What do you dislike the most about aspergers syndrome

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SammichEater
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05 Jul 2011, 6:02 pm

TenPencePiece wrote:
If you ask, "what do you dislike about having AS", then I would say not knowing what to say in conversations, that is most annoying at the moment.


This.

I think it could very well be the cause behind all of my social problems I've ever had. If only I just knew what I should say sometimes, that itself could go a long way to avoid many of the other difficulties, such as reading body language.


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MakaylaTheAspie
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05 Jul 2011, 6:55 pm

CockneyRebel wrote:
What the people at Autism Speaks think of us.


I'll never even bother associating with Autism Speaks, because thay actually kind of shut us up.


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05 Jul 2011, 7:04 pm

Autism speaks appears to be some WP members choice for worst thing about aspergers

I guess its like what Tony Attwood says, the problem is with other people

And some other people who are supposedly our advocates, are our worst experiences....

How awful that is!



IkeSiCwan
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06 Jul 2011, 1:08 pm

Hate having to analyse everything, no matter if I do it consciously or unconsciously, I always do.
Dislike anoying others with my monologs, even though I speak mostly only being ask to. But even when I warned them about my "habit" to realy dive into a topic, I am still tire them. I've already been asked if I am doctor or scientist. I just reply that I had reason to dig into those topics, read books and internet articles about it, 'till I understood the problems/topics.

I mostly do not tell others that I am an aspie, having to do it that way. So, I vae been told that I think too much... well, if I could, I would like to reduce it. I found a way reducing it, but that increased my weight. I eat too much, so my body hat to work so hard that my brain got realy very little energy left, so I was like being seduced.

And sure, I hate to not understand in realtime the nonverbal communication and many social unwritten rules.


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Bill43
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06 Jul 2011, 1:37 pm

Being totally dismissed as a human being.



Joe90
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06 Jul 2011, 5:06 pm

Everything about it. Autism is a pain in the arse and I wish I wasn't the one born with it.


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Maje
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06 Jul 2011, 5:35 pm

I was about to say nothing, but actually there is one negative thing that I think is related to the condition: The difficulty finding someone to share moments with, because everybody else is so different to me (and similar to each other), that I have a problem to open myself to most people.



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06 Jul 2011, 7:14 pm

Maje wrote:
I was about to say nothing, but actually there is one negative thing that I think is related to the condition: The difficulty finding someone to share moments with, because everybody else is so different to me (and similar to each other), that I have a problem to open myself to most people.


I get real lonely too.

I think the loneliness is not native or authentic to AS per se. But rather the forced disparagement from being very different to predominant NT ways

Treat a man like a dog, and he starts to behave like one

Bit like the untouchables of India. We are treated like pariahs, as societies mores and conventions that make us appear not worthy or valued but problematic.

Its a bit like an abusive husband whose wife has been reduced by constant put downs, and eventually downheartedly believes that she can do no good and is stupid.

Take the power away from the abusive husband.........snatch the sword :wink:



Last edited by Surfman on 06 Jul 2011, 9:52 pm, edited 1 time in total.

conundrum
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06 Jul 2011, 7:55 pm

Getting into my "I can't shut up" mode, and realizing afterwards that I probably sounded like a fool.

(Thankfully, I usually don't care too much what others think, so I shrug it off fairly quickly.)

The "meltdowns" that come out of nowhere, like the other day when I started feeling freaked out and irritable for seemingly no reason. It was in public (on the bus to work) so I had to sublimate it and just sit there screaming on the inside. I was still a wreck for about an hour or two when I got to work.

That's a little harder to "shrug off."


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06 Jul 2011, 8:05 pm

The social isolation it can bring and the negative reactions from other people.


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BassMan_720
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06 Jul 2011, 8:39 pm

Some things that immediately come to mind:
1) Lack of Empathy - Not being able to read people’s feelings
2) Not knowing how to show my love to those closest to me
3) Always getting things wrong, especially when acting on best intentions
4) Blindness to Non-verbal Communication in real time
5) Inability to engage in small talk
6) Loneliness, even when with friends and family.



