Were you misdiagnosed before ASD diagnosis?

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howzat
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20 Apr 2012, 9:43 am

At the age of 2 i was diagnosed as deaf then at the age of 4 was severe learning difficulties then at the age of 8 was moderate learning difficulties but finally diagnosed with asperger's syndrome when i was 11 years old.



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20 Apr 2012, 10:16 am

Dots wrote:
I was labelled gifted as a kid, though I don't think that's a diagnosis. It gave them something to blame my differences on though, in the 80's when Asperger's wasn't even on the radar.

I've also been briefly diagnosed with Borderline Personality Disorder, which was dumb, because the only thing that fit was self-harm, and my history of anorexia. A BPD specialist removed that diagnosis and then promptly told me she couldn't see me any more. I left gladly.


I was labeled as gifted in the 70s. And I was also diagnosed with BPD, but that diagnosis was removed when I was diagnosed with AS. I only fit the "impulsive" and "suicidal" criteria, and for the latter I was also diagnosed with major depressive disorder.

I've also not had an official diagnosis for social anxiety, but I had a therapist several years ago who was sure I had it. I thought so for a long time, too, until I really looked at social anxiety and realized most of it did not apply to me.

The main problem I've had with the BPD diagnosis is that I have run into a few people online who deem themselves capable of telling me that I really do have it.



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20 Apr 2012, 11:18 am

Oh boy and how!! !! !

Paranoid schizophrenia, depression, Kuenzeler's Sociopathy, and I was written up as Gay at age 8 also, and I'm not interested in men whatsoever. And I was wrongly medicated for most of those bad diagnoses as well. I was even hospitalized for 7 months to "assess" the schizophrenia at age 9, and later I found out it's not possible to diagnose schizophrenia at age 9, even IF the patient has it!

Charles



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20 Apr 2012, 11:39 am

I was diagnosed with ADHD when I was a toddler, and I don't think anyone's sure I don't have it. I was diagnosed with AS in second grade, but a therapist prescribed a few drugs for ADHD in high school. Those drugs would be very effective at first then their effectiveness would quickly diminish. I got rid of most of my difficulties with paying attention by myself and I probably just have AS. I should research attention deficit disorders more :?



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21 Apr 2012, 8:41 am

Depression. I think my brother was just labelled as naughty / spoilt brat. (yes, medical proffesionals really said that!) Because I have other diagnoses, (not wrong ones) everything has just been blamed on that.



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21 Apr 2012, 11:46 am

ADD as a 6 year old, Aspergers 22 years later.


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scubasteve
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21 Apr 2012, 9:14 pm

I was diagnosed ADHD first, but it wasn't wrong. I have both.

(AS explains more of my symptoms, but there are some that are better explained by ADHD.)

So I guess my answer is no.



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22 Apr 2012, 11:52 am

Well, the doctors once thought I was allergic to milk, but I'm not.


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bnky
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22 Apr 2012, 2:27 pm

No prior diagnosis whatsoever - and diagnosed at 45



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22 Apr 2012, 2:58 pm

My psychiatrist thinks that I have depression, ADHD, OCD, and social anxiety. It seems as though she's trying to avoid the possibility of Aspergers. Though I agree that I probably have some type of depression and that I have quite a few OCD traits, I still think that Asperger's would fit better. I don't think social anxiety would explain why I rarely talked (and a lot of other things) when I was younger. I was just, well, a bit socially clueless and didn't get why I was expected to talk. :shrug:



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22 Apr 2012, 3:14 pm

No, I was kept away from psychologists (the only type of mental health professional I've been referred to over the years).

I am not too sorry for not having seen one earlier.

The first mental health professional in my city who I saw about autism and ADHD right at age 18 started talking about the supposed likeliness of me having been traumatised as an infant or at last below age 2 and how I must have BPD upon meeting me for the first time.

I was like, no, thanks, go away. I was horrified (especially since I knew a sweet friend at time with earnest BPD). Without any medical training whatsoever, I am certain anyway that BPD and traumata can't be diagnosed in a matter of 20-30 minutes and that autism and ADHD cannot be ruled out after us sitting down and by asking me why I thought so to which I struggled forming words, settling on "all" eventually.

