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Verdandi
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25 Jun 2011, 4:19 pm

Jellybean wrote:
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She's probably just wearing a bra because they just got up and were trying to calm down their son, and she didn't have time to throw something on over it.


I looked at the video comments on Youtube. Someone else mentioned the bra and she said that she'd gotten up in a hurry because he had started slapping himself again and it was like 90 degrees that day... I'm no good with farenheit (or spelling it for that matter!) but I am assuming that's pretty hot...


32.22 degrees Celsius



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25 Jun 2011, 9:17 pm

I think that the son has something else in addition to severe autism.


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Verdandi
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25 Jun 2011, 9:19 pm

He almost certainly does, given that he was having seizures.



draelynn
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25 Jun 2011, 9:31 pm

Does no one else see loving parents who are trying their best? Does no one else see people that need education and understanding something most people have no experience in dealing with?

I see people who would most likely do anything - if only someone pointed them in the right direction.

I don't see willful ignorance - I see people doing the best they can with what they have. The professionals they have turned to for guidance and education have obviously failed them and their son.



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25 Jun 2011, 9:48 pm

draelynn wrote:
Does no one else see loving parents who are trying their best? Does no one else see people that need education and understanding something most people have no experience in dealing with?

I see people who would most likely do anything - if only someone pointed them in the right direction.

I don't see willful ignorance - I see people doing the best they can with what they have. The professionals they have turned to for guidance and education have obviously failed them and their son.


It looks like she either took down or I forget where to find her video that declares that none of the rest of us are autistic, in which she specifically singled out a few autistic people as "not autistic" or at least "not autistic enough" because none measure up to her son's impairments.

I have acknowledged what you said here in another thread on this topic and I do not criticize her commitment to taking care of her son, and never would. I think she's gone well above and beyond where most people would be able to go.

I am simply put off by the fact that she feels the need to lash out at people who have done nothing to her. Autistic people are not withholding services and assistance. Autistic people are not saying she doesn't deserve these things. I understand she is frustrated, but even when I am at my most frustrated (which is pretty intensely frustrated) I don't lash out at people who have nothing to do with my frustration.

So, I admit, I really dislike that move on her part.



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25 Jun 2011, 10:54 pm

Verdandi wrote:
It looks like she either took down or I forget where to find her video that declares that none of the rest of us are autistic, in which she specifically singled out a few autistic people as "not autistic" or at least "not autistic enough" because none measure up to her son's impairments.

I have acknowledged what you said here in another thread on this topic and I do not criticize her commitment to taking care of her son, and never would. I think she's gone well above and beyond where most people would be able to go.

I am simply put off by the fact that she feels the need to lash out at people who have done nothing to her. Autistic people are not withholding services and assistance. Autistic people are not saying she doesn't deserve these things. I understand she is frustrated, but even when I am at my most frustrated (which is pretty intensely frustrated) I don't lash out at people who have nothing to do with my frustration.

So, I admit, I really dislike that move on her part.


Admittedly I haven't seen her other videos but I can imagine what the comments must look like. I can easily imagine an overwrought, stressed out mother receiving comments like some of the ones posted on this thread - but much much less complimentary - and just having had enough of it.

Without seeing it I can't really say but if I had to guess, I'd say she was lashing out with anger coupled with a deep lack of information - which is shocking considering her son. I can only imagine what these doctors and specialists have taught this family. It is wrong but I can understand it.



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25 Jun 2011, 10:58 pm

draelynn wrote:
Admittedly I haven't seen her other videos but I can imagine what the comments must look like. I can easily imagine an overwrought, stressed out mother receiving comments like some of the ones posted on this thread - but much much less complimentary - and just having had enough of it.

Without seeing it I can't really say but if I had to guess, I'd say she was lashing out with anger coupled with a deep lack of information - which is shocking considering her son. I can only imagine what these doctors and specialists have taught this family. It is wrong but I can understand it.


Well, I am pretty sure that Temple Grandin and anbuend didn't come around and harass her with nasty comments before she decided to say they weren't really autistic.

I have a lot of difficulty seeing her perspective on this when it involves sweeping attacks on everyone who might be described as AS or HFA. This isn't inconsistent of me, I find it difficult to sympathize with prejudice whatever the motivation behind it. I have a lot of sympathy for her difficulties, but not for that.

I am not saying she is evil or undeserving of compassion at all and you are almost certainly dead-on correct about her frustrations.



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25 Jun 2011, 11:33 pm

Verdandi wrote:
Well, I am pretty sure that Temple Grandin and anbuend didn't come around and harass her with nasty comments before she decided to say they weren't really autistic.

I have a lot of difficulty seeing her perspective on this when it involves sweeping attacks on everyone who might be described as AS or HFA. This isn't inconsistent of me, I find it difficult to sympathize with prejudice whatever the motivation behind it. I have a lot of sympathy for her difficulties, but not for that.

I am not saying she is evil or undeserving of compassion at all and you are almost certainly dead-on correct about her frustrations.


She went off on anbuend and Temple?

That's sad. That may be jealousy talking. how come she got a son so low functioning and, at least, those women have something to offer the world. Maybe her son is so impaired he is beyond reaching. I'd cry for him if he weren't and were treated as if he were his entire life. I think that is what the video points to.

I'm not sure I want to watch her other videos to see these things you describe... I'll just take your word for it. I've had enough negative input for awhile from too many sources.



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25 Jun 2011, 11:58 pm

draelynn wrote:
Verdandi wrote:
Well, I am pretty sure that Temple Grandin and anbuend didn't come around and harass her with nasty comments before she decided to say they weren't really autistic.

