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Dandelion
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29 Aug 2006, 12:04 pm

Yes on the CAPD. My audiologist, after asking me various questions about other things (intolerance to food textures, certain fabrics, bright lights, tickling, swings, etc.) grouped it all under "sensory defensiveness" which is apparently just another way of saying SPD.

It's near impossible to remember lists of verbal instructions, or to remember a second task given to me while I am still working on the first. And listening to someone talk in a noisy environment... forget it. It takes every ounce of my concentration, and thirty seconds later, I can't recall what was said.

I've never understood how people can have a conversation in front of a TV that's on.

Most people I know are quick to forgive me for being "spacy." Around the house, Write It Down is the law.



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29 Aug 2006, 12:11 pm

I have CAPD.

I have difficulty understanding speech, and delayed processing of speech. I have difficulty focussing on one speaker when there is a lot of background noise. It helps a great deal if I can watch the person's mouth moving as they speak, even though I cannot lip-read on its own.



paulsinnerchild
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29 Aug 2006, 8:06 pm

Often I read a paragraph in a book and at the end of it I roll my eyes upwards like I am in a trance and try to work out what all meant. Some times as I am rolling my eyeballs up I try to formulate my own theories which can turn out to be excellent theories at times if I cannot understand it. Otherwise I will read the paragraph all over again and again until I do understand it. This really slows down my reading speed. This I am sure would be exhibiting some of the more classic traits I have with CAPD

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30 Aug 2006, 7:52 pm

CAPD runs in my family on both sides I have that and other senory intergation problems we are not all ASD but the ones that are not are damn close


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paulsinnerchild
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31 Aug 2006, 3:35 am

parts wrote:
CAPD runs in my family on both sides I have that and other senory intergation problems we are not all ASD but the ones that are not are damn close


The ones that are close could be PDD-NOS :?: :?:



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31 Aug 2006, 2:50 pm

Dandelion wrote:
Yes on the CAPD. My audiologist, after asking me various questions about other things (intolerance to food textures, certain fabrics, bright lights, tickling, swings, etc.) grouped it all under "sensory defensiveness" which is apparently just another way of saying SPD.


Dandelion that is interesting about the other questions you were asked. I have issues with textures, lights, tickling and think I must have the CAPD. I'm just not sure who to approach for help with it or if there really is any help for CAPD. But I think it explains why despite having only mild hearing loss in certain frequencies and having my audiologist turn my hearing aids way up I still can't "hear" conversation. Actually I do hear the noise, but what the hell are they saying?! !

I am now seeing an ENT who had her own audiologist on staff who retested my hearing. I am considering approaching her but when she comes into the room she brings two assistants in with her. I am having trouble dealing with 3 people hovering over me and need to figure a nice way of asking the other two to leave. I think they are medical students, but still I feel a lack of privacy where there is no way I can convide something so private as being Autistic to three people at once. I hate to have the opportunity escape where I have access to a couple new audiologists on her staff.



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31 Aug 2006, 3:55 pm

If you tell her, "I'd like to talk to you in private, please. Is now a good time?". Hopefully she'll ask them to leave herself.



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31 Aug 2006, 4:40 pm

superfantastic wrote:
If you tell her, "I'd like to talk to you in private, please. Is now a good time?". Hopefully she'll ask them to leave herself.


Now isn't that just obvious! Wished I'd thought of that. My minds on loftier plains most of the time so have trouble with the obvious. Thanks! Now if I can just remember that in 2 weeks when I have the appointment. Can someone send me a reminder? lol



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31 Aug 2006, 5:05 pm

I had my hearing tested about 15 years ago and everything is fine but I always noticed that I "hear" better when I wear my glasses(very near sighted)and that seems very illogical,until I realized I do what Superfantastics mentioned...I read lips....I never made the connection until I was working over nights and had the TV volume very low and was annoyed by the little noises in the house and realized that I had to be looking at the actors mouths to understand the dialogue....I can filter out external noise if I can focus on the mouth....it works pretty well...


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31 Aug 2006, 5:16 pm

krex wrote:
I had my hearing tested about 15 years ago and everything is fine but I always noticed that I "hear" better when I wear my glasses(very near sighted)and that seems very illogical,until I realized I do what Superfantastics mentioned...I read lips....I never made the connection until I was working over nights and had the TV volume very low and was annoyed by the little noises in the house and realized that I had to be looking at the actors mouths to understand the dialogue....I can filter out external noise if I can focus on the mouth....it works pretty well...


Yep my audiologist said that is common. I lipread for years before I realized I had been relying too much on it. ...another reason I have been accused of staring too much