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Jellybean
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26 Feb 2012, 10:36 am

sorry if my answer seemed blunt earlier. I have been in a funny mood of late... I struggled with 'the system' for many years. I am only 23. I had real issues with anger management and aggression as well as severe general anxiety and suicidal depression for many years. I also didn't really mention how difficult it was to get into this care home. My Mum who couldn't cope with me or my behaviour, seemed to be constantly on the phone ringing just about anyone, but all they would do was say 'we can't help, why don't you talk to ______' Every place she rang would be like this. Where I lived at the time (Milton Keynes), the mental health crisis team were split into two different sides. Had we not moved house when I was 11, I would have come under the west recovery team which has got one of the best care records in the area. As I lived in the east, I fell under one of the worst teams in the area. Their advice, every time I had a meltdown/rage attack, was to take me to A+E or drug me up or both. There was never any support for me or my Mum, never any kind words. The people who did seem to care didn't understand Aspergers (or Tourettes/ADHD/OCD all of which I have) or couldn't provide a service because of red tape. Once, during a severe depressive episode, my Mum called the recovery team out. This time, due to staff illness, one of the staff who came was from the west recovery team. The first thing she asked was 'Who's her (my) social worker?' My Mum informed her that we didn't have one. Sadly, although this lady was brilliant and gave us loads of great advice (about what I should be getting), because she was on the West team, all she could do was recommend the actions to the east team... who needless to say didn't bother.

My Mum was at her wits end by this point. I had failed school due to bullying (I was undiagnosed therefore mainstream), I had failed college because my conditions and the college environment didn't go together well, then when I was told the next step was to go to a 'specialist residential college' I despaired. Especially when I found out that our council didn't cover ANY Asperger specific colleges, only several for Downs and severe LD, two for the Deaf, one for people with severe Cerebral Palsy and two colleges for the blind. The Connexions advisor and many other people knew that this was a 'see if she fails' mission. I ended up going to the college for the blind who claimed to know about AS. They mistreated me the entire time I was there and I attempted suicide several times. Needless to say, I failed it with flying colours and got expelled after an incident in which I was called the r word and told to 'get back in my white van'. I ended up back home with my Mum who was completely distraught. She got straight onto the phone asking what happens next. Nothing was the answer. Mum sought legal advice. She was told the only way she could force the council to put me into care, would be to make me homeless. Obviously my Mum was devestated at being told this, but it ended up happening after yet another suicide attempt and I was taken to hospital and Mum officially gave up her role as carer.

It was good in the end though because I get so much help and support where I am now, but I still have severe psychological problems which came about because of the failing, mistreatment and incorrect placements. It would be nice if we could just have the care (whether that be in a home or the community) straight away when our parents ask for help rather than after destroying us slowly until we have 0 self esteem and no faith in human beings any more. I spoke to my Mum about it last night in tears because I still can't understand why I had to go to the blind college. It has taken me a long time to recover from being put in the hospital as well. I am thinking of writing a letter to whoever was responsible (my Mum thinks the council) for all of this because I don't think they realise just how much damage they do by not giving us the right support.

Sorry for going on and on, I just wanted to tell you that you are not alone.


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AllenVincent
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26 Feb 2012, 12:58 pm

Jellybean Thank you most sincerely for your post. I hope you don't mind as I asked my Mum to read it and my Mum said "bless you".... I think it helped my Mum to know how difficult it was for you and your Mum in the sense that my Mum had been taking it hard that so many public authorities were even unlawfully mucking my Mum about and Mum was feeling like she was letting me down etc etc. I told Mum to stop blaming herself as she's 75 and doing the best she can. I'm pleased for you that you appear settled in your care home now but agree totally why should people have to suffer so much before they get help. I am sure a lot of what you went through is against so many laws and why shouldn't the staff at the East team be made accountable for their professional misconducts, willful neglect etc so yes do indeed complain but get support behind you so that the Council do not try and sweep you under the carpet. You've a long good life ahead of you so start believing in yourself again, as for your Mum, don't be to hard on her. Perhaps you could both treat yourselves to a day out together and have a good talk to clear the air as best as you both can.

TheSunAlsoRises...... I don't have the words for how I felt reading your post.... seems an uncanny coincidence that your first link would be Dial Doncaster (who have unlawfully discriminated in many forms) plus the link went to aspergers nurses Ruth Griffiths and Michelle Byer...both of whom need to be dismissed and face criminal charges...... of which has been covered up by RDASH's Chief Executive Christine Boswell and many other's. Christine Boswell wrote in the Doncaster Freepress that she cannot be responsible for her 3,000 staff.... wtf? That says it all really and is a classic example of damage limitation, self preservation and ignorance. Great news last week that the Care Quality Commissions Cynthia Bower resigned but still gets a hefty payout..... Christine Boswell needs to resign but I believe they should also face criminal negligence claims to, removing bad management is the way to stop ignorance, discrimination and cover ups. Doncaster SYCIL's version of NCIL their manager Jan Firth last year literally told Mum and I that if we make a complaint then they would withdraw services, this shocked my Mum terribly as she could see the discrimination happen herself. I've also had the Disability Alliance on my recorded system, there were issues but they were satisfactorily resolved early and I had more important things to deal with so I shall leave that one at that.

