Do you have any out of the ordinary ailments?

Page 2 of 4 [ 54 posts ]  Go to page Previous  1, 2, 3, 4  Next

kx250rider
Supporting Member
Supporting Member

User avatar

Joined: 15 May 2010
Age: 57
Gender: Male
Posts: 2,140
Location: Dallas, TX & Somis, CA

08 Mar 2012, 1:20 pm

I have the granddaddy of all weird ailments: Hypoaldosteronism. It's caused by a benign tumor which is not feasible to remove, and it causes basically the same symptoms as diabetes, and also causes out-of-control high blood pressure. I have to be on hormone shots to keep it in balance. I don't think it has anything to do with autism though.

Charles



Matt62
Veteran
Veteran

User avatar

Joined: 4 Jan 2012
Age: 62
Gender: Male
Posts: 1,230

08 Mar 2012, 1:51 pm

Oh God, where can I even start!
Crohn's disease. Not fun at all, and has tons of systemic complications ( approx. 200 known!!). Osteoarthritis also. Allergies.

Sincerely,
Matthew



Mummy_of_Peanut
Veteran
Veteran

User avatar

Joined: 20 Feb 2011
Age: 52
Gender: Female
Posts: 3,564
Location: Bonnie Scotland

08 Mar 2012, 3:08 pm

Matt62 wrote:
Oh God, where can I even start!
Crohn's disease. Not fun at all, and has tons of systemic complications ( approx. 200 known!!). Osteoarthritis also. Allergies.

Sincerely,
Matthew
Here's another current thread on auto-immune disease. http://www.wrongplanet.net/postt190862.html
I put my tuppenceworth in there too.


_________________
"We act as though comfort and luxury were the chief requirements of life, when all we need to make us really happy is something to be enthusiatic about." Charles Kingsley


LittleBlackCat
Deinonychus
Deinonychus

User avatar

Joined: 10 Sep 2011
Age: 46
Gender: Female
Posts: 336
Location: England

08 Mar 2012, 3:17 pm

I have suffered from benign intracranial hypertension (raised pressure in the cerebrospinal fluid - nothing to do with blood pressure), which is pretty rare. I had a lumbar peritoneal shunt for a while but had to have it removed due to an infection. Luckily things seem to have resolved, at least for now.

On the topic of autoimmune problems, I also have hypothyroidism and my mum has coeliac disease, although I think both of these are much more common.



Mummy_of_Peanut
Veteran
Veteran

User avatar

Joined: 20 Feb 2011
Age: 52
Gender: Female
Posts: 3,564
Location: Bonnie Scotland

08 Mar 2012, 3:21 pm

LittleBlackCat wrote:
I have suffered from benign intracranial hypertension (raised pressure in the cerebrospinal fluid - nothing to do with blood pressure), which is pretty rare. I had a lumbar peritoneal shunt for a while but had to have it removed due to an infection. Luckily things seem to have resolved, at least for now.

On the topic of autoimmune problems, I also have hypothyroidism and my mum has coeliac disease, although I think both of these are much more common.
Do you know there is a proven connection between hypothyroidism and coeliac disease. http://chriskresser.com/the-gluten-thyroid-connection


_________________
"We act as though comfort and luxury were the chief requirements of life, when all we need to make us really happy is something to be enthusiatic about." Charles Kingsley


LittleBlackCat
Deinonychus
Deinonychus

User avatar

Joined: 10 Sep 2011
Age: 46
Gender: Female
Posts: 336
Location: England

08 Mar 2012, 3:37 pm

I was aware of the connection and have had a negative blood test in the past. I am starting to wonder whether I should be eliminating gluten from my diet anyway, given the risk factors I have and the likelihood of false negatives, but am not sure as it would be a big commitment both financially and practically.



DC1977
Blue Jay
Blue Jay

User avatar

Joined: 1 Jan 2012
Age: 47
Gender: Male
Posts: 76
Location: Scotland

08 Mar 2012, 5:08 pm

I'm allergic to Coca Cola, just that type (Pepsi included), but am fine with almost every other type of carbonated soft drink. I am violently sick and come out in hives when I do drink it.

EDIT. Also have had an unofficial diagnosis of Hypermobility Syndrome, have had several dislocations and subluxions (sp?), and have overly stretchy skins, which is a great party trick to clear the room!



nemorosa
Veteran
Veteran

User avatar

Joined: 5 Aug 2010
Age: 53
Gender: Male
Posts: 1,121
Location: Amongst the leaves.

08 Mar 2012, 5:31 pm

Fibromyalgia, IBS, prostatitis, a history of skin complaints and mild (thankfully) psoriasis.

Mustn't grumble. Much.



Mummy_of_Peanut
Veteran
Veteran

User avatar

Joined: 20 Feb 2011
Age: 52
Gender: Female
Posts: 3,564
Location: Bonnie Scotland

09 Mar 2012, 4:38 am

DC1977 wrote:
I'm allergic to Coca Cola, just that type (Pepsi included), but am fine with almost every other type of carbonated soft drink. I am violently sick and come out in hives when I do drink it.
I forgot about that one. I'm allergic to a group of preservatives used in most carbonated drinks (sodium benzoate, etc), which rules out being able to drink our local favourite, Irn Bru. But, I can drink Coke and Pepsi without fear, as they contain too much sugar to need a preservative.


