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CyclopsSummers
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24 Dec 2012, 5:26 pm

Callista wrote:
We do have some people here who can type, but not talk. We have some people who can type, but not talk reliably. We have some people here who cannot live on their own. We have the parents of children who are non-verbal in the parents' section. We have some people with low IQ scores, but you have to remember that IQ tests aren't very valid for telling us anything about an autistic person's capabilities, because we tend to have very wide gaps between skills and atypical development.


We lost a couple regulars who left the forum. I can recall Age1600 and KingdomOfRats, who I believe both described themselves as low-functioning at one point.

I'm kind of baffled at the ignorance that's being displayed here in this thread concerning the notion that having severe problems communicating face-to-face IRL must automatically mean that one can't express their ideas through another medium, in this case the internet.


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iSpy
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24 Dec 2012, 8:08 pm

I am low-functioning due to having a IQ of 68 and a lot of other stuff.


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emimeni
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24 Dec 2012, 8:24 pm

Callista wrote:
Look at you guys, arguing over terminology.

Okay, the facts: "Low functioning autism" has no official definition. That's why you guys are arguing--you've all heard different definitions (nonverbal, low IQ, less independent, whatever). None of which is official. "Low functioning" is just a doctor's label that means what the doctor thinks it means, and probably means something else to the next doctor.

We do have some people here who can type, but not talk. We have some people who can type, but not talk reliably. We have some people here who cannot live on their own. We have the parents of children who are non-verbal in the parents' section. We have some people with low IQ scores, but you have to remember that IQ tests aren't very valid for telling us anything about an autistic person's capabilities, because we tend to have very wide gaps between skills and atypical development.

Wrong Planet has historically been associated more with Asperger's because that's what Alex has, but I've never wanted it to be limited to people who can talk or who have high IQs. A lot of the new autism diagnoses were "stolen" from what used to be called Mental Retardation; these people were found to be autistic rather than intellectually disabled, or autistic in addition to being intellectually disabled, so it's common to see the two things together. And while most autistic people learn to speak, there's a significant minority for whom verbal communication will always be difficult, even in adulthood, or even impossible.

It doesn't make sense to talk about autistic people being either smarter or not as smart as NTs. We're just too variable for that. We've got geniuses and we've got people who are profoundly intellectually disabled, and everything in between. Making a categorical statement about autistics and intelligence--especially when autism as a category is still so very much in flux--doesn't help us any because it can't make any predictions about any particular autistic person.

I'd like more severely autistic people around here. We have a few, but there aren't enough to be truly representative of the larger population, and of course some can't read and write, so their families would have to represent them.


Callista, you once again articulated something much better than I could.


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MrStewart
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24 Dec 2012, 11:17 pm

There is a thread in members section that has many members posting who identify as lower functioning/greater impairment. Have a look:

http://www.wrongplanet.net/postt167925.html



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25 Dec 2012, 3:10 am

i tend to take IQ measurements of autistic people with a grain of salt... it is difficult to measure IQ in a person with severe communication and/or sensory issues. i have some difficulty in conversation because i know words i cannot pronounce correctly because i have never heard them spoken but i know what they mean because i have read them. i also have trouble spelling but spellcheck saves my a$$. :P



Verdandi
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25 Dec 2012, 3:19 am

wtfid2 wrote:
MakaylaTheAspie wrote:
@wtfid2: Where did you hear that? Or did you just assume that lower functioning autistics are ret*d?

People come on here at their own will, so I would just leave the matter alone and let everyone speak for themselves. As great as this website is, it isn't something that will please everyone.
lower functioning is characterized by an iq of under 70...which is borderline ret*d.


There are flaws with how IQ is measured with non-verbal autistic people. Many who learn to communicate when tested again score a higher IQ.



Verdandi
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25 Dec 2012, 3:32 am

wtfid2 wrote:
you are wrong...do some research :P


Also, research I've done questions the assumption that most autistic people described as low functioning are truly intellectually disabled. Here's one:

http://foa.sagepub.com/content/21/2/66.abstract

Quote:
There are frequent claims in the literature that a majority of children With autism are mentally ret*d (MR). The present study examined the evidence used as the basis for these claims, revieWing 215 articles published betWeen 1937 and 2003. Results indicated 74% of the claims came from nonempirical sources, 53% of Which never traced back to empirical data. Most empirical evidence for the claims Was published 25 to 45 years ago and Was often obtained utilizing developmental or adaptive scales rather than measures of intelligence. Furthermore, significantly higher prevalence rates of MR Were reported When these measures Were used. Overall, the findings indicate that more empirical evidence is needed before conclusions can be made about the percentages of children With autism Who are mentally ret*d.



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25 Dec 2012, 10:07 am

autisticyoungadult wrote:
It's seems that we've never hear the voice of the voiceless...


I think you just answered your own question.

Suppose you'd like to create a local forum (not an internet forum, but a face to face one), something like Toastmasters (a group for people to learn public speaking).

Would you wonder why there were no mute members?


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LisaOfShades
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25 Dec 2012, 10:35 am

Hi, I seem to be only half-aspie and don't know much... but what about a special section? Not letting chatterbox who can't stop typing 1000$ words to get there? I guess it would be hard for them to find it... hm... well, maybe they just aren't interested... or maybe we can spread the word for the regular that come to get info to encourage them to come... like adding a link to easy threads to their favorites or something... or typing for them... buuuut I'm rather clueless...

