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SabbraCadabra
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07 Oct 2011, 8:04 am

ocdgirl123 wrote:
I have heard that people with AS do really well on Ativan, even children. However, I took it and it made me act drunk. Like really drunk.


Same here. I used to get a procedure done about twice a year, and they'd prescribe me Ativan beforehand to calm me down (I'd always get super nervous), and it always seemed like no matter how early I took it, it didn't start to kick in until the procedure was already done :x

But yeah, after it was done, I'd try to walk back to the car and couldn't walk straight. Felt REALLY drunk (and I've been drunk for real before), and everyone said I'm really funny to be around while I'm still on it.


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Deber
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20 Oct 2011, 2:54 pm

Thanks KathySilverstein, I was very concerned about becoming addicted to Ativan but those worries are not relevant any longer. My husband's insurance forces us to use a certain medical group. The last time I posted we had a resident Dr. as our primary care physician but he finished his residency the end of July 2011. Now we are dealing with a new resident Dr. that absolutely hates Ativan and won't renew my RX, which has to be renewed every 90 days. Wants me to try different anti-depressant drugs until I find one that lessens my anxiety. I refused. Sent me to a psychologist that he worships. She was rude to both me and my husband and doesn't believe I have Asperger's or anxiety. Didn't believe a lot of things I told her. She convinced the baby Dr. that I need a psych eval because she doesn't like the results of my assessment, which was done by a board certified neuropsychologist. Our insurance won't pay for testing. The last assessment cost thousands. I refuse to go through another assessment. It took days of testing and I hated every minute of it. Why should I go through the misery and the large expense? Before taking Ativan I stayed inside for up to 2 weeks at a time because I couldn't cope with going out in public. I'm not sure what I'm going to do now.



TimGuyZ
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08 Oct 2012, 11:16 am

ocdgirl123,

Your report is not surprising at all. I had to use ativan as a sleep aid one time when I had to take prednisone. This stuff will knock you out. I do not get how people will use ativan for anxiety. It would seriously mess me up if I took it during the day. There are reports out that taking ativan will cause long term brain damage now. Brain damage is honestly the least of your worries if you take it for a while, as addiction and overdosing are the biggest adverse reactions from ativan.



idratherbeatree
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08 Oct 2012, 11:31 am

I went to the hospital once for seizure-like events that turned out to be dysautonomia. However they for some reason decided to give me 4mg pills of Ativan.
I was told after the first one that I told someone not to walk on the carpet "because it's people."


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daydreamer84
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08 Oct 2012, 2:35 pm

KathySilverstein wrote:
deber, please don't worry so much. I had the same worries. But I have been taking it - lorazepam - every day for years with no problems. Of course I dont think it affects me as strongly as others, no medication, whether it was a benzo (anti anxiety ) or SSRI ever affected me if I skipped a day. But I find it really helps me to sleep and stay asleep. It sounds like it really helps you too. I would HIGHLY reccommend you taking it every day. It will help you. If you need to get off it, all you do is taper it down a bit and you can get off. It's different for everyone of course but most people I know do not have much of a withdrawal syndrome for it. Esp for such a small dose. Even .5 mg helped me a lot, but I find 1 mg helps me more so that is what I have been taking.

I also take 2.5 mg of Valium sometimes.

I don't during the day though as they make me sleepy and don't really decrease my anxiety. Although I haven't tried it lately Maybe I should.


No I take 10 mg of oxazepam which is a benzodiazepine like Ativan but I think it's milder than Ativan. I used to be on Ativan but I don't remember the dose. I only take it occasionally for panic attacks or if I really can't sleep and are really anxious.



GralienTourist
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08 Oct 2012, 11:44 pm

SteelMaiden wrote:
Lorazepam (Ativan) works ok for me. But when I was in A&E (ER for the americans) in a floridly psychotic state, they gave me 10mg diazepam (Valium) and when it kicked in I became twice as bad. I ended up on the floor being handcuffed by two police officers. That is how bad it made me. It is now on my notes that I have a "paradoxical reaction to diazepam" and must never be given it again.


It's interesting you can take one type of benzodiazapene, but you're so unable to tolerate another without side effects. I've been told by a doctor that paradoxical reactions are common, and happen often in elderly people as well.



kx250rider
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09 Oct 2012, 9:38 am

This is a very serious problem, and has not been documented well enough to prevent disasters in the Autism/AS community. With that said, I was given a mild sedative (possibly Ativan) by IV, for a would-be sleeping EEG test when I was 9 years old, and had a very VERY bad experience. Potentially fatal in fact! Until then, I had no history of physically out-of-control behavior, but as the sedative began to work, I freaked out and tore off the strap tying my arm to the table, destroyed the IV pole and table, jumped up and shoved everyone aside, and bloodied my hands trying to rip open an elevator door. Had I succeeded, I'd have likely fallen down the shaft from the 8th floor. That memory of 36 years ago, has stopped me from EVER accepting any kind of anesthetic for any medical procedure (other than Novocaine-type local anesthetics). I've had abdominal surgery without anything but a local numbing shot for the holes they poked, and I was fine fully awake and tolerated the whole thing just fine without any sedatives. And it was the first time in that surgeon's career that he had heard of anyone refusing anesthetic, and I had a rough time coercing him into agreeing to it. The fear of the sedatives is SO MUCH worse for me than the fear of watching knives and tools being used on me, if that puts it in perspective. As a powerlifter by sport, and being that I'm very determined and strong by nature, I respect the fact that at my age and size now, I could do a lot of damage to myself and those around me, if I were to be influenced by any drug which puts me in an altered state; no matter how tame or mild the drug may be considered to be.

Then there is the account of the 12-year-old girl with autism in California, who had been in an accident, and was given some kind of sedative by the ER staff. She dislocated both shoulders breaking restraints, and then without intent, killed a nurse by somehow ensnaring the broken straps and IV tubes around the nurse's neck. I guess the nurse was trying to wrestle the girl back onto the table, or something. Very frightening to me, and ultimately sad for the family of the nurse, and for the rest of the little girl's life through no fault of her own; albeit on her conscience.

PLEASE; any physicians who may read this, PLEASE know that there is something very bizarre and unknown regarding autism + certain anesthetics and sedatives. Coffee or even Adderall put me to sleep, which is also, as I am told, very bizarre. Use care in prescribing or administering these things, as there could be very deadly and unexpected consequences.

Charles