very common comorbidity.
I'm not sure what your point is. Many autistic people do have executive function difficulties and may not meet the criteria for ADHD. Many others do have executive function difficulties and do meet the criteria for ADHD.
I just felt that some people seem to think ALL people with ASD have to have these problems, and just wanted to point out that there are many people with ASD who do not.
You're both right. Most of us recognize all points mentioned. Not that many people need to be alerted to these facts.
Many of us have ADHD, and many do not. Those of us who do not probably shouldn't be dismissive of those who do, but those of us who do also need to recognize that some of us do not have the same problems we do.
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CyborgUprising
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Perhaps the most moronic thing mentioned was the whole Gender Identity Disorder being changed into Gender Dysphoria. Last time I checked, feeling as if you're the wrong gender isn't a "mental illness" at all. Is having polydactyly a "mental disorder" too? There is the distinct possibility that nature simply effed up when some people were developing in utero and a person is born with the brain of a male but the body of a female.
On a related note: generalizing autism is like generalizing cancer. Doing so would neglect to acknowledge the differences between the forms of the disease and treatment would no longer be as effective (liver cancer differs genetically from breast cancer and thus would require an entirely different course of action). Neglecting the differences between the forms of autism on the spectrum would likewise result in ineffective means of meeting the needs of individuals on the spectrum(hopefully it doesn't get too generalized, where LFA and HFA are treated in the same manner).
http://abcnews.go.com/Health/wireStory/ ... l-17856914
Some Moron just waved a wand & POOF we are all different...of course, the DSM re-write isn't out until May of next year.
OH NOES!! !! !
Oh wait, actually, this is a good thing. Aspergers IS a form of autism, after all. You can still use the aspergers term, just like how someone can call themselves manically depressed instead of bipolar.
Geez, people - what's wrong with being called autistic? THAT'S WHAT WE ARE!
On a related note: generalizing autism is like generalizing cancer. Doing so would neglect to acknowledge the differences between the forms of the disease and treatment would no longer be as effective (liver cancer differs genetically from breast cancer and thus would require an entirely different course of action). Neglecting the differences between the forms of autism on the spectrum would likewise result in ineffective means of meeting the needs of individuals on the spectrum(hopefully it doesn't get too generalized, where LFA and HFA are treated in the same manner).
The dysphoria that comes with being trans IS the mental illness. They're not saying that the illness is somebody identifying with the opposite gender. They know that their gender identity is different from their sex. Calling it Gender dysphoria calls attention to the fact that the dissonance between sex and gender identity can be dysphoric. If they just called it "depression" then they might not be inclined to help them transition. That means getting access to the hormones and the surgery (if desired) and whatever else medically necessary to feel more comfortable in one's own body. How does one get that access? Having a diagnosis. Treating it like a disorder can be really helpful for some people. I could be wrong, but I think that's the rationale behind it.
No, they aren't really generalizing autism. They do have different categories that refer to severity. Obviously the research lead to the fact that autistic people are so different, it was impossible to create sub groups other than ones that denote severity. Nobody is saying that LFA's and HFA's are the same. Quite the opposite. They are saying that every autistic is different and that we need to treat them on an individual basis and not impose stereotypes on people. It's all about identifying the needs of individual people and giving them a diagnosis that is appropriate to that. I think this new criteria is an improvement.
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Verdandi
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In this case I was responding to someone who made some inaccurate statements about ADHD.
Indeed.
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So we are all Autistic; so what? We always were. If some people are afraid the Autistic label will cause NTs to view them in a look-down-their-nose-at-you light, PROVE THEM WRONG! Be the same, intelligent person you always were, always are, and always will be. It may help to break the Rain Man stereotype.
I do think some good may come of this. I have known people who were given a spectrum diagnosis because their parents were so sure they had it. The parent cannot handle the child, so there's something wrong with him/her. It deludes the parent and affects the child as they live life. I hope that this re-write, perhaps with more rigid guidelines, can avert some of that; help a doctor say that there is nothing wrong with the child, rather than give him/her a mild diagnosis just to please the parent.
Sorry for the rant.
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