Research project studies what autistic adults want to study!

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this is a reminder that we are still looking for many more participants.

If you are interessted, please see http://thegatewayproject.org/

I noticed a message saying something about "Group results" - is this like a preliminary analysis of the data, and a comparison of the autistic versus controls?

Sebastian:
I am not formally diagnosed with any ASD, although I am seriously considering having an evaluation done. I presume that one's diagnosis (or lack thereof) would affect which studies one might be included in, and how the results are analyzed. If I choose to participate and my diagnostic status changes, is there a way to advise the researchers of the change?

Sebastian:
I am not formally diagnosed with any ASD, although I am seriously considering having an evaluation done. I presume that one's diagnosis (or lack thereof) would affect which studies one might be included in, and how the results are analyzed. If I choose to participate and my diagnostic status changes, is there a way to advise the researchers of the change?

Be Included in Autism Research
The Academic Autistic Spectrum Partnership in Research and Education (AASPIRE) and the Gernsbacher Lab believe in research WITH adults on the autistic spectrum, not just ABOUT them.

Together, we have created the Gateway Project, which is an online gateway to research that
* encourages the inclusion of adults on the autistic spectrum in matters that affect them;
* includes adults on the autistic spectrum as equal partners in research about the autistic spectrum;
* answers research questions that are considered relevant by the autistic community;
* uses research findings to effect positive change for people on the autistic spectrum.

The Gateway Project needs your help, whether or not you are on the autistic spectrum.

Gateway studies address topics such as healthcare experiences and problem-solving. A new AASPIRE Gateway study focuses on Internet use and well-being, including feelings about connecting with other people via the Internet and social support. AASPIRE expects to use the information learned to understand how involvement in online communities may benefit individuals.

To participate in the AASPIRE Internet Use, Community and Well-Being Study and any of the Gateway Project studies:
1. Register online for a Gateway account starting at http://www.thegatewayproject.org
2. Take the online Gateway Survey. The survey takes about 20-40 minutes to complete.
3. Wait for email messages about further studies. You may be eligible for some studies and not for others. You will only receive email messages for studies for which you are eligible.
4. If you are eligible for the Internet Use, Community and Well-Being Study and decide to participate, it will take about 40 minutes to complete.
5. After finishing each survey, you can enter a drawing for an Amazon.com gift certificate.

Completing the survey entitles you to a 1 in 15 chance to win a $25 Amazon.com gift certificate.

If you would like to learn more about the AASPIRE Internet Use, Community, & Well-Being Study or Gateway Project  
Go to the AASPIRE Well-Being Study page at http://aaspire.org/wellbeing
Send an email to Dora Raymaker at [email protected].
Make a telephone call to Dr. Christina Nicolaidis at 1-503-494-9602

OHSU IRB # 5568           Principal Investigators: Christina Nicolaidis, MD, MPH, Oregon Health & Science University
          Katherine McDonald, PhD, Portland State University
                                                                                      Dora Raymaker, MS, Autistic Self-Advocacy Network

Please pass this information along to your friends!

I have participated in a number of these already. They are well done and no sign of increased spam or otherwise so it is "safe" from my experience (to the paranoid ones)

Can't think of a better cause. If you want to make a change BE the change.

I signed up for this back in December, I think? Haven't done anything but the initial survey. No invitations to further studies followed. I keep wondering if I did something wrong.

Once the initial survey is completed, invitations to studies are send, depending on the studies. It is the up to to the individual studies which participants they invite. For example, some studies invite internationally and some only within the United States. Thanks for participating!

Signing up was a waste of time for me. I've been on that site for a year and a half and not been invited to participate in a single study. This is apparently not universal as others receive such, but whatever. Obviously there is something about me that the studies funnelled through AASPIRE do not need, but I have no idea what that is.