Completely Misunderstood at my Initial Evaluation

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qwan
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17 Jul 2013, 6:59 am

maeghan wrote:
Chloe33 wrote:
I don't know why so many people get hung up on getting diagnosed Aspergers. It is ridiculous.


:cry: I really don't think this is fare at all. I look at an Asperger's diagnosis as a diagnosis that 'there is nothing wrong with me'. I've had doctor's in my past say that i might have borderline personality disorder, or might be bi-polar. I look at those as being problems, when I know deep down inside that I don't have a problem. I'm just wired differently.

[...]
The doctor told me to write things down for this 2nd visit and I did and I'm happy with how it went.


I'm glad you said this, it's exactly how I feel. If I'm not diagnosed, it means there IS something wrong with me, or that I'm just socially ret*d and should just get a grip but clearly can't. It really upsets me thinking about it.
Being recognised as being on the spectrum means they're saying 'oh it makes sense, you're just this kind of person. Ok, we can work with that.' It's a way of saying you're normal, and you DO make sense, and you're NOT broken. It's a powerful thing, and very positive, or would be for you and I, I believe.

And I'm glad things went well for you and I hope they continue to go well. Best of luck in getting your diagnosis and support. =]


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maeghan
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17 Jul 2013, 11:56 am

qwan wrote:
I'm glad you said this, it's exactly how I feel. If I'm not diagnosed, it means there IS something wrong with me, or that I'm just socially ret*d and should just get a grip but clearly can't. It really upsets me thinking about it.
Being recognised as being on the spectrum means they're saying 'oh it makes sense, you're just this kind of person. Ok, we can work with that.' It's a way of saying you're normal, and you DO make sense, and you're NOT broken. It's a powerful thing, and very positive, or would be for you and I, I believe.

And I'm glad things went well for you and I hope they continue to go well. Best of luck in getting your diagnosis and support. =]


Thank you, that is exactly how I feel about it :)



ravenloft68
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17 Jul 2013, 12:46 pm

I almost seems like All of these Neuro-Psychologists and Clinical Psychologists only want to deal with parents and DXing kids in some kind of academic setting. It must be more lucrative somehow than bothering with adults, I don't know.


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Nick22
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17 Jul 2013, 5:15 pm

maeghan wrote:

So, I think I'm gonna start with things from my childhood ... a twisting of my fingers with the satin edges of my pink blanket, it went everywhere with me ... even college ... i went through 4 of the same blankets, they were 'Carter's' brand.


Me too! Different brand mind you, and I still do it 40 years later except more surreptitiously on the corner of a handkerchief.

Stick to your instinct on this. I know exactly where you are coming from. I've got a diagnosis coming up in a couple of months time and I don't know how it will go, but I hope it rules some things out or in, and at least I can move forward from there. You clearly deserve to be treated more professionally than you have done to date, and I agree with others that making written notes and a summary of them which you can go through with people and refer back to the detail when necessary will show them that you have thought about it seriously. Sounds like the current situation is a bit more promising. Good luck with the diagnosis.



maeghan
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17 Jul 2013, 8:38 pm

Nick22 wrote:
maeghan wrote:

So, I think I'm gonna start with things from my childhood ... a twisting of my fingers with the satin edges of my pink blanket, it went everywhere with me ... even college ... i went through 4 of the same blankets, they were 'Carter's' brand.


Me too! Different brand mind you, and I still do it 40 years later except more surreptitiously on the corner of a handkerchief.

Stick to your instinct on this. I know exactly where you are coming from. I've got a diagnosis coming up in a couple of months time and I don't know how it will go, but I hope it rules some things out or in, and at least I can move forward from there. You clearly deserve to be treated more professionally than you have done to date, and I agree with others that making written notes and a summary of them which you can go through with people and refer back to the detail when necessary will show them that you have thought about it seriously. Sounds like the current situation is a bit more promising. Good luck with the diagnosis.


Thank you :) I told her that my goal for coming was for diagnosis. She mentioned that it's not something that can be diagnosed on a visit or two, that it takes time. She recommended I look up Temple Grandin when she called me up to make my 2nd appointment, she also informed me that she'd be my therapist and doctor. This was when she recommended that I write things down. So, I wrote things down, and explained a whole bunch of things from my childhood that gave me reason to suspect aspergers.

She mentioned something at one point during our 2nd meeting regarding people with aspergers but I can't remember what she said.

I told her another goal of mine was to be less 'socially ret*d' ... but chit chat is something that I would never like cause it's pointless :D

She gave me an assignment to write down facts/events/what was said in regards to a social encounter I had a few months ago that went 'bad'. she told me to draw a line down a sheet of paper and on one side put the facts, what was said ... and on the other side put how i felt, how things made me feel ... so i'm gonna go with that.

I'll be seeing her next week, so i'll do her assignment and go from there.

I think I'm gonna ask her maybe on my 4th visit if she's gonna administer any tests. Would this be appropriate?



qwan
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17 Jul 2013, 9:06 pm

Enquiring into how your treatment will progress and what you desire to happen is always appropriate. They'll tell you if you're expecting things too quickly or something, but it's a two way process. You are supposed to be building a relationship and getting comfortable enough with them so you can open up and they can assess you and aid you correctly, so any honest communication or queries are always good.
And her assignment sounds fun. Assuming it's about some kind of mindfulness.
Might be good to do for other encounters you've had or may have in the future if you find what she continues to use the assignment for is helpful. =]


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And wonderfully facially blind. XD


tall-p
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18 Jul 2013, 2:11 am

maeghan wrote:
i was really looking for help and it's like ... 'once again, people don't listen to me and what they do hear they completely misinterpret or take out of context.'


Diagnosis by psychiatrists are pretty meaningless. It's more of an art form than it is medicine... although the outcome 9 out of 10 times is that the "doctor" prescribes medicine and has you come back again and again and again and again. They don't cure... they manage.


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3point1four
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19 Jul 2013, 1:01 am

One thing that really helped me was having a letter from my husband which talked about some of my difficulties from his perspective. There were so many things about me that I was just so used to that I wouldn't have thought to mention. You mentioned being married, so maybe it would help if your husband could write down a few things and you could take those notes to your next appointment. (Although it sounds like things are going better for you in your assessment now. :) ).