Interesting that you found my "justanswer" links and as you can see my photobucket no longer works as that was unlawfully taken down. From this I approached the bar council and a barrister... was going well then out of the blue "sorry Mr Vincent we can no longer help you".... So N1 County Court Claims is the only way to go for real fair remedy but it was shocking to find that England's county court system is institutionally discriminatory and ignorant, still not yet able to deal with disabled people in it's many forms. I am pleased that you noticed these organisations are "tied together" as that confirms victimisation from them i.e. basically if Allen Vincent or his Mum tries to get help from you then fob them off, or be as oppressive, difficult and vague as you can be and eventually Allen will get so frustrated you can make him swear at you. In any event it should be nowhere near this difficult to impossible for disabled people to fight discrimination and that is one of the flaws I am able to expose so in many ways I am doing a good thing that will eventually help others to as I want Mum's and my suffering to mean something which is why I've put my life out there now, with Mum's blessing. My recorded system is key to proving a lot of unlawful acts and I am not wasting this opportunity to do something good and to be fair I have no logical choice either as ALL services have been unlawfully denied to my Mum and I.... so the only options are to give in and literally die or fight back in the best way I can.



Longshanks
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26 Feb 2012, 2:38 pm

TheSunAlsoRises wrote:
http://www.dialdoncaster.co.uk/useful-contacts/local-contacts/5630

Referral: Via GP or Psychiatrist or single point of access team on 01302 565556
(Please note that you cannot refer yourself directly to this service)


http://www.radar.org.uk/

We are now Disability Rights UK – formed through a merger of Disability Alliance, Radar and National Centre for Independent Living on 1st January 2012. We aim to be the largest national pan-disability organisation led by disabled people.

http://www.radar.org.uk/campaigners-and ... -equality/

Radar does not provide advice to individuals or take up individuals’ legal cases.

Radar has merged with two other disability organizations. They are now Disability Rights UK. The legal process in the UK offers mediation under certain conditions. On a technicality, you might be able to sit down with someone and get your situation sorted out. IF you remain cool, calm, and cease with the lawsuits. The problem is obvious. You are filing complaints and suing ALL the people THAT you need help from AND they are all tied together.

http://www.justanswer.com/uk-law/5zow8- ... ourts.html

Your brief exchange ............ I can easily see how this could have become an unpleasant situation. Unfortunately, society will not take into consideration that you have Aspergers....

TheSunAlsoRises


I'm glad somebody knows something about this stuff. You're light years way beyond me in this and and I feel like this is way over my head. I've helped a lot of yanks because I'm a yank and I've worked within the yank legal system. But outside the US, I'm hopeless. I just plain feel bad for this guy.

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pianorak
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27 Feb 2012, 6:59 am

I believe you 100% AllenVincent. Please don't listen to any of those people who are saying, or implying, that you are bringing this on yourself by complaining etc. Council officials are paid, and have a responsibility to provide the necessary services for sick and disabled people like you and your mother, and you should not have to fight for your rights. Equally, it is the job of the police to be sure they understand the nature of the request which is being made. It is inevitable that when people are in a frightening situation they will sometimes become incoherent, even more so if they are Aspergers people. (Btw, as Aspergers is hereditary your mother might also be AS undiagnosed).

I think part of the problem may be that the majority of people, including those who work in public services, are under the misapprehension that AS is a mental illness, which we know is completely incorrect. I suspect that you have been 'labelled' as having a behaviour problem and consequently people are blind to the real problem.

I don't know what to suggest other than to keep saying things how they are. You may find it helpful to know that many others are suffering the same sort of stuff. Have a look at my thread, State persecution in the UK. We are all fighting, and I believe we will eventually achieve human rights for Aspies as for every other minority.

Good luck. Keep us posted.



AllenVincent
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27 Feb 2012, 3:30 pm

Longshanks Thanks for comments, it does help knowing there's people that although cannot necessarly help, can see the crazy hell of the situation. I just want that breakthrough before my Mum dies. My Dad died on 2nd Feb 2009 and I know if I don't get a breakthrough before my Mum dies... fighting the ignorants that are the majority of England's public authorities and judicial system..... I am sure I'll be riddled with hatred for a long time.