Joe90
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08 Jul 2011, 3:09 pm

I just hate when I go out looking and acting normal, and I still get looks as though I've killed someone. This is my top anxiety and there is just nothing to even work on, because I've done everything I could: I go out wearing clothes that make me blend in, and I walk up straight and like anyone else. I carry a trendy handbag over my shoulder, like most ordinary women do. I even keep clean (which I did before anyway), and my hair is always washed and brushed. All I can say is I go out looking presentable, not too snobby and not too weird. I'm just another random stranger walking. That's all I am. Well, that's all I thought I just was. Evidentally not. The way people look at me, I feel like a deformed freak. Anyway, where I come from, you get all sorts of people, from weird to snobby to just descent, so I didn't think you could stand out if you tried.

And women don't look at me like they're jealous. That is not true. I am a very jealous person, and I get jealous of people with normal social skills, but I don't glare at a crowd of people laughing and chatting. I get jealous of people with black hair and brown eyes, but I never glare at them. It's not fair on them. Anyway - I know people aren't staring because they're jealous, because I get more pretty girls staring at me than fatter, unattractive girls. So there you have it.

I can't take ''your weirdness shows right through you however you try to cover it up'' for an answer. Although it is probably the awful truth. Makes me have less confidence in myself.


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08 Jul 2011, 4:33 pm

Joe90 wrote:
I just hate when I go out looking and acting normal, and I still get looks as though I've killed someone. This is my top anxiety and there is just nothing to even work on, because I've done everything I could: I go out wearing clothes that make me blend in, and I walk up straight and like anyone else. I carry a trendy handbag over my shoulder, like most ordinary women do. I even keep clean (which I did before anyway), and my hair is always washed and brushed. All I can say is I go out looking presentable, not too snobby and not too weird. I'm just another random stranger walking. That's all I am. Well, that's all I thought I just was. Evidentally not. The way people look at me, I feel like a deformed freak. Anyway, where I come from, you get all sorts of people, from weird to snobby to just descent, so I didn't think you could stand out if you tried.

And women don't look at me like they're jealous. That is not true. I am a very jealous person, and I get jealous of people with normal social skills, but I don't glare at a crowd of people laughing and chatting. I get jealous of people with black hair and brown eyes, but I never glare at them. It's not fair on them. Anyway - I know people aren't staring because they're jealous, because I get more pretty girls staring at me than fatter, unattractive girls. So there you have it.

I can't take ''your weirdness shows right through you however you try to cover it up'' for an answer. Although it is probably the awful truth. Makes me have less confidence in myself.


If organisations like Autism Speaks was doing its job and advocating for us in a positive way, this would not happen...



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08 Jul 2011, 5:17 pm

I can't stand loud noises and sudden sounds. It causes me to hold my ears in pain. Also the severe anxiety that goes along with autism. I am at risk from a heart attack because my blood pressure spikes under stress and not just a small amount. Last week it reached 175/96. Normal is 120/80. Also because of the severe anxiety, my heart rate is mainly above 100bpm and sometimes reaches above 140 bpm. I just can't deal with anything. Noises actually hurt my ears. Also dealing with change and unexpected things really stresses me out. Also because of this stress my fibromyalgia acts up. Believe it or not my socializing skills is a lot better now than it used to be. When I was younger, I had none. I didn't care about socializing but now I want friends and actually have about 3 of them. In fact one of those friends has Asperger's Syndrome. I have classic autism. Diagnosed when I was 5 but had symptoms shortly after birth. My dad also has Asperger's syndrome.



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08 Jul 2011, 5:20 pm

What I dislike most about it is the staring AS causes me to do, that alone has caused me a lot of pain over the years, I try my best to fight it, but I still have slip ups.

Also, difficultly socializing and poor social skills.

Social Anxiety

Clumsiness, for this reason I always hated Gym in High School.

Awkwardness and the isolation.

Having trouble hearing in loud places.



MakaylaTheAspie
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08 Jul 2011, 5:25 pm

Graelwyn wrote:
The social isolation it can bring and the negative reactions from other people.


Hence my father being kicked out.


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