It's very kind of you~

I'm so glad that I can live on my own...
Access D allowed me to have my bills paid automatically... wonderful.

Enjoy~



Callista
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25 Dec 2012, 10:44 am

MrXxx wrote:
autisticyoungadult wrote:
It's seems that we've never hear the voice of the voiceless...


I think you just answered your own question.

Suppose you'd like to create a local forum (not an internet forum, but a face to face one), something like Toastmasters (a group for people to learn public speaking).

Would you wonder why there were no mute members?
People who can't type can have representatives, though. People who know them well enough to talk about their experiences. We do have some parents who have non-verbal kids around here--it's usually parents, sometimes teachers.


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MrXxx
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25 Dec 2012, 12:44 pm

Callista wrote:
MrXxx wrote:
autisticyoungadult wrote:
It's seems that we've never hear the voice of the voiceless...


I think you just answered your own question.

Suppose you'd like to create a local forum (not an internet forum, but a face to face one), something like Toastmasters (a group for people to learn public speaking).

Would you wonder why there were no mute members?
People who can't type can have representatives, though. People who know them well enough to talk about their experiences. We do have some parents who have non-verbal kids around here--it's usually parents, sometimes teachers.


Agreed, but I thought the OP had kind of covered what with reference to parents on the forums. It sounded to me more like the OP was asking why they themselves were under represented (not on here themselves).


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I'm not likely to be around much longer. As before when I first signed up here years ago, I'm finding that after a long hiatus, and after only a few days back on here, I'm spending way too much time here again already. So I'm requesting my account be locked, banned or whatever. It's just time. Until then, well, I dunno...


claudia
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25 Dec 2012, 1:40 pm

Verdandi wrote:
wtfid2 wrote:
MakaylaTheAspie wrote:
@wtfid2: Where did you hear that? Or did you just assume that lower functioning autistics are ret*d?

People come on here at their own will, so I would just leave the matter alone and let everyone speak for themselves. As great as this website is, it isn't something that will please everyone.
lower functioning is characterized by an iq of under 70...which is borderline ret*d.


There are flaws with how IQ is measured with non-verbal autistic people. Many who learn to communicate when tested again score a higher IQ.


Of course... Speaking is the main part of this kind of test. A child who learns to speak will increase his IQ. My son was diagnosed 2 years ago when he was 3 and non verbal. IQ tests measure something, they don't know what exactly. IQ can change through the lifespan. For example, I think my IQ is high because I never stopped learning new things, and today I'm 37. A person that can't speak and has trouble understanding what others are saying, will score low.



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25 Dec 2012, 2:43 pm

LisaOfShades wrote:
Hi, I seem to be only half-aspie and don't know much... but what about a special section? Not letting chatterbox who can't stop typing 1000$ words to get there? I guess it would be hard for them to find it... hm... well, maybe they just aren't interested... or maybe we can spread the word for the regular that come to get info to encourage them to come... like adding a link to easy threads to their favorites or something... or typing for them... buuuut I'm rather clueless...

It's very kind of you~

I'm so glad that I can live on my own...
Access D allowed me to have my bills paid automatically... wonderful.

Enjoy~
There's no such thing as half aspie. In general aspergers is a pretty mild condition and most people with aspergers are capable of doing many things such as driving, cooking, or marrying. Some people have it more mild than others.


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25 Dec 2012, 5:02 pm

wtfid2 wrote:
autisticyoungadult wrote:
This site is designed for autistics such as myself, with also parents that are wondering about the spectrum and want to go depth with information from those that are on the spectrum. Here's the thing though, the majority of users on this forum have Aspergers/high functioning Autism, with few that have PDD-NOS and hardly any low functioning autistics at all. It's seems that we've never hear the voice of the voiceless auties that have trouble communicating with neurotypicals on a daily basis. How can we attract those with low functioning autism to come onto this forum and chat/discuss things with those that are more higher functioning then themselves?
Low functioning autism usually involves some sort of mental retardation so i dont know if they are capable.


Generalising, much? I did used to follow the blog of a female who is LFA.



Verdandi
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25 Dec 2012, 7:45 pm

claudia wrote:

Of course... Speaking is the main part of this kind of test. A child who learns to speak will increase his IQ. My son was diagnosed 2 years ago when he was 3 and non verbal. IQ tests measure something, they don't know what exactly. IQ can change through the lifespan. For example, I think my IQ is high because I never stopped learning new things, and today I'm 37. A person that can't speak and has trouble understanding what others are saying, will score low.


Exactly. Nonverbal autistic people tend to score more typically on Raven's Progressive Matrices, which doesn't require reading, writing, or speaking. It strikes me as more a matter of expression than an accurate test of ability.



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25 Dec 2012, 7:48 pm

wtfid2 wrote:
There's no such thing as half aspie. In general aspergers is a pretty mild condition and most people with aspergers are capable of doing many things such as driving, cooking, or marrying. Some people have it more mild than others.


Asperger's Syndrome is often characterized as a "mild form of autism," but this does not mean that it is a mild disorder. One still has to be impaired by it to be diagnosed.

This is the kind of post that makes me question why I was diagnosed with AS, since I can't drive, I have very limited proficiency with cooking, and I am both unable to maintain a relationship and not seriously interested in having one, which makes marriage unlikely.

What I have is not mild by any means. It is not severe autism, as I can still be categorized as "high functioning," but it is not a mild condition.