Pianorak Thanks also for your comments, had already pm'd you before you did your post here actually lol I have no problems with complaining and what usually occurs afterwards is "victimisation" under the Equality Act 2010. I'm also deaf so have a speech defect but my speech is worse when upset. Yes indeed, it would appear that my Mum may well have some form of autistic spectrum disorder herself but it is very extra overwhelming for Mum and I do have contempt for the organisations prepared for my Mum to suffer for the sake of keeping me under the carpet. True what you say that some people wrongly think AS is a mentle issue.... strangly enough the day after the Police unlawfully came to my house ( My Mum never phoned them, nor the council, nor the carers ) it was subtle intimidation tactics as I had made a complaint to the Police Complaints Commissioner... anyway the day after... 2 men from Doncaster RDASH turned up at my house and ALL they wanted was for me to admit I was "crazy" huh! I'll concede I'm ill fighting all this, depressed and have some form of post stress traumatic disorder.... (still recovering from Dad's death and getting unlawfully sacked from Doncaster Nissan in 2010 when I was diagnosed with aspergers and dyspraxia).

I actually found the right way to fight back, i.e Form N1 for disability discrimination claims via County Court System (1SE08600) but had horrific experiences with Doncaster, Sheffield and Canterbury County Courts and it appears I am the first disabled to make an "unassisted" claim under the Equality Act 2010 in desperation and although originally allowed, got cruelly shot down unlawfully. Even Sheffield Employment Tribunal refused to deal with me under Equality Act 2010 nor the Human Rights Articles....they treated me FULLY as a non disabled which is discrimination in itself as if you treat the same without paying due regard to disability, substantial disadvantage and detriment then the there's already an unfair discriminatory balance. So much I can prove on my deaf text relay recorded system on ALL main public authorities in England..... hence a very severe shut down on me.



Longshanks
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27 Feb 2012, 4:17 pm

I feel like a real bump on a log on this one. Maybe you can try emigrating the the US. Just try to do it legally first. lol.

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kellywilliams
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28 Feb 2012, 12:32 am

Occasionally, urgent care centers want to get all of your healthcare info before seeing you just to make sure you are able to pay up for the things they do. They want to get an urgent payment for some things too. For instance your kid needed cash for some medical assistance. If your kid breaks his or her arm and needs to get a cast on right away, the urgent care center may be unwilling to do anything without payment. Luckily, you are able to get an instant payday cash advance to help whenever you head out to the emergency care. They always want an upfront payment for things and have to see your insurance before they will even let you in most of the time.



AllenVincent
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28 Feb 2012, 3:35 am

Longshanks Lol at emigrating to the US.... I think moving to Venus would befit me more lol :)

Kellywilliams I hear what you're saying about the USA system, does seem harder than England but alas argh! England are copying a lot of USA policies in England now and it is hurting us badly. In England a lot of public authorities actually have a legal and statutory duty to provide services, are unlawfully denying services. Many of us just don't have the coping skills or the support to cope with major changes like most non disabled do. It's crazy and outright cruel, it's a how many organisations intentionally disregard all laws and regs that are supposed to help people!

If anyone in England has close ties to solicitors or a really good robust charity then please pass my details to them. Mum and I are eligible for Legal Aid/Public funding and we are so desperate for legal protection we are willing to use our houses as security as well. Because of my recorded deaf text relay system I know I have watertight cases. We NEED a breakthrough. I've personally tried 26 solicitors but always get unlawfully fobbed off but if Mum and I can get an organisation/strong people to be our voice then logically we'll get that breakthrough and we only need that one victory to remove one brick from the wall and then the rest will come tumbling down. I'm trying to fight back the right way and England's establishment does not like that one bit, hence very severe oppression, discrimination, denial of services and victmisation under Englands Equality Act 2010, Human Rights Act, EC Disability Rights and Autism Act 2009.



AllenVincent
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02 Mar 2012, 3:34 am

Anymore suggestions please? Despite appearances Mum and I are very desperate and have been cruelly manipulated into the extreme and bizarre situation we are now in. I really need a victory before my Mum passes away (Dad died 2nd Feb 2009) as it will be a psychological boast for both of us and ultimately exposing the true face of many Public Authorities in England will help my fellow disabled peers in all it's forms one way or another, especially in England.

A big part of the victimisation is the fact my deaf text relay system records and prints out verbatim the unlawful way Public Authorities really treat disabled people, especially at first contact and then far worse when they realise my system records calls (it is legal as it is a disability aid). It is Vulnerable Adult Abuse (which is a criminal offence in England) and extreme discrimination and victimisation. Mum and I just cannot do it ourselves as it is to easy to block us, manipulate us and sweep us under the carpet. I am very ill in the video's and doing this in sheer desperation.

