From another thread, I wrote:
When I learned about AS from studying about my son's diagnosis, I was struck by how much it resonated in me. So I took several of the online tests to get a benchmark; then I asked several (20+) people to take the same tests so I could gather a comparative sense of their accuracy. Then I asked them to tell me how they remembered me at various stages in my life - I can't "see" myself in many situations, so I often rely on feedback from others. Then I brought it up with my doctors, who then disagreed. While not 'officially' diagnosed, I went with the doctor who was willing to research AS in adults over the one who interrupted me mid-sentence to assure me he knew what the problem was without any assessment or testing, who has AS as 'Occam's Diagnosis' for me at this stage, albeit highly adapted. (It is important to remember that adapted and successful are two different things; I function much better in some areas than others.)
Would something written in my chart change the fact that I fit the criteria? Or that for the first time, the suggestions and approaches offered actually apply to my difficulties? No. Would I like to know something for certain? Yes. But at what cost?
M.
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My thanks to all the wonderful members here; I will miss the opportunity to continue to learn and work with you.
For those who seek an alternative, it is coming.
So long, and thanks for all the fish!