People who don't take ASD seriously
gretchyn wrote:
This is one of those issues that strains my marriage. I have been diagnosed with AS, but I don't think my husband really believes it. I think he believes the condition exists, but not that I have it. However, he sometimes does: he'll be upset that I've been "faking it" and think that who he thought was the real me doesn't exist. Apparently he thinks I've tricked him (despite having told him that any "faking" was subconscious, and I didn't even know about my AS until 8 months ago...we've been together for 14 years), and it angers him. It feels terrible, doesn't it. Every time I've ever told anyone, they've said something along the lines of, "Oh, it must be very mild then," or, "You seem so normal." I think they don't understand how hard it is to maintain that facade, and I guarantee you that if we didn't do it, they wouldn't like the result. So either our difficulties and efforts are completely dismissed (or even criticized!), or we're shunned. Nice choice, huh?
As someone who had no idea I was ASD until 6 months ago, and previously thought I was normal I can relate.
It's not that you tricked him, more like you tricked yourself!
And that is the problem for us, we go through life trying to compensate for our shortcomings. Trying to toughen ourselves up believing that it will somehow make us overcome those difficulties. We make daily excuses for why we failed in task X, because we don't want to actually admit to failure. And above all we trick ourselves into thinking that we are perfectly normal, and that tomorrow we will find the secret to being socially adept and not messing up anymore.
Then you get diagnosed and all of a sudden you realise that your 'normality' was just a dream that you kept telling believing in to feel like everyone else.
I'm lucky that my wife is so understanding and doesn't accuse me of tricking her. But then we had an autistic son already, so that kinda prepared her for my own discovery.
_________________
Autistic dad to an autistic boy and loving it - its always fun in our house
I have Autism. My communication difficulties mean that I sometimes get words wrong, that what I mean is not what comes out.
BritAspie wrote:
To me there are two types of people in this situation:
Type 1- Uneducated: These are people who haven't heard of it before they don't necessarily discount it but they don't know enough about it.
Type 2- Haters: These are people regardless they know about it or not just brand it as an excuse for us to be as*holes or not to socialize.
The way to deal with type 1's is to educate them and for type 2's to shoot them down in flames.
Type 1- Uneducated: These are people who haven't heard of it before they don't necessarily discount it but they don't know enough about it.
Type 2- Haters: These are people regardless they know about it or not just brand it as an excuse for us to be as*holes or not to socialize.
The way to deal with type 1's is to educate them and for type 2's to shoot them down in flames.
I think you should add:
Type 3- Deniers: These are people who want to perceive you as normal because either they can't cope with the idea that you're abnormal, or they didn't catch it first and they think, therefore, that it must not be true.
vanhalenkurtz wrote:
Only counting cards in Vegas counts.
love this comment. Did anyone even stop a moment to understand what he is saying?
It is unrealistic to expect people who know you one way to understand you are another way. And why should someone else take the time to understand the inner workings of your highly subjective clock? People pay a therapist 100-150 an hour to understand, and even they cannot do it (and then they will probably make a wrong diagnosis and you will believe them because you do not want to think you wasted your money. The world of interactions is a shadow play, but play the hand you're dealt..
You are the way you interact. This is who you are to the person who knows you. When I finally shared that I am brain damaged with my children they couldn't understand, as they do not know the inner workings of my brain or my personal struggles, and that is sad to accept that no one else can ever completely know you,. but, better put, why should they be expected to?
Plus it is too personal, like pulling your shirt up in public and saying here, look at this pimple on my stomach. Of course that might make a lot of people uncomfortable.. I do not really see the functional value of telling anyone else that one is autistic....unless one is discussing it with others like oneself and maybe enquiring into it. I do understand wanting to share it with ones mate, but do not count on that person understanding...
littlebee wrote:
vanhalenkurtz wrote:
Only counting cards in Vegas counts.
love this comment. Did anyone even stop a moment to understand what he is saying?
littlebee wrote:
It is unrealistic to expect people who know you one way to understand you are another way. And why should someone else take the time to understand the inner workings of your highly subjective clock? People pay a therapist 100-150 an hour to understand, and even they cannot do it (and then they will probably make a wrong diagnosis and you will believe them because you do not want to think you wasted your money. The world of interactions is a shadow play, but play the hand you're dealt..
