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Apple_in_my_Eye
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12 Apr 2010, 6:52 pm

Not wanting a cure is not the same as desiring stagnation.

Not wanting a cure is also not the same as being against things that help. It is also not about being against learning. Totally false dichotomies.

I.e. Some people are against cochlear implants, but that doesn't mean they're also against their kid learning ASL.



JetLag
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12 Apr 2010, 7:14 pm

A cure sounds like identity theft.


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12 Apr 2010, 9:14 pm

Oh sure, I'll take the cure then ride my unicorn and go fight fire breathing dragons.

All three things don't exist unfortunately.

The unfortunately is for the dragons. Dragons are cool. I would never actually fight them.


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ProfessorAspie
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12 Apr 2010, 9:24 pm

[quote="Horus"

...

Like Treebeard of LOTR fame said to Pippin (in the Two Towers movie anyway) after the latter asked him whose "side" he was on......"Side?... I am on nobody's side...because nobody is on MY side".[/quote]

No gifts? You seem to be a hell of a writer. That said, your point is taken.



Horus
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12 Apr 2010, 10:39 pm

ProfessorAspie wrote:

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No gifts? You seem to be a hell of a writer. That said, your point is taken.





Maybe in a superficial sense. But it would be difficult to make a career out of writing if one only remembers an infinitesimally tiny fraction of everything they've read, heard, seen and experienced throughout their lifetime.

Thus...the amount of things I could write about would hit a brick wall in a matter of days, if not hours.


Even though my memory is normal according to all the neuropsych evals i've had over my life, I see every reason to believe I have a profound memory impairment in terms of long-term semantic, procedural and episodic memory. This not some age-associated problem, i've dealt with it all my life. There is good evidence to suggest that serious long-term memory problems can be overlooked by the standard neuropsychological memory tests.

*evidence*:

"Patients with epilepsy frequently complain of memory difficulties yet perform normally on standard neuropsychological tests of memory. It has been suggested that this may be due to an impairment of very long-term memory consolidation processes, beyond those normally assessed in the neuropsychological clinic. We carried out a prospective study of verbal memory over a long-term retention interval of 8 weeks in patients with epilepsy and in controls. Results were compared with performance on conventional tests of memory. Despite normal learning and retention over 30 min, patients with epileptic foci in the left temporal lobe performed disproportionately poorly on the long-term test compared with both patients with epileptic foci in the right temporal lobe and controls. Our findings provide evidence for an extended period of memory consolidation and point to the critical region for this process, at least for verbal material, in the left temporal lobe. The implications of our findings for clinical assessment and therapeutic management of patients with epilepsy are discussed.

epilepsy; memory; consolidation; long-term; verbal

HAD = Hospital Anxiety and Depression Scale; NART = National Adult Reading Test; TEA = transient epileptic amnesia; WAIS-R = Wechsler Adult Intelligence Scale—Revised; WCST = Wisconsin Card Sort Test; WMS-R = Wechsler Memory Scale—Revised


Patients with epilepsy frequently complain of memory problems that are often undetected by conventional memory tests. In this paper we have investigated beyond normal retention intervals to prospectively evaluate long-term memory consolidation processes in patients with epilepsy.

Traditionally, theories of human memory have focused on a limited range of time intervals. Information that is assessed after a few seconds is thought to be held within short-term or working memory systems; information that has been stored for longer than a few minutes has usually been assumed to be represented within long-term memory. The establishment of memory within long-term storage is thought to be mediated via some form of consolidation process. While such consolidation may not be complete after a few minutes (and indeed may continue for weeks, months or years) it is often assumed that its general efficacy can be evaluated after relatively brief delays. Thus, clinical tests of memory have tended to focus on the short-term/long-term distinction, measuring memory either after seconds or minutes (e.g. Wechsler, 1987). Comparatively little is known about long-term memory beyond this relatively narrow interval (in the case of standard neuropsychological assessments extending to a mere 30 min), and it is often assumed that there is little to know. This may be an unwarranted assumption"
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http://brain.oxfordjournals.org/cgi/con ... /123/3/472



persian85033
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13 Apr 2010, 1:58 pm

I would not want a cure. I've learned a lot from my AS. Especially how to hide things and be sneaky.