_________________
"We act as though comfort and luxury were the chief requirements of life, when all we need to make us really happy is something to be enthusiatic about." Charles Kingsley


CosmicRuss
Veteran
Veteran

User avatar

Joined: 30 Apr 2010
Age: 159
Gender: Male
Posts: 6,101
Location: Location:Location

09 Mar 2012, 11:18 am

Mummy_of_Peanut wrote:
CosmicRuss wrote:
I am an evolutionary throwback [occurring in less than 1% of the population] as I have a pair of extra ribs in my cervical spine. 8)
I've got an extra nipple, which I used to think was a tiny mole, but now that I know what it is, it's really obvious. I also have some extra breast tissue, which I can feel on my ribs (but it isn't obvious to look at). I was also born with a hole in the skin at the bottom of my spine, which is residual from when our ancestors had tails. BTW The hole in my skin is the only one I would call an ailment, because I had to have an operation to correct it.
LOL you have reminded me of my moobs I have Scheuermann's disease and because I also take medication for GERD [reflux] one of the side effects is even bigger moobs. :)
I have heard of a few people who are born with a spinal hole, I have problems there as well but of a different nature - a Pilonidal sinus which I thankfully manage to control without the need for surgery.

You must read this and decide if you should add Coke/Pepsi to your banned fizzy drinks blacklist.

http://www.bbc.co.uk/news/world-us-canada-17308181


_________________
"Been there, done that, got the t-shirt"
- CosmicRuss


Matt62
Veteran
Veteran

User avatar

Joined: 4 Jan 2012
Age: 62
Gender: Male
Posts: 1,230

09 Mar 2012, 11:31 am

I also have had the grandaddy of all weird kidney ailments, Glomerulonephritis. I do believe that might be related to my Crohn's but it might be spontaneous. I have also had a bladder stricture.
Insurance companies hate me, I am afraid!

Sincerely,
Matthew



CosmicRuss
Veteran
Veteran

User avatar

Joined: 30 Apr 2010
Age: 159
Gender: Male
Posts: 6,101
Location: Location:Location

09 Mar 2012, 11:57 am

Matt62 wrote:
I also have had the grandaddy of all weird kidney ailments, Glomerulonephritis.... Sincerely,
Matthew
That is a new one on me, worryingly I see it can be caused by NSAIDs. 8O


_________________
"Been there, done that, got the t-shirt"
- CosmicRuss


fragileclover
Veteran
Veteran

User avatar

Joined: 21 May 2009
Age: 38
Gender: Male
Posts: 505

09 Mar 2012, 11:57 am

Oh, yes. I have a host of strange ailments.

I used to pass out constantly when a child. I was taken to the doctor several times for testing, mostly to check my blood sugar and blood pressure, and everything always checked out fine. I haven't done it in a few years, though. The last time was about five years ago, and I passed out in Biology class at my community college, hit my head and suffered a concussion. I've gotten terrible migraines once every couple of months or so ever since. I also have terrible vertigo now.

I have to pee all of the time. I tallied the number of times I went to pee over the course of a week once, and it ranged from 12-20 times a day. This is highly unusual, and is supposed to signal an issue. I've also had, on rare occasions, the type of severe pain associated with urinary tract infections, but every time I went to the doctor, the results came back negative for a UTI, and the pain would always go away within an hour, anyway.

I once went a year without getting my period. I never know when I'll get it, and it 'plays out' differently each time I do get it.

I have LPR, which is similar to GERD or acid reflex, but it's focused in my throat, which makes my throat feel really thick, like I have to clear it all of the time, and it's effected the quality of my voice.

If I drink coffee, I feel like my chest will explode...and I once hallucinated after drinking a large cup of coffee. 8O Caffeine does not, however, stimulate or 'wake me up' in any way.

I can drink alcohol like a champion. I had 20 shots within two hours at my friend's party (8 of them were chugged all at once), and not only did I live (obviously), but prior to chugging the final 8, the first 12 didn't even have me noticeably buzzed. The odd thing is, despite my superhuman tolerance for alcohol, I rarely drink; only on special occasions! So, I have no idea why my tolerance is so high. Probably the same reason they give me 6 shots of Novocaine at the dentist's office. Unfortunately, I don't know that reason, either. haha.

I'm anemic, but can't take iron pills or any supplements containing iron. I'll throw them up immediately.


_________________
Aspie Quiz: AS - 141/200, NT - 77/200 (Very likely an Aspie)
AQ: 34/50 (Aspie range)
EQ: 32 / SQ: 68 (Extreme Systemizing / AS or HFA)
Diagnosed with AS and Anxiety Disorder - NOS on 03/21/2012


Matt62
Veteran
Veteran

User avatar

Joined: 4 Jan 2012
Age: 62
Gender: Male
Posts: 1,230

09 Mar 2012, 1:51 pm

Not sure about NSAIDs causing it, but CD certainly can.
Anyway, I saw an 80 year old Urologist at that time, and I was his third case of it in over 50 years of practice.

Sincerely,
Matthew



SpongeBobRocksMao
Veteran
Veteran

User avatar

Joined: 18 Oct 2008
Age: 31
Gender: Male
Posts: 2,774
Location: SpongeBob's Pineapple (England really!)

09 Mar 2012, 2:27 pm

Not sure if this counts, but sometimes I get these moments where almost everywhere in my body gets extremely itchy, it lasts like that for a few minutes, and scratching doesn't usually help. I'm not sure whether it's an allergic reaction, but I know it's something rather strange. :?


_________________
Who lives in a pineapple under the sea?
SpongeBobRocksMao!
Absorbent and yellow and porous is he!
SpongeBobRocksMao!


Kjas
Veteran
Veteran

User avatar

Joined: 26 Feb 2012
Age: 35
Gender: Female
Posts: 6,059
Location: the place I'm from doesn't exist anymore

09 Mar 2012, 3:38 pm

Apart from my AS, I have Celiac Disease. And I also have some other really weird genetic crap going on that nobody knows what to call it let alone what to do with it.


_________________
Diagnostic Tools and Resources for Women with AS: http://www.wrongplanet.net/postt211004.html