"fake aspies" and self diagnosis. DISLIKE, sorry.

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Surreal
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08 Jun 2010, 12:23 pm

Maybe this has been SAID already, but...

Professional diagnosis is, itself, a CRAPSHOOT. Fellow members have written about trying to get a PD only to get someone who really didn't know what to make of the situation. Or they rendered an improper diagnosis. Or the PRO just blew the person off and told them they couldn't possibly HAVE Asperger's because of this flimsy excuse or that without even GOING in-depth.

There are people out there suffering terribly with difficulties that can't be reasonably explained without simply calling them A**HOLES. The very least we can do is provide a place where they can find some level of identification at the level of apparent symptoms.

I take this very seriously. Currently, I am in the process of trying to find ways and means of getting a professional diagnosis. However, I've already run into someone well-meaning who says, "Oh, THERE'S nothing WRONG with you...YOU'RE just a little SHY." SHE don't know the HALF of it!

It's important for us to focus on our own journey; more will be revealed to others about oneself and whether or not they fit on this spectrum, another one, or none at all. :idea:



ItAllMakesSenseNow
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08 Jun 2010, 12:43 pm

This is my first time posting here. It's actually my first time here period. My brother who believes he has Aspergers gave me the name of this site.
My husband and I are in the process of having our son evaluated to see if he is autistic or has aspergers. While I was taking the test for Aspergers for my son I realized that almost every one of the questions pertained to me. After doing some research I found that I have almost all of the symptoms of Aspergers. My entire life would make sense if I have Aspergers. But I can't afford to get diagnosed and like so many others I don't have a lot of faith in doctors of any kind. So tell me how am I supposed to get help? I have a son now and I have to learn how to help him be more adjusted to this world than I have ever been. I don't want him to go through the same things I did.
It's certainly not some great club I want to join trust me. I just think you are being a little shortsighted in your post. There are so many different people with different situations you shouldn't lump them all together just because they haven't been officially diagnosed.
And if anyone is a parent with Aspergers who has or may have a child with it as well please pm me. Or anyone who has any recommendations for research or anything really, I would be grateful.



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08 Jun 2010, 12:49 pm

Kiley wrote:
. I don't believe electrodes are normally used to diagnose AS, they certainly weren't in anybody I know. .


He didn't say electrodes. He said "they attach wires to your scalp" for an EEG. And that's exactly what they did to my daughter when she was getting an autism diagnosis. They did an EEG to make sure that when she was staring off into space she wasn't actually having a silent seizure since seizures are not uncommon for people on the spectrum.



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08 Jun 2010, 12:51 pm

I knew there would be a point where some Aspies were 'better' than other Aspies, I.E. more disabled or more weird.

It's stupid, really... and it's a shallow victory.


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08 Jun 2010, 12:55 pm

AphexSam wrote:
Okay I hope I don't get flak for this as I know alot of people on here are self diagnosed but for some strange reason it really annoys me and I know it shouldn't. I myself was diagnosed by professionals and I had to go through months of tests (EEG's...or is it ECG not sure but they attach wires to your'e scalp) and counselling and for someone to just turn around and say yeah I have aspergers because I read about it in an article just annoys me. Maybe its my own bitter experiences but I've met people who say they have Aspergers when actually they don't (and theyv'e later admitted to that), they just don;t want to try in social situations and use it as an excuse and for attention. It really tears me up I mean I have alot of troubles with aspergers, sensory issues and things like that and here are some purposefully normal people who are just using it as an excuse. Now most of the self diagnosed community isn;t like that but it does beg the question, if they do have Aspergers why hasn;t it been diagnosed. I mean doctors check up when your'e little to see if there's any problems and that is how the majority of people who I've met have been diagnosed and if you think you have it go see your'e doctor and ask them for what they think, if they think you have it they'll give you a referral to a physchiatrist. I myself was only diagnosed last year after counselling for depression, was then reffered to doctors who tested it and stuff yet I've had lots of people tell me beforehand but I just shrugged there comments off as they weren't the ones to diagnose me, only the proffesionals could in my opinion. it just annoys me, sorry.
Discuss :) and no rude or insulting comments. I know this may be seen as an issue of controversey but let us only have reasonable mature valid discussion.


