Dealing with those who don't believe you have AS

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emtyeye
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09 Sep 2012, 9:01 pm

Apple_in_my_Eye wrote:

I've realized over the years that people interpret everything you say as a social statement. That is, that everything you say is seen as an attempt to jockey for social status in relation to them. So, to them, bringing up a diagnosis is seen as unfair and sort of like "cheating." They think, "oh, so now I'm supposed to kiss your butt because you have a diagnosis? Well, f*** you and your diagnosis." And, the fact that "diagnosis" does not mean "have to kiss someone's butt" just won't register.


Unfortunately, I think this is true. How slow I have been to understand this. I still really don't understand it. For me, all statements are about information. But dimly, in my blindness, I can sense this thing you have articulated.



whirlingmind
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09 Sep 2012, 9:05 pm

Sunny55 wrote:
Thank you all for your replies.
Whirlingmind-I remember the autism specialist nurse said to me that all of us (autistic people) are different from each other so maybe I will quote what you said to them. Do you put on a front all the time as well? Sometimes I think I deserve an oscar.


Yes, I do, and I do it to such a degree that it's actually quite emotional for me that lately I have acknowledged it. It's extremely exhausting, and hard to maintain. I think that's why if I am forced into a social situation, I suddenly get to a point that I have to leave, and nothing will stop me. If something prevents it I will get very stressed. I think it's that I get to a shutdown point from the stress of maintaining the facade. It feels so fake and the small talk kills me. I think the pressure on females is huge, so if you have AS it's a zillion times the pressure. I hope I get nominated alongside you!


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rabidrabbit
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09 Sep 2012, 9:15 pm

emtyeye wrote:
Another flaw in the neuro-typical brain wiring diagram is that they are plagued by a desire to be cruel. Even if they know you are right, they will act like you are wrong just to mess with your head, something I don't think those of us on the spectrum would ever do.


I think to say they are universally cruel is unfair. I think it is partly that by definition you are more sensitive than normal and partly that some people are cruel but most people are simply unaware of how much it hurts you.



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09 Sep 2012, 10:27 pm

Koi wrote:
Also, I have since created a quote for myself, "You have to put me in the right situation to see everything that's wrong."


Nice. I'm going to have to remember that one.



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10 Sep 2012, 1:17 am

Arguing with them will only amaze you at how ignorant they are and how much in denial they can be. You can't win an argument with someone who is ignorant or in denial. The reason being is they do not argue to discover truth, but argue to prove themselves right in order to maintain whatever facade defines their ego. In this regard, ignorance and denial will always yield the results they desire. Ever notice how even when proven wrong they don't like to apologize? Arrogance, egotism, self-reverence, all the results of monotheistic ideologies.



cmoonbeam1
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11 Sep 2012, 6:02 am

I find that some people think they're reassuring you when they say that.

"Oh, don't worry, you don't have Asperger's. I mean, you can tell, you know? I work with kids, and believe me, it's obvious. You don't have Asperger's."

ARGH.

It's like saying, "Oh honey, don't worry! You're not incompetent."

There is simply a lack of understanding about ASDs. I can't wait 'til I can afford an official diagnosis, so I can start changing peoples' misconceptions.



Jeanna
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11 Sep 2012, 8:14 am

cmoonbeam1 wrote:
I find that some people think they're reassuring you when they say that.

"Oh, don't worry, you don't have Asperger's. I mean, you can tell, you know? I work with kids, and believe me, it's obvious. You don't have Asperger's."

ARGH.

It's like saying, "Oh honey, don't worry! You're not incompetent."

There is simply a lack of understanding about ASDs. I can't wait 'til I can afford an official diagnosis, so I can start changing peoples' misconceptions.


I have the same problem because I don't have an official diagnosis. I did see a psychiatrist who thought I had Asperger's, but I stopped going to see her before getting an official diagnosis because she got really rude and kept demanding that I bring a family member in even though I told her my family wasn't very accepting of this.

I have a friend who works with autistic and ADHD kids and it's amazing how dismissive people like that can be. I also had someone tell me to read The Curious Incident of the Dog in the Night-Time to find out what "real" asperger's is.


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zxy8
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11 Sep 2012, 8:29 am

If people don't believe me, then I would probably hate them. I have an official diagnosis, so if they don't believe me, then they are not friend worthy - or even talking to worthy.



Visha9000
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11 Sep 2012, 10:28 am

Jeanna wrote:
cmoonbeam1 wrote:
I find that some people think they're reassuring you when they say that.

"Oh, don't worry, you don't have Asperger's. I mean, you can tell, you know? I work with kids, and believe me, it's obvious. You don't have Asperger's."

ARGH.

It's like saying, "Oh honey, don't worry! You're not incompetent."

There is simply a lack of understanding about ASDs. I can't wait 'til I can afford an official diagnosis, so I can start changing peoples' misconceptions.


I have the same problem because I don't have an official diagnosis. I did see a psychiatrist who thought I had Asperger's, but I stopped going to see her before getting an official diagnosis because she got really rude and kept demanding that I bring a family member in even though I told her my family wasn't very accepting of this.

I have a friend who works with autistic and ADHD kids and it's amazing how dismissive people like that can be. I also had someone tell me to read The Curious Incident of the Dog in the Night-Time to find out what "real" asperger's is.


I have a teacher at school that denise my official DX. He insist that its just me not wanting to do the stuff when i cant do it due to me having apsolutly no idea what he's asking me to do. When ever i say i dont understand he just ignors me and go's on to the next lesson. And anything i handed into him disapires. It took 2 vice principles and my prent and grandperent to force him to accept my homework. Im just lucky i will never have him as teacher again.



