CockneyRebel wrote:
I don't see my AS as a death sentence. I see it as a gift and a challenge. I live each day like it's my last, because I can go any day.
Yes, that.
I'm at a point in my life where... how to describe. I could die tomorrow and be satisfied that I had lived my life well and been happy. Every extra day I get to live is a gift, almost a bonus. The way times are looking, I may have more luxury now than I ever will again. (*) And I'm okay with that. I'm not okay with what's happening in the world but I've made my peace with myself about how it may affect my life and even death. I figure that every day that I live is one more than I might otherwise have gotten and I'm grateful for that. And when it's really and truly my time to go I'll deal with that okay too. Meanwhile I'm happy to be alive and think the best way to deal with death is to live your life as it is and not let the worry of death cheat you out of living. (**)
(*) I don't mean anything like what most people mean by luxury. Most people mean what a rich person gets and I am poor. I mean that right now I get all the help I need to survive. I have a power wheelchair, electric hospital bed, Hoyer lift, and an electronic communication device that works well for me. My refrigerator is full. I have a home. Any or all of these things, including the ones necessary to survive, could disappear, almost undoubtedly will disappear, in the future. I don't want to imply that I have all that I need. Just that I anticipate a future in which I will be dealing with a lot of hardship and struggle.
(**) Which is what I meant in an earlier post when I said that if you're worried about stress shortening your lifespan you should find a way to avoid stressing out due to fear of death. I wasn't talking about therapy or anything resembling it (I hate therapy) and I was talking to the original poster, not the poster before me who seemed to take it a little personally. There are ways to overcome a fear of death without either real therapy or some self-helpish equivalent. The problem is that fearing death can cheat you out of more life than death will, so even if you want to live forever you can still find ways to make peace with the idea that someday everyone dies. And then you can live unencumbered by that fear, and that in itself will make death less scary.
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"In my world it's a place of patterns and feel. In my world it's a haven for what is real. It's my world, nobody can steal it, but people like me, we live in the shadows." -Donna Williams