invisiblesilent wrote:
I am pretty up front about it. I feel compelled to advocate and to make people understand that someone can look and largely act "normal" (perhaps just be viewed as "shy") and yet still be having huge difficulty in life. It's actually shocking how little people know about autism considering that it is relatively common and if I can change a few attitudes/misconceptions and help a few people understand by being up front then that is a good thing.
If anybody attempts to discriminate against me based on what I tell them then they are going to find out that some autistic people (for clarity: in this situation I mean me) are VERY capable of standing up for themselves. I hate discrimination and crappy, intolerant attitudes so if anybody pulls that on me they are getting a serious talking to.
I really liked this post. I aspire to doing this. While I'm in the process of diagnosis and haven't told anyone as yet, I'm still working on the "confidence and ability to stand up for myself" part, so I will be starting small and just telling some family members. However, in the long term I intend to be clear about it with anyone I have a long term relationship with (e.g. more than just a passing interaction). Partly this is because, working on recognising and understanding the challenges I have, I realise what a difference it would make to my life to have the people around me understand that certain things are difficult for me and make allowances for that instead of getting frustrated or impatient - both emotional and practical allowances. There are so many simple misunderstandings that happen to me every day, with people think I'm being difficult, selfish or ignorant, when I'm actually working my butt off trying to manage the situation and just can't think of anything to say, or am trying to avoid overstimulation, or some other simple thing to look after myself. Being able to simply say to them "sorry, I'm having trouble managing this at the moment" with a legitimate reason why would be wonderfully freeing for me.
I understand that this brings with it the weight of a label which people are ignorant about (the comparison to homosexuality is pretty good). However, I think it is potentially a really powerful thing to be open about being autistic, and not just for reasons of advocacy (though that is certainly important). If you don't want people to treat you differently because you're autistic, consider that they probably already do - if people don't already treat you differently because of the way you are due to your autism, then it's unlikely you would need a diagnosis! However, being open about it means that from then on they understand
why you are act differently and many people are likely to respond much more positively when they understand your quirks or difficulties, especially the kind of people you would want as friends. If they respond negatively instead, well hey, what a great way to filter out the jerks from your life without having to work hard at watching their actions and social cues.

There are people who will make your life difficult everywhere, and they will do it whether or not they know you have AS.