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14 Apr 2010, 8:12 am

Horus wrote:
MommyJones wrote:
I can understand both sides of this issue, but I want to say that this is very well stated. I'm not on the spectrum so I don't know how much I really can say about this, but you made your point nicely. Personally, I don't think it would change innately who you are, but I know that there are people who feel that way, and I can understand and respect that. Autism does come with gift and if you lose your Autism, at what cost?s, but at what cost? I think that's an individual decision as to how much a cure would cost them to lose or gain and if, to them, it would be worth it.

I think the painful part of this issue is the belief that there is something "wrong" with Autism and Austistic people, not necessarily the desire to help people live a more fullfilling life if that's what they want.




I have not been officially Dx-ed with an autistic spectrum disorder. According to every neuropsych eval i've ever had. I do fit the general characteristics of Nonverbal learning disability though.

That said.....there are many professionals (and non-professionals including alot of people on WP) who believe NVLD and Asperger's are the same disorder.

Thus....if this is true and since Asperger's is definitely considered a form of Autism...then I have a form of Autism.

So assuming I have Autism....it has come with NO gifts in my case. None, zero, nada, zilch....only curse after unspeakable curse.

And one of the most irritating things people still tell me is...."Oh EVERYONE has gifts!! !....EVERYONE is good at SOMETHING....you just haven't found what you're good at yet"! !!

O'rly????...................So after 40 years of seeking, IQ testing, psychotherapy, college, exhaustive research on my own part, vocational assessements, meds, etc......ad infinitum... i'm FINALLY going to find something i'm remotely skilled at???


I'm certainly not upset with you personally MommyJones nor am I just whining and complaining about my miserable existence just for the sake of doing so.

I'm just trying to prove a point. And my point is.....If i'm autistic and have no "gifts" then that must mean autism doesn't ALWAYS come with gifts. And I would guess that i'm not the only "giftless" autistic person in the world.

My further point is.....this sentimentalized, Oprah-fied culture of ours has everyone believing that EVERY human being is good at SOMETHING. Call me whatever you will....but I just don't see how reality bears that out.

We just live in a society which is further distancing itself from reality everyday...that's all. This ostrich-ignoring self-denial and self-deceit along with an unrestrained hedonistic nihilism is our latter-day Nero-esque fiddling while night inexorably descends upon humankind and many other lifeforms on this planet.


The inevitable and welcome end to "civilization" as we know it aside, i'm frankly beginning to resent others on the autistic spectrum who act like we're ALL just one big happy family. One with magickal little neurological differences that give us special powers the wicked and dull NT's don't understand.

Why shouldn't I resent people like this? They are the ones getting all the attention and services and as usual, people like me who are THE MINORITY WITHIN A MINORITY get left to rot in the gutters of "civilization".

Gee....how soon the INITIAL minority forgets eh??? Not so very long ago, there was once a time when they were doing quite a bit of "rotting" too eh? Ya know....back when everyone thought autistics were just hopeless vegetables to be warehoused in hellish institutions. Oh well...it wouldn't be the first time such a convenient memory hole has happened opened up in history. And people wonder why my misanthropy knows no bounds :evil:

Nobody's interested in my brain and it's problems....i'm not rich, i'm not a child anymore and I don't have all these kewl and trendy skilz that has made Aspie chic the biggest thing this side of Lady f***kin' Gaga.

And last but not least.....nobody can make $$$ off me.

Oh that reminds me!! !.....Isn't it about time for some festering canker sore to start a "Is Lady Gaga an Aspie?" thread. :roll:


Bottom line.....i'd be sorely tempted to sell my soul to change everything about myself.