Maybe so for younger people. But us oldies were never diagnosed because back when I was a kid there was no such thing as aspergers. We were called odd, lazy and so on. We had to do our best to fit in without excuses or understanding. Like fighting a grizzly bear with your hands tied to your back....

And I do agree that a proper diagnose is not the same as filling in an aspie test. I am in the process of getting diagnosed.
I do not like you are calling me a fake aspie because I never received proper help. Count yourself lucky you are being diagnosed and you can get the support you need, don't judge others.



redwulf25_ci
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08 Jun 2010, 1:02 pm

kip wrote:
Your grammar and insistence that everyone 'must' have been 'noticed' at some point make it impossible to carry on a reasonable discussion on this topic. I'd recommend editing heavily at the very least.

This topic is a zombie, I see it about every two months. Many do not agree with the self diagnosed, but they are no drain on you. Without a formal DX there is very little available. If it makes you feel better to say you have AS or another spectrum disorder, go for it. You're not hurting me. Also you have to take into account that many of us seem to fall on the poorer end of things. The diagnostic process takes quite a bit of time and more than a bit of money.


And a level of interaction that many of us are uncomfortable with (or is that just me?)



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08 Jun 2010, 1:04 pm

redwulf25_ci wrote:
kip wrote:
Your grammar and insistence that everyone 'must' have been 'noticed' at some point make it impossible to carry on a reasonable discussion on this topic. I'd recommend editing heavily at the very least.

This topic is a zombie, I see it about every two months. Many do not agree with the self diagnosed, but they are no drain on you. Without a formal DX there is very little available. If it makes you feel better to say you have AS or another spectrum disorder, go for it. You're not hurting me. Also you have to take into account that many of us seem to fall on the poorer end of things. The diagnostic process takes quite a bit of time and more than a bit of money.


And a level of interaction that many of us are uncomfortable with (or is that just me?)


truth



addison
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08 Jun 2010, 1:08 pm

Surreal wrote:
Maybe this has been SAID already, but...

Professional diagnosis is, itself, a CRAPSHOOT. Fellow members have written about trying to get a PD only to get someone who really didn't know what to make of the situation. Or they rendered an improper diagnosis. Or the PRO just blew the person off and told them they couldn't possibly HAVE Asperger's because of this flimsy excuse or that without even GOING in-depth.

There are people out there suffering terribly with difficulties that can't be reasonably explained without simply calling them A**HOLES. The very least we can do is provide a place where they can find some level of identification at the level of apparent symptoms.

I take this very seriously. Currently, I am in the process of trying to find ways and means of getting a professional diagnosis. However, I've already run into someone well-meaning who says, "Oh, THERE'S nothing WRONG with you...YOU'RE just a little SHY." SHE don't know the HALF of it!

It's important for us to focus on our own journey; more will be revealed to others about oneself and whether or not they fit on this spectrum, another one, or none at all. :idea:


i have a good example of improper diagnoses. heh more like incompetence. at first it was thought at had cerebral palsy even though there was no brain damage or anything. who knows why they thought i had that especially after there was no visible brain damage when i got a brain scan or whatever you call it. the only thing i can guess is because my motor skills were bad (my fine motor skills are still bad. back in high school which was only like 4 years ago when i guaduaded, i took a sewing class and i had a hard time threading the needle for the times i had to hand sew something) which is total crap. if i had cerebral palsy, it's doubtful i could do half the things i do, including driving.

anyways....later i was diagnosed with bipolar, which i guess could have been because i was acting up in class and getting mad a lot. also i think i had depression back then, i'm not sure. but i had no manic episodes, so why they would think i had bipolar was beyond me.

finally they diagnosed me with aspergers. this diagnosis is right. i agree with it. i have a lot of the aspie traits.

the funny thing is when i was like toddler age, my mom noticed some things i did (like rocking when i was sitting) and thought it was autism. no one believed her because i could talk. and because i could talk, they dismissed i had any form of autism.

my point is that trying to get the right diagnosis can be hard. especially if the doctor doesn't know you. it took forever for them to diagnose me with aspergers, and only after i was already in therapy for a few years.

also i donno where i heard this from but i heard it's harder for an adult to get diagnosed with aspergers than children.



redwulf25_ci
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08 Jun 2010, 1:11 pm

ItAllMakesSenseNow wrote:
This is my first time posting here. It's actually my first time here period. My brother who believes he has Aspergers gave me the name of this site.
My husband and I are in the process of having our son evaluated to see if he is autistic or has aspergers.


