The term you use to refer to your diagnosis

Page 2 of 2 [ 32 posts ]  Go to page Previous  1, 2


What term to do you use to refer to your diagnosis?
Autism/autistic 11%  11%  [ 6 ]
Aspergian 0%  0%  [ 0 ]
Aspie 16%  16%  [ 9 ]
Mild Autism 9%  9%  [ 5 ]
High Funtioning Autism 13%  13%  [ 7 ]
Mild Aspergers 7%  7%  [ 4 ]
Aspergers Syndrome 29%  29%  [ 16 ]
Severe Aspergers 0%  0%  [ 0 ]
Pervasive Developmental Disorder 0%  0%  [ 0 ]
Autism Spectrum Disorder 11%  11%  [ 6 ]
other 5%  5%  [ 3 ]
Total votes : 56

Phonic
Veteran
Veteran

User avatar

Joined: 3 Apr 2011
Age: 32
Gender: Male
Posts: 1,329
Location: The graveyard of discarded toy soldiers.

25 Apr 2011, 5:06 pm

Verdandi wrote:
I prefer "autistic."

I find that people make assumptions about "Asperger's Syndrome" that suggest to them that things are actually easier for me than they really are. Like I'm just "quirky" or "eccentric" and that I don't have a disability at all.

I also don't like the sound of the word or saying it.

I'm basically unable to live independently right now, so I am not really concerned about people assuming more extreme things based on a label.


Thank you, I'm glad someone brought this up and it's precisely why I say autistic instead of aspergers, there's nothing high funtioning about me and I don't like people assuming I can do things i can't because I have "mild autism" etc.

And I dislike it when people say that they choose to say "aspergers" over autism because they don't want to be accociated with those who are "less high funtioing or stereotypical", people like me who can't live independantly or go anywhere alone.


_________________
'not only has he hacked his intellect away from his feelings, but he has smashed his feelings and his capacity for judgment into smithereens'.


SammichEater
Veteran
Veteran

User avatar

Joined: 6 Mar 2011
Age: 30
Gender: Male
Posts: 3,903

25 Apr 2011, 5:17 pm

I have never told anyone that I have AS, mostly for very obvious reasons, especially considering the fact that I don't have an official diagnosis. But, if I had to explain it, I would use the term aspie for the reason quoted below.

Bloodheart wrote:
For me having Asperger Syndrome isn't like having an illness, disorder or disability, it's more like being part of a specific race or belonging to a specific group of people, so I say 'I'm an Aspie' like a person would say 'I'm black' or 'I'm an Atheist' - for me it is very much a definition and distinction of who and what I am. I think using a bit more of a cute term this way lets people know that it's not something they have to apologise to you for or something that you resent having.


_________________
Remember, all atrocities begin in a sensible place.


Verdandi
Veteran
Veteran

User avatar

Joined: 7 Dec 2010
Age: 55
Gender: Female
Posts: 12,275
Location: University of California Sunnydale (fictional location - Real location Olympia, WA)

25 Apr 2011, 5:35 pm

Phonic wrote:
Thank you, I'm glad someone brought this up and it's precisely why I say autistic instead of aspergers, there's nothing high funtioning about me and I don't like people assuming I can do things i can't because I have "mild autism" etc.

And I dislike it when people say that they choose to say "aspergers" over autism because they don't want to be accociated with those who are "less high funtioing or stereotypical", people like me who can't live independantly or go anywhere alone.


Yeah, people thinking I might be even more disabled than I actually am doesn't really phase me. I've picked up some level of that my entire life anyway because of the way I process and respond to information in real time.

And I don't really get the worry about being associated with people who have more severe symptoms.

I am kind of curious about the idea that putting everything under one diagnosis will make it difficult for "low functioning" autistic people to access needed services.



littlelily613
Veteran
Veteran

User avatar

Joined: 11 Feb 2011
Age: 40
Gender: Female
Posts: 3,608
Location: Canada

25 Apr 2011, 5:57 pm

When I am going into detail for some odd reason, I say I have severe high-functioning autism. Generally I just say HFA. I used to say Aspergers, but now that I know for sure that my diagnosis would actually be classic autism because of my language delay/regression, I just say HFA or autism. For the poll I chose HFA.



LovebirdsFlying
Raven
Raven

User avatar

Joined: 21 Apr 2011
Gender: Female
Posts: 124

25 Apr 2011, 6:00 pm

I really don't care what it is called, but if I had to pick one, I would prefer high-functioning autism.

Reason: I am hypersensitive to mocking. "Aspergers" can be too easily turned into "ass burger" by people who want to make fun of me, and "Aspie" can become "ass pie." To say "high-functioning autism" puts the emphasis on the "high function" part. It reminds myself and others that whether or not what I have is a disorder, I can still function. Highly.

Edit, after reading over some of the other answers: I mean no offense to those of you who cannot live independently or get stereotyped as "low functioning." IMO, if you are aware of having a difference that makes it awkward for you to function in an NT world, but you do anyway, in any capacity, you are high-functioning. Period. You play the best possible hand with the cards you are dealt, and a lot of "normal" people can't say they do that.


_________________
Your Aspie score: 135 of 200
Your neurotypical (non-autistic) score: 83 of 200
You are very likely an Aspie

AQ score 35


anneurysm
Veteran
Veteran

User avatar

Joined: 25 Mar 2008
Age: 36
Gender: Female
Posts: 2,196
Location: la la land

25 Apr 2011, 6:09 pm

I usually say that I'm on the autism spectrum. Although I was diagnosed with AS at 7 and with PDD-NOS at 9, I feel like my symptoms have changed to the degree where I may not recieve a diagnosis...however, my mind is still wired to tat of a person on the spectrum and perhaps I am still on it somewhere. So, I refer to myself as being on the spectrum.