And.....I don't give a fart about organizations like Autism Speaks one way or another.





That's a fight for the rest of you ASD folks....I frankly don't care if you win it or lose it.

Why should I?

Like Treebeard of LOTR fame said to Pippin (in the Two Towers movie anyway) after the latter asked him whose "side" he was on......"Side?... I am on nobody's side...because nobody is on MY side".



I'm sorry if I upset you, that was not my intention at all. I have read on this website time and time again what people would not want to give up because of a cure. Many reasons given are because of gifts they have, however they define it. I'm not saying "gifted" necessarily, but things that they feel make them special or unique that a cure would potentially take away. I don't think anyone on here needs to be "fixed", but I would like to see people like you who are needing help to get it, however that help manifests itself, only for the sake of helping people, not for the reason of changing them or because I feel they are flawed. I'm just trying to understand, and help other people who may not have autism in their lives to think beyond the little that they know now, to a greater understanding.



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14 Apr 2010, 4:16 pm

MommyJones wrote:


Quote:
I'm sorry if I upset you, that was not my intention at all. I have read on this website time and time again what people would not want to give up because of a cure. Many reasons given are because of gifts they have, however they define it. I'm not saying "gifted" necessarily, but things that they feel make them special or unique that a cure would potentially take away. I don't think anyone on here needs to be "fixed", but I would like to see people like you who are needing help to get it, however that help manifests itself, only for the sake of helping people, not for the reason of changing them or because I feel they are flawed. I'm just trying to understand, and help other people who may not have autism in their lives to think beyond the little that they know now, to a greater understanding.




YOU did not upset me in the least the MommyJones. You have nothing to apologize for :) What upsets me are the presumptous and ignorant claims many people on BOTH sides of the "cure" issue make. I don't recall YOU making any such claims...not IMO at least. In a more general sense, i'm upset about our society's approach to mental/neuropsychological disorders as a whole. There is no longer an excuse for the cookie-cutter approach in the 21st century. The utility of the diagnostic labels and criteria is extremely limited and I have reason to believe i'm living proof of that. We need a FAR MORE idiopathic and individualistic approach to psychological/neuropsychological disorders. And we're not getting one from those who matter most here, the psychologists themselves of course. When it comes to brain-based disorders of any kind, the differences between individuals matter just as much (and they often matter far more) as the similarities.


Until this paradigm shift occurs, people like me will not get the diagnosis, treatment and services we so desperately need. We will continue to be told that there CAN'T POSSIBLY be something wrong with our brains beyond anything their omniscient neuropsych evals can detect which subsequently conforms to one of their diagnostic labels. We will continue to be told that even when a lifetime of self-obeservation would suggest otherwise. The article I included in my previous post about epileptics with long-term memory deficits demonstrates all this quite well IMO. The "unwarranted assumptions" the brain/behavioral scientists are making aren't just limited to what they think they know about human memory either. I find very funny that I, a colossal idiot with only an AA degree in liberal arts, have been saying exactly what is stated in this article in regards to the "unwarranted assumptions" about long-term memory FOR YEARS.

Like most humans....the brain/behavioral scientists are hardly immune to self-contradiction. On one hand they tell us the human brain is inexpressibly complex and as a result, that their science is still in it's infancy. On the other hand...they often refuse to believe anything which doesn't fit neatly into their diagnostic categories.

Seems to me that the more complex a system is....the more that can go wrong with it.



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14 Apr 2010, 4:47 pm

Horus wrote:
MommyJones wrote:


Quote:
I'm sorry if I upset you, that was not my intention at all. I have read on this website time and time again what people would not want to give up because of a cure. Many reasons given are because of gifts they have, however they define it. I'm not saying "gifted" necessarily, but things that they feel make them special or unique that a cure would potentially take away. I don't think anyone on here needs to be "fixed", but I would like to see people like you who are needing help to get it, however that help manifests itself, only for the sake of helping people, not for the reason of changing them or because I feel they are flawed. I'm just trying to understand, and help other people who may not have autism in their lives to think beyond the little that they know now, to a greater understanding.