If he's an Aspie then by definition he's autistic.



ItAllMakesSenseNow
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08 Jun 2010, 1:21 pm

redwulf25_ci wrote:
ItAllMakesSenseNow wrote:
This is my first time posting here. It's actually my first time here period. My brother who believes he has Aspergers gave me the name of this site.
My husband and I are in the process of having our son evaluated to see if he is autistic or has aspergers.


If he's an Aspie then by definition he's autistic.

Thanks for the clarification. I was under the impression that Aspergers Was being removed from the Autism spectrum but I guess it hasn't happened yet. Does anyone have any useful information for me? If I had more time I wouldn't be asking. But I am desperate to find answers. I don't have time to wade through a lot of BS books. If anyone has a good book they would recommend let me know.



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08 Jun 2010, 1:36 pm

Not everyone can afford to get a professional diagnosis. Whether or not that person has aspergers or not does not concern me. I'm sure there's a very good reason why some people feel they can relate to this spectrum including NTs. I see nothing wrong with people sharing their own personal struggles and experiences in a world that is very socially conscious. Not all of us, aspergers or not can "change" how we percieve or get percieved by those who take their social interactions and abilities for granted.

For a long time, I struggled so much with these problems even when I went homeless. There were some things I learn to adapt but so many so many things I found not only hard but unable to do no matter how much I tried. In today's society, so many people do not seem to understand how greatly communication relies on one's circumstances. I use to think it was about money and while money helps, I think the second if you're not mute, is your abilitiy to effectively communicate. Human beings are the most social creature and I think it is this that has helped them survive.


I went through one doctor after another and while many could have been co-morbid with aspergers, I had been wrongfully diagnosed for so many things. There still isn't enough people who specialize in this condition even here, in good ole' America if you want to call it that.

Yes, I know there are people who do in fact use any illness, ailment, disease, impairment because they either think they have it, suffer from hypochondria, or attention. I leave it to these people to find constructive way in which to vent or find help. Hypochondria is another condition, whether or not these peopl annoy you, they need help in.

In short, I think it is very dangerous to generalize anyone who does not fit into one's ideology of a label. There are so many people with so many beliefs, backgrounds, circumstances, problems, and other issues not being dealt with elsewhere. I think they have the right to speak.


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buryuntime
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08 Jun 2010, 1:43 pm

Oh, this thread again?



ItAllMakesSenseNow
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08 Jun 2010, 1:45 pm

You know I think I should have posted on a different forum. My bad. I will look for a help forum. Sorry for the interruption.



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08 Jun 2010, 1:48 pm

LancetChick wrote:
Years ago both my mother and my uncle suggested that perhaps I had a form of high functioning autism


My mom suggested that when I was about five or six years old.

LancetChick wrote:
So I delved into autism research with a vengeance, and found that Asperger's Syndrome explains every single detail of my life and personality, with the exception of my sense of humor. There is absolutely no question that I have it.


Same here. (Well, maybe not EVERY detail, but there is no question that I have it, either.)

Zara wrote:
Getting properly diagnosed sometimes depends on how severe one is and how lucky one is to be able to afford it and find someone who knows what they are doing. Lots of people can slip through the cracks so to speak simply because they aren't obviously enough on the spectrum even though it still hampers their life, or never grew up around anyone who would recognize it. Especially 20 or more years ago, hardly anyone knew what Aspergers was and most people only knew about LFA or savants like in the Rain Man movie, so unless you were those, you were often overlooked as just weird and introverted. Once as adults it's generally much harder to get diagnosed because by then, coping mechanisms have been learned which hide most the behavior and there is no set criteria for diagnosing adults with a milder spectrum disorder.... Before Aspergers became more well known, lots of aspies would get mis-diagnoised with other disorders, some still do.


