Aspergers and High Functioning Autism?
I am increasingly of the opinion that it's all a matter of degrees.
AS seems to be a lump category, with at least 3 and possibly 5 or more subgroups.
There is no list that will define your case specifically.
The DSM-IV is next to useless. Hopefully this spring the DSM-V will be out as scheduled.
It's not a spectrum. It's multidimensional. Depending on the degree of impairment you have in different parts of your brain, you will end up showing different symptoms.
defining "Asperger's Syndrome" is taking a huge chunk of those possible conditions and labeling them the same.
The same is true for HFA, or other organic neurological disorders. I see a day where there will be a dozen variables on the 'spectrum' and independent diagnoses and support for each of them.
Some more common ones will be grouped I'm sure, as they are now... but we are already seeing massive differences in the AS community. Some so called 'traits' of AS can express themselves in opposite ways too!
My point is: it's a mess. So far the definition of the difference is based on language acquisition. There are other factors to consider too, and once (cross your fingers) it's all figured out a bit more we'll have better labels to assign everyone.
For now... take your pick.
The DSM-V is not scheduled to be published until at least 2010 or 2011. The American Psychiatric Association plans to publish the DSM-IV-CM once the U.S. government updates to using the ICD-10 in medical coding (in the form of its ICD-10-CM, which is undergoing development). The DSM-IV-CM's only difference from the DSM-IV-TR will be the diagnostic codes used.
- AS = Verbal IQ > Performance IQ; HFA = inverse
- AS = motor clumsiness; HFA = motor skills can be an islet of ability
- AS = can be very verbose; HFA = more often silent and withdrawn
- AS = communicates in words; HFA = may communicate in simple gestures, especially as a young child
- AS population average IQ usually higher than that of HFAs
- AS = may be reported as having more interest in socializing; HFA = stereotypically reported as having less interest in socializing
- AS = geeky, intellectual; HFA = "special," odd
- AS = less noticeable stims; HFA = more noticeable stims
- AS = fewer meltdowns and better sensory integration; HFA = more meltdowns and greater sensory integration dysfunction
- AS = obsessive interests are more abstract and intellectual - conceptual systems; HFA = obsessive interests tend to be simple and concrete or systems based in the physical world
That would make me HFA, I'm all but one!
Me too. I've always thought the HFA profile fits me better and this is one of the best comparisons I've seen IMO.
I read about an interesting study awhile ago but I can't find it now. It was asking 'according to the way the current dsm is written, does asperger's really even exist?' According to the dsm for autism, you have to qualify for at least one of the language criteria and it doesn't necessarily have to be a language delay. The other options are odd use of language, and difficulty initiating or sustaining conversations. (I have the latter, the conversation one.) They did a study on a bunch of kids (and adults?) with asperger's and found that almost all of them fit at least one of the autism language criteria. According to the dsm for AS, regular autism has be ruled out first and what they found in the study was that that's pretty rare because most people do have some kind of language/communication issue.
Having said that, I do think there's probably a difference between HFA and AS - there seems to be at least two distinct profiles (along the lines of the comparison Neant posted), if not more than two. It's just that the current diagnostic criteria isn't looking at the differences that are evident IMO. To make the labels more accurate would require revamping the whole system.
The DSM-V is not scheduled to be published until at least 2010 or 2011. The American Psychiatric Association plans to publish the DSM-IV-CM once the U.S. government updates to using the ICD-10 in medical coding (in the form of its ICD-10-CM, which is undergoing development). The DSM-IV-CM's only difference from the DSM-IV-TR will be the diagnostic codes used.
sorry yes. They should begin REVIEW for the DSM-V hopefully this spring, and I know the Autism stuff is going to be big in this review.
It's dangerous to generalize almost anything (except the language component, usually) in AS or HFA since there are always plenty of examples to the contrary.
As for the difference between verbal and nonverbal IQs often seen in HFA, if verbal language is a deficit for an HFAer, it makes sense that a verbal means of testing is likely to provide difficulty, not due to an inability in some of these areas, but because the means of testing these areas of intelligence can be lacking sometimes more than the stereotypical of ASer.
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That's right, Neon. Most Aspies fit at least one of the language criteria, usually the second: "In individuals with adequate speech, marked impairment in the ability to initiate or sustain a conversation with others." It just depends on who diagnoses you.
As for Neant's comparison, to take a leaf out of Alyssa's book, a little knowledge is a dangerous thing. Many of the points on the comparison list, are basically just minor deviations that can be found in almost any population sample. Neant is comparing two different population samples against stereotypes, and ignoring the natural deviation that occurs within each sample. Except for the first point which is considered almost a deciding factor, they are all things that can vary within the population. They are by no means definate or any indication as to whether someone is HFA or AS. Face it, not every NT is a sportsperson; not every NT is an extrovert; not every NT is geeky or intellectual. The same goes for both AS or HFA populations.
http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=255&a=3337
What is high-functioning autism and Asperger syndrome?
