Are you self-supporting, on disability, or what?

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Are you self-supporting, receiving disability, supported by family, or what?
I support myself 100% by working 34%  34%  [ 60 ]
I'm on disability (for example, SSI or SSDI in the USA) 24%  24%  [ 42 ]
I'm supported by family (parents, spouse, other) 27%  27%  [ 48 ]
Other (please specify) 16%  16%  [ 28 ]
Total votes : 178

CyborgUprising
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09 Jul 2012, 7:59 am

Atomsk wrote:
I'm supported by myself and others. For myself, I teach private bass and guitar lessons, which does not make me much money. I also play in several bands that do paid shows, but those also do not make me much money. They pretty much just give me a little financial independence. However food and housing, means for transportation, and pretty much all support is provided by my mother and sister. The amount of money I make does not pay for much - it just gives me a little financial freedom.

I really wish I could get SSI but I feel that would be very difficult and stressful. It's a shame, because other disabilities, with lower levels of unemployment, can pretty much automatically get SSI with little to no effort. (take note, I have nothing against anybody with one of these disabilities, I am not criticizing them at all, but rather the system).

For example, let's take a disability with a more comparable rate of unemployment to ours - blindness - blind people have about 70% unemployment, which is considerably less than that of people with autism, which is at 90%, and that applies for high functioning individuals as well (something like 88% or so for AS, if I am not mistaken?). Yet blind people can very easily get SSI - a blind friend of mine, just a few years younger than me, gets the maximum SSI payment, and he did not have to go through much trouble at all to get it. But someone with autism or AS or any type of autistic disorder, which has an unemployment rate about 20% higher, has to go through a lot of trouble to get SSI, particularly if they are not low functioning.

I think the system is quite flawed, when people with a disability that has a 90% unemployment rate have a much more difficult time getting SSI than people with a disability with a 70% unemployment rate.


Let's not forget the people who sap off the system and aren't even disabled. There is this guy that weighs about 390 and claims he needs his disability money due to his weight. This same individual then spends this money on jet-skis, boats, and motorcycles. He then laments that he never has any money, yet he evidently has enough to have a large house. Worst of all, he brags about bilking the people out of their disability money (I knew a man with terminal cancer who couldn't get disability despite the disease leaving him unable to walk or drive due to constant seizures). While I agree with you for the most part, I do feel that some of us aspies/auties (high-functioning) shouldn't get disability because we are capable of holding down a job. I wouldn't consider myself disabled despite having AS, RA and SPD, since it doesn't have a profound impact on performing my duties.



WhiteWidow
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09 Jul 2012, 8:03 am

Yes, but I have such a spending problem - because nobody is ever there to ask me if my decisions are the best for my circumstances, even after I've tried assessing all of the outcomes. It's really difficult to manage my finances, because I constantly make mistakes, or end up in commitments for a short time without understanding the full repercussions. "business people" a.k.a. untransparent people, love to take advantage of people who can't process information at NT speeds.

Also I have neighbors who are TFTW (Too fat to work) It's too bad the AS is considered a disability, and it isn't embraced. People with AS should be put in management positions so that others with AS can work underneath them or beside them and create a system that is logical. That way most people with AS wouldn't have to live on disability - and the world would definitely be more sane.



Wandering_Stranger
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09 Jul 2012, 8:14 am

CyborgUprising wrote:
Let's not forget the people who sap off the system and aren't even disabled. There is this guy that weighs about 390 and claims he needs his disability money due to his weight.


Some people with weight problems have other disabilities alongside. My mum has a weight problem. She also has an under active thyroid and joint problems.

Quote:
For example, let's take a disability with a more comparable rate of unemployment to ours - blindness - blind people have about 70% unemployment, which is considerably less than that of people with autism, which is at 90%, and that applies for high functioning individuals as well (something like 88% or so for AS, if I am not mistaken?). Yet blind people can very easily get SSI - a blind friend of mine, just a few years younger than me, gets the maximum SSI payment, and he did not have to go through much trouble at all to get it.


Many blind people also have co-morbid disorders. I'm sure I read that a high amount of them (I'm also sight impaired) have learning disabilities alongside)



CyborgUprising
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09 Jul 2012, 8:19 am

There are financial advisors to help with the spending habits. I'm the polar opposite; I dislike having to part with money because I'm always concerned a house fire or something catastrophic will occur (like Hurricane Katrina) and I will have no means of rebuilding afterwards.



CyborgUprising
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09 Jul 2012, 8:22 am

Wandering_Stranger wrote:
CyborgUprising wrote:
Let's not forget the people who sap off the system and aren't even disabled. There is this guy that weighs about 390 and claims he needs his disability money due to his weight.


Some people with weight problems have other disabilities alongside. My mum has a weight problem. She also has an under active thyroid and joint problems.

Quote:
For example, let's take a disability with a more comparable rate of unemployment to ours - blindness - blind people have about 70% unemployment, which is considerably less than that of people with autism, which is at 90%, and that applies for high functioning individuals as well (something like 88% or so for AS, if I am not mistaken?). Yet blind people can very easily get SSI - a blind friend of mine, just a few years younger than me, gets the maximum SSI payment, and he did not have to go through much trouble at all to get it.


Many blind people also have co-morbid disorders. I'm sure I read that a high amount of them (I'm also sight impaired) have learning disabilities alongside)


This individual doesn't have any problems. He decided to put on weight in order to get on disability. He's a mooch and like I said before, he brags about taking advantage of resources that were intended for those who really need it.



hanyo
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09 Jul 2012, 8:26 am

I've noticed that a lot of people don't seem to take mental problems as real disabilities or as deserving of things like ssi and act like they are just misbehaving or doing it on purpose or are just a big drama queen.

Mental problems can be just as disabling as a physical disability.



Ann2011
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09 Jul 2012, 8:27 am

On disability for AS, depression and social anxiety disorder. Also working part time shelving books in the university library.



Wandering_Stranger
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09 Jul 2012, 8:29 am

hanyo wrote:
I've noticed that a lot of people don't seem to take mental problems as real disabilities or as deserving of things like ssi and act like they are just misbehaving or doing it on purpose or are just a big drama queen.

Mental problems can be just as disabling as a physical disability.


I've noticed this. Apparently, AS is over diagnosed and we're just spoilt brats. :roll: :x



Atomsk
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09 Jul 2012, 8:35 am

Wandering_Stranger wrote:
Atomsk wrote:
A question to those on disability: what does one have to do to get disability benefits as someone with autism? What sort of things do you need in order before going in? I've had my diagnosis since I was very young.


Are you in the UK, USA or somewhere else?


I'm in the US.

Wandering_Stranger wrote:
Many blind people also have co-morbid disorders. I'm sure I read that a high amount of them (I'm also sight impaired) have learning disabilities alongside)


I was aware of that - for example, my ex girlfriend was totally blind from birth, and also has sensory processing disorder, some anxiety disorder, and possibly some other things I'm forgetting. Both me and her have very similar sensory issues with hearing - sensitivity to loud noise, as well as to certain noises like the sound of people eating.

However, many autistic people, such as myself, also have co-morbid disorders/conditions. I have HFA, but I also have OCD and ADHD.



Aspiewordsmith
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09 Jul 2012, 8:36 am

Im on DLA and incapacity benefit which will be changed very soon to either ESA or JSA and im in the UK DLA is disability living allowance ESA is employment support allowance. Other kinds of support (not financial) there is none and my family is a dead loss :arrow:



Moonpenny
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09 Jul 2012, 8:48 am

I ticked 'self supporting' but in fact am on Disability Living Allowance as well as my modest salary. I have a physical disability that means I need a powered wheelchair in order to work, but I don't qualify for one provided by the NHS (i.e., free of charge) because I can walk very short distances - even though it's <50 yards and sometimes <10. The wheelchairs cost £5000+ and need to be replaced about every seven years, and this is what the money is paid for. It also contributes towards the cost of buying a more recent model/more reliable car - seven years old instead of the 15-year-old ones I used to be happy to drive!

I don't know anything about US state support, but in the UK Disability Living Allowance is for 'the extra costs of being disabled'. It's an allowance not a benefit and isn't means tested, so you can claim it even if you're working. The disability has to be one that incurs significant additional costs, and my AS wouldn't be grounds for being paid this money - it needs to be something like a major physical disability, blindness, etc. I only claim it because I need a tailor-made powered wheelchair.

Next year the UK government is replacing this allowance with a 'more efficient' scheme - which means they want to save money and will eliminate as many people as possible by tightening the qualification guidelines and making the application process as difficult as possible for people with learning difficulties, mental health issues and literacy challenges. Genius idea. Many people like me, who need equipment to enable them to work, won't get the money for it, so they'll end up on full state benefits. I certainly couldn't buy a wheelchair like the ones I need on my salary, so if they throw me off the allowance I will only be able to work as long as my current wheelie lasts. :roll:



ToughDiamond
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09 Jul 2012, 8:53 am

100% self-supported.



Dillogic
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09 Jul 2012, 9:50 am

For my disability pension (Oz):

Had to fill out forms and have two doctors sign off on it (GP and psychiatrist)
Meet a government employed psychologist at the disability place

then

Receive hardly any money at all fortnightly.

(ASD was the primary disorder listed.)



2wheels4ever
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09 Jul 2012, 9:54 am

Other - I get Social Security for my ADHD, anxiety and depression comorbids, also self-employed from a special interest, AND I have to have my mom & brother throw me the random crumb when the calls don't come in.


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09 Jul 2012, 10:01 am

I guess for the time being family, but I would add friends too. I am planning to try to become self sufficient or get on SSI, or if I can't do either of those become a bum it is. I will have to go to the thrift store and get a big bum back pack in fact maybe I should get one ASAP just in case also I have to arrange for trusted friends or family to keep my valuables like my laptop and vinyls since they'd only get stolen if I carried them with me.


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Last edited by Sweetleaf on 09 Jul 2012, 3:56 pm, edited 1 time in total.

CuriousKitten
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09 Jul 2012, 10:03 am

I didn't start working regularly until I was in my 30's. At 39 I went back to school and got a degree in computer technology, and for the past 10 years, I've supported myself and my husband, who is disabled, and our cats.


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