how many aspies here are undiagnosed or unsure

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superfineclock
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14 Mar 2013, 5:02 am

undiagnosed went to the doctors and expressed my concern. I was near enough laughed out the room and told it was a problem for children.



superfineclock
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14 Mar 2013, 5:04 am

FishStickNick wrote:
rebbieh wrote:
Some days I really think I have it and other days I think it's ridiculous to even suspect it.

This. Some days I feel "normal" and wonder why I ever thought I have AS. Other days, I wonder why I ever doubt having AS.

Yeah I know that, its normally when I start to think im gonna do something about it, that i start to doubt



TheSperg
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14 Mar 2013, 5:08 am

I diagnosed with ADHD as a child in the 80s, it was all the rage at the time. Even though anyone with a brain could see I was not ADHD, but you see at the time autism was reserved for more severe cases.

My life was total hell until in my late teens I was broken/had a break through that I was never going to get anywhere in life if I didn't learn hard to imitate social interaction, it was hard and took a lot of effort but now unless I let down my mask and share you'd never know..........mostly.

My parents actually seem to view me as ret*d, well my dad is dead now but my mom does. I hate introducing her to people I know now because she'll say something like "he is behaving right? He isn't making a mess is he?" and the people will go uhh WTF is your mom nuts? I'm like mom please, she still believes I'm that non-verbal child she remembers staring at the wall. Like she thinks its all an act and one day I'll give up and go back to being non-verbal or something.



LizNY
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14 Mar 2013, 8:20 am

Undiagnosed but 99.5% sure I have it. It describes all of the difficulties I've had throughout my life, and I can relate to so many of the things posted here. At this point, I don't kno if I can get a dx. I've learned to mimic so many social aspects that I can fake for a while. And once I stop faking, they think I'm intentionally being difficult. The funny thing is....when I fake social interactions, people often say I'm fake. I don't get it....


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AmoralHeart
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14 Mar 2013, 9:12 am

Undiagnosed but sure I'm an aspie.

I was unofficially diagnosed by a psychologist who offered me a reference to see a psychiatrist and make it official, I declined because finding out the reasons for my problems is enough for me. I prefer not to have an official diagnosis on my records.


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Nightingale121
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14 Mar 2013, 9:46 am

FishStickNick wrote:
rebbieh wrote:
Some days I really think I have it and other days I think it's ridiculous to even suspect it.

This. Some days I feel "normal" and wonder why I ever thought I have AS. Other days, I wonder why I ever doubt having AS.


Yes, I have this feeling too. I am not diagnosed.


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franknfurter
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14 Mar 2013, 11:59 am

i am undiagnosed, i also tend to vary from being sure i have AS and thinking im silly for thinking i do :? it is a tad frustrating



dunya
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14 Mar 2013, 12:09 pm

Undiagnosed but I can identify with many of the issues discussed here.
Am attempting to get a diagnosis.

I think it will help me work to my strengths and accept my limitations.
I don't have close friends or family I can rely on to support me, so I think a diagnosis would help me communicate to others what my difficulties are without being dismissed as stupid or difficult, as at present.

It would also help me come to terms with the problems I have faced in education, work and social life.



rebbieh
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14 Mar 2013, 1:04 pm

FishStickNick wrote:
rebbieh wrote:
Some days I really think I have it and other days I think it's ridiculous to even suspect it.

This. Some days I feel "normal" and wonder why I ever thought I have AS. Other days, I wonder why I ever doubt having AS.


I find it incredibly annoying and quite tough actually. I'm really bad at dealing with uncertainty.



bumble
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14 Mar 2013, 11:09 pm

Undiagnosed and unsure. I have traits of it. Not looking for a diagnosis as I don't want another label.



blue1skies
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14 Mar 2013, 11:18 pm

Undiagnosed as well... I fit all the criteria however so I feel okay not being diagnosed, for now.



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14 Mar 2013, 11:21 pm

Self-diagnosed and quite sure it's true. It explains a LOT.


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gratin
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15 Mar 2013, 10:53 am

Diagnosed with OCD, GAD, clinical depression .. but I think I have one kind of umbrella condition as well and can't get an answer.

My guess would be either Schizoid PD / Aspergers.

My sister's diagnosed as schizophrenic but I see so much autism in her, not that I'm an expert. My daughter is being assessed for autism.



gratin
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15 Mar 2013, 10:57 am

LizNY wrote:
Undiagnosed but 99.5% sure I have it. It describes all of the difficulties I've had throughout my life, and I can relate to so many of the things posted here. At this point, I don't kno if I can get a dx. I've learned to mimic so many social aspects that I can fake for a while. And once I stop faking, they think I'm intentionally being difficult. The funny thing is....when I fake social interactions, people often say I'm fake. I don't get it....


I mimic as well, eye contact in particular, and I don't know if I'm doing it right because I don't know instinctively. Taught myself to ask people how they are too and stuff like that just with time / experience of observing.



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15 Mar 2013, 11:01 am

FishStickNick wrote:
rebbieh wrote:
Some days I really think I have it and other days I think it's ridiculous to even suspect it.

This. Some days I feel "normal" and wonder why I ever thought I have AS. Other days, I wonder why I ever doubt having AS.


^^this^^
I felt like this a lot just after someone asked if I had AS. I immediately asked a friend who worked with autistic kids, who said she thought for years that I has AS. These days I feel confident that I'm on the spectrum, but some times I feel like I'm crazy for thinking that I am on the spectrum.


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Mindsigh
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15 Mar 2013, 12:14 pm

gratin wrote:
LizNY wrote:
Undiagnosed but 99.5% sure I have it. It describes all of the difficulties I've had throughout my life, and I can relate to so many of the things posted here. At this point, I don't kno if I can get a dx. I've learned to mimic so many social aspects that I can fake for a while. And once I stop faking, they think I'm intentionally being difficult. The funny thing is....when I fake social interactions, people often say I'm fake. I don't get it....


I mimic as well, eye contact in particular, and I don't know if I'm doing it right because I don't know instinctively. Taught myself to ask people how they are too and stuff like that just with time / experience of observing.


I was told by a psychiatrist that I'm too articulate to have it. I learned to mimic all the social stuff as a young adult from watching my coworkers in retail. I tend to view other people as "customers" now and there's still an imaginary counter between myself and them. If I'm in a situation where I can't apply the retail model, I'm lost.


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