I didn't return then, after it was clear that I was to be diagnosed with Borderline Personality Disorder. I assume I would have received this diagnosis otherwise as I had seemed to have received a "presumptive" diagnosis of F60.3 BPD sometime within the first 45 minutes with this professional already.


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22 Apr 2012, 5:24 pm

Sempiternal wrote:
My psychiatrist thinks that I have depression, ADHD, OCD, and social anxiety. It seems as though she's trying to avoid the possibility of Aspergers. Though I agree that I probably have some type of depression and that I have quite a few OCD traits, I still think that Asperger's would fit better. I don't think social anxiety would explain why I rarely talked (and a lot of other things) when I was younger. I was just, well, a bit socially clueless and didn't get why I was expected to talk. :shrug:


As far as I'm concerned OCD+ADHD+SAD=AS.

Anyway, if anything I believe I'm more likely to have been misdiagnosed w/ AS if anything, as I've learned more about AS and ADHD it seems that ADHD fits me better and better. The first sign I saw was that I scored chaotic neutral instead of lawful neutral on the D&D alignment chart :P. I'm really confused now, as apparently other people are seeing AS and not ADHD in me. Meh.


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22 Apr 2012, 7:35 pm

Ganondox wrote:
Anyway, if anything I believe I'm more likely to have been misdiagnosed w/ AS if anything, as I've learned more about AS and ADHD it seems that ADHD fits me better and better. The first sign I saw was that I scored chaotic neutral instead of lawful neutral on the D&D alignment chart :P. I'm really confused now, as apparently other people are seeing AS and not ADHD in me. Meh.


What really comes across about you most to me is actually just being gifted. I don't want to question your diagnosis, but sometimes what you're saying just seems to fit very strongly with the parts of giftedness that are not just high intelligence - I'd recommend you read about Debrowski's Overexcitabilities (though they remind me quite a bit of the intense world theory in some ways), if you're trying to understand yourself.

If you came here at some point and said that AS had been a misdiagnosis and you were gifted/ADHD I'd not be surprised. If you said that you hadn't been misdiagnosed, but traits of giftedness needed to be used to help explain parts of you that autism didn't, I'd also not be surprised, but as you've mentioned your IQ is 130 and you seem to show signs of giftedness beyond that, I'd be quite surprised if that wasn't part of what you're trying to understand.



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22 Apr 2012, 11:01 pm

Ganondox wrote:
Sempiternal wrote:
My psychiatrist thinks that I have depression, ADHD, OCD, and social anxiety. It seems as though she's trying to avoid the possibility of Aspergers. Though I agree that I probably have some type of depression and that I have quite a few OCD traits, I still think that Asperger's would fit better. I don't think social anxiety would explain why I rarely talked (and a lot of other things) when I was younger. I was just, well, a bit socially clueless and didn't get why I was expected to talk. :shrug:


As far as I'm concerned OCD+ADHD+SAD=AS.


That's what I thought too, so I brought up Aspergers Syndrome up, and the psychiatrist said something along the lines of, "Oh, no, you don't seem like a person with Aspergers because people with Aspergers don't like to talk and you're talking just fine and you were willing to see me." It sounds a bit... stereotypical, but maybe that's just me. Anyway, I DON'T enjoy talking most of the time, but if I'm going to have to pay almost $200 per session, I'm not going to waste all that, whether I want to talk or not. (And I don't think she officially diagnosed me with anything yet, as far as I'm aware... I'm a bit confused about the whole diagnostic process.)

I've stopped seeing her though. My father doesn't like the way she handled things.


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22 Apr 2012, 11:04 pm

Nope. Amazingly, I was diagnosed with ASD when I was only 5 years old. And nothing before that.


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22 Apr 2012, 11:10 pm

Sempiternal wrote:
the psychiatrist said something along the lines of, "Oh, no, you don't seem like a person with Aspergers because people with Aspergers don't like to talk and you're talking just fine and you were willing to see me." It sounds a bit... stereotypical, but maybe that's just me.


No, you're right. She sounds like a quack.