do you want to comment autism everyday video

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katzefrau
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22 May 2010, 8:05 pm

i haven't even watched all of this, but it's immediately terrible.

it says that autism is a problem for those who are caretakers of those on the spectrum, not the people who have it themselves.


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nostromo
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23 May 2010, 6:02 am

MONIQUEIJ wrote:
Asp-Z wrote:
I haven't watched this yet, but is this the one where the president of Autism Speaks says she wants to drive her autistic daughter off of a bridge while she was in the room?



yes it is the video, and you know what really piss me off about it, when i post this on any where else people are quick to tell me off and justify the part saying her words was taking out of content, but it was said simple, she basically said she was thinking about killing herself and her daughter with autism, and she would of done it but she didn't because of luren who is her baby.
:evil:

For someone to contemplate doing such a thing they would have to be in an extremely emotionally distressed state. So it's logical to imagine that the woman in the video was in an extremely distressed state and probably did not have a rational presence of mind.
It doesn't make her a bad person. I can imagine that at the time she felt hopeless and only saw a future of pain, failure and sadness for her child.

My friends daughter was deaf, blind, mentally ret*d and tetraplegic, I wonder if they ever thought the same.

But it's easy for you to sit there and pass judgement isn't it?



MONIQUEIJ
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23 May 2010, 7:02 am

nostromo wrote:
MONIQUEIJ wrote:
Asp-Z wrote:
I haven't watched this yet, but is this the one where the president of Autism Speaks says she wants to drive her autistic daughter off of a bridge while she was in the room?



yes it is the video, and you know what really piss me off about it, when i post this on any where else people are quick to tell me off and justify the part saying her words was taking out of content, but it was said simple, she basically said she was thinking about killing herself and her daughter with autism, and she would of done it but she didn't because of luren who is her baby.
:evil:

For someone to contemplate doing such a thing they would have to be in an extremely emotionally distressed state. So it's logical to imagine that the woman in the video was in an extremely distressed state and probably did not have a rational presence of mind.
It doesn't make her a bad person. I can imagine that at the time she felt hopeless and only saw a future of pain, failure and sadness for her child.

My friends daughter was deaf, blind, mentally ret*d and tetraplegic, I wonder if they ever thought the same.

But it's easy for you to sit there and pass judgement isn't it?



lol how i did i know if i go to your profile under diagnoses it would say NT. stop making excuses for this women, she was wrong to say it, for christ sake atleast don't say it infront of the child



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23 May 2010, 9:28 am

Autism Spars: It's Time to Move On! topic

All the negativity that these children soaked up from their parents is evident. Instead of focussing on the behaviours (which is what these parents did/perhaps still do) they could focus on something good and continue from there. This is what I learned in dealing with challenged children I was with years ago.

Wear your Autism every day. Wear with pride! :D


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23 May 2010, 10:34 am

As someone who has had caregivers attempt to kill me and then justify it by talk like that, and as someone who helped a friend compile statistics on such murders, yes, yes it is easy for me to say that it's wrong to say things like that. People who justify hate speech remind me of those who, as another friend wrote, "mourn the purgatory of the parent but don't give a damn about the hell of the autistic." People like me are the ones who bear the brunt of ableist hate. And that's what it is. It's not stress from being overworked (this has been studied in depth by Dick Sobsey, a psychologist who is also the father of a man with severe developmental disabilities). It's the fact that disabled people are hated and the more severe or multiple our impairments are seen to be the more we are hated (wanting someone dead, or believing that because of some part of who we are it is more reasonable to have thoughts of wishing us dead, is hate even when it is couched in superficially loving language -- love is as love does).

