What do you hate the most about having autism/aspergers ?

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Dnex
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04 Jan 2011, 6:21 pm

How hard it is to socialize and maintain friendships.



Cornflake
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04 Jan 2011, 6:26 pm

Being misunderstood and worse, people taking my attempts at explaining further as just ranting.
It takes days for me to climb out of the dark pit that creates.


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Last edited by Cornflake on 04 Jan 2011, 7:02 pm, edited 1 time in total.

evilduck
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04 Jan 2011, 6:31 pm

Dnex wrote:
How hard it is to socialize and maintain friendships.

Good point. But then again I have more or less given that up.



Ahaseurus2000
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04 Jan 2011, 7:34 pm

corroonb wrote:
The difficulty with non-verbal communication and socialising. I find this the most difficult aspect of having AS.


I have this too, I find it's rather the slow-processing speed I have with social situations, I don't follow the conversation as quickly as NTs. I hate those rapidfire type conversations, especially amongst some teenagers, It's too overwhelming.

But I've learned things to improve Non-verbal communication. For example I take a moment to observe the body language of the person I'm talking to and (partly-)copy it. like crossing my legs to mirror their leg posture. It doesn't have to be perfect and if they change frequently I don't copy it as they change, but it helps. Also facing their face and making eye contact, looking away if they look away, and pointing my feet in their general direction to show I'm interested in them. Sometimes if I look away I forget my face is still facing theirs, that can be misinterpreted as boredom!


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jamieboy
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04 Jan 2011, 7:54 pm

Everything. Almost makes me wanna believe in eugenics.



quesonrias
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04 Jan 2011, 8:01 pm

the fact that I can plan out everything I want and need to say to someone who is running over me, but when I get in the situation, I get so flustered that I can't remember any of it, and I end up backing down.

People judging that because I am unorganized and have difficulty completing tasks on time, that I'm incompetent and unintelligent (I don't say it often, but I'm extremely capable and very smart, dang it!! !)

People minimizing when I say I have difficulties with certain areas


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Meggo
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04 Jan 2011, 9:50 pm

Forgetting words when I'm trying to explain things, especially at work. It makes me look like I don't know what I'm talking about.

And the social awkwardness that prevents me from having good friends.



Fu-Manchu
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04 Jan 2011, 9:55 pm

The social difficulty of fitting in and making friends. Then if I make friends I don't know what to do with them. My wife says I drive them away......When I am not with my wife I spend most of my time alone.



quesonrias
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04 Jan 2011, 10:16 pm

Meggo wrote:
Forgetting words when I'm trying to explain things, especially at work. It makes me look like I don't know what I'm talking about.


I hate this one as well, especially in front of my supervisor because she already acts like I'm an idiot as it is.

Believe it or not, I did this one while on the phone with a case manager for my insurance company yesterday - while I was asking her about testing for autism/asperger's... Totally forgot the word for something I was trying to say, she said, "It's ok, take your time."


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If I tell you I'm unique, and you say, "Yeah, we all are," you've missed the whole point.

••••••••••••••••••••••••••••••••••••••••••••••••••••••••••••
RAADS-R: 187.0
Language: 15.0 • Social Relatedness: 81.0 • Sensory/Motor: 52.0 • Circumscribed Interests: 40.0

Your neurodiverse (Aspie) score: 165 of 200
Your neurotypical (non-autistic) score: 47 of 200
You are very likely neurodiverse (Aspie)


pensieve
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04 Jan 2011, 10:33 pm

I hate being expected to communicate and understand things like NT's.

The stereotype I hate is that people think everyone with autism is intellectually challenged.


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Arminius
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05 Jan 2011, 12:37 am

I hate being miserable around loud speaker systems, being in pain while everyone else around me has fun. I hate it when people tell me to change my tone of voice and I have no idea what they mean. I hate the way people take me less seriously when they find out.



LuxoJr
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05 Jan 2011, 1:27 am

Bullying is fortunately, no longer a problem for me. :)
And facial expressions and social skills are things Ive picked up on for a long time now.

But. I. Really. Hate. Stimming.

I stim literally 24/7 (unless I'm asleep, of course) because if I a forced to sit absolutely still I will go insane.
And it consists primarily of cracking/twisting joints. I have learned how to do this more discreetly now, but it still gets painful sometimes.

Another thing is expressing my emotions/manners.
I often hide my true emotions because I never know how certain people are going to react to anything I do or say. I make it seem as though the only emotions I have are happy, angry, hyper, frustrated, and bored. I hide my sadness but it often shows even then. Never do I express affection of any kind. When someone hugs me I don't hug back, but I simply let them hug me, because I assume that should be good enough. When someone compliments me, I don't know how to say thank you properly. I almost never say sorry when I should because I don't know if I should (I say sorry when I bump into someone or any other similar situation but that's it). And I never ever say any kind of "I love you." So therefore, I've never had a boyfriend, or had a really close friend, or had the kind of relationship with my family that others do with theirs.
Quite honestly, the last two don't hurt me at all, even though they don't sound at all like good things. And as for the first, relationships aren't really a priority of mine.
But it'd be nice if I weren't so afraid or confused about how to act. It's almost like being sociopathic or something -__-


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alexi
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05 Jan 2011, 8:00 am

I hate feeling like I cant be myself without other people judging me - for being too dramatic, sensitive, difficult..... I have spent so long trying to act "normal" and all I got from it is burnt out. I am trying to be myself more.



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05 Jan 2011, 8:33 am

Fu-Manchu wrote:
The social difficulty of fitting in and making friends. Then if I make friends I don't know what to do with them.
Yep, bugs me too. Lost more than I can remember. Currently I have maybe two people I'd call friends, but they're really more like long-term colleagues who don't seem to mind my being out of touch. At least, they don't complain if I do get in touch.
I rarely do though because after the initial surge of interest where I've actually managed to call them, I don't know what to say (usually because I have an avalanche of thoughts and none seems to make it out of my mouth) - so then I start feeling very uncomfortable about the whole thing and just want to end the call quickly.
It's a wonder they don't hang up on me. :oops:

Quote:
When I am not with my wife I spend most of my time alone.
Single, so alone. Not that it's a problem in itself, but there are times when I want to share something.


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nelle
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05 Jan 2011, 1:18 pm

sometimes I can't handle talking to anyone and I have to arrange my life so that I wont have to talk or look at anyone. It is a pain that I can't do simple things, like go for groceries or the post office, because it involves talking and interacting with people.



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06 Jan 2011, 1:05 am

The stigima. I could cure cancer, AIDs and world hunger but since I am autistic, people would still think low of me.


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