Population numbers. Frustration finding other aspies.

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AgentPalpatine
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06 May 2013, 4:38 pm

MathGirl wrote:
Yes, but the little Meetup groups are nothing compared to a community being talked about here. I think that's the main issue. It's hard to integrate yourself within autistic people; it's a once-in-a-while thing for most.


Missed this when I responded two minutes later...

Meetup (which has gotten associated with "Parent's groups" in my circles) groups are a first step. There's no definite line between "meetings", "culture", "community", etc etc., but my thoughts are that people have to meet each other and be comfortable enough to have additional offline interaction with other Aspies.

I know I get a lot of disagreement from both sides on this issue, but I think A) We need to acknowledge the amount of social anxiety out there, and B) We have to understand that just because people are socially anxious due to past negative interactions*, does not mean Aspies are automatically unable to have offline meetings.

* Think about the average experience described on WP leading up to a DX, and social interactions both pre- and post-DX. Could a reasonable person have some sort of social anxiety based on these experiences?


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TPE2
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06 May 2013, 7:31 pm

AgentPalpatine wrote:
I believe I understand OP's point.

If we use the (somewhat controversal) 1 percent figure, a city of 6 Million would have roughly 60,000 Aspies. Assuming that 35% are outside the traditional social interaction ages, That would leave 39,000 Aspies in the metro area. .


Stoek wrote:
Yeah that 1 percent number is also much lower when you consider the lack of actual diagnosis support, community awareness, and other cultural barriers.

My guess the number were dealing with is much closer to 0.1 percent.


From where you take these "1 percent figure"? Almost everything that I have read is in the sense of prevalence of Asperger's being something like 0.2-0.3% of population.



AgentPalpatine
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06 May 2013, 8:37 pm

TPE2 wrote:
AgentPalpatine wrote:
I believe I understand OP's point.

If we use the (somewhat controversal) 1 percent figure, a city of 6 Million would have roughly 60,000 Aspies. Assuming that 35% are outside the traditional social interaction ages, That would leave 39,000 Aspies in the metro area. .


Stoek wrote:
Yeah that 1 percent number is also much lower when you consider the lack of actual diagnosis support, community awareness, and other cultural barriers.

My guess the number were dealing with is much closer to 0.1 percent.


From where you take these "1 percent figure"? Almost everything that I have read is in the sense of prevalence of Asperger's being something like 0.2-0.3% of population.


It's a reasonable question. The 1-2 percent number gets batted around alot, but I can't point you to any paper in particular. The number seems to agree with my personal experence, but that's not something that I can put in a paper.


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TPE2
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07 May 2013, 4:24 am

I think that "1%" number is probably for all ASD, not only for AS.

There is a CDC study saying that the prevalence of ASD (in children of 8 y.o., but I suspect that the numbers should be the same for all ages) is of 1 in 88, but according to that study AS seems to be the more rare subtype:

http://www.cdc.gov/mmwr/preview/mmwrhtm ... 3a1_w#Tab3

If you look to all autistics with normal-or-above-normal intelligence, they are 38% of the total

http://www.cdc.gov/mmwr/preview/mmwrhtm ... 3a1_w#Fig2

Probably some will be very aspie-like (HFA, some cases of PDD/NOS) only having other diagnosis beucase of things like te age when they first speak; others could have singificant differences (for example - PDD/NOS without restricted interests)