If my parents were other than who they are, they could fly across the country to where I have completely different caregivers, shoot me in the head, and be some combination of applauded and sympathized with by other parents. How do I know this? Because scenarios like that have happened. And it would be easier to do this to me because of the perceived level and kind of my impairments (not only autism that has been described by professionals as LF even if I reject the term, but also in combination with physical and chronic health conditions that mean I have to spend 99% of my time in bed, receive intensive services, not work, not speak, use a tilting motorized wheelchair when I'm up, etc.) That makes it easier the more things get piled on because it's easier to paint me as a burden on society and on my caregivers, and as not contributing anything back and having no quality of life (for disabled people pity is just a twisted up kind of hate too). But all this isn't necessary either. Just being autistic is enough. Just after this video came out there was a spate of murders of autistic people. One of them was a little girl smothered by her mother. Her mother was not a primary caregiver and voluntarily had her home from school in another state. She had access to huge amounts of support and was not even the person raising her daughter. Her daughter was a very happy and capable little girl, and the only kid in her preschool group to know what an octagon was. But her mother was still supported by the local autism society. And her mother used this video to justify her actions.

Meanwhile after this video came out, and after the maker of the video applauded this mother's "honesty" (why is it always that people who say the most messed up things are promoted as just more honest than people who don't say them???) and said that every parent would have thought this if they did enough soulsearching... I got a peculiar email from my mother. She seemed really upset. She told me for the first time that she had been counseled by a doctor to abort me but she never even thought of wanting that. That even in our hardest moments (which were much worse than seeing a supposedly overcrowded school with a 11:1 teacher student ratio) she never wished me dead and never even wished she never had me. And the reason she felt such a weird need to tell me all this was because of this video and the aftermath.

Oh, and Dick Sobsey found out something else in his research. When parents say things like this of their disabled children in publicized ways, the murder rate of disabled children goes up. Not that there aren't better ways of saying things like this than appear on this video. It's possible to say stuff like this while being honest about the ableist roots of such desires, and the real dangers such desires have on disabled people. But just saying it and normalizing it like this? Totally and completely irresponsible. And as long as she continues to put justifications of it into her "apologies" it remains irresponsible. (Anything short of a direct declaration of the harm it does and how no excuse can possibly justify the harm it's done and will do, is irresponsible. Unfortunately she's still too defensive for that.)

The hard cold facts of the matter is that things like this lead to real disabled people being murdered. And to reduced sentences for the murderers. (Often with the nauseating comments like "She already served fourteen years of the sentence of having a child like this, she doesn't need to serve more time.") And these facts mean there can be no justification good enough for saying things like this. The stakes are too high. And trying to make things like this seem okay just feeds into the ableism that kills real live disabled people.


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katzefrau
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23 May 2010, 2:13 pm

amen. :hail:


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nostromo
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23 May 2010, 3:05 pm

MONIQUEIJ wrote:
nostromo wrote:
MONIQUEIJ wrote:
Asp-Z wrote:
I haven't watched this yet, but is this the one where the president of Autism Speaks says she wants to drive her autistic daughter off of a bridge while she was in the room?



yes it is the video, and you know what really piss me off about it, when i post this on any where else people are quick to tell me off and justify the part saying her words was taking out of content, but it was said simple, she basically said she was thinking about killing herself and her daughter with autism, and she would of done it but she didn't because of luren who is her baby.
:evil:

For someone to contemplate doing such a thing they would have to be in an extremely emotionally distressed state. So it's logical to imagine that the woman in the video was in an extremely distressed state and probably did not have a rational presence of mind.
It doesn't make her a bad person. I can imagine that at the time she felt hopeless and only saw a future of pain, failure and sadness for her child.

My friends daughter was deaf, blind, mentally ret*d and tetraplegic, I wonder if they ever thought the same.

But it's easy for you to sit there and pass judgement isn't it?



lol how i did i know if i go to your profile under diagnoses it would say NT. stop making excuses for this women, she was wrong to say it, for christ sake atleast don't say it infront of the child

Nice! We should think things but say another.
Putting that in action right now.



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23 May 2010, 4:40 pm

these women are extremely selfish.
some humans make really bad people.


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23 May 2010, 4:48 pm

Autism Speaks have no excuse for any of their horrible actions. I'm still waiting for the 2009 financial report to come out, I'm interested to know how much these Nazis made this year.



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23 May 2010, 5:51 pm

She said she wanted to drive her car over a cliff with her kid in the back.

Why did the state's child welfare agency not immediately remove the kid from that home?

If there were ever a case where a child needs to be taken away from his or her parents because the child was in danger, this would be that case.