You are the way you interact. This is who you are to the person who knows you. When I finally shared that I am brain damaged with my children they couldn't understand, as they do not know the inner workings of my brain or my personal struggles, and that is sad to accept that no one else can ever completely know you,. but, better put, why should they be expected to?
Plus it is too personal, like pulling your shirt up in public and saying here, look at this pimple on my stomach. Of course that might make a lot of people uncomfortable.. I do not really see the functional value of telling anyone else that one is autistic....unless one is discussing it with others like oneself and maybe enquiring into it. I do understand wanting to share it with ones mate, but do not count on that person understanding...
Thank you Littlebee. This is actually a really difficult issue for me, in fact so much so that I cannot even bring myself to talk about it, it is just too much. But reading your post is really helpful to me. Thank you for sharing your thoughts on this subject. Hugs, Skibum
You are the way you interact. This is who you are to the person who knows you. When I finally shared that I am brain damaged with my children they couldn't understand, as they do not know the inner workings of my brain or my personal struggles, and that is sad to accept that no one else can ever completely know you,. but, better put, why should they be expected to?
Plus it is too personal, like pulling your shirt up in public and saying here, look at this pimple on my stomach. Of course that might make a lot of people uncomfortable.. I do not really see the functional value of telling anyone else that one is autistic....unless one is discussing it with others like oneself and maybe enquiring into it. I do understand wanting to share it with ones mate, but do not count on that person understanding...
Last edited by skibum on 31 Jul 2013, 10:48 pm, edited 1 time in total.
skibum wrote:
littlebee wrote:
vanhalenkurtz wrote:
Only counting cards in Vegas counts.
love this comment. Did anyone even stop a moment to understand what he is saying?
Its a reference to the film Rainman, in which Dustin Hoffman uses his 'Autistic Savant Skills' to count cards at a Vegas Casino. A stereotype that many NT's mistakenly attribute to those of us with ASD.
_________________
Autistic dad to an autistic boy and loving it - its always fun in our house
I have Autism. My communication difficulties mean that I sometimes get words wrong, that what I mean is not what comes out.
skibum wrote:
littlebee wrote:
vanhalenkurtz wrote:
Only counting cards in Vegas counts.
love this comment. Did anyone even stop a moment to understand what he is saying?
Its a reference to the film Rainman, in which Dustin Hoffman uses his 'Autistic Savant Skills' to count cards at a Vegas Casino. A stereotype that many NT's mistakenly attribute to those of us with ASD.
_________________
Autistic dad to an autistic boy and loving it - its always fun in our house
I have Autism. My communication difficulties mean that I sometimes get words wrong, that what I mean is not what comes out.
grahamguitarman wrote:
skibum wrote:
littlebee wrote:
vanhalenkurtz wrote:
Only counting cards in Vegas counts.
love this comment. Did anyone even stop a moment to understand what he is saying?
Its a reference to the film Rainman, in which Dustin Hoffman uses his 'Autistic Savant Skills' to count cards at a Vegas Casino. A stereotype that many NT's mistakenly attribute to those of us with ASD.
grahamguitarman wrote:
skibum wrote:
littlebee wrote:
vanhalenkurtz wrote:
Only counting cards in Vegas counts.
love this comment. Did anyone even stop a moment to understand what he is saying?
Its a reference to the film Rainman, in which Dustin Hoffman uses his 'Autistic Savant Skills' to count cards at a Vegas Casino. A stereotype that many NT's mistakenly attribute to those of us with ASD.
By the way, I couldn't count cards to save my life! I'm excited if I can just count and balance my checkbook!
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