I have a lot of difficulty seeing her perspective on this when it involves sweeping attacks on everyone who might be described as AS or HFA. This isn't inconsistent of me, I find it difficult to sympathize with prejudice whatever the motivation behind it. I have a lot of sympathy for her difficulties, but not for that.

I am not saying she is evil or undeserving of compassion at all and you are almost certainly dead-on correct about her frustrations.


She went off on anbuend and Temple?

That's sad. That may be jealousy talking. how come she got a son so low functioning and, at least, those women have something to offer the world. Maybe her son is so impaired he is beyond reaching. I'd cry for him if he weren't and were treated as if he were his entire life. I think that is what the video points to.

I'm not sure I want to watch her other videos to see these things you describe... I'll just take your word for it. I've had enough negative input for awhile from too many sources.


I don't think she mentions this in most of her videos - I think it was one video that I can't seem to find now. If she took it down, then I'll retract most of what I've said here.



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26 Jun 2011, 2:20 am

I get the impression she doesn't think her son really exists... I mean, like, she doesn't think her son is a person looking at the world with his own perspective and opinions and feelings and things. It's like she thinks he's this bundle of autism and everything he does is autism and everything he is is autism, rather than him being a person.

No idea whether that made any sense...


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Verdandi
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26 Jun 2011, 2:20 am

Callista wrote:
I get the impression she doesn't think her son really exists... I mean, like, she doesn't think her son is a person looking at the world with his own perspective and opinions and feelings and things. It's like she thinks he's this bundle of autism and everything he does is autism and everything he is is autism, rather than him being a person.

No idea whether that made any sense...


That made sense to me, possibly because I agree with you.



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26 Jun 2011, 2:30 am

Callista wrote:
I get the impression she doesn't think her son really exists... I mean, like, she doesn't think her son is a person looking at the world with his own perspective and opinions and feelings and things. It's like she thinks he's this bundle of autism and everything he does is autism and everything he is is autism, rather than him being a person.

No idea whether that made any sense...


Well, I'm not really sure about that. I really didn't see any sort of qualities within him that could be indicative of having his own perspective and opinions, but this could be a failure on my part. All I'm saying is that he could hardly function at all. How do we know he has thoughts and feelings? He could be totally brain dead; a walking vegetable. That's all I saw in that video, but, like I said, I could be wrong.


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26 Jun 2011, 2:41 am

SammichEater wrote:
Callista wrote:
I get the impression she doesn't think her son really exists... I mean, like, she doesn't think her son is a person looking at the world with his own perspective and opinions and feelings and things. It's like she thinks he's this bundle of autism and everything he does is autism and everything he is is autism, rather than him being a person.

No idea whether that made any sense...


Well, I'm not really sure about that. I really didn't see any sort of qualities within him that could be indicative of having his own perspective and opinions, but this could be a failure on my part. All I'm saying is that he could hardly function at all. How do we know he has thoughts and feelings? He could be totally brain dead; a walking vegetable. That's all I saw in that video, but, like I said, I could be wrong.


Autism - even "LFA" if you want to use functioning labels - doesn't make anyone a brain dead walking vegetable. That's not how it works. Nonverbal autistic people who have learned to type or otherwise communicate have made it clear that they do have thoughts, feelings, opinions, and their own perspectives. Also, it was really obvious he was reacting to something going on around him, which kind of requires thoughts and feelings.

And, as far as it goes, he didn't look like a walking vegetable to me. And I am not taking you literally - I mean he appeared to be conscious and aware of his surroundings, at least to my eyes. It was just his behavior did not seem to be the expected behavior for someone who is aware of their surroundings. This is because he is autistic, not because he is not aware. If anything, I would suspect he is hypersensitive to just about everything around him. It is entirely possible he understands English, but it is just as possible that he has auditory processing disorder and/or hyperacusis, or even what Donna Williams calls "meaning deafness" and finds it difficult to listen to people.

If you watch other videos you can see him reacting to and interacting with the environment, being triggered into meltdowns, and otherwise showing he has emotions, perceptions, and so on.



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26 Jun 2011, 2:56 am

Seriously, it is really strange to me that someone could look at him and not see anyone there at all.



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26 Jun 2011, 3:08 am

Verdandi wrote:
Autism - even "LFA" if you want to use functioning labels - doesn't make anyone a brain dead walking vegetable. That's not how it works. Nonverbal autistic people who have learned to type or otherwise communicate have made it clear that they do have thoughts, feelings, opinions, and their own perspectives. Also, it was really obvious he was reacting to something going on around him, which kind of requires thoughts and feelings.

And, as far as it goes, he didn't look like a walking vegetable to me. And I am not taking you literally - I mean he appeared to be conscious and aware of his surroundings, at least to my eyes. It was just his behavior did not seem to be the expected behavior for someone who is aware of their surroundings. This is because he is autistic, not because he is not aware. If anything, I would suspect he is hypersensitive to just about everything around him. It is entirely possible he understands English, but it is just as possible that he has auditory processing disorder and/or hyperacusis, or even what Donna Williams calls "meaning deafness" and finds it difficult to listen to people.

If you watch other videos you can see him reacting to and interacting with the environment, being triggered into meltdowns, and otherwise showing he has emotions, perceptions, and so on.


Alright, so he isn't brain dead. But for most intents and purposes, not a whole lot can be done. A robot can be aware of it's surroundings (with sensors), but without a properly functioning interface device, such as a mechanically controlled arm, it's no different from an unplugged robot. The only difference between this analogy and the boy in the video is the human element, which adds ethics into the equation.

Verdandi wrote:
Seriously, it is really strange to me that someone could look at him and not see anyone there at all.


Well, that's a theory of mind failure on my part. I'll admit that.


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26 Jun 2011, 5:17 am

If he never had that nasty condition taking over his brain, he would have had a girlfriend and going out and seeing mates. He is that handsome.


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