Petition Alex Plank to discuss Treatments and Research!!

Page 2 of 2 [ 27 posts ]  Go to page Previous  1, 2

AardvarkGoodSwimmer
Veteran
Veteran

User avatar

Joined: 26 Apr 2009
Age: 61
Gender: Male
Posts: 7,665
Location: Houston, Texas

06 Jul 2013, 1:53 pm

I want to be accepted for the human being I am. :D



CockneyRebel
Veteran
Veteran

User avatar

Joined: 17 Jul 2004
Age: 50
Gender: Male
Posts: 116,864
Location: In my little Olympic World of peace and love

06 Jul 2013, 4:40 pm

Fnord wrote:
AgentPalpatine wrote:
... Neither Wrong Planet or any of it's officers are under any duty to answer a petition. The WrongPlanet discussion sub-forum exists for this very reason.

^This, for the win.

While the intent is noble, the relative merit of a forum dedicated solely to "Research & Treatment" is ... not so great.

As has been said before, there are already enough forums that fit this purpose. Just launch an appropriate thread and see who hops aboard.


I also strongly agree as well. Nobody has to sign if they don't want to.


_________________
The Family Enigma


Si_82
Veteran
Veteran

User avatar

Joined: 17 Sep 2012
Gender: Male
Posts: 525
Location: Newcastle, UK

06 Jul 2013, 5:01 pm

Seems a bit out of order to me to petition a guy volunteering his time to help like minded folks. Smacks of a sense of entitlement as does dictating that posters cannot criticise in the thread. This is a forum ran privately and volunteerly - not a government service.


_________________
AQ46, EQ9, FQ20, SQ50
RAADS-R: 181 (Language: 9, Social: 97, Sensory/Motor: 37, Interests: 36)
Aspie Quiz: AS129, NT80
Alexithymia: 137


Ettina
Veteran
Veteran

User avatar

Joined: 13 Jan 2011
Age: 35
Gender: Female
Posts: 3,971

06 Jul 2013, 5:04 pm

Quote:
For the past 15 years, neurodiversity activists have been fighting hard for their acceptance into mainstream society. Activists like John Robison and Temple Grandin have successfully spread this message across America.


John Robison is not a neurodiversity activist, and Temple Grandin barely qualifies as one.

Just being autistic and outspoken about autism does not make you a neurodiversity activist. You have to be communicating the neurodiversity viewpoint - that conditions such as autism are differences rather than illnesses.



KingdomOfRats
Veteran
Veteran

User avatar

Joined: 31 Oct 2005
Age: 40
Gender: Female
Posts: 4,833
Location: f'ton,manchester UK

06 Jul 2013, 5:10 pm

atdevel,
am one of those who is under that one size fits all label of 'lf', and for the past four years have lived in a incredible residential centre which provides a lot of inhouse different autistic therapies,medications,building adaptions,equipment and communication aids etc,am also pro choice of the whole 'cure concept' whether in terms of treatment to lessen issues or the actual cure idea,and am also a local activist in autism and LD [US=intelectual disability],am not a supporter of neurodiversity when its about removing the disability label in favour of better accomodating those who do not have a disability in their autism,as the official point of having labels is to get support/services/accomodations etc,its what autists whose autism is a disability need to get access to things.
am always accepting of hearing other views though because understanding language is a weak point of mine and do apreciate being helped to understand other sides.

saying that,from own view it does not feel ok to petition alex as it doesnt feel very nice-as it feels like putting pressure on someone when a simple discussion coud do the job [whether theres an agreement or not],a discussion is more involving on all sides whereas a petition feels like force and not really giving a damn about the other sides view.
alex has always been a stern supporter of neuro diversity and anti curism so itd look pretty out of place on WP,however alex has been open minded enough to give a soap box to people of any belief here providing they follow the rules and treat others with respect,the batsht crazy pro cureist; john best junior used to be a regular here,not even autism speaks gave him room to share his opinion back in the very first forum of theirs,which shows how respectful alex is of others views even when he doesnt agree with them.
so it is possible may be one point he woud be-or woudnt,be willing to do a board,but this is why it makes more sense to actualy discuss it with him first.


_________________
>severely autistic.
>>the residential autist; http://theresidentialautist.blogspot.co.uk
blogging from the view of an ex institutionalised autism/ID activist now in community care.
>>>help to keep bullying off our community,report it!


Sweetleaf
Veteran
Veteran

User avatar

Joined: 6 Jan 2011
Age: 34
Gender: Female
Posts: 34,907
Location: Somewhere in Colorado

06 Jul 2013, 5:26 pm

I don't like the sound of sensory intregration, what is that? make someone sit in a noisy room with lots of chaos and bright florescent lights till they either 'get used to it' or have a mental meltdown or shutdown.


_________________
We won't go back.


animalcrackers
Veteran
Veteran

User avatar

Joined: 26 Feb 2011
Gender: Male
Posts: 2,207
Location: Somewhere

06 Jul 2013, 6:11 pm

Sweetleaf wrote:
I don't like the sound of sensory intregration, what is that? make someone sit in a noisy room with lots of chaos and bright florescent lights till they either 'get used to it' or have a mental meltdown or shutdown.


Sensory integration is activities that are designed to help regulate your sensory systems, and/or to help your brain practice and improve on processing different types of sensory information. It's sort of like exercise for your sensory systems. Sensory integration activities are tailored to the individual and are usually fun/soothing things, not painful/overwhelming things.


_________________
"Coming back to where you started is not the same as never leaving." -- Terry Pratchett, A Hat Full of Sky

Love transcends all.


AardvarkGoodSwimmer
Veteran
Veteran

User avatar

Joined: 26 Apr 2009
Age: 61
Gender: Male
Posts: 7,665
Location: Houston, Texas

07 Jul 2013, 12:59 am

Okay, if sensory integration activities are usually fun/soothing things.



AardvarkGoodSwimmer
Veteran
Veteran

User avatar

Joined: 26 Apr 2009
Age: 61
Gender: Male
Posts: 7,665
Location: Houston, Texas

07 Jul 2013, 1:08 am

I still want it to be something that I choose to do, maybe in a series of medium steps if I so choose, not something that is foisted upon me.



Callista
Veteran
Veteran

User avatar

Joined: 3 Feb 2006
Age: 41
Gender: Female
Posts: 10,775
Location: Ohio, USA

07 Jul 2013, 2:39 pm

AardvarkGoodSwimmer wrote:
Okay, if sensory integration activities are usually fun/soothing things.
It can definitely be done wrong. Like any therapy, it's not without its risks and not without "therapists" who think causing distress is okay.

But it can have benefits. Weighted blankets are an example of sensory integration. Playing with clay or putty is pretty common. Music therapy. That kind of thing. It is counterproductive to expose somebody to sensory input that causes distress because that'll just cause the person to strengthen the mental connections between that input and the escape/avoidance/fear/fight reaction.

Sensory integration therapy isn't thoroughly researched, but it's fairly commonly available and what research we do have seems promising. I think it's just important that we should have some particulars on what works, what doesn't, and why it works when it does.

How about splitting the Computers, Math, Science, and Technology forum into two forums? One for science and technology, and the other for psychology and medicine? That way we could have a place to discuss recent research, without flooding out the posts from the science junkies who want to discuss computer programming or astronomy.

For now, there's really nothing preventing us from using the Computers, Math, Science, and Technology forum to discuss autism research. But maybe it would spark less controversy to have a forum just generally for psychology and medicine, rather than something like treatments and research. It would give us a venue for discussion without forcing WP to take any kind of official position on the research itself.


_________________
Reports from a Resident Alien:
http://chaoticidealism.livejournal.com

Autism Memorial:
http://autism-memorial.livejournal.com


animalcrackers
Veteran
Veteran

User avatar

Joined: 26 Feb 2011
Gender: Male
Posts: 2,207
Location: Somewhere

07 Jul 2013, 3:19 pm

Callista wrote:
AardvarkGoodSwimmer wrote:
Okay, if sensory integration activities are usually fun/soothing things.

It can definitely be done wrong. Like any therapy, it's not without its risks and not without "therapists" who think causing distress is okay.


That's very true. I've read a few horrific anecdotes (one of them was part of a case study in a paper about sensory integration) and I'm sure there are more than a few people out there who have had really bad experiences -- but if sensory integration therapy is done properly and ethically it should not involve causing distress.


_________________
"Coming back to where you started is not the same as never leaving." -- Terry Pratchett, A Hat Full of Sky

Love transcends all.