There's nothing that can be done about this now, but at least the state government should investigate it's child welfare agency's failure and fire some bureaucrats if they knew about this.



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23 May 2010, 5:53 pm

Kevin_I wrote:
She said she wanted to drive her car over a cliff with her kid in the back.

Why did the state's child welfare agency not immediately remove the kid from that home?

If there were ever a case where a child needs to be taken away from his or her parents because the child was in danger, this would be that case.

There's nothing that can be done about this now, but at least the state government should investigate it's child welfare agency's failure and fire some bureaucrats if they knew about this.


It'll never happen, she runs a popular "charity" and is armed with a team of lawyers and piles of cash.



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23 May 2010, 11:36 pm

I assumed the woman's motive in telling her tail was cautionary. As in, "look I went mad and nearly did the ultimate evil, don't let it get like this, seek help".



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24 May 2010, 12:54 am

The children screaming and crying made me really stressed.



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24 May 2010, 7:56 am

MindBlind wrote:
Why is that woman talking so casually about contemplating murder? My mother didn't exactly want me (post natal depression) but she sure as hell cried when she admitted what she was feeling at the time WHEN WE SPOKE PRIVATELY about it. My mother didn't contemplate murder, but she did feel quite lonely and burdened. Now this woman is talking about murder-suicide in such a casual way to people she probably never met before. I mean, you don't have to have good social skills to know that she didn't seem very pained by the thought of this.

Also talking about murdering your child in front of her is absolutely twisted and disgusting, not to mention the fact that her only motivation not to go ahead with murder-suicide was so that her "normal" little girl would have a mummy. Despicable.

Plus, I love the woman who says "In another life, I could probably have a bagel with you...". Okay, seriously, I know families with profoundlu autistic kids who still have time to catch up with friends. Here's an idea - bring your friends to the house and if they don't like it, they can f**k off.

Also, I remember the daughter of the one of the women was trying to comfort her mother when she started crying and her mother completely ignored her. I mean, aren't you going to, I dunno, praise that? I mean, she did exactly what you though she could do and ignored it!

Also, when I was at school (in a special unit for people with autism), our classrooms were made up of 12 pupils and one teacher There would be a classroom assistant, normally, but the teacher could manage on their own (with mild difficulty). We had weekly speech and language therapy through the school. It was a brilliant place and we made tons of progress. I don't know what the hell she's talking about. I mean, I know this school was probably different, but she makes it sound very scary and it's not. That was normal for me.

I think it;s funny that the women talk about the lack of services for autism because what exactly has autism speaks donated for therapies and for special education and what not? Most of their money is pissed down the drain (mostly due to awareness campaigns and research). I mean, research is important but learning to speak and socialise and become independent is way more important. They've pretty much betrayed these women.

Also, the 80% is a load of sh**: http://www.webmd.com/brain/autism/news/ ... RSS_PUBLIC

I know, it's webMD but all the other sources pretty much say the same thing. Just do a Jenny McCarthy and Google it if you wanna.

Where the hell did these people get that number from? I'm guessing their arses.

This documentary is simply awful because it just tries to tug at people's heartstrings and force people to give pity towards families living with autism. I think they have done a major disservice to the people they supposedly represent.

Shame, shame, shame.


i agree in i notice that they didn't put on the YouTube channel the part of the 13 min video when the ( begal) women says when she see Jackson doing something he worked so hard on it gives her hope, it's like they totally refuse to show it.



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06 Jul 2010, 11:46 am

It makes me sick that these mothers are expressing these things publicly at all, let alone RIGHT IN FRONT OF THEIR CHILDREN.

HELLOOOOOOOOOOOOOOOOOOO!! !!

These people are victims and they are making their children out to be victims of autism.


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06 Jul 2010, 11:48 am

tenzinsmom wrote:
It makes me sick that these mothers are expressing these things publicly at all, let alone RIGHT IN FRONT OF THEIR CHILDREN.

HELLOOOOOOOOOOOOOOOOOOO!! !!

These people are victims and they are making their children out to be victims of autism.


"Our children are horrible monsters, we're victimised by them, please give us your money" -Autism Speaks :roll: