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Wandering_Stranger
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13 May 2012, 5:07 am

i_hate_aspergers wrote:

I personally think that only lower functioning forms of autism should actually be called autism, because autism means "focus on self" and kind of implies a total lack of , or massive deficiency in social behavior and communication. While I think that those capable of joining a site like wrongplanet and reaching out to other people should receive a diagnosis of something like "Social Deficiency syndrome " or something (not yet made up) like that or maybe call all high functioning cases "aspergers"


But Aspergers and HFA are two different conditions. And those with HFA have more problems than just social issues. It would make no sense to call HFA Aspergers - I have the former and know for a fact that I don't have the same issues as people with AS.



Verdandi
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13 May 2012, 5:17 am

Wandering_Stranger wrote:
But Aspergers and HFA are two different conditions. And those with HFA have more problems than just social issues. It would make no sense to call HFA Aspergers - I have the former and know for a fact that I don't have the same issues as people with AS.


What issues do you have that people who are diagnosed with AS do not?



bnky
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13 May 2012, 5:33 am

Wandering_Stranger wrote:
And those with HFA have more problems than just social issues. [...] I have the former and know for a fact that I don't have the same issues as people with AS.

I have aspergers and also "have more problems than just social issues", so please do clarify. It's my understanding that the difference in diagnosis revolves around whether you had delayed speech development... or not



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13 May 2012, 7:11 am

Verdandi wrote:
Wandering_Stranger wrote:
But Aspergers and HFA are two different conditions. And those with HFA have more problems than just social issues. It would make no sense to call HFA Aspergers - I have the former and know for a fact that I don't have the same issues as people with AS.


What issues do you have that people who are diagnosed with AS do not?


The speech issue.



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13 May 2012, 7:11 am

I personally don't mind the term autistic. After all, something like cerebral palsy can vary all the way from someone in a wheelchair with severely contracted arm and leg muscles, through to someone who "looks normal" but has weak ankles, or is clumsy. But the public usually equates cerebral palsy with the more severe cases, because it doesn't notice the mild cases - they are "invisible disabilities". It takes a professional to identify them.

Similarly, the popular mind equates autism with the more severe, "obvious" cases (Rain Man!), and not the mild or borderline person with a partner, children, and a full time, well-paying job. That's a problem, but in the end it is a problem because the public conception of autism is too narrow and old-fashioned. Autism comes in all shapes and sizes.

And "social issues" are not my main problem: I have significant sensory sensitivity that requires deliberate protective measures every day; I have emotional regulation problems (stress and anxiety - overreacting and catastrophising); and I have executive function problems (a range of problems handling complex tasks despite a high IQ). I have had other people claim that my special interests can get in the way of activities that I should be attending to (academic study, household maintenance). I chew my fingers to the point where all my knuckles have noticeable calluses on them, and constantly wring or fidget with my fingers in social situations. So I think I have a form of autism (ASD, not classical autism with speech delay), but not as severe autism as the public is used to noticing. And whenever I tell people about my condition, I say that I am on the autism spectrum.



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13 May 2012, 7:20 am

scubasteve wrote:
i_hate_aspergers wrote:
So many years from now, when the DSM IV is so outdated that people dont know what aspergers is anymore , i will have to say im autistic? This will just create conflict or confusion


The DSM III is very outdated by now. Yet, people with ADHD-PI still refer to themselves as having "ADD". Many of them are not even aware that ADD no longer exists... It may be a very long time before the term "Asperger's" falls into disuse, if it ever does.


It does still exist in the ICD actually (F98.8 attention deficit disorder without hyperactivity, alternatively often also just categorised by the same name under F90.0) so calling it ADD is perfectly up-to-date and the only officially accepted label in some places. Makes it all the more confusing.


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13 May 2012, 9:37 am

I think that it's interesting that so many people here downplay the effects of the social aspect of aspergers. Yes, there are many symptoms that are involved that get less attention, and for some they are the most severe. That is not the case for me. I have a very limited desire for social interaction, even with my family, who I love. As far as other people are concerned, that desire becomes almost non-existant. I interact with other human beings far more often and more readily on this forum than I do in real life, when I have a choice. I have a job, and interaction with others is required of me, and I am able to go through the motions well enough to get by in most cases. But if some people who do not have as much difficulty with social issues think that it is not a real problem when you do, they are mistaken. In many ways, in many contexts, I can pass as "normal". Most of these contexts involve a superficial level of interaction. Easy enough to fake as comfortable. But for anything involving more in-depth interaction, I am clearly different, and it puts people off. There is obviously something "wrong" with me, in the judgement of many people. So no matter how many coping skills I have developed to deal with or mask my difficulties with executive dysfunction, emotional regulation, stims, sensory issues, etc., my social issues are always my downfall. And in case some one was getting ready to suggest it, no, it's not social anxiety. People and social situations do make me anxious. But it's because I don't understand them, they don't understand me, and I have very little desire or ability to rectify that. It causes people to believe many erroneous beliefs about me; that I am arrogant, unfriendly, argumentative, uncooperative, unhappy, uncaring; I am sure there are others. My problems are definitely social, and it goes way beyond "socially awkward nerd".


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13 May 2012, 9:44 am

Wandering_Stranger wrote:
i_hate_aspergers wrote:

I personally think that only lower functioning forms of autism should actually be called autism, because autism means "focus on self" and kind of implies a total lack of , or massive deficiency in social behavior and communication. While I think that those capable of joining a site like wrongplanet and reaching out to other people should receive a diagnosis of something like "Social Deficiency syndrome " or something (not yet made up) like that or maybe call all high functioning cases "aspergers"


But Aspergers and HFA are two different conditions. And those with HFA have more problems than just social issues. It would make no sense to call HFA Aspergers - I have the former and know for a fact that I don't have the same issues as people with AS.



Uhh wait people with aspergers only have social issues? might want to check your facts there.....cause last I checked I had more than social issues. I suppose this is another reason to be glad about them getting rid of the term AS then people don't have to suffer this sort of ignorance.


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13 May 2012, 9:47 am

Wandering_Stranger wrote:
Verdandi wrote:
Wandering_Stranger wrote:
But Aspergers and HFA are two different conditions. And those with HFA have more problems than just social issues. It would make no sense to call HFA Aspergers - I have the former and know for a fact that I don't have the same issues as people with AS.


What issues do you have that people who are diagnosed with AS do not?


The speech issue.


Speech issues does not make or break an aspergers diagnoses. I guess it is supposed to, but most doctors ignore it. Such a small factor to make it the deciding factor. In a lot of ways I am not noticeably autistic (I am noticeably different or quirky though). But I had a speech delay and had speech therapy for over 5 years, now people don't notice my speech issue.


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Heidi80
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13 May 2012, 10:07 am

because as is a form of autism :roll:



JanuaryMan
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13 May 2012, 10:18 am

scubasteve wrote:
I assume the OP is referring to the fact that AS will no longer exist after this year, having been merged with Autism to form the new ASD diagnosis. (Although he did not state this explicitly and it is possible that I misunderstood him.)

In any case, the concern seemed to be that by lumping the two together, the general public might not understand the difference between the OP's ASD.


Yes this is the other main factor. People already use the term autistic to joke about people that are zoning out. If they don't understand autism at the level of well, autism, how can they be expected to understand ASD better esp. when it's being directly correlated to autism.



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13 May 2012, 10:20 am

Sweetleaf wrote:
Wandering_Stranger wrote:
i_hate_aspergers wrote:

I personally think that only lower functioning forms of autism should actually be called autism, because autism means "focus on self" and kind of implies a total lack of , or massive deficiency in social behavior and communication. While I think that those capable of joining a site like wrongplanet and reaching out to other people should receive a diagnosis of something like "Social Deficiency syndrome " or something (not yet made up) like that or maybe call all high functioning cases "aspergers"


But Aspergers and HFA are two different conditions. And those with HFA have more problems than just social issues. It would make no sense to call HFA Aspergers - I have the former and know for a fact that I don't have the same issues as people with AS.



Uhh wait people with aspergers only have social issues? might want to check your facts there.....cause last I checked I had more than social issues. I suppose this is another reason to be glad about them getting rid of the term AS then people don't have to suffer this sort of ignorance.


Yeah, SweetLeaf, and it proves my point lol...on second thoughts, I think I can live with being called autistic.



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13 May 2012, 8:05 pm

spech is a important thing. I am high fuctioning becuase my intlegence is at normal levels. 2 year ago I had alot of pain from a sist in my jaw. trying to have my carers understand that was very hard. I would point to my mouth "ahhhhh" and they woudl say "are you hungry" and then I would give up. then after a few weeks I could not take it any more. I would point to my mouth and say "pain" and they would ignore me or say "you are fine" or "its ok" Then I started with tantrums so they try and restrain me I ran away and wet my self. then they found me and brang me home and try and help and took me for medical help. I had to have tantrums to get help. I had to get very up set and un contol that I wet my self in public for people to listen. people ignore me becuase I have trouble with speech.
asperger person can point at there mouth and say "I am in pain and help me" and the care giver can help them. It is fustarting for me. trouble with spech is not a small thing. It is a very big thing.



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13 May 2012, 8:25 pm

No argument there - when I'm nonverbal, I have all kinds of problems due to the fact that I don't have any alternatives to verbal communication set up.

I have a lot of trouble with explaining that I am in pain to people, however. Even when I get to the ER because I'm in pain, I somehow fail to explain how much pain I'm in as I rarely get helpful treatment. I was in the ER with a cluster headache a year and a half ago, and I didn't get something to help with the pain. My explanations left the doctor with the assumption that the headache (which left me bedridden for a week) wasn't even my primary problem.

Not the same thing as having severe issues with speech, obviously, but being able to speak doesn't mean always being able to communicate clearly or reliably.



Last edited by Verdandi on 13 May 2012, 8:36 pm, edited 1 time in total.

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13 May 2012, 8:26 pm

I started to speak at age 1.5, but I do not know the "quality" of speach I had.
I develloped mutism as well, though I had the "quality to speak", but regressed somehow.
Getting diagnosed my performance IQ was much higher than my verbal IQ, because I am very visually thinking and I passed the Ravens Progressive Matrices in the WAIS without any mistake.
Having speech at age 1.5 indicates Aspergers, but due to the mutism, which I still have at many "social" moments and the PIQ outperforming the VIQ I got diagnosed with autistic disorder and secondly I got assessed rather HFA than Aspergers.
But I had speach at early age.
My "over-all"-developpment was delayed a lot.
Age 6 I had the "over-all" developpment of a 3-year-old and they wanted to refuse me attending school, but then testing intelligence they said I had to enter school, despite of the delay in other areas.


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13 May 2012, 8:39 pm

I can understand what the OP is saying in some sense. Because my son has come along in leaps and bounds in the past 7 or so months, he appears to be pretty high functioning. When I mention to people (non-professionals) that he has been diagnosed with Aspergers which is on the autism spectrum, I can't tell you how often people brush it off "but he's playing with other kids, he's looking people in the eye, he's so bright (this is a big one..) I think people think we are being irrational and so quick to try and 'label' kids that are different.


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