Since I was not "classically" autistic, that's pretty much how I was viewed too. I went to about 3 therapists before I was 10. Since it was the 1980's, there was no possibility of getting an AS diagnosis.

I figured it out about 7 months ago and have been "validated" by the online Baron-Cohen AQ test and a professor who recognized it in me due to my behavioral similarities to a diagnosed person in his family.

I see no reason to seek a formal diagnosis. I know myself well enough to know that it's true. As a result, I am better able to cope, because I know what behaviors to look for and correct. (Thank goodness my mom has been teaching me necessary social skills my whole life anyway.)

Believe me, it's not to get attention. It is what it is--a part of who I am.


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08 Jun 2010, 1:59 pm

I'm kinda on the fence on this one. I do think its possible to read about AS and immediately recognize yourself. On the other hand, I do think there are some who latch onto it as an attention-seeking label who don't have it or fully understand it and think its a badge of honor, a 'gift' that only means they're extra-smart and shy. There are also those who are formally diagnosed, clearly DO have it and are in deep denial about how pervasively its affecting their lives, that's kind of annoying, too. :roll:

All this talk about how expensive it is for those in the US without Health Insurance to get diagnosed, however, is nonsense. Even without Obamacare, Uncle Sam takes care of his own, as long as you ASK. No one is going to come to your door asking "Excuse me, did you need some Mental Health care subsidized?" In any community there's a facility where the courts send people for mandatory anger management therapy, drunk driving rehab courses, all that stuff judges can order you to do in lieu of actual jail time - wherever that place is in your area, also deals with low-and-no income folks who need counseling and psyche meds, but can't afford them. Depending on your income, treatment and/or evaluation may cost you something, but it won't be an arm and a leg, and if you're poor enough, may be free. If you can't figure out where that is in your neighborhood, call the nearest suicide prevention hotline, surely they will know.

The notion that anyone who has AS would have been diagnosed at an early age is just hokum. Even now that's it recognized and watched for, that would depend entirely on where you grow up. Some school systems have better facilities and funding for screening and evaluation than others. But before 1994, Asperger Syndrome was virtually unheard of even by most Mental Health professionals, and if you went through the US public school system back in the 60s and 70s as a lot of us did, you were either 'normal' or 'ret*d' and there was nothing in between. Social anxieties and difficulties fitting in were just personal defects - weaknesses that grownups thought they could 'fix' if they berated and punished you enough.

I first self-diagnosed back in 1980, when I began to see news items on television about Autistic kids. I knew the minute I saw them stimming, that whatever was affecting those kids, I had some form of it myself. It wasn't until more than 20 years later that someone sent me an article on Asperger Syndrome that I finally understood what it was - and another 4 years after that before I found myself in contact with a Mental Health professional for other purposes and asked immediately to be evaluated for AS. So I can't discount the self-diagnosed entirely - I was one of them - and I don't think it's possible in most cases to tell online whether or not their self-evaluation is accurate, not that I'm professionally qualified to attach that label in any case. I do think that if you view it only as a 'gift', and that it's not affecting your life in any debilitating way, if you don't consider it a handicap - then whatever your symptoms may be, they probably aren't serious enough to constitute an actual 'disorder'.



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08 Jun 2010, 2:06 pm

ItAllMakesSenseNow wrote:
redwulf25_ci wrote:
ItAllMakesSenseNow wrote:
This is my first time posting here. It's actually my first time here period. My brother who believes he has Aspergers gave me the name of this site.
My husband and I are in the process of having our son evaluated to see if he is autistic or has aspergers.


If he's an Aspie then by definition he's autistic.

Thanks for the clarification. I was under the impression that Aspergers Was being removed from the Autism spectrum but I guess it hasn't happened yet. Does anyone have any useful information for me? If I had more time I wouldn't be asking. But I am desperate to find answers. I don't have time to wade through a lot of BS books. If anyone has a good book they would recommend let me know.


Aspergers is being removed as a diagnosis period, it's all just autism. But as I pointed out earlier Apergers is probably going to be used and/or understood for a while yet just like the term manic/depression for what would now be diagnosed as bi-polar disorder.