YOU did not upset me in the least the MommyJones. You have nothing to apologize for :) What upsets me are the presumptous and ignorant claims many people on BOTH sides of the "cure" issue make. I don't recall YOU making any such claims...not IMO at least. In a more general sense, i'm upset about our society's approach to mental/neuropsychological disorders as a whole. There is no longer an excuse for the cookie-cutter approach in the 21st century. The utility of the diagnostic labels and criteria is extremely limited and I have reason to believe i'm living proof of that. We need a FAR MORE idiopathic and individualistic approach to psychological/neuropsychological disorders. And we're not getting one from those who matter most here, the psychologists themselves of course. When it comes to brain-based disorders of any kind, the differences between individuals matter just as much (and they often matter far more) as the similarities.


Until this paradigm shift occurs, people like me will not get the diagnosis, treatment and services we so desperately need. We will continue to be told that there CAN'T POSSIBLY be something wrong with our brains beyond anything their omniscient neuropsych evals can detect which subsequently conforms to one of their diagnostic labels. We will continue to be told that even when a lifetime of self-obeservation would suggest otherwise. The article I included in my previous post about epileptics with long-term memory deficits demonstrates all this quite well IMO. The "unwarranted assumptions" the brain/behavioral scientists are making aren't just limited to what they think they know about human memory either. I find very funny that I, a colossal idiot with only an AA degree in liberal arts, have been saying exactly what is stated in this article in regards to the "unwarranted assumptions" about long-term memory FOR YEARS.

Like most humans....the brain/behavioral scientists are hardly immune to self-contradiction. On one hand they tell us the human brain is inexpressibly complex and as a result, that their science is still in it's infancy. On the other hand...they often refuse to believe anything which doesn't fit neatly into their diagnostic categories.

Seems to me that the more complex a system is....the more that can go wrong with it.



I don't think I could articulate better the reason I am on this website. :hail:



DavidM
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14 Apr 2010, 6:56 pm

Good news folks: I can announce with firm conviction and total sincerity that there is indeed a cure for autism.

It is called: having lots of money.

You see folks, having lots of money takes you very far in this world, irrespective of any niggling personality quirks or idiosyncracies.



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23 Apr 2010, 9:24 pm

I would like to feel comfortable around people just once even if it was just for a month or two. :( I have had women walk up to talk to me and always turn around and walk away. I have had their friends come up to me to give lectures of "your not all that or who do you think you are?" type conversations. Just once I would like to smile and ask her out. Normal is better what I am now is living hell.



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24 Apr 2010, 6:39 pm

I think the problem we all have, the reason any of us would ever want a cure, is to eliminate the constant belittlement and sense of worthlessness we're made to feel day after day, because we're living according to one set of rules and the NTs of the world according to another. I, myself, have an assortment of personality quirks and unique qualities but I certainly don't want to change. I love who I am, oddities and all, and don't feel I should have to change. However, in my 25 years, I've gotten so very tired and worn out from the constant impulse to defend myself and justify every step I take, every action I make. I remember when I was younger, I wasn't always as cynical about other people....I was actually a friendly, outgoing person and I had my share of quirky behaviors but I was at least shown tolerance and respect. I generally liked most people and found myself drawn to others and getting to know them.

