Will there ever be a CURE?
loveturn
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Here's why:
To create a cure, we would have to know the genetic basis for autism. When we know the genetic basis for autism, a prenatal test will be developed that would allow autistic fetuses to be aborted. When that happens, funding for cure will vanish. This is a known pattern: When a prenatal test is found, research for cure stops.
Secondly. Autism is a neurodevelopmental disorder. Autistic brains are different from neurotypical at every level, microscopic and macroscopic. Your brain, and the way it connects, is YOU--your memories, your personality. To change that at such a global level, to remove the autistic connections and add in neurotypical ones, would also erase all your memories, all your skills, all of your personality traits. You would end up with a blank brain, a second infancy, and a neurotypical person wearing your face. If a person is the sum of the information stored in their brain, then to change an autistic person to a neurotypical one would be like killing the autistic person and letting the NT grow in their place.
We do not have the technology to change the brain at that level. We probably never will, at least not in our lifetimes. It may be possible with nanotechnology, but by the time that is possible, it will also be possible to do things like copy yourself from one brain into another. At that point we'll have more trouble than just the question of whether to cure autism.
The second point
But long before that, autism will be addressed by a prenatal test and widespread eugenic abortion. There will always be autistic people, because quite a few people won't get tested or won't abort just because their child might become autistic. But there will be fewer of us. Unless, that is, we can impress on the world that being autistic is okay--that aborting someone because they're autistic is about as bad as aborting because they're a girl.
The focus on a cure really hurts autistic people. If we sit around wanting a cure, we aren't living our lives. We let people tell us that we can't really live until we're magically NT. The focus on a cure means that therapy tries to normalize children instead of teaching them useful things. It causes people to devalue themselves for being disabled, as though disability were shameful. We can be happy just as we are, but the belief that a cure is a prerequisite for happiness will block us from even understanding that the possibility of happiness exists.
The second point definitely shows that a cure is not worth it. I don't want to erase what makes me "me." I like who I am. The thought of our personalities being erased is scary.
When I was younger I used to wish for a cure but then I realised that whilst I was wishing for that life was passing me by and so I just learned to live with it. I hope they will get a cure in the future because it's really hard especially when you are young.
In fact I would gladly given my right arm to have been cured and in all honesty if someone offered me a cure tomorrow I would still give my right arm. I absolutely hate being the way I am but I just don't think about it that much because I have to try and put it to the back of my mind and make the best of what I've got.
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babybird, why do you want a cure? I.e., if you could have one, what would you get that you don't have now?
Respect from others? Friendships? Self-esteem? The feeling of being valuable, whole, and healthy?
Because... well, think about it... there are ways to have those things while still being autistic. You don't have to sit there wishing for a fantasy world where a cure is possible, and you don't have to settle for second best.
Therapy can help you learn social skills, deal with sensory overload, improve your communication ability, manage your time... You can't become NT, but you can become a more capable autistic person. You can solve the problems in your life without ever having to pursue normalcy.
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There will never be a cure, unfortunately.
I am aware of that, but I do wish there was some drug (with no side effects) what could just reduce some of my social issues, that would make me more brave to speak up in social situations but not say stupid things either, and just be able to make more friends a little easier.
That's all I want, and would probably be enough cure for me, even though it wouldn't get rid of the inflamed ears, emotional outbursts, obsessions, and anxiety in other things. Actually, saying that, by having a better ability to make more friends, it might eventually help reduce my emotional outbursts, because I have those when I feel most angry at myself for not having many friends and feeling isolated.
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There are many thing that I will never achieve in my life because of having AS.
I was just trying to be honest with myself when I wrote the post. I've spent years being tough and not allowing myself to be pushed around and I think sometimes it helps to come down from all that and to just admit that everything's not ok.
I don't have any other family but my daughter who also has problems and I always have to fight for the both of us. If I could make everything alright for us both or even for just her then of course I would be prepared to make sacrifices.
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But you know things can be all right, even if you have AS, right?
I mean, they can. For plenty of us, they are. Life isn't perfect, but it's not perfect for NTs, either.
I'll never conduct an orchestra, win an Olympic medal, go on a space mission, or own an elephant. Most people won't. And they don't mourn over it. Similarly, I will never get married, be popular, or feel like a part of a crowd. I don't mourn over that any more than I mourn over my non-ownership of elephants.
I don't see why the things I can't do because of my disability should be seen as different from the things I can't do because I don't have the talent or the money or the inclination to do them. There will always be things we miss out on.
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I never noticed that I was different to anyone else until I had my daughter because I always associated myself with people on the fringes of society right from childhood.
I find it easy to live rough, go to jail, commit crime and survive in that way. After I had my daughter I had a massive breakdown because I just couldn't get to grips with mainstream life. I couldn't hold down a job, I would get singled out, ostracised, People would want to fight me and it would be me who'd get fired.
I am pretty tough, I will stand up to anyone and I show no fear even though sometimes I just want to curl up in a ball and cry. For most of my adult life I have felt like the public enemy number one and all I've ever wanted to do is provide for and protect my daughter. I am 40 now and the only advantage I have is that I am fitter, faster and a lot better looking than a lot of women my age from my social strata. but I would still hope for a cure.