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The Autism Helpline is asked this question very frequently. Sometimes it can seem like the two diagnoses are given on an almost interchangeable basis. The controversy over the differences between these two diagnoses goes back a long way, this article attempts to examine some of the literature available and the reasoning behind the existence of the two separate terms.
The term autism has an unusual history. It was originally coined by a psychiatrist Eugen Bleuler in 1911 to describe what he perceived as one of the key symptoms of schizophrenia, that of social withdrawal. Autism, literally meaning selfism, seemed to him to describe the active detachment which affected many of his patients. In the 1940s when Leo Kanner in America and Hans Asperger in Austria were both beginning to identify the existence of autism they separately stumbled on this term which they felt described what they were witnessing in the children they were treating.
In Kanner's case he started from the premise that these children were experiencing childhood schizophrenia. In time he became aware that they were not exhibiting all the symptoms of schizophrenia and used the phrase infantile autism to describe their condition. In the case of Hans Asperger, he identified a personality disorder affecting some of the children referred to his child psychiatry clinic which he felt was described albeit imperfectly by the term autism. His acute identification of autism was extraordinarily ahead of its time considering he was among the first people to chart it. Unlike schizophrenic patients, children with autism do not show a disintegration of personality. They are not psychotic instead they show a greater or lesser degree of psychopathy.
Kanner, an American, was writing in English. His paper was published in the UK where it gained a lot of attention. The term infantile autism became increasingly widely used in the 1950s and 60s, more and more children were diagnosed with the condition. In the English-speaking world the work of Hans Asperger went largely ignored. However, in Europe he continued to conduct research and have an influence over child psychiatry.
We don't know if Kanner was ever aware of the work of Asperger but we do know that Asperger in later years read about the work of Leo Kanner. He argued, albeit unconvincingly, that they had identified separate syndromes with a great overlap. Other academics began to argue that Asperger's and Kanner's autism were the same syndrome. Most notably Judith Gould and Lorna Wing in their ground-breaking study in Camberwell in the late 1970s came to the conclusion that autism existed on a continuum. In 1981, Lorna Wing used the phrase Asperger syndrome in a research paper to describe a distinct sub-group of patients that she had been seeing. The term became much more widely used in the English-speaking world as a result. Some professionals have felt that Asperger syndrome is a more acceptable diagnosis from the point of view of parents. They argue that there is a social stigma attached to autism which is not attached to the term Asperger syndrome.
"In the case of Asperger syndrome its recognition has resulted in its placement among developmental disorders in general and autistic spectrum disorders in particular. It may well be proved to have no independent existence but this does not detract from Aspergers achievement in discerning something very special in the children he described."
Uta Frith, 1998
Gillberg and Ehlers (1998) identify four main areas where controversy over the difference in diagnosis still exists.
Level of cognitive functioning
The view that Asperger syndrome is autism without any additional learning disability is helpful from the diagnostic point of view as it is fairly easy to make a distinction in these circumstances. However, Asperger himself said that there might be unusual circumstances where a person could present the symptoms of Asperger syndrome with additional learning disability. It is widely recognised that high functioning autism cannot occur in someone with an IQ below 65-70.
Motor skills
In recent years the view that Asperger syndrome can only occur when there are additional difficulties with motor skills has become more prominent. Certainly Asperger himself was well aware of the prevalence of motor skill problems in the group of people he tried to describe. It seems likely that most children with Asperger syndrome experience poor co-ordination and difficulties with fine motor control. However, many children with higher functioning autism will also have difficulties in these areas.
Language development
This is the area that probably causes the greatest controversy. Both ICD10 and DSM IV state that for a diagnosis of Asperger syndrome then spoken language development must be normal. Children with high functioning autism may have had significant language delay. However, Asperger's original descriptions of the condition stated that speech and language peculiarities are a key feature of Asperger syndrome. Often diagnoses of Asperger syndrome are made when a child is quite old and they or their parents may have difficulty remembering the details of their language development.
Age of onset
A diagnosis of HFA and one of AS can be made in the same individual at different stages of development. Occasionally a child has been diagnosed with high functioning autism in early childhood and this diagnosis has been changed to Asperger syndrome when they started school. Some diagnosticians are clearly of the view that Asperger syndrome cannot be diagnosed before a child starts school. However this is largely because areas such as social skills deficits may not become apparent until a child spends a lot of time in social settings.
To summarise:
Both people with HFA and AS are affected by the triad of impairments common to all people with autism.
Both groups are likely to be of average or above average intelligence.
The debate as to whether we need two diagnostic terms is ongoing.
However, there may be features such as age of onset and motor skill deficits which differentiate the two conditions.
Although it is frustrating to be given a diagnosis which has yet to be clearly defined it is worth remembering that the fundamental presentation of the two conditions is largely the same. This means that treatments, therapies and educational approaches should also be largely similar. At the same time, all people with autism or Asperger syndrome are unique and have their own special skills and abilities. These deserve as much recognition as the areas they have difficulty in.
If you or your son or daughter has recently been given a diagnosis of either high-functioning autism or Asperger syndrome then it is worth checking what criteria the diagnostician had been using.
If you require further information please contact the NAS Autism Helpline
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