As the years went on, though, that slowly changed. As my peers grew and they matured into what most would consider "normal", I was left behind, and they never let me forget it. I suffer from Tourettes Syndrome and, though I can hide the AS symptoms behind a mask of shyness and quietude, the tics were a different story. Middle school was the worst, and I felt resentment and discrimination for the first time, and it was a pretty ugly sight. I withdrew into myself and started pushing people away, and I've been doing it ever since. It's like there's two rulebooks out there, one for the NT world and one for the AS world. Many support groups out there claim to have the best interests of Autists at heart but they're still trying to label us according to their own standards. They would feel the appropriate solution is to change us and to make us just like them, so a "cure" is the ultimate goal. They won't be satisfied until they can translate our rules for living into theirs. This is why I feel we're constantly being judged according to their standards, and what they want us to be.

I feel that's why NTs are constantly criticizing our actions and behaviors, whether in an abusive way or just to be obnoxious. It's not because what we're doing is wrong, but because they don't understand us, and people are intimidated by what they don't understand. Much like other forms of discrimination in the past, it's easier to erase the problem than to deal with it. The civil rights movement is an ongoing process, one that has only in the past few hundred years addressed gender and sexuality, but individual personality is still being swept under the rug. They mischaracterize autism as a disease, something to be eliminated, whereas they should be treating it as a difference. We are unique, yes, but that doesn't mean anything we do is bad....society encourages tolerance for a person's religion or personal beliefs, but it refuses to extend the same courtesy for a person's personality and behavior, and that's caused all of us a lot of grief.

If given the option for a cure, I wouldn't take it, because I shouldn't have to change myself to fit the profile for how a person should act or behave....all I want is the same rights and opportunities as everyone else.....not just on paper, but in practice.



jametto
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25 Apr 2010, 10:29 am

God, to all these people who don't want a cure can you please shut up and stop plaguing this thread, there's a thread for those who don't want a cure. The people on this forum that actually want to be cured/improved get drowned out constantly by these autism patriots who just can't keep their blind pride to themselves (and out of threads that don't want to hear about it).

People come here for help and desperately want to get better. They ask a question seeking advice to improve their symptoms, and their threads get hijacked by all these ignorant people saying "autism can't be cured or helped, but why would you want to cure it's a gift."

We finally get a thread where everyone who does want a cure can relate with one another and it's instantly destroyed by morons who can't keep their mouth shut regarding their autistic pride,. They post in this thread but don't contribute to the topic of the thread, can't relate to people who want a cure etc then hijack it. It's extremely selfish and disgusting.

Telling us that autism is great and you wouldn't change who you are isn't going to help the people who this thread is for one single bit.

I don't understand why you'd post that you're you're proud to be autistic in the first place unless it was relevant. Otherwise it's not even slightly productive.
In this thread it's just as productive as me telling you that my bedroom walls are blue. Who does that help?? So why do you people spam being proud in almost every thread you can? Because you can't understand not wanting to be autistic? To boost self esteem? You're obviously not trying to help the threadstarter. And if you argue that you are then explain how please.

The people who don't like autism, don't like it for a reason, you saying you're proud of it doesn't help them in anyway, it just insults their intelligence.
You're proud to be autistic, GOOD FOR YOU!! !!

Now for the 0.05% of people on this entire forum who actually do want a cure, there isn't one but there are a lot of treatments that can make most of it disappear forever, but not all of it. I'll list them from best to worst.

1. Gluten/Casein free diet: The most beneficial, you really need to go on both. The improvements are hard to put into words, you really need to do the diet for yourself to understand. I did it myself for only 3 months and the improvements were:
Eye contact, emotions, brain fog, depth perception, body language, sleep, motivation, attention and mainly senses like touch and sight.

The biggest difference was the boost in energy, followed by the change in senses, this made me feel reborn, my body (touch) felt like it had been switched off (I felt like a head on a block rather than feeling all my torso, limbs. My depth perception improved drastically, I was happier, didn't need as much sleep/felt better rested, didn't zone out at all. The reborn feeling was amazing and it changed everything, I had better co ordination, my walk changed (my feet sort've slapped the ground before the diet), eye contact still wasn't great but I didn't stare anymore, monotonal voice disappeared completely, brain felt like it wasn't lagging/was clearer. Depth perception was massive, I'd have a glass of milk one day hop into the car and I'd feel like I was on an acid trip (yes i've done acid and it's an extremely close feeling mentally and I couldn't tell how many cars were in each lane at an intersection coming to a stop. So many changes I'm forgetting to add a lot of them.

