applesauce wrote:
It'd be nice to have non Aspies meet us half way sometimes, as equals of different perceptions. I kinda feel like, why should we make all of the changes ourselves? Why should we learn to speak NT and act NT and adopt NT customs and habits when there's very little movement by most NTs to jump in and learn aspie until it's forced on them. Most NTs don't take any thought about it till they have one diagnosed in their family and are forced to look at it - It sucks, don't you think??
That's all.
Apple
Part of the problem is lack of knowledge. 95% of people without someone in their family on the spectrum have no idea what Asperger's is, and only a passing idea (Rainman, or worse) of what autism in general means.
I know because I was part of that 95%. I'm very well-educated, and in fact worked in a law firm doing medical malpractice, as well as for insurance companies, so I had a significant medical background. Yet the day I sat and googled my son's symptoms and behaviors looking for answers, the two answers that kept coming up - AS and HFA - were completely foreign to me.
I agree with you 100%, it sucks. A lot of things suck. It sucks that people look down on me because I ride a power chair if we go somewhere that requires walking due to severe neuropathy. I look fine. I get dirty looks climbing out of my truck at the handicapped parking spot. That sucks. When my son has a meltdown in the store because he *really* doesn't want flip flops for the pool, and people circle around and look at me like I'm killing the kid (who outweighs me and has sent me more then once to the ER for stitches in ME), that REALLY sucks.
And some days, when you've burned that last little reserve of wax off your candle, and your AS husband is going on and on again about another car and your son is going into meltdown mode because someone moved one of his umpteen calendars in his room, you have a moment where you say go ahead, see if you can do a better job.
Not all NT's are social butterfly movers and shakers. Many of us have one or less friends, and like it that way. Not all people with AS are non-social, unable to or undesiring to conform to some social structure. And in both groups, there are those who are happy with how things are and those who are not.
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Mean what you say, say what you mean -
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