Despite my bravado and defiance.... we're not coping at all and are terrified at the lengths England's public authorities will go to cover up what is happening to Mum and I.
Feel free to PM me and I will send you an easy 8 paged example of how my deaf text relay system records calls verbatim, even the 8 paged document is a scandal on it's own as I was trying to get help to report vulnerable adult abuse from Doncaster Council, Community Adult Learning Disability Teams and Autism Team to the Police but got totally shut down. A total disgrace and so many I want them to be sacked and to face criminal charges, why shouldn't we start fighting back and saying ENOUGH!!



Invader
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02 Mar 2012, 12:29 pm

I read the files that you sent me, and after seeing those people refuse to help, by denying that you have a learning disability, when you repeatedly told them about your official diagnosis, I don't know what to say.

It seems like the scumbags who work for these services are the ones who have learning disabilities. Their misconduct is sickening.



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02 Mar 2012, 12:36 pm

Take a real good look folks - this is both Obamacare and Romneycare in the near future. This is one of the many reasons why socialized medicine doesn't work. 8O I just located a relation of mine I didn't know I had on Ancestry.com. She's a physican in Scotland and she told me this kind of thing is common place in socialized medicine. She said the only winners in socialized medicine are the government bureaucrats. This is not an isolated case. There are many like it and according to her no one can do anything about it. And guess what - if you ever take the time to read that Obama law - all 2100 pages of it, you're going to find that we aspies really get the short end of the stick.

"We have to pass the bill so we can find out what's in it". - Nancy Pelosi

Yeah, sure. There was another democrat who was planning to run for president that had a habbit of leaping before he looked. But his presidential campaign was terminated just as it got started:

"C'mon boys! We have 'em now! Custer's Luck! We'll hit 'em hard and head for home!"
-Lieutenant Colonel George Armstrong Custer, Sunday, June 25, 1876, just before he divided his command at Little Big Horn

Longshanks


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hanyo
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02 Mar 2012, 12:41 pm

Maybe for some people socialized medicine wouldn't be good as what they have now but for people that currently have pretty much no access to health care other than an emergency room visit it looks like an improvement.



Longshanks
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02 Mar 2012, 12:48 pm

hanyo wrote:
Maybe for some people socialized medicine wouldn't be good as what they have now but for people that currently have pretty much no access to health care other than an emergency room visit it looks like an improvement.


You know, I don't doubt the altruism or the good intent. But the way they're going about it is niether good nor constitutional.

Longshanks


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AllenVincent
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02 Mar 2012, 2:23 pm

Invader and Longshanks I acknowledge and respect your own courage and I am externally grateful, really, (as is Mum also) more than you might realise.

I am a step closer to putting my recorded calls onto you tube, only just learnt how to do it so hoping to do a basic version before I crash (go to sleep).... had a crazy email from England's Equality and Human Rights Commission today..... now that my recorded calls are coming to light....... their response is even more bizarre as I have the EHRC on my system since 2010....... Obviously I cannot put over a thousands pages on you tube but with a few exceptions I shall put up 1 or 2 paged calls that makes sense on their own..... I've many where people just hang up anyway. Already a deaf postman won his discrimination claim just for a taxi firm hanging up on him twice using an older version of what I use, he could not prove he was hung up on but still won..... I CAN prove my experiences due to being able to save and print calls. frustratingly.... I even have England's County Court system being absolute ignorant, unlawfully discriminating bastards on my recorded calls and the even more crazy thing is.... they KNEW my calls were recorded.... but they knew I was in an impossible situation... .how do I get one County Court to allow a lawsuit against another County Court? I don't think it's ever happened before!!

It is logically unlikely that Mum and I will live to enjoy any victory but essentially I am laying the groundwork/paper trail that hopefully will benefit our fellow disabled people in all it's forms (that's you lot) so please don't let our sacrifice be in vain as Mum and I have made the conscious decision to go down fighting as it is better than being a total sheep.



AllenVincent
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02 Mar 2012, 4:29 pm

As title.... I've drank to much tonight so gone into some sort of childlike state..... shaking my head with an electronic cig in my mouth.... I have no doctor (majorly against the law) so trying to give up smoking despite all this craziness that Mum and I are facing. Dawned on me recently that I need to try and keep myself strong to be able to fight back and all that......

part of me is like weary solider that is tired of fighting and would be glad to be shot in the head or or walking onto a mine but I MUST resist because my recorded deaf text relay calls are just to valuable..... despite all the different personalities, pendantics, semantics and etc on this site.... please don't let it all go to waste.



AllenVincent
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03 Mar 2012, 9:47 am

Feeling incredibly depressed and lethargic today so bear with me on putting documents on you tube. Hoping to snap myself out of this by tomorrow Sunday.