I wouldn't wish my life on my worst enemy but I'm probably the one who's passed it through to my daughter. There is no justice there.
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KingdomOfRats
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agreed callista.
turtleoverhare,Joe90 and babybird,
have a read about the social model of disability,it may help with giving a different perception on life,the way society is taught to deal with disability is using the old medical model system; however this is how come so many people with autism have such low self confidence.
the social model is a more modern system which affects autism in so many ways.
autistics probably place more expectations,negatives and limits on themselves than anyone else does thanks to how the medical model has shaped peoples views,we need to be able to accept ourselves as worthwhile useful beings with lots of qualities before other people start to do the same.
here are some very good reads about the social model and also how the social and medical models differ.
http://asdteacher.com/medical-and-socia ... isability/
http://www.scope.org.uk/about-us/our-br ... disability
http://www2.le.ac.uk/offices/ssds/acces ... disability
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>severely autistic.
>>the residential autist; http://theresidentialautist.blogspot.co.uk
blogging from the view of an ex institutionalised autism/ID activist now in community care.
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I find it easy to live rough, go to jail, commit crime and survive in that way. After I had my daughter I had a massive breakdown because I just couldn't get to grips with mainstream life. I couldn't hold down a job, I would get singled out, ostracised, People would want to fight me and it would be me who'd get fired.
I am pretty tough, I will stand up to anyone and I show no fear even though sometimes I just want to curl up in a ball and cry. For most of my adult life I have felt like the public enemy number one and all I've ever wanted to do is provide for and protect my daughter. I am 40 now and the only advantage I have is that I am fitter, faster and a lot better looking than a lot of women my age from my social strata. but I would still hope for a cure.
I wouldn't wish my life on my worst enemy but I'm probably the one who's passed it through to my daughter. There is no justice there.
sounds like me I found it easy to live the criminal life also and im no b#tch either I may have aspergers but I guarantee I could most n/ts down in a fight...
I just like to get on with my life. All I said was that I would happily welcome a cure. I no it's not an answer to all the worlds problems but I'm sure an NT person wouldn't want AS so why is it so impossible for people to understand that I would rather not have AS either.
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I think here is a misunderstanding of what will a cure be like. It won't change your personality (it's already formed). It's almost impossible to think in re-wiring a whole brain.
A cure will improve your social skills and your cognition. It will be easier to develop cognitive empathy (ToM), and you won't be "overstimulated" so easily. You will still have your "special" interests, but they'll be less obsessive.
Obviously, you won't become a "neurotypical", it will still being harder than others to interact, but less hard, you'll have less intense "aspie" traits.
And there will not be a "total cure", but treatment to improve deficits (that's the point), and do not confuse it with some kind of "lobotomy".
If you want a cure it's Ok, but if you don't want it, don't intrude.
A cure will improve your social skills and your cognition. It will be easier to develop cognitive empathy (ToM), and you won't be "overstimulated" so easily. You will still have your "special" interests, but they'll be less obsessive.
Obviously, you won't become a "neurotypical", it will still being harder than others to interact, but less hard, you'll have less intense "aspie" traits.
And there will not be a "total cure", but treatment to improve deficits (that's the point), and do not confuse it with some kind of "lobotomy".
If you want a cure it's Ok, but if you don't want it, don't intrude.
I don't know about you, but I love that I'm so obsessive over my interests. In relation to increasing cognition, that only applies in social and emotional situations. We wouldn't be any more intellectual or smarter then we already are, because IQ and the way you think are not interchangeable. One can affect the other, but they are not synchronous. And in relation to one affecting the other, I really really don't believe for a second that gaining NT traits will make you smarter or a more well rounded person, especially since their emotions dominate their every decision.
There's really nothing more effective for treating autism than simply learning useful things. When you learn something, you physically change your own brain. That's why you are a different person now than you used to be when you were small. It's why your autistic traits as an adult are probably milder than they were when you were a toddler.
Treatments that help you learn might be useful. For autistics with ADHD, for example, stimulant medication can make it easier to learn.
But forcibly re-wiring a person's brain is a different thing. Instead of shifting things around to make room for new stuff, things would have to get destroyed. Anything that forces it to go faster than "learning speed" for you would mean destroying parts of who you are.
Now, if you're talking about improving autistic symptoms, we already have that. That's treatment. Some medications and many environmental changes can make it easier to learn. There's no substitute for the natural brain changes that come with acquiring new skills, and there never will be unless we learn to force those changes to happen too quickly to preserve your identity the way natural learning does.
By the way, d'you know why you can't remember much from before you were two years old? It's partly because your brain was changing too fast to keep a hold on old memories. When you were four, you were probably able to remember what happened before you were two, but by now, you can't. If you were to change someone's brain even as fast as it changes in infancy, the same thing would most likely happen... So there's a limit to how fast you can make changes, and that limit is not too much more than the learning you are capable of now, as you are.
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