What wording would help attract you to attend an AS group?

Page 2 of 3 [ 43 posts ]  Go to page Previous  1, 2, 3  Next

Callista
Veteran
Veteran

User avatar

Joined: 3 Feb 2006
Age: 41
Gender: Female
Posts: 10,775
Location: Ohio, USA

30 Aug 2012, 9:14 am

JitakuKeibiinB wrote:
Why does "HFA" need to be specified in addition to autism? It makes it sound like those who aren't "high functioning" are unwelcome.
And if you don't, it sounds like it's a group for people who are severely autistic... Maybe "Anybody on the autism spectrum is welcome"? If you can get a good mix of people all over the spectrum and make sure nobody steps on anybody else's toes (literally or figuratively), I think it would be beneficial for everybody. We spend too much time with people exactly like ourselves; diversity is a good thing.


_________________
Reports from a Resident Alien:
http://chaoticidealism.livejournal.com

Autism Memorial:
http://autism-memorial.livejournal.com


OJani
Veteran
Veteran

User avatar

Joined: 23 Feb 2011
Age: 50
Gender: Male
Posts: 2,505
Location: Hungary

30 Aug 2012, 10:51 am

Forgive me that I don't really know what to write for helping you, I guess I have the same issue myself (and I'm not from an English-speaking country). I think maybe it's not easy to successfully mix LFA and HFA autistics afterall. As far as I know they have different needs, and unless HFA individuals are resolved to help the LFA all along, they'd probably form two separate groups (currently I'm attending two groups, one could be considered LFA/MFA, the other HFA).

I'd like to grab the opportunity though for trying to direct some attention to a London meet-up on 15th September (Saturday) (click on the link to see the corresponding thread) during the time I will be there as a tourist. According to the plan, it will start in the morning and would consist of visiting one or two museums and going to a pub.


_________________
Another non-English speaking - DX'd at age 38
"Aut viam inveniam aut faciam." (Hannibal) - Latin for "I'll either find a way or make one."


Callista
Veteran
Veteran

User avatar

Joined: 3 Feb 2006
Age: 41
Gender: Female
Posts: 10,775
Location: Ohio, USA

30 Aug 2012, 11:07 am

Not easy, maybe, but I think it'd be worth it. Autistics don't come in two categories, really; it's more of a wide scatter in all directions. One person labeled "LFA" might get a lot out of it, while another with "HFA" doesn't. If they don't like the group, wouldn't they simply not return?


_________________
Reports from a Resident Alien:
http://chaoticidealism.livejournal.com

Autism Memorial:
http://autism-memorial.livejournal.com


CanisMajor
Toucan
Toucan

User avatar

Joined: 26 Feb 2012
Age: 35
Gender: Female
Posts: 271
Location: Miami Beach

30 Aug 2012, 1:52 pm

It seems that other posts have submitted some really good ideas for the poster. However, I'm imagining this room with reasonable lighting, crayons, legos... and I can't help but think that a string of "Christmas" lights could help the mood, too. No, really, I'm serious. I know I'm not the only person that stims by staring at pretty lights. I think it might help some people feel comfortable. I don't know what other plans you have and if they would work with the overall theme you're going for. I mean, if there's enough risk of over-stimulation, that's definitely an issue to consider. Maybe they can be strategically placed, so that if someone doesn't want to look at them, they don't have to. Either way, the actual usage is at your discretion, but I figure it's an idea to ponder.



CanisMajor
Toucan
Toucan

User avatar

Joined: 26 Feb 2012
Age: 35
Gender: Female
Posts: 271
Location: Miami Beach

30 Aug 2012, 2:01 pm

AardvarkGoodSwimmer wrote:
Maybe a statement such as, "Self-diagnosed persons are welcome, and so are persons who feel they might share some aspects of the Autism Spectrum but not other aspects."


I also think this would be helpful. I've seen invites for AS groups, but I've never gone because I have not gotten a formal diagnosis and I don't know if one would be required or not. I'd love to have some local community support, to get to know some people near me that are also like me. However, I don't want to feel the pressure that I need some magic (and expensive!) slip from a psychologist in order to get that support. It would also solve the problem with making a distinction between HFA/LFA to just have an all-inclusive invite.



lostgirl1986
Veteran
Veteran

User avatar

Joined: 28 Feb 2012
Age: 38
Gender: Female
Posts: 6,418
Location: Ontario, Canada

30 Aug 2012, 2:03 pm

Your idea sounds great. I don't think you need to add anything.



SpiritBlooms
Veteran
Veteran

User avatar

Joined: 14 Nov 2009
Age: 68
Gender: Female
Posts: 1,024

30 Aug 2012, 2:27 pm

1000Knives wrote:
"Free." "Refreshments provided." "No mental health professionals on site to bother you."

I like this, and "No pressure to interact."



OJani
Veteran
Veteran

User avatar

Joined: 23 Feb 2011
Age: 50
Gender: Male
Posts: 2,505
Location: Hungary

30 Aug 2012, 3:37 pm

Callista wrote:
Not easy, maybe, but I think it'd be worth it. Autistics don't come in two categories, really; it's more of a wide scatter in all directions. One person labeled "LFA" might get a lot out of it, while another with "HFA" doesn't. If they don't like the group, wouldn't they simply not return?

I know, I know. I just wanted to point out the difficulties that might arise bringing the whole spectrum together in one room and hint that an active inclusiveness of HFAs would be needed in such settings. When I'm with the LFA/MFA group, my status is a "helper", a kind of facilitator who takes part in the activities.



Wandering_Stranger
Veteran
Veteran

User avatar

Joined: 6 Apr 2012
Age: 35
Gender: Female
Posts: 1,261

30 Aug 2012, 4:25 pm

CanisMajor wrote:
I also think this would be helpful. I've seen invites for AS groups, but I've never gone because I have not gotten a formal diagnosis and I don't know if one would be required or not.


At the group I attend, there's at least one person who isn't diagnosed and we did have a man attend who said "I am waiting for a diagnosis".



OJani
Veteran
Veteran

User avatar

Joined: 23 Feb 2011
Age: 50
Gender: Male
Posts: 2,505
Location: Hungary

30 Aug 2012, 4:32 pm

Wandering_Stranger wrote:
CanisMajor wrote:
I also think this would be helpful. I've seen invites for AS groups, but I've never gone because I have not gotten a formal diagnosis and I don't know if one would be required or not.


At the group I attend, there's at least one person who isn't diagnosed and we did have a man attend who said "I am waiting for a diagnosis".

At the HFA group I'm referring to the majority don't have an ASD diagnosis or have something else.



bnky
Velociraptor
Velociraptor

User avatar

Joined: 19 Nov 2011
Age: 58
Gender: Male
Posts: 486
Location: England

30 Aug 2012, 6:41 pm

One word that would make it LESS appealing to me is "Group". It sounds like a commitment is required :?



MathGirl
Veteran
Veteran

User avatar

Joined: 11 Apr 2009
Age: 32
Gender: Female
Posts: 3,522
Location: Ontario, Canada

30 Aug 2012, 7:44 pm

I find that many people on the spectrum are more into structured, activity-focused type of groups as opposed to spontaneous activity kind of events. There's a monthly ASD group I attend in my city and the meetups that are the most popular tend to be the ones where members meet for food. I think the food serves as an alternate resort in case when you don't want to socialize. Also, many people on the spectrum go into social situations with a purpose and such a purpose is often associated with a particular topic they want to explore to gain something, i.e. new knowledge or connections within own field of interest.

I think that doing topical get-togethers based on some kind of pre-meetup survey about member interests is a good idea. Also, I've done both structured group interaction games and mutual support meetings where every member talked about a specific challenge he or she is currently facing one at a time and got feedback from the group about it. Both of these events have been quite successful.


_________________
Leading a double life and loving it (but exhausted).

Likely ADHD instead of what I've been diagnosed with before.


tjr1243
Deinonychus
Deinonychus

User avatar

Joined: 31 Mar 2012
Gender: Female
Posts: 379

30 Aug 2012, 9:07 pm

One thing you could add is a specific activity (videogame, board games, etc) that could already be there when people arrive. Some people aren't good at conversation and prefer an activity, so perhaps have something that suggests that as an option.



OliveOilMom
Veteran
Veteran

User avatar

Joined: 11 Nov 2011
Age: 60
Gender: Female
Posts: 11,447
Location: About 50 miles past the middle of nowhere

30 Aug 2012, 10:32 pm

"Guest speakers Russell Brand, Johnny Depp and Vin Deisel"

"Open bar"


_________________
I'm giving it another shot. We will see.
My forum is still there and everyone is welcome to come join as well. There is a private women only subforum there if anyone is interested. Also, there is no CAPTCHA. ;-)

The link to the forum is http://www.rightplanet.proboards.com


Callista
Veteran
Veteran

User avatar

Joined: 3 Feb 2006
Age: 41
Gender: Female
Posts: 10,775
Location: Ohio, USA

30 Aug 2012, 11:02 pm

Well, if the participants are anywhere near college-student age, free pizza tends to do it. Free food is the perfect college-student bait.


_________________
Reports from a Resident Alien:
http://chaoticidealism.livejournal.com

Autism Memorial:
http://autism-memorial.livejournal.com


2wheels4ever
Veteran
Veteran

User avatar

Joined: 3 May 2012
Age: 52
Gender: Male
Posts: 1,694
Location: In The Wind

31 Aug 2012, 12:35 am

No MHPs and no parents


_________________
Let's go on out and take a moped ride, and all your friends will thing your brain is fried, but you can't live your life too dirty, 'cause in the the end you're born to go 30