KristianCollie
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11 Sep 2012, 10:30 am

I have this problem, too. I rarely tell people about my Asperger's unless I know them on a very personal level, and maybe that fuels the problem, but when I do their response is usually along the vein of "I don't think you have it". One of my friends even said I should get a second opinion.

I don't need a second opinion. Even if I DIDN'T have a diagnosis (which I do), I know what it's like in my own head. I know I compulsively interrupt people without realizing it. I know I get annoyed by small talk, talk extensively about things that some people find uninteresting, and avoid peoples eyes in my conversations. I know that I'm unwittingly obsessed with a small number of things. I don't think ANYBODY would have doubted I had Asperger's had they met me in middle school.

In other words, even if my closest and most personal friends doubt it, I don't. But I try not to let it bother me. If they haven't noticed the things that make me neurologically atypical, it's not a big deal. It just means they're ignorant of the problem. Not that I'm trying to rid myself of my condition, but if people haven't noticed I have it, it must mean they haven't been put off by it. I hate that the automatic reaction is refusal, instead of an attempt at understanding, but even though it annoys me, I consider it a sign of coping for me.

Try to take it in stride. These people don't have the same unique perspective as you, and that's their loss.



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18 Dec 2014, 1:12 pm

My philosophy professor announced in front of the entire class that I don't have Aspergers. It was really upsetting. His evidence was hat I could pass some dumb test of being able to tell a drawing of a duck from one of a rabbit. I looked it up and what he's talking about pertains to straight up autism, not high functioning Asperger's. It really shook me up though and was super embarrassing. I know my identity, I know who I am, and I don't need some professor smarty pants questioning it.



olympiadis
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18 Dec 2014, 2:20 pm

Dogbloos wrote:
My philosophy professor announced in front of the entire class that I don't have Aspergers. It was really upsetting. His evidence was hat I could pass some dumb test of being able to tell a drawing of a duck from one of a rabbit. I looked it up and what he's talking about pertains to straight up autism, not high functioning Asperger's. It really shook me up though and was super embarrassing. I know my identity, I know who I am, and I don't need some professor smarty pants questioning it.



What is it with philosophy professors anyway?

This is a type of punishment for having a high enough IQ to be able to adapt and survive in an alien environment.

Superficially, I can follow the overall logic.
It is a bit similar to not giving certain considerations or compassions to rich people.
The superficial thought is that if they have money, then they can take care of themselves.
Though, being superficial, it ignores the majority of the reality of the situation.



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18 Dec 2014, 2:53 pm

Dogbloos wrote:
My philosophy professor announced in front of the entire class that I don't have Aspergers. It was really upsetting. His evidence was hat I could pass some dumb test of being able to tell a drawing of a duck from one of a rabbit. I looked it up and what he's talking about pertains to straight up autism, not high functioning Asperger's. It really shook me up though and was super embarrassing. I know my identity, I know who I am, and I don't need some professor smarty pants questioning it.



This is shocking. Unethical, unprofessional, unacceptable. However wait until you have finished this class/exams etc and then consider making a formal complaint to the University council on the grounds outlined and that this was a serious violation of your personal privacy, and that the comment itself was factually incorrect, ignorant and misleading from a person in a privileged position of power.



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18 Dec 2014, 3:52 pm

Question, when people say you are not like the ones who they know have AS, is that implying they don't think you have it?


There is no way of knowing someone has when you have only seen them for a few minutes. I can go to my autism group and see all these normal people but I know they have it because it's an autism group. I doubt people can tell I have it if they see me looking around at Gamestop or waiting to catch the train. But I bet if they were with me all the time, then they would see me act different and if they saw me all the time like at work or if I was in school. But at work I don't think anyone can tell. I have never had any professional tell me I didn't have AS or a teacher.


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Jensen
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18 Dec 2014, 5:45 pm

Koi wrote:
Sunny55 wrote:
Is it normal to be able to pass for non AS? It always surprises me when others see me as almost the opposite of the way I really am. Over the years I have learned to hide my extreme anxiety as it annoys and irritates people and I have learned often to hide it when I feel hurt about something so that I don't get called too sensitive. I have learned to make small talk though can do it in some situations and with some people better than with others. But it is exhausting when in some ways I would love just to fall apart and still be accepted.


I was not diagnosed till last year, so my entire life I have not been able to develop healthy coping mechanisms. Instead, I also had to hide all of my "faults", everything "wrong with me", so I end up actually passing for a neurotypical to some people.

It does hurt when people don't believe you. It's like invalidating who you are. You say it makes you exhausted, and it's exhausting to me too. Constantly worrying about people just not understanding.

And yeah, oh my god is it annoying. I always get the "my brother's friend's cousin's aunt has it and you don't seem like them at all." Some people just can't grasp the concept of a spectrum disorder.

Also, I have since created a quote for myself, "You have to put me in the right situation to see everything that's wrong."

Hmm. I could have written this.


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18 Dec 2014, 6:21 pm

On a few occasions that I broached this subject and had the response of Don't be silly, you are not autistic, I believe people were simply not well informed about the spectrum. Also, what annoys me is that those same people don't actually know me but instead behave as if whatever their story about me in their head is like is actually true when it isn't at all. They demonstrably don't listen to me and can be easily picked from the crowd by a telltale habit of saying Oh, You will love (insert something they like) which I actually hate or at least don't care for, but they don't have a clue because they are incapable of registering anything that doesn't conform with their world view.

It's like socialising with a tremendously emotional wall.


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