Then I went off the diet a month back (because i was sick of the food and found medicine that allowed to me to get the same result as the diet but allowing me to still eat gluten/dairy i'll go into that later) and all my friends got disappointed, they said they had noticed remarkable results. Annoyingly enough they didn't actually tell me or give me any compliments when I was on the diet, only after. They said I seemed, happier, didn't sit down/lean on things all the time, wasn't dopey anymore and didn't look lifeless/stoned. However the biggest things they noticed were that I didn't zone out anymore or have a monotonal voice.

Now it's scientifically proven to be linked to Autism, despite many people demanding that it's still a theory. This is due to a large "credible" study that found no link between autism and gluten. The study was ignorant and used urine testing for peptides which is completely unreliable for multiple reasons. Not the testing equipment itself, the fact that if you take glutomorphin urine tests from a large amount of people you're unlikely to find a sample in the urine even if the DPP-IV enzyme is missing due to the nature of the peptide. This credible study wrongfully assumed that the peptides would be consistently streamed in the urine.

Next thing I treated myself for (treatment hasn't finished yet) was Mercury poisoning which made me feel loads better however can't really explain how I improved, I just changed sort've, the only thing I could put on paper is less stereotypical thinking a lot more than that improved. I'll finish this post later I g2g for now.



Cryforthemoon
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25 Apr 2010, 10:38 am

After I take said cure for my Dysleixa would I still be myself? Same thing for the the part that is somewhat ADD. And when I at long last find out if I do have Aspergers the question can be asked of that.

If it changes who I am then no I don't want a cure. It makes me who I am and what other people say they love about me. I may never have enjoyed half the stuff I like if it for what I have so no I would not want a cure if it changes who I am.



jametto
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25 Apr 2010, 12:11 pm

Cryforthemoon wrote:
After I take said cure for my Dysleixa would I still be myself? Same thing for the the part that is somewhat ADD. And when I at long last find out if I do have Aspergers the question can be asked of that.

If it changes who I am then no I don't want a cure. It makes me who I am and what other people say they love about me. I may never have enjoyed half the stuff I like if it for what I have so no I would not want a cure if it changes who I am.


I'm happy for you and your positive view of Autism. But why are you posting it in this thread? Shouldn't this post be in the for those who don't want a cure?

It's like the pro autism people in this thread are getting offended and defensive for some reason.

If you just felt the need to express your opinion on autism why isn't it in the other thread? You obviously don't want a cure, this thread is "for those who want a cure".
You're being oppressive. Keep your propaganda out of this thread,most importantly NO ONE ASKED YOU.

I know what the pro autism people are doing in this thread but I can't find a word for it so I'll state an analogy:

Someone starts a thread asking what type of dog they should buy.
Then one of the replies in the thread is simply "I don't like dogs". With nothing else stated.

Well obviously there are people who do and don't like autism so why bother posting that you like it in the first place? It's because you're getting defensive due to a lack of understanding

People are allowed to not like autism.

Forgive us for not seeing lack of empathy, superficial relationships, no friends or girlfriends as a gift. I'm sure Hitler was a gift too.....

To answer your question, you'd lose your dyslexia, you'd still be who you are as your morals are unaffected.



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25 Apr 2010, 4:05 pm

Jametto wrote


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Forgive us for not seeing lack of empathy, superficial relationships, no friends or girlfriends as a gift. I'm sure Hitler was a gift too.....



I only wish these were my only issues. It's utterly impossible for me to imagine a person in my shoes who wouldn't want a "cure". Whatever a cure would entail in my case.....probably nothing short of a brain transplant. :roll: