NO support for older people in the UK with AS?
That's great my mums been fighting for the Astros years to get me a social worker and give me access to things for other Aspies and it gets worse? I used to go to a respite entre but I'm not disabled enough- governments don't care about the mental aspects of what I go through and I don't get help because I am not disabled ENOUGH! It's disgusting
_________________
~Pixie~
Thanks everyone for the response....i suffer a lot with my AS and do have a lot of problems..mental health told me there is no support in the area for Adults with AS..i do have a social worker at the moment who just comes over once a month to have a chat....and he will be stopped in a few mths or so because of lack of funding....
I have major issues with interaction with people..it just does not exist...after yrs of being bullied at school i stayed away from people and still find it hard to go into places where there is a lot of people..i also suffer from OCD and depression .
the problem for me is i am trying to overcome my issues alone..but find it really difficult...being shut away on my own in a studio flat with no hope to move on in life.
I cant work as i find the interaction very difficult and have no skills to offer anyone..who will give anyone like me work if you cant even talk to people without having a major panic attack..i also am very sensitive to noise and hate passing by an area where there could be a lot of people..so shut myself inside..i feel isolated from the rest of the world....i DO want to be able to help myself..but my issues are a bit too severe to be able to do it alone....but it looks like that is what is going to happen to most adults in the UK...i think the mental health of people like me will get worse....then who will foot the bill?..i just wish they had some kind of help for Adults like me who have a severe problem with there condition...and struggle to find a way forward and are just left to deal with it alone.
I have major issues with interaction with people..it just does not exist...after yrs of being bullied at school i stayed away from people and still find it hard to go into places where there is a lot of people..i also suffer from OCD and depression .
the problem for me is i am trying to overcome my issues alone..but find it really difficult...being shut away on my own in a studio flat with no hope to move on in life.
I cant work as i find the interaction very difficult and have no skills to offer anyone..who will give anyone like me work if you cant even talk to people without having a major panic attack..i also am very sensitive to noise and hate passing by an area where there could be a lot of people..so shut myself inside..i feel isolated from the rest of the world....i DO want to be able to help myself..but my issues are a bit too severe to be able to do it alone....but it looks like that is what is going to happen to most adults in the UK...i think the mental health of people like me will get worse....then who will foot the bill?..i just wish they had some kind of help for Adults like me who have a severe problem with there condition...and struggle to find a way forward and are just left to deal with it alone.
![Sad :(](./images/smilies/icon_sad.gif)
Regardless of the AS you are entitled to mental health support. I had about 12 sessions of CBT therapy last year, which helped me a lot. You need to say you need help with social anxiety and depression as opposed to Aspergers Syndrome. Tell me what town you live in and I'll search for services you might be able to use.
I think in the UK the younger people get much more support with AS than people who are older
I found out about my AS at a much older age and was wondering if there is anyone over the age of 26 still get's any kind of support for the issues they are still having with their AS or have they just been left to get on with it!
I am finding out that the UK is cutting down on all kinds of support for people with Autisim..and the sad fact is that the older you get the less help is available for you......all ages still require support if they have major problems with AS..what do you all think about the support you might get as an older person in the US compared to the UK?
This is a big problem for,me. It is like all the help is geared towards children and that once you are 18 the government forgets about you. Yet adults face the same everyday issues. We get help financially but I would rather have something to do or a group to go to each day rather than the one I go to weekly. I make do with other activities to keep myself busy.
I have major issues with interaction with people..it just does not exist...after yrs of being bullied at school i stayed away from people and still find it hard to go into places where there is a lot of people..i also suffer from OCD and depression .
the problem for me is i am trying to overcome my issues alone..but find it really difficult...being shut away on my own in a studio flat with no hope to move on in life.
I cant work as i find the interaction very difficult and have no skills to offer anyone..who will give anyone like me work if you cant even talk to people without having a major panic attack..i also am very sensitive to noise and hate passing by an area where there could be a lot of people..so shut myself inside..i feel isolated from the rest of the world....i DO want to be able to help myself..but my issues are a bit too severe to be able to do it alone....but it looks like that is what is going to happen to most adults in the UK...i think the mental health of people like me will get worse....then who will foot the bill?..i just wish they had some kind of help for Adults like me who have a severe problem with there condition...and struggle to find a way forward and are just left to deal with it alone.
![Sad :(](./images/smilies/icon_sad.gif)
Regardless of the AS you are entitled to mental health support. I had about 12 sessions of CBT therapy last year, which helped me a lot. You need to say you need help with social anxiety and depression as opposed to Aspergers Syndrome. Tell me what town you live in and I'll search for services you might be able to use.
I have had CBT a few yrs ago..but it did nothing to help me...i don't really know what kind of support i expect..as i know i can only try and help myself..but when you find it difficult just to pass people in the street without feeling a panic attack..and are isolated from everyone on a daily basis..plus being told to find work by the people that are supposed to be understanding your problems it is kind of hard to cope when they really don't understand what a struggle you have in every day day life!
I am not expecting too much..just a bit of help to move on with the social phobia thing and the maybe i might be able to move forward a little..but it's mental health that care for people in Herts with AS..and they don't seem to understand the problems people with AS go through..plus i think lack of training with people with Autisim does not help
I get a pat on the back when i see them and told i am moving forward...stuck in a studio flat scared from the outside world OCD taking over my life and depressed ....''yes i am moving forward in their eyes...and soon i will be left to get on with it!
what can i say!...the sad life for adults with AS in the UK
I have major issues with interaction with people..it just does not exist...after yrs of being bullied at school i stayed away from people and still find it hard to go into places where there is a lot of people..i also suffer from OCD and depression .
the problem for me is i am trying to overcome my issues alone..but find it really difficult...being shut away on my own in a studio flat with no hope to move on in life.
I cant work as i find the interaction very difficult and have no skills to offer anyone..who will give anyone like me work if you cant even talk to people without having a major panic attack..i also am very sensitive to noise and hate passing by an area where there could be a lot of people..so shut myself inside..i feel isolated from the rest of the world....i DO want to be able to help myself..but my issues are a bit too severe to be able to do it alone....but it looks like that is what is going to happen to most adults in the UK...i think the mental health of people like me will get worse....then who will foot the bill?..i just wish they had some kind of help for Adults like me who have a severe problem with there condition...and struggle to find a way forward and are just left to deal with it alone.
![Sad :(](./images/smilies/icon_sad.gif)
Regardless of the AS you are entitled to mental health support. I had about 12 sessions of CBT therapy last year, which helped me a lot. You need to say you need help with social anxiety and depression as opposed to Aspergers Syndrome. Tell me what town you live in and I'll search for services you might be able to use.
I have had CBT a few yrs ago..but it did nothing to help me...i don't really know what kind of support i expect..as i know i can only try and help myself..but when you find it difficult just to pass people in the street without feeling a panic attack..and are isolated from everyone on a daily basis..plus being told to find work by the people that are supposed to be understanding your problems it is kind of hard to cope when they really don't understand what a struggle you have in every day day life!
I am not expecting too much..just a bit of help to move on with the social phobia thing and the maybe i might be able to move forward a little..but it's mental health that care for people in Herts with AS..and they don't seem to understand the problems people with AS go through..plus i think lack of training with people with Autisim does not help
I get a pat on the back when i see them and told i am moving forward...stuck in a studio flat scared from the outside world OCD taking over my life and depressed ....''yes i am moving forward in their eyes...and soon i will be left to get on with it!
what can i say!...the sad life for adults with AS in the UK
I found this list of Aspergers & Autism Support Services on the Hertfordshire County Council website:-
http://www.harc-online.org.uk/index02a.htm
It includes an Aspergers Syndrome and High Functioning Autism Support Group in St Albans:-
http://www.harc-online.org.uk/index02a.htm
"Meetings are held on Mondays (term-time only) from 10.00am to 12.30pm in St Albans. Please contact for venue details. Although the group is based in St Albans the meetings are open to all Hertfordshire residents.
The group is open to all adults with Aspergers or High Functioning Autism. We meet weekly in term time and have activities such as table tennis, badminton, table football, board games etc. During the morning we also have a structured time for discussions and have addressed topics such as employment, personal hygiene, depression, living with Aspergers etc.
The group aims to help develop peoples social skills and social networks, create a safe area where people are able to be themselves and discuss issues relevant to them in a structured and informal environment."
![Smile :)](./images/smilies/icon_smile.gif)
You could enquire whether there's anyone who attends the group from your area
Also, travelling there could help with your social phobia ie it would be practice at going out
and using public transport or the train
Yes it would be challenging but also would help you widen your horizons, which would in turn
help you to feel more of a sense of achievement - this would improve your self-confidence
![Smile :)](./images/smilies/icon_smile.gif)
Aston's got a very interesting history!
http://en.wikipedia.org/wiki/Aston,_Hertfordshire
whirlingmind
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I think that's a really good idea. And you could ask them also, to ask the group if there is another Aspie in your area who would want to get together 1-2-1 for a coffee in a quiet place to get to know each other and brave the world together. You never know what can come of things, do contact them, think of your ideal scenario and see if they can help make it happen for you.
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*Truth fears no trial*
DX AS & both daughters on the autistic spectrum
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Hey,
It's just as bad where I am in the states.
It's all for kids....and their bedraggled mothers.There's virtually no community for adult autistics where I am.
I tried to join an autism group, only to later find out that the reason they didn't respond was because they're a group of people who want to take a break from their autistic children - not a group for them.
There was a group started in the local area..but when i went there was only one person there!
I tried to go a few times after that..but it was always closed for some reason or another..in the end they told me it shut because of no funding
The local mental health team don't seem to know that much about Autisim..they print off some sheet of groups that you really don't want to attend like..mental health groups and i feel i would not fit in these kind of groups as i have different kind of issues..anyway interaction with groups of people is very hard for me to cope with...i will keep looking in the net..but i am an adult and most of the groups are started for children...i suppose it is harder for adults to get the support they might need...i am not complaining..i just feel it's like a circle for me and i always go back to square one...never moving on with the things i would like to..like finding and keeping a job..being able to talk to at least more than one person at a time...feeling that i have some kind of quality life and maybe even if i get very lucky..having a friend that can understand where i am coming from..but all of this seems such too far off right now..unless i get some kind of help to overcome the major issues.
I tried to go a few times after that..but it was always closed for some reason or another..in the end they told me it shut because of no funding
The local mental health team don't seem to know that much about Autisim..they print off some sheet of groups that you really don't want to attend like..mental health groups and i feel i would not fit in these kind of groups as i have different kind of issues..anyway interaction with groups of people is very hard for me to cope with...i will keep looking in the net..but i am an adult and most of the groups are started for children...i suppose it is harder for adults to get the support they might need...i am not complaining..i just feel it's like a circle for me and i always go back to square one...never moving on with the things i would like to..like finding and keeping a job..being able to talk to at least more than one person at a time...feeling that i have some kind of quality life and maybe even if i get very lucky..having a friend that can understand where i am coming from..but all of this seems such too far off right now..unless i get some kind of help to overcome the major issues.
![Sad :(](./images/smilies/icon_sad.gif)
I went to a mental health support group for a number of months and while it's true that peoples' issues aren't exactly the same as for people with Aspergers/Autism, I found the people there were sufficiently tolerant for me to be able to get somethign out of it. I made friends with several people there and it got me out of the house, which was the main thing. It can be worth giving these support groups a try as people generally have similar difficulties eg social anxiety and depression even if they aren't autistic. And in the absence of any Asperger-specific support groups, there might be other people with Aspergers attending so it could be a way of making contact with them.
There is NO support. I'm 43.
I don't need counselling as I have no co-morbid mental health issues. Just the AS.
I don't need a social worker as I live independently with my long-term partner and have a job.
I don't want to join some "social" group to talk and play silly sports and games. How would this help me?
The help I actually need is with getting into an appropriate career, including proper financial support while I retrained if necessary (and I mean SUPPORT not some high-ticket student loan).
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