_________________
Given a “tentative” diagnosis as a child as I needed services at school for what was later correctly discovered to be a major anxiety disorder.

This misdiagnosis caused me significant stress, which lessened upon finding out the truth about myself from my current and past long-term therapists - that I am an anxious and highly sensitive person but do not have an autism spectrum disorder.

My diagnoses - social anxiety disorder and obsessive-compulsive disorder.

I’m no longer involved with the ASD world.


League_Girl
Veteran
Veteran

User avatar

Joined: 4 Feb 2010
Gender: Female
Posts: 27,278
Location: Pacific Northwest

25 Apr 2011, 6:16 pm

I just say aspie or form of autism. I do not use the word mild because people seem to think mild is nothing and will over estimate me but yet they under estimate me so I should say mild but then they go over estimating me. You can't win. :roll:



MathGirl
Veteran
Veteran

User avatar

Joined: 11 Apr 2009
Age: 32
Gender: Female
Posts: 3,522
Location: Ontario, Canada

25 Apr 2011, 8:14 pm

I always say "on the spectrum", too. I don't feel comfortable with the label of AS itself because there is currently no clear distinction between Asperger's and autism aside from the language delay at birth. I am not so sure as to whether Asperger's is even the correct label for me. I'm not really okay with being defined by a label in general.


_________________
Leading a double life and loving it (but exhausted).

Likely ADHD instead of what I've been diagnosed with before.


pensieve
Veteran
Veteran

User avatar

Joined: 18 Nov 2008
Age: 38
Gender: Female
Posts: 8,204
Location: Sydney, Australia

25 Apr 2011, 8:18 pm

I say autism when speaking to people but more accurately I fit high functioning autism.


_________________
My band photography blog - http://lostthroughthelens.wordpress.com/
My personal blog - http://helptheywantmetosocialise.wordpress.com/


Verdandi
Veteran
Veteran

User avatar

Joined: 7 Dec 2010
Age: 55
Gender: Female
Posts: 12,275
Location: University of California Sunnydale (fictional location - Real location Olympia, WA)

25 Apr 2011, 8:24 pm

LovebirdsFlying wrote:
Edit, after reading over some of the other answers: I mean no offense to those of you who cannot live independently or get stereotyped as "low functioning." IMO, if you are aware of having a difference that makes it awkward for you to function in an NT world, but you do anyway, in any capacity, you are high-functioning. Period. You play the best possible hand with the cards you are dealt, and a lot of "normal" people can't say they do that.


I fit the definition of "high functioning" although I tend to avoid HFA/LFA for various reasons.

I am not sure that your definition of high functioning wouldn't classify some who do fit the definition of "low functioning" as high functioning, though. You make it sound like LFA is lacking awareness or function at all, and I am not sure that is correct.



Cash__
Veteran
Veteran

User avatar

Joined: 6 Nov 2010
Age: 55
Gender: Male
Posts: 1,390
Location: Missouri

25 Apr 2011, 8:45 pm

NeuroSuperior.



bucephalus
Veteran
Veteran

User avatar

Joined: 26 Jan 2009
Age: 42
Gender: Female
Posts: 1,847
Location: with Hyperlexian

25 Apr 2011, 8:53 pm

It depends on who's asking. My default answer is autism or AS to those in the know


_________________
"grrrrr"


EB
Snowy Owl
Snowy Owl

User avatar

Joined: 22 May 2009
Age: 40
Gender: Female
Posts: 174
Location: CA, USA

25 Apr 2011, 11:07 pm

So far I say Aspergers though the only one I talk to about it is my mom.


_________________
I am female and was diagnosed on 12/30/11 with PDD-NOS, which overturned my previous not-quite-a-diagnosis of Asperger's Disorder from 2010


Quadratura
Tufted Titmouse
Tufted Titmouse

User avatar

Joined: 19 Apr 2011
Age: 34
Gender: Female
Posts: 40

25 Apr 2011, 11:07 pm

"You know how most people drive automatics?

My mind is a stick shift."

Or:

"Most people run Mac or Windows for their mental software. I run Linux."

I don't like the loaded terminology of "autism," and when I say I can't read body language most people find that somewhat incomprehensible. Making car and computer analogies seems to be much better.



Phonic
Veteran
Veteran

User avatar

Joined: 3 Apr 2011
Age: 32
Gender: Male
Posts: 1,329
Location: The graveyard of discarded toy soldiers.

25 Apr 2011, 11:13 pm

LovebirdsFlying wrote:
I mean no offense to those of you who cannot live independently or get stereotyped as "low functioning." IMO, if you are aware of having a difference that makes it awkward for you to function in an NT world, but you do anyway, in any capacity, you are high-functioning. Period. You play the best possible hand with the cards you are dealt, and a lot of "normal" people can't say they do that.


I don't function in the NT world, I don't go to school or work or go out socialising - unless you count mental health wards

Here's something I've learned since coming here: people can have all these basic things like a job/good school and good language, a spouse, a home, and they can still struggle with basic things and find everyday an agonising uphill battle, a nervous wreck by the end, and I don't think theres anything high funtioing that life, I lived like that for years and eventually I cracked.


_________________
'not only has he hacked his intellect away from his feelings, but he has smashed his feelings and his capacity for judgment into smithereens'.


ooOoOoOAnaOoOoOoo
Veteran
Veteran

Joined: 18 Jun 2008
Gender: Female
Posts: 12,265

25 Apr 2011, 11:49 pm

Phonic wrote:
What term do you use to refer to your condition?

Why? Give a good argument for why your pick is the best for your particular case.

I think of mine as mild autism because it's an accurate way to describe what I experience in life. I am not severely affected and